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Dear Jennifer,
You've been through a horrendous experience, and I can understand your
pain and confusion, with such conflicting experiences from your
physicians. Although it might be necessary to try some different
treatments and medications in order to arrive at a diagnosis, I am very
surprised that a movement disorders specialist, knowing that Sinemet
improved your symptoms, would conclude it was "all in your head."

> Anyway,  my question is this.  I
> am seeing a parkinson's specialist at Emory Univ. in about a week.

Although I've not been to Emory, I have heard two PD specialists,
associated with Emory, speak at PD symposium, and both were very
knowledgeable. I hope you'll get the proper treatment there. Is there
any chance that a relative, friend, or significant other could come with
you and back you up in your assertions of past experiences? Sometimes
having reinforcements can help a lot.

I do feel, in general, that it's best for physicians to have complete
information, in order to give the best possible diagnosis/treatment.
Charlie? Bob Fink? Any thoughts here?

Best regards,
Kathrynne


--
Kathrynne Holden, MS, RD
"Nutrition you can live with!"
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
Tel: 970-493-6532 // Fax: 970-493-6538
"If we knew what it was we were doing,
it would not be called research,
would it?" -Albert Einstein