Especially for Debbie White--see the first entry re: APDA Referral Center.
With a number of new members, who have lots of questions, it is time to
send the following post again:
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Here is a partial list of useful addresses,including some internet sites,
culled from various sources:
* The easy way to find a movement disorder specialist is to dial
1-888-400-2732. This toll free number will ring in the American Parkinson
Disease Association Information & Referral Center.
*National Family Caregivers Association: (301)942 6430
1 800 896 3650
* Addresses for national PD organizations:
American Parkinson Disease Assn.(APDA)
60 Bay St.,Staten Island, NY 10301
(800) 223-2732
http://www.apdaparkinson.com/ (includes directory of support groups)
Parkinson's Disease Fndtn.
710 West 168th Street 3rd floor
New York,NY 10032 - 9982
212 - 923 - 4700or
800 - 457 - 6676
United Parkinson Fndtn.
360 West Superior St., Chicago, IL 60610
(312) 664-2344
National Parkinson Fndtn.,Inc.
1501 Ninth Ave. NW, Bob Hope Road, Miami,FL 33136
(800) 327-4545
http://wwwparkinson.org
Parkinson Action Network (PAN)
822 College Ave.,Ste.C
Santa Rosa,CA 95404
(800) 850-4726
http://www.pdaction.org/ (political action/advocacy for PD
research funding)
* Parkinson Disease Archives
http://www.impulse.net/~gjohnson (medical journal abstracts,
maintained by APDA)
* Parkinson Disease Home Page
http://www.santel.lu/SANTEL/diseases/parkins.html (lists links to
websites)
* Parkinson's Web
http://www.pdweb.mgh.harvard.edu (medical aspects,from Harvard
Med .School
and Massachusetts General Hospital)
* National Institute of Health Research News Parkinson's Disease
http://www.nhgri.nih.gov/DIR/LGDR/PARK2/
* Awakenings
http://www.parkinsonsdisease.com/ (open forum--latest news on
treatments)
* Neuroscience Journals Online
http://www.xmission.com/~gastown/dorrell/neurojnl.htmP
* --products and services for incontinence-see the "Resource Guide"
published by the National Assn. for Incontinence, PO Box 8310,
Spartanburg,SC 29305-8310
1-800-252-BLADDER, OR see their website at Http://www.nafc.org
Camilla Flintermann, CG for Peter 80/9+
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
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* Ask me about the "CARE " list *
* for caregivers of Parkinsonians *
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