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Hello,

Did anyone read the article on PD in the March-April 1999 issue of
Modern Maturity?  The author, D. Keith Mano, is a writer who is also
a PWP.  It's good to be getting still more attention, but I'm not
quite sure what to make of this particular piece.

Mano calls his PD "Parkinson's condition".  He personifies it,
describing it as an "oafish" cousin who visits, doesn't leave, and
then becomes a big problem.  Mano refuses to get angry; instead he
decides to give "him" a name -- "Bert", and develops a "reluctant
fondness" for "him".

Believing that Sinemet has a "honeymoon period" of only 3 to 5 years,
Mano delayed taking it for about 5 years.  During that period he
developed considerable stiffness and bradykinesia.  His attitude
toward these changes was to initially regard them as a challenge and
a curiousity.  He only became spooked later when he started getting
emotional (he found this emergence of the "feminine" to be
"disconcerting") and after a great deal of stiffness had set in,
resulting in loss of the use of the fingers of his right hand and
other "very, very bad" symptoms.

Sinemet, of course, worked its wonders, nearly eliminating his
symptoms.  But, he writes, "perversely enough, something in me still
needs the challenge of my condition..."

I'm not sure whether this article does us a service or not.  I find
the phrase "Parkinson's condition" to be inappropriate. It's not just
that everyone in the field of medicine calls it by its proper name,
"Parkinson's disease".  To me "Parkinson's condition" tends to
minimize the illness.  Beyond all the considerable discomfort and
disability we endure, we are 3 to 4 times more likely to die of
pneumonia* and 6 to 7 times more likely to become demented**
compared to the general population.

Mano's way of personifying his disease strikes me as like an attempt
to regard a grizzly bear as a Teddy bear.  Perhaps Mano is still
struggling with denial.

Phil Tompkins
Hoboken NJ
age 61/dx 1990

* Gorell JM, Johnson CC, Rybicki. "Parkinson's disease and its
comorbid disorders: an analysis of Michigan mortality data, 1970 to
1990." Neurology, 1994,Oct;44(10):1865-8.

** Lang AE, Lozano AM.  "Parkinson's disease."  NEJM,
1998,Oct;339(15):1044-53.