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At 12:29 1999/02/26 -0500, you wrote: >My mother was diagnosed with PD at the age of 43. She is now 57. She >suffers through a lot of pain, extreme rigidity, and burning sensations. A >few years ago we learned about reducing the protein count in her diet and >that helped quite a bit. (She eats no meat and we keep track of her protein >input everyday in a logbook. She is averaging about 32 grams of protein per >day.) Unfortunately, her weight has gone from 134 pounds to 91 pounds. She >takes 650 milligrams of Sinemet between 7am and 9pm. And she takes Restoril >and Elavil before going to bed. We are now contemplating pallidotomy. Her >body is rarely able to "link" between Sinemet doses. She cannot have >several light meals throughout the day because any amount of food in her >stomach interferes with the Sinemet. Hence, not only does she avoid >high-protein foods but, also, high fiber foods. She cannot wait a long >period of time for all the food to digest because the PD symptoms are too >excrutiating. At this time her worst symptoms are these sensations that her >head is about to explode off of her neck like a rocket ship and inside her >skull if feels like she has been beaten with a baseball bat. This is an >every day occurrence. > >I would like more information on pallidotomy surgery. I have found some >information at www.axonet.com but I would like information about its success >rate and the statistics of what symptoms were alleviated and for how long, >etc. Does anyone know where I can find this information? > >Teresa your tracking the protein in a logbook is a great idea maybe you could do the same analysis on her med intake and her symptoms? maybe your mother can benefit from better med and symptom management? how long has she been taking restoril and elavil? and why? has your mother's pd been evaluated by a movement disorder specialist? how many pd patients does her current medico treat? at what stages? there have been mixed results from pallidotomies some wonderful, some terrible there has been some negative post-op association with obsessive complulsive behaviour an irreversible lesion in the brain is something that i don't think i could consider now for myself in light of the myriad of other research options taking place [just my own humble opinion] if you do a search in our pd list archives under 'pallidotomy' your computer might blow up [!] so here's a start: ----------repost begin---------- Date: Tue, 19 Jan 1999 06:52:08 -0500 From: janet paterson <[log in to unmask]> Subj: PD Surgery: Hole-in-the-Head-Gang stories hi all just a reminder that some courageous not to mention generous cyber-siblings of ours [Don Berns, Jim Finn, William Heitman, Jane Ross, Greg Leeman, Joan Snyder, Jeanna Bartlett, Cheryl B., Joan Holliday, Moira MacPherson, George J. Lussier] have shared their PD-related brain-surgery stories at: The Hole-in-the-Head Gang <http://www.parkinsonalliance.net/medical/hihgang.htm> ----------repost end---------- janet janet paterson - 51 now /41 dx /37 onset - almonte/ontario/canada <http://www.newcountry.nu/pd/members/janet/index.htm> [log in to unmask]