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^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ******************************************************************** --------- Forwarded message ---------- From: [log in to unmask] To: [log in to unmask] Date: Wed, 10 Mar 1999 21:15:46 -0500 Subject: Re: Plans for National PD Awareness Day Message-ID: <[log in to unmask]> WOW!! Ivan On Wed, 10 Mar 1999 18:31:18 -0600 Stan or Joan Snyder <[log in to unmask]> writes: >Hello all: I 'd just like to take the time to ask for your prayers >and >support for what we here in Chillicothe, Ill. have planned for >National >PD awareness day. There is an artist from Chillicothe; her name is >Jane >Scott. Her father was a teacher at the local high school for many >years >until Parkinson's came into his life & changed things completely for >his >family. Jane & a friend, Marc Esser began to chronicle the battle >that >Claude Scott waged with PD. Marc's work was objective-he photographed >Claude, while Jane's work was completely subjective. Together they >produced an exhibit that is powerful, heartbreaking and breathtaking >in >its sheer tour de force. The exhibit, titled: "The Letting Go: A >Parkinson's Story" was shown at Bradley University for a time >1995-1996. >After some recognition by a national PD organization, it started to >tour >the country, only to be pulled before it's tour was completed. It has >since been gathering dust in a building at Caterpiller. Well, I met >this >remarkable woman recently & we became fast friends. Her father had >died >in the meantime and while it has been painful for her to take another >look at this work, she has agreed that it must be used to help >promote >awareness and hope in finding a cure. To this end, we have been >working. >Here is a brief look at what we have been doing-We have scheduled the >work to be shown at Shore Acres Park in their beautiful, Tara-like >building overlooking the Illinois River, on the 10th & 11th of >April.We >have been in touch with Susan Reuse (National Coordinator APDA Young >PD >Information & Referal Center) who has already helped us out with a >large >banner and a promise of materials to be used as handouts and other >information that we may need. Yesterday, joined by my friends, Sandy >Norris & Carter Stewart (fellow PWP's), we were interviewed by a TV >reporter from our local station, who has also ssaid that she would be >our spokesperson. She gathered enough info to do a series of stories >on: >1) the internet connection-the cyber support that we have found in >our >pd chatroom which eventually brought the three of us together. We had >not met face-to-face before. 2) We talked about my upcoming collegen >injections for which i will undergo harvesting of skin cells on March >19th. After 8-10 wks. to grow the collegen, it will be injected into >my >vocal chords to help me speak again. As far as we know, this will be >the >first time that this procedure will have been done in the Midwest. 3) >The actual plans for our PD Awareness Day. As plans unfold, there >will >be more interviews. > My friend & co-hort, Tom Kelly (another PWP) is in charge of >contacting the >national organizations and seeing what kind of interest we can >generate >there. The mayor of Chillicothe (whose uncle had PD) & the >newly-elected >alderman (whose father & father-in-law both have PD) have both >pledged >their support. The local newspaper interviewed us after the TV >station >did. We have people working on t-shirts, refreshments, and finally >corporate sponsorship-to put this powerful work back on the road >where >it can educate the public & raise, I hope awareness & money & help us >to >find a cure! Sincerely, > >-- >Joan E. Snyder (47-8-10) <[log in to unmask]> >"In the depths of winter I finally learned there >was in me an invincible summer" Albert Camus >http://www.newcountry.nu/pd/members/snyder/page1.htm ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************