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Dear List members,
I have been asking some private advice on a subject as was asked to post
it to the list and get some advice beyond what this person could give
me.  So, here goes.  I was initially diagnosed with panic disorder.  I
went for a period of about 8 months undergoing psychiatric counseling
and lots of antidepressants and anti psychotic drugs.  I was put in a
psyche ward for nearly a month.  All to no real avail.  I suffered many
side effects to the drugs and very little if any benefit.  There were
several times that I was extremely overmedicated.  After the psyche ward
in Oct. 98, I found a psychiatrist / neurologist in Los Angeles who
specialized in Panic disorder.  I went to see him in November and he put
me through a series of tests that brought him to the conclusion that
what I was suffering from was not panic disorder, but more in line with
a neurological disorder.  He sent me home (NC) with the idea that I
would see a neurologist here and get an accurate diagnosis.  I did see
someone who, upon hearing my whole story and what led me to come and see
him that day, proceeded to tell me that it was all in my head and that
there was nothing wrong with me.  His exam consisted of checking my
reflexes and my sense of touch by touching me with a kleenex and asking
me to rate how much I could feel it.  He suggested I see a psychologist
who deals with "woman problems".  Needless to say, I felt like I was
back to square one.  Over the course of the following month, my
condition worsened considerably and I went back to Los Angeles.  At this
point, the doctor felt that what he was seeing was something
parkinsonian so he decided to give me a sinemet challenge.  He had sent
me to see a movement disorder specialist a couple of days before who
concurred that this was probably all in my head.  I did the challenge,
and for the first time in all those months, I felt all of the discomfort
I had been experiencing melt away.  I was elated to feel normal again,
but devastated at the implications.  The movement disorder specialist,
even after the test, did not believe that it proved anything and he and
the other dr. are still not speaking.  Anyway,  my question is this.  I
am seeing a parkinson's specialist at Emory Univ. in about a week.  I
had planned to downplay the fact that panic disorder had been the label
of choice for a good while previous to pd.  My reason was being a bit
gun shy after what has happened in the past.  I feel that the label I
was given has caused a predisposition to thinking this is all in my
head.  Now, all those who know me well, never felt that anything was in
my head but I accepted the judgment of doctors as the final word.  The
person I was seeking advice from feels that I should not hide any facts
from my new doctor and that if they are professional, they will not be
influenced by the past and go more on what they see themselves.  I am
really nervous about this but I think that is good advice.  All I know
is that sinemet has made me feel normal again, and all the other drugs
seemed to make me miserable and I seemed to be worse off with every new
drug they tried.  I felt rather like a guinea pig but we seemed to be
getting nowhere.
I apologize for writing a book here, but any thoughts on this would be
greatly appreciated.  thanks in advance.
Jennifer Smith