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^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 28 deg. F :-) ******************************************************************** --------- Forwarded message ---------- From: [log in to unmask] To: [log in to unmask] Date: Wed, 10 Mar 1999 21:21:08 -0500 Subject: Re: Plans for National PD Awareness Day Message-ID: <[log in to unmask]> I am writing a Joint House Senate Resolution with State Rep. Bill Norbert, Portland. April 11 (Dr. James Parrkinson was born on this day) is World Parkinson's Day. Good luck! Ivan S. :-) On Wed, 10 Mar 1999 17:14:48 +0000 serenityplus <[log in to unmask]> writes: >Hi, > >Some of us in the SF Bay area are jumping on the bandwagon to do >something about awareness for April statewide, like Maine and New >Jersey. But when is National PD Awareness Day? And are there any PD >organizations involved? Please respond ASAP, as we need to move fast >our here to get something together. Thanks! Ann > >Stan or Joan Snyder wrote: >> >> Hello all: I 'd just like to take the time to ask for your prayers >and >> support for what we here in Chillicothe, Ill. have planned for >National >> PD awareness day. There is an artist from Chillicothe; her name is >Jane >> Scott. Her father was a teacher at the local high school for many >years >> until Parkinson's came into his life & changed things completely for >his >> family. Jane & a friend, Marc Esser began to chronicle the battle >that >> Claude Scott waged with PD. Marc's work was objective-he >photographed >> Claude, while Jane's work was completely subjective. Together they >> produced an exhibit that is powerful, heartbreaking and breathtaking >in >> its sheer tour de force. The exhibit, titled: "The Letting Go: A >> Parkinson's Story" was shown at Bradley University for a time >1995-1996. >> After some recognition by a national PD organization, it started to >tour >> the country, only to be pulled before it's tour was completed. It >has >> since been gathering dust in a building at Caterpiller. Well, I met >this >> remarkable woman recently & we became fast friends. Her father had >died >> in the meantime and while it has been painful for her to take >another >> look at this work, she has agreed that it must be used to help >promote >> awareness and hope in finding a cure. To this end, we have been >working. >> Here is a brief look at what we have been doing-We have scheduled >the >> work to be shown at Shore Acres Park in their beautiful, Tara-like >> building overlooking the Illinois River, on the 10th & 11th of >April.We >> have been in touch with Susan Reuse (National Coordinator APDA Young >PD >> Information & Referal Center) who has already helped us out with a >large >> banner and a promise of materials to be used as handouts and other >> information that we may need. Yesterday, joined by my friends, >Sandy >> Norris & Carter Stewart (fellow PWP's), we were interviewed by a TV >> reporter from our local station, who has also ssaid that she would >be >> our spokesperson. She gathered enough info to do a series of stories >on: >> 1) the internet connection-the cyber support that we have found in >our >> pd chatroom which eventually brought the three of us together. We >had >> not met face-to-face before. 2) We talked about my upcoming >collegen >> injections for which i will undergo harvesting of skin cells on >March >> 19th. After 8-10 wks. to grow the collegen, it will be injected into >my >> vocal chords to help me speak again. As far as we know, this will be >the >> first time that this procedure will have been done in the Midwest. >3) >> The actual plans for our PD Awareness Day. As plans unfold, there >will >> be more interviews. >> My friend & co-hort, Tom Kelly (another PWP) is in charge of >> contacting the >> national organizations and seeing what kind of interest we can >generate >> there. The mayor of Chillicothe (whose uncle had PD) & the >newly-elected >> alderman (whose father & father-in-law both have PD) have both >pledged >> their support. The local newspaper interviewed us after the TV >station >> did. We have people working on t-shirts, refreshments, and finally >> corporate sponsorship-to put this powerful work back on the road >where >> it can educate the public & raise, I hope awareness & money & help >us to >> find a cure! Sincerely, >> >> -- >> Joan E. Snyder (47-8-10) <[log in to unmask]> >> "In the depths of winter I finally learned there >> was in me an invincible summer" Albert Camus >> http://www.newcountry.nu/pd/members/snyder/page1.htm ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************