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Joan,sounds like your husband is having a tough time. Wish I had some answers for you. How long and at what dosage did the hallucinations appear? What dosage is he supposed to go up to? I have just started on Mirapex for about five weeks now and haven't seen any benefits at1 mg. I am supposed to go to 1.5 mg next week which is the end dosage to be maintained. It sounds like you have had a troublesome search for the right doctor. Best wishes to you and your husband. [log in to unmask] -----Original Message----- From: Joan Etheridge <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, February 18, 1999 3:45 PM Subject: Shaking & Wear off time >Thanks for the imput so far on the above. I'll give more detail as requested. >My husband has had pd for 12 or 13 years. Goetz at Pres St. Lukes confirmed >it, but said it would probably only be left sided...Husband was working at the >time so did not continue there as traffic stressed him out coming home that >late in the day after work. He found a neurologist that knew nothing about pd >& let him do as he thought he should. When he retired at age 64, we found >another Doctor who was seeing along with his team (400 pd patients) --4 >doctors. This doctor was into new meds & programs that he was documenting. >Well & good, but husband did not want to go along with this. We say another >Dr. new in the business which did not work out...the doctor we are with now is >a neurologist...nice, but after working with my husband says none of his >patients exhibit his symptoms & so cannot help. He suggest >a doctor specializing in pd. Husband is on mirapex, 5 tablets of .025 daily, >2 at 7, 2 at 12:00 noon & 1 at 6 p.m. Sinimet 25/100's 4 daily, one at 8, 10, >12 & 2. We've tried the time ones, do not work. We've increased mirapex & >hallucinations occur. >Has tried the new drug, taszmar, did not work--more correa & shaking. I've >video's his tremors & shown the doctors & they have not seen anything like it. >I'm trying to locate another doctor--maybe it will be a consultation at Pres >St. Lukes with Dr. Goetz or another somewhere. Some of the problem lies with >working with my husband. He is afraid everyone is trying to get him to have >surgery...also has many other fears...am not sure drug induced, but they come >& go. Lately his 10:00 time has been a series of severe shaking, but today >again he was fine until this evening. The shake downs leave him exhausted, >totally wet from perspiring, his eyes close so he can't see & his has to pry >his lids open. Last anywhere from ahalf hour to mostly an hour sometimes >longer. >Maybe this will be more informative for those of you who asked. Thanks. Joan