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n:PhD;Michael F. Martelli,
tel;pager:804-342-2157
tel;fax:804-346-1956
tel;home:804-266-2720
tel;work:804-747-8429 / 270-5484
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title:Director, Medical Psych & Rehab Neuropsych
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=========================================================================
Date: Wed, 24 Mar 1999 06:47:02 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Leo Fuhr <[log in to unmask]>
Subject: Re: Tune into WGMS and WTOP
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
This is great news, Hilary!! The thing I wonder about is the paring down
to eight minutes an hour's worth of Q & A. Thanks to you and Anne Gill and
Chava Slavek for getting the message of young onset PD to the media.
Jeanette Fuhr
----------
> From: Hilary Blue <[log in to unmask]>
> To: [log in to unmask]
> Subject: Tune into WGMS and WTOP
> Date: Wednesday, March 24, 1999 5:57 AM
>
> P.S. I almost forgot the most important part!
>
> The ISSUE we spoke on was PARKINSON'S DISEASE AND ITS EFFECT ON THE
YOUNGER SET
>
> And the second most important thing:
>
> it will be broadcast on the first weekend in April
>
> Hilary Blue
=========================================================================
Date: Wed, 24 Mar 1999 07:47:56 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Gerry & Brig Haines <[log in to unmask]>
Subject: Re: Thanks!
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
My sympathies to you and your family on the loss of your mother, please know
that our prayers and thoughts are with you.
Gerry and Brig
=========================================================================
Date: Wed, 24 Mar 1999 08:37:01 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jennifer Smith <[log in to unmask]>
Subject: Re: Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear Phil,
Just a thought, the next time you come to the Smokies, if it fits in your
travel plans, go to Cherokee (33 miles across the park from Gatlinburg). You
will be on hwy441. Follow that road until you see a McDonalds on the right.
Past Big Boy and Comfort Suites. Right across the street from the Mc Donalds
is my shop. The Cherokee trader. There is a bay window with a sign that
says airbrush. Thats me. Come visit.
Jennifer Smith
philip j lammers wrote:
> Good morning Karen,
>
> And it is a good morning. In the words of the Mayo Clinic neurologist
> who diagnosed me about 16 years ago, "Of all the neurological diseases,
> you have the most treatable."
>
> I am Philip Lammers of Oostburg, Wisconsin (between Milwaukee and Green
> Bay). I, as you was diagnosed at age 42 and had 3 children. At that
> time my teen aged son had a best friend living only two blocks from us
> who also had a father living with PD. They did some comparing of
> notes.
>
> I have not lost one day of work because of PD other than visiting my
> doctor every six months. I have been fortunate enough to experience such
> enjoyable things as a two week motorcycle to the Smokey Mountains and was
> involved on a number of work trips to flood ravaged areas in Illinois
> several years ago.
>
> I credit this in part to a more conservative doctor now treating me, a
> desire to keep busy and not let it beat me. Most of all, however, I give
> praise to God in whom I have learned to put my trust and faith.
>
> Good luck,
>
> Phil
=========================================================================
Date: Wed, 24 Mar 1999 08:41:00 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jennifer Smith <[log in to unmask]>
Subject: Re: Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear Karen,
Welcome. I am 41 and was diagnosed is Jan of this year as well. I am
afraid I have no aswers for you since I don't suffer the same problems you
are having and I have no children to explain this to. All I can offer you
is that you are not alone and I am sure you will find this list as
comforting and infomative as I have. Hang in there. there are a lot of
very knowlegeable people here who want to help.
Jennifer
=========================================================================
Date: Wed, 24 Mar 1999 09:09:16 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Dale Severance <[log in to unmask]>
Subject: I have excess medicine for Parkinson disease
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
One of our suppore group members died and left me holding the following
medicine.
1. 25mg/250mg carbidopa/levodopa
2. a second bottle of the above medicine
3. Tasmar 200mg tablets
4. Tasmar 100 mg tablets
5. Mirapex 100mg
If as in the past any listmember can use them e-mail privately to me
Dale
If
=========================================================================
Date: Wed, 24 Mar 1999 08:44:02 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Merlin H Brown <[log in to unmask]>
Subject: Re: Introduction
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
karen,
i was diagnosed 8 years ago at the age of 48. at that time my two
toungest were 22 and 13. my wife and i immediately told our children. we
didn't know much about pd, so our kids learned with us.
a mistake i made, was asking them not to tell anyone. i was having a
tough time accepting it myself. i went through the normal depression,
denial, reluctant acceptance, and finally " what the hell. i have it,
let's deal with it". i have learned that complete openness about the fact
that i had pd was beneficial to both me and my family.
i try to keep my kids apprised of my progression( they probably know it
long before i tell them).
i have also learned that feeling sorry for myself is a waste of time and
energy. as scarlett o'hara so succintly put it,"i'll worry about that
tomorrow"
murph brown
=========================================================================
Date: Wed, 24 Mar 1999 09:39:50 -0500
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
Subject: Re: request for help
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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J:
5 Sinemet CR a day seems extremely high dosage! I would at least take her
for another opinion. Wherever you live, try to find the closest Parkinson's
Center Of Excellence. You can get this information from NPF, APDA, or my
page listed below.
Jeana 46 now/14yrs.diag/33yr.onset
[log in to unmask]
http://www.mindspring.com/~jeana/
=========================================================================
Date: Wed, 24 Mar 1999 09:53:41 -0500
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
Subject: Re: Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Karen,
Welcome. There are more and more of us Young Ones out there. Funny, we
consider ourselves 'old' when we are in our 40's but in PD that is very
young!
Your daughter needs to understand what the effects of PD are. I made the
mistake of not involving my boys too much...just didn't talk about it. It
needs to be a family affair.
Don't neglect the support group. I did the same thing...I didn't want to see
how I was going to be in my elder years whenever I looked at the members.
They need you and you need them. I missed alot of good knowledge those first
years because I felt I didn't fit in. In time, more younger ones will join
and you can be a help to them.
My Best,
Jeana 46/14dx/33onset
[log in to unmask]
Business site: http://www.agoraexpress.com
Personal site: http://www.mindspring.com/~jeana/
=========================================================================
Date: Wed, 24 Mar 1999 09:48:47 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: [log in to unmask]
Subject: Re: Introduction
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Jane Ross,
My name is Bettie Schmeck . In looking at the e-mail I gather you live in
Klamath Falls/???????So do I . If this is correct please write me back and we
can talk longer. Write me at BeaSmek. Waiting to hear from
you/...............Bettie
=========================================================================
Date: Wed, 24 Mar 1999 10:20:55 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: Re: Introduction
Comments: To: Jeana Bartlett <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
That is some very fine advice you have given Karen. May I second everything
you have said. I have written to Karen off list to give her my daughters
address in case her dauighter would like to correspond - if any other
teenagers are interested , please write to me off list.
And Jeana, how come I have never seen your name before? You are so right
about support groups - I am the bab (at 50) in our support group - but I;ve
probably had PD the longest (26yrs) so it depends how you count seniority!!!!
Hilary Blue
**********************
Jeana Bartlett wrote:
>
> Hi Karen,
> Welcome. There are more and more of us Young Ones out there. Funny, we
> consider ourselves 'old' when we are in our 40's but in PD that is very
> young!
>
> Your daughter needs to understand what the effects of PD are. I made the
> mistake of not involving my boys too much...just didn't talk about it. It
> needs to be a family affair.
>
> Don't neglect the support group. I did the same thing...I didn't want to see
> how I was going to be in my elder years whenever I looked at the members.
> They need you and you need them. I missed alot of good knowledge those first
> years because I felt I didn't fit in. In time, more younger ones will join
> and you can be a help to them.
>
> My Best,
>
> Jeana 46/14dx/33onset
> [log in to unmask]
> Business site: http://www.agoraexpress.com
> Personal site: http://www.mindspring.com/~jeana/
=========================================================================
Date: Wed, 24 Mar 1999 08:32:34 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Bernard Barber,Ph.D." <[log in to unmask]>
Subject: Kadish
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear Fellow List Members,
One of our dearest friends and caring contributors to this list, and to the
total effort in the management and fight for a cure of Parkinson's, Barb of
LA County fame, is having a funeral for her mother in Los Angeles, at 11:30
AM Pacific Time. I have asked a number of list members to join me in the
saying of Kadish, a special pray for the dead at that time. I also asked
Barb if this would be OK with her, She said, " yes ".
May I ask those who would like to participate, that at that time either
locally or corresponding to the PT, take a moment to observe a silent
reflection or pray in appreciation of Barb's presence in our mutual effort
of dealing with Parkinson's Disease.
Sincerely,
Bernie Barber
=========================================================================
Date: Wed, 24 Mar 1999 16:30:05 +0100
Reply-To: "bernard.shaw" <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "bernard.shaw" <[log in to unmask]>
Organization: GODHELPUSALL
Subject: New Members.
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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There are many new PWPs arriving at the list. I welcome you all with a
greeting from Austria. Bern.
http://members.teleweb.at/bernard.shaw/Poetry.txt
[log in to unmask]
=========================================================================
Date: Wed, 24 Mar 1999 10:35:24 -0500
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
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HELP
Jeana
[log in to unmask]
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------=_NextPart_000_027E_01BE75E2.06A83C20--
=========================================================================
Date: Wed, 24 Mar 1999 10:40:35 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Settlement offered
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses 50 deg. F :-)
********************************************************************
Deara friends,
The City of Portland has recognized the unusual needs of a young-onset
Parkinsonian at the beginning of his 14th year of the"battle of PD."
Having done so, it has changed a series of responses it provided when
considering the consequences of being a PWP.
The results are that a SETTLEMENT has been offered, and court can be
avoided. The attorney who
is representing me is the civil rights director of the federally-funded
(one in each state, I guess) program for people with disabilities.
The main features include my right to share details of the settlement
with no restrictions on freedom of speech, my right to expend what little
monies I receive as I see fit, my right to provide a doctor's,
physician's assistant's or nurse's writing as unchallenegeable proof of
an expense being a "health" related necessity, and the
annual,automatically renewed TAX (80%)and SEWER relief(100%)
that I need.
Finally, the City can never acquire the property if it is liened for
the 20% ungranted.. Emergency General Assistance funds will pay tthe 20%,
if that happens.
Comments are welcome.
Ivan Suzman 49/39/36
=========================================================================
Date: Wed, 24 Mar 1999 15:26:21 +0000
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Silvana <[log in to unmask]>
Subject: Introduction
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear Listmembers
dear Barbara Patterson
Thank you Barbara for your welcome. I have been reading these days (or trying to!), but it is quite difficult for me to understand because of the many abbreviations and also because english is not my usual language. So please excuse my english. I cannot do it better than that. Thank you.
I am Swiss citizen, german mother-tongue, but since 1990 living in Portugal, because my husband is portuguese. One of my very best friends here, Amalia, has PD (diagn. about 20 ago). She is now 49. As a foreigner, I do not know things very well in Portugal and I would do everything I can to help her, but it is difficult to obtain a) information and b) adequate med. care.
I only know Amalia now for 2 years and it took me some time until I discovered that something was wrong with her health. Amalia did not know very well the "kind of illness" she suffered - people in this part of the country are not always knowing about things - so I asked her to show me the medicaments, because I wanted to find out which kind of help could be given to her. She showed me Sinemet and Pazolan, besides Antidepressiva and sleeping pills (and many others which she had stopped to take). These medicaments had been pres-scribed to her some YEARS ago and the only thing her doctor did in all these years was to renew the recipes when they went out of validity. There was no check-up, no analyses, no suggestion to see a neuro-doctor, nothing. When I saw Sinemet I immediately thought of PD and I asked her, if she was ever told to suffer PD. Oh yes, that's the word, that's what the family doctor said to me some 20 years ago...
Somebody might think, it's her own fault, but no, people here are living very simple and most of the modern knowledge or technologies did not yet reach until here, this mountain part of Portugal. And the public medical system does not offer what in other parts of the world is considered as normal. So if a disease is more or less supportable for the ill person and does not ask for hospitalization, they live with the illness. In the last weeks my friend feels very bad. She awakes with her face all swollen, terrible head-ache, more trembling than before and anuble to sleep even with calmant.
I joined this group with a great wish to learn in order to be able to help. Here is what I mostly would like to know:
1. which kind of specialist we have firstly to consult
2. how often should further (normal) checks occur
3. which kind of analyses have to be made and how often afterwards
4. is there any organization in Portugal known by you (we did not find)
Please excuse if this list is not the right place for these questions. It is the only address I found out and being so sad seeing my suffering friend, I just risked to catch at the unique straw I saw.
I wish all the best to everybody and send a heartful of good thoughts to all of you.
Best regards,
Silvana Seilaz, Portugal
=========================================================================
Date: Wed, 24 Mar 1999 11:53:12 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Bonnie Cunningham, R.N." <[log in to unmask]>
Subject: Young Onset PD
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear List Members:
There have been quite a few postings from young onset PWP's lately and it
is evident that there is a lack of young onset support groups. I do have
several (but not nearly enough) listings of young onset groups. If anyone
wants to determine if there is a group in their area, please contact me
([log in to unmask]) or by phone (800)327-4545.
If no young onset group exists in your area, I encourage you to start one.
There may be several young people in your area that are also seeking a
group. We (NPF) have a 'Support Group Leaders Manual" that is quite
thorough and tells you how to go about starting a group as well as ideas
for maintaining the group. It gives ideas on discussion topics and makes
suggestions for guest speakers.
While in some ways I agree that most everyone can benefit and learn from a
"general" Parkinson's support group, I feel that in many instances, it can
be too overwhelming for a young onset person to join such a group. Often,
it is impossible for the newly diagnosed to differentiate what what they
may see in the older indvidual. They cannot tell what symptoms are caused
by Parkinson's, what is caused by the normal "aging process" and what may
be caused by other ailments a person may have. Also, a young onset person
has different "issues" to deal with than their older counterpart. These
issues can include, among others, employment issues, child rearing issues
(including when and what to tell young children) and pregnancy and PD.
Sincerely,
Bonnie Cunningham
Patient Services Director
NPF
=========================================================================
Date: Wed, 24 Mar 1999 12:08:38 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Charles T. Meyer, M.D." <[log in to unmask]>
Subject: Kaddish
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Below is the English translation of the Kaddish- the Jewish prayer for
the dead. For those who feel comfortable in saying it in memory of
Barb's mother it is here. For those who would prefer to say their own
prayer out of their own tradition- or have a moment of silence in her
memory I am sure knowing Barb that she would appreciate that expression
every bit as much.
We love ya Barb.
Charlie
Kaddish in English
Glorified and sanctified be G-d's great name throughout the world
which
he has created according to his will. May he establish his kingdom in
your
lifetime and during your days,
and within the life of the entire house of Israel, speedily and soon;
and say,
Amen.
May his great name be blessed forever and to all eternity.
Blessed and praised, glorified and exalted, extolled and honored,
adored
and lauded be the name of the Holy One, blessed be he,
beyond all the blessings and hymns,
praises and consolations that are ever spoken in the world; and say,
Amen.
May there be abundant peace from heaven, and life, for us and for all
Israel; and say, Amen.
He who creates peace in his celestial heights, may he create peace
for us
and for all Israel; and say, Amen.
--
******************************************************************************************
Charles T. Meyer, M.D.
Middleton (Madison), Wisconsin
[log in to unmask]
******************************************************************************************
=========================================================================
Date: Wed, 24 Mar 1999 12:06:14 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Kaddish
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Thank you Charlie. I loved the prayer, and will keep it. I have to say
my Kaddish a little earlier than the rest of you, but I will be with you
all in spirit at 11:30 PST.
Best,
Kathrynne
"Charles T. Meyer, M.D." wrote:
>
> Below is the English translation of the Kaddish- the Jewish prayer for
> the dead. For those who feel comfortable in saying it in memory of
> Barb's mother it is here. For those who would prefer to say their own
> prayer out of their own tradition- or have a moment of silence in her
> memory I am sure knowing Barb that she would appreciate that expression
> every bit as much.
>
> We love ya Barb.
>
> Charlie
> Kaddish in English
>
> Glorified and sanctified be G-d's great name throughout the world
> which
> he has created according to his will. May he establish his kingdom in
> your
> lifetime and during your days,
> and within the life of the entire house of Israel, speedily and soon;
> and say,
> Amen.
>
> May his great name be blessed forever and to all eternity.
> Blessed and praised, glorified and exalted, extolled and honored,
> adored
> and lauded be the name of the Holy One, blessed be he,
> beyond all the blessings and hymns,
> praises and consolations that are ever spoken in the world; and say,
> Amen.
>
> May there be abundant peace from heaven, and life, for us and for all
>
> Israel; and say, Amen.
>
> He who creates peace in his celestial heights, may he create peace
> for us
> and for all Israel; and say, Amen.
>
> --
> ******************************************************************************************
>
> Charles T. Meyer, M.D.
> Middleton (Madison), Wisconsin
> [log in to unmask]
> ******************************************************************************************
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Wed, 24 Mar 1999 10:31:38 -0300
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Joao Paulo Carvalho <[log in to unmask]>
Subject: Re: NON PD: Joke
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Very good Jennifer. :-)
Cheers,
+----| Joao Paulo de Carvalho |------ +
| [log in to unmask] |
+--------| Salvador-Bahia-Brazil |------+
=========================================================================
Date: Wed, 24 Mar 1999 11:50:43 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
Comments: Authenticated sender is <[log in to unmask]>
From: "Robert A. Fink, M.D." <[log in to unmask]>
Organization: Robert A. Fink, MD, FACS, PC
Subject: Re: Kaddish
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Charlie writes:
> Kaddish in English
Note that the Kaddish, while it is the prayer for the dead, does not
mention death, or the departed, once. It is a prayer praising God,
pure and simple, as He is the source of all comfort.
Best,
Bob
***********************************
ROBERT A. FINK, M. D., F.A.C.S.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
Phone: (510) 849-2555 FAX: (510) 849-2557
WWW: <http://www.dovecom.com/rafink/>
mailto:[log in to unmask]
"Ex Tristitia Virtus"
***********************************
=========================================================================
Date: Wed, 24 Mar 1999 14:08:35 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Terry Kempf <[log in to unmask]>
Subject: Tilt a Whirl
Comments: To: Connie Heller <[log in to unmask]>,
Alice Reuter <[log in to unmask]>,
Brinda KeralaVarma <[log in to unmask]>, Frank Kick <[log in to unmask]>,
Jim Halvorson <[log in to unmask]>, Karen DeGraaf <[log in to unmask]>,
Kevin R Ballweg <[log in to unmask]>,
Kelly Rankich <[log in to unmask]>,
Wayne Kempf <[log in to unmask]>,
LaVonne Wagner <[log in to unmask]>,
Mike AOL Ganser <[log in to unmask]>,
Scott D Kempf <[log in to unmask]>,
Sheila Virtue <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
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I had the tilt table test this morning. Hooked me up to an IV, Put a blood
pressure thing on each arm, and EKG hookups. The one blood pressure
device kept taking the blood pressure every minute. They then tilted
the table I was lying on to an upright position. They then had me stand
there
for 20 minutes and hoped I would faint. Nothing happened. Then put me
down
and shot me with some drug that might make me faint. Upright again for
another 20 minutes. Nothing happened. Talked to the two male nurses and
my
doctor the whole time.
I told doctor that Neurologist had reduced Sinemet from 3 per day to 2 per
day.
He figured we would just go with that since I didn't faint very easily.
So nothing else will happen until after I see neurologist on 4/2. I may
suggest
getting off of Sinemet entirely since it doesn't seem to help me.
Everyone is just hoping that the fainting is a drug side effect. It's been
3 weeks
and hasn't recurred, so maybe it's no big deal.
=========================================================================
Date: Wed, 24 Mar 1999 15:23:08 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: KF Etzold <[log in to unmask]>
Subject: Re: Kaddish
Mime-Version: 1.0
Content-type: text/plain; charset=us-ascii
I recognised that the kaddish does not mention the departed or death when I read
it. But, as a philosophical question how did this become the prayer for the
dead, and in fact how can one tell that this is intended as such, since as you
mention it, it is in the praise of God. So the connection to me is less than
obvious.
Just curious,
K-F
"Robert A. Fink, M.D." <[log in to unmask]> on 03/24/99 01:50:43 PM
Please respond to [log in to unmask]
To: [log in to unmask]
cc: (bcc: KF Etzold/Watson/IBM)
Subject: Re: Kaddish
Charlie writes:
> Kaddish in English
Note that the Kaddish, while it is the prayer for the dead, does not
mention death, or the departed, once. It is a prayer praising God,
pure and simple, as He is the source of all comfort.
Best,
Bob
***********************************
ROBERT A. FINK, M. D., F.A.C.S.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
Phone: (510) 849-2555 FAX: (510) 849-2557
WWW: <http://www.dovecom.com/rafink/>
mailto:[log in to unmask]
"Ex Tristitia Virtus"
***********************************
=========================================================================
Date: Wed, 24 Mar 1999 14:31:57 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Nancy S. Shlaes" <[log in to unmask]>
Subject: Re: SUDDEN ONSET OF DYSKINESIA--HELP NEEDED
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
My thanks to all who responded so quickly and so informatively to my
request for help on my sudden dyskinesia problem. Things are
considerably better
now: I have spread my meds a little more carefully and have forced
myself to move much more slowly and carefully. And my husband's 70th
birthday party is over and most of the guests (4 of our 8 children,
their spouses and 8 of our 17 grandchildren) are
gone. Even though the party was wonderful, it did present a certain
amount of stress for the hostess--unacknowledged until your questions
made me think about it.
Brian - I do think I am undermedicated and will discuss this with my
neuro when I see him April 8. More and more this appears to be
end-of-dose dyskinesia. I can't agree with you that it is "plain old
Vanilla flavoured PD tremor" - it is nothing like tremor but rather a
twisting and contorting, starting in the left foot and usually advancing
to both feet and then most of the body. My husband calls it "dancing",
but he is being kind.
Marie asked me what supplements I am taking: I take 2000 mg of Vitamin
C per day and 800 Vitamin E plus an A&D combo, and a multi mineral.
I probably should investigate B-12. Marie, your careful introduction
of each new element is absolutely the right way to go, and I think I
have done that in the past. It has been a while since a new med was
introduced into my life (except for too many antibiotics which I have
been taking this winter for a persistent walking pneumonia with cough,
followed by an ear infection. All of that is clearing up now, but I
will remain on the antibiotic Biaxin for another 4-5 days.)
Ida very perceptively pointed out that "one decides at a moment in the
disease-process that a cluster of symptoms that were before just
nuisances with no relationship to each other are in fact a disease
process. From that moment on the awareness of the symptoms changes
abruptly." In part, that describes my situation, with an overlay of
tension and perhaps an underlay (is there such a word?) of an inadequate
amount of sinemet.
Again, I thank you all for your concern and helpful suggestions. I will
visit my neuro better armed than ever before.
Nancy Shlaes deGrazia (62/dx57)
Brian Collins wrote:
> I intended to send this reply to the list, but forgot the new system. So here
> it is (one or two days late)
> Brian Collins
>
> On Mon 22 Mar, Nancy S. Shlaes wrote:
> > I was diagnosed almost 5 years ago and at that time was started on three
> > whole 25/100 Sinemet and 10 mg. eldepryl.
> >
> > Currently, I take one-half tablets of Sinemet 25/100 4x/day, plus 5 mg.
> > eldepryl and .5 mg of permax (3x/day). I have had mild dyskinesia on
> > and off for a couple of years, but nothing serious. I do not have a
> > tremor and have never had one. My shuffle etc. is pretty one-sided, but
> > moving to both sides.
> >
> > My problem: within the last two weeks I have developed a wild
> > dyskinesia which gets worse every day. It is primarily in my feet (more
> > left than right) but my whole body is involved. I can't tell whether it
> > is peak dose or end-of-dose or both. Taking the sinemet doesn't seem to
> > help--nor does it make it worse.
> >
> > The dyskinesia begins when I wake up in the morning (I used to have a
> > fairly PD-free early morning) and immediately is very bad. So far, I
> > have no problems with dyskinesia during the night , although I sleep
> > less and less. (I used to have Restless Legs Syndrome but the permax
> > seems to have helped that alot).
>
> > Nancy Shlaes deGrazia 62/dx57/symptons 54
> >
> Hello Nancy, I think I can see what is going wrong, but first, I think we
> need to define some terms.
> First, I think that what you are experiencing is not Dyskinesia. -
> Dyskinesia is the brain's reaction to excess levodopa , but you are not
> taking enough Sinemet to provoke that reaction.
>
> Bearing in mind that you are 5 yrs into PD, (and maybe earlier symptoms?
> your problem is not enough Sinemet! and I think your symptoms are plain
> old Vanilla flavoured PD tremor.
>
> The duration of the standard 25/100 Sinemet is (for me) about 2 hours.You,
> being relatively 'new' to PD may get 3 hrs if you are lucky. I am not sure
> how you deploy your tablets during the day, but I guess that it is about 1/2
> a sinemet 25/100 every 4 hours. If that is true, then you are getting an
> hour at least between each tablet when you are effectively on zero Sinemet.
> The ups and downs which you get, apart from the discomfort, may be bad
> news in the long term. What you need to do is progressively reduce the time
> between tablets until you sense that you have effectively overlapped two
> tablets. (You may then get to know what Dyskinesias are (!)) You don't want
> that either, so go back a little and fix that time interval in your rulebook.
>
> That should, (if my initial conclusions were correct) set you back on the
> road fr a few more years. never forget that PD just keeps on keeping on,
> and you need to stay flexible to be able to respond quickly.
>
> Regards,
> --
> Brian Collins <[log in to unmask]>
=========================================================================
Date: Wed, 24 Mar 1999 15:35:15 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
Comments: RFC822 error: <W> Incorrect or incomplete address field found and
ignored.
From: james simmons <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
I am having technical problems in my e-mail that baffle me.
I have messages that come in that can't be opened, forwarded, or
deleted. I can't get them off the subject line. I can't get them out
of my computer. All of them come from AOL and all of them come
through the Parkinson' Listserv. If someone can tell me how to remove
these e-mails, or write me if you have had simalar problems,
I'd appreciate it. If you can just stop them from coming in. I have sent
e-mails on this before, but have only received one e-mail in
response. I find the Parkinsn's Listserve very helpful, but I have to get
these things out of my e-mail. Offending address are: BeaSmek,
mehmoirs, BSCHIRLOFF, all at aol.com.
Sincerely Yours,
James Simmons
[log in to unmask] com
Message sent to above adresses, plus [log in to unmask]
[log in to unmask], and [log in to unmask]
=========================================================================
Date: Wed, 24 Mar 1999 15:29:58 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: FWD: Support Group in Ohio
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
>From: "Martha Eggler" <[log in to unmask]>
>To: <[log in to unmask]>
>Subject: Support Group
>Date: Tue, 23 Mar 1999 14:55:27 -0500
>
>Please advise where, or if, there are support group meetings in the
>Ravenna, Akron or Brook Park, Middleburg Hts., Ohio area. My brother was
>diagnosed with Parkinsons in September and we are still in the "What is
>going on - What medicine's will work - What is happening to me stage".
>I've obtained several articles from the internet that I have passed on to
>him. But a support group would be more informative. I have been trying to
>help him as much as possible but can't answer any of his questions.
>
>Please email me information at [log in to unmask] Thank you for any and all
>information.
>
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Wed, 24 Mar 1999 15:36:09 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: FWD: HELP
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
>Return-Path: <[log in to unmask]>
>From: "Mary Lou Brooks" <[log in to unmask]>
>To: <[log in to unmask]>
>Subject: HELP
>Date: Fri, 26 Feb 1999 17:19:09 -0500
>
>JANUARY .26 1998
>
>DEAR JANET
>
> ..Greetings from port hope ontario.My name is andrew haynes
>and i was recently dxd april 98 by Dr. Mark Guttman Markem Stouffville
>CENTRE FOR movement disorders with idopathic parkinsns. .You seem to be
>well informed. Take Amandatine .Lorazapam andPaxil . Heavy smoker.
>Spoke too phychiotrist about bupropio n hydrochoride srt tablets ,
>(ZYBAN) but must discon tinue paxil ..Dont need two physical handycaps!
>Understand paxil withdrawl symptons can be ugly any advice. do you know
>what the withdrawl symptons are. ..feeel free to post this to list serve
>if you wish , i dont no how yet , im a newbie at a lot of things.lol.
>
>
> Yours in Faith Andrew .45 44 40
>
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Wed, 24 Mar 1999 14:43:09 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Terry Kempf <[log in to unmask]>
Subject: Re: Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Hello Karen,
I just joined the group a couple of weeks ago. I was diagnosed 2 1/2
years ago, but the main symptoms are just left arm rigidity,
left dexterity and dragging left leg. I am right handed to doesn't
affect me too much yet. So I am still early onset too. I've been
on Artane and hoping to remain at the same level. I haven't gotten
any better, but also no worse. Tried Sinemet and doesn't seem to do
anything. Recently I had a fainting spell, but as in my previous memo
they think it may be a drug side effect or PD. I also have some minor
heart problems. Early beats called PVC's. That involves 2 other drugs
Prinivil and Atenolol. We do have a support group in Madison which
I just joined. Once again, like you, most of the people in the group
thought
I was a caregiver since my symptoms are not very bad. The best
thing that happened to me is feeling better after I quit a stressful and
high
pressure job. That was better than any medicine.
Once again, welcome to the list.
Terry
----------
> From: Mark Bastian <[log in to unmask]>
> To: [log in to unmask]
> Subject: Introduction
> Date: Tuesday, March 23, 1999 10:08 PM
>
> Hello everyone,
> My name is Karen Bastian. I was diagnosed with Parkinson's in Jan. of
> this year. I am 43 years old and I live in Lake Havasu City, AZ (in the
> middle of the Mohave desert). I started taking sinemet and eldypril
> however I am finding that I get symptoms of dyskinesia before my PD
> symptoms are fully relieved. There is a support group - but no young
> onset. I need to know where to go from here? I thought that sinemet was
> going to relieve my symptoms for at least a few years. If anyone has any
> information on medications it would be greatly appriciated. I also have
> a 15 year old daughter who is having a hard time dealing with my PD and
> the effects of the meds - any suggestions would be helpful.
> Last but not least - since I live in a very isolated town I would like
> to corrispond to other young onsetters just to touch base and know I'm
> not going crazy. Right now I'm having problems typing so I recruited my
> husband (Mark) - I hope to get to the point I can type by myself - so my
> responses may not be quick but I will respond. Thanks for any help you
> can provide.
> -Karen-
=========================================================================
Date: Wed, 24 Mar 1999 16:24:13 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Gaylon Johnson <[log in to unmask]>
Subject: Non-PD....Internet Privacy
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Greetings PARKINSN-L, Family & Friends......
I presume the following information is correct. I received it in my daily
news email from MSNBC.
"Freeware e-mail program steals your passwords, other information
A freeware e-mail program named ProMail, which has been distributed
by software Web sites such as shareware.com, is really a Trojan
horse. It sends user names and passwords in encrypted form to an
account on free e-mail provider NetAddress. But aside from....."
http://www.msnbc.com/modules/exports/ct_infobeat.asp?/news/252480.asp
Follow the link for more detail.
This seemed to me, to be important enough to make you all aware of the
potential threat to your Internet privacy.
Best regards,
Gaylon
Johnson Research Associates
--Court researchers needed--
Email serious inquiries to:
<[log in to unmask]>
=========================================================================
Date: Wed, 24 Mar 1999 23:15:02 +0100
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Sandor Halasz <[log in to unmask]>
Subject: JUMEX
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_004D_01BE764C.25292C80"
Ez egy több részből álló üzenet MIME formátumban.
------=_NextPart_000_004D_01BE764C.25292C80
Content-Type: text/plain;
charset="iso-8859-2"
Content-Transfer-Encoding: quoted-printable
Dear listfriends;
There are many postings about drug prices, free meds, leftovers in rhe =
archive. It's a very good idea to help together in this case. I've just =
got a great help from Gina Cass, who sent me a lot of Mirapex. ( It's no =
way to get Mirapex in Hungary). Many thanks her again..=20
Now, I don't know exactly, if the old drug Deprenyl is in use, or not, =
but I can send to anyone the hungarian version, Jumex.
In the archive glossary is written:=20
Deprenyl: (Eldepryl, Selegiline, Jumex) A drug that slows the breakdown =
of chemicals like dopamine by inhibiting the action of certain enzymes. =
It increases effects of dopamine in the brain.
So, if somebody needs Jumex, I would be happy to help.......
Sandor
------=_NextPart_000_004D_01BE764C.25292C80
Content-Type: text/html;
charset="iso-8859-2"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
<HTML>
<HEAD>
<META content=3Dtext/html;charset=3Diso-8859-2 =
http-equiv=3DContent-Type>
<META content=3D'"MSHTML 4.72.3110.7"' name=3DGENERATOR>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><TT><FONT size=3D2></FONT></TT><FONT color=3D#000000><FONT =
size=3D3>Dear=20
listfriends;</FONT></FONT><FONT size=3D3></FONT></DIV>
<DIV><FONT color=3D#000000><FONT size=3D3></FONT></FONT><FONT=20
size=3D3></FONT> </DIV>
<DIV><FONT size=3D3>There are many postings about drug prices, free =
meds,=20
leftovers in rhe archive. It's a very good idea to help together in this =
case.=20
I've just got a great help from Gina Cass, who sent me a lot of Mirapex. =
( It's=20
no way to get Mirapex in Hungary). Many thanks her again.. </FONT></DIV>
<DIV><TT><FONT size=3D3></TT><FONT color=3D#000000>Now, I don't know =
exactly, if the=20
old drug Deprenyl is in use, or not, but I can send to anyone the =
hungarian=20
version, Jumex.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000><FONT size=3D3>In the archive glossary is =
written:=20
</FONT></FONT></DIV>
<DIV><FONT color=3D#000000><FONT size=3D3></FONT></FONT><TT><FONT =
face=3DArial=20
size=3D3><EM><FONT face=3DArial>Deprenyl: (Eldepryl, Selegiline,=20
<STRONG>Jumex</STRONG>) A drug that slows the breakdown </TT><TT><FONT =
size=3D3>of=20
chemicals like dopamine by inhibiting the action of certain enzymes<FONT =
size=3D3>. </TT></EM><TT><FONT face=3DArial><EM>It increases effects of =
dopamine in=20
the brain</FONT></TT></FONT></FONT></FONT><FONT face=3DArial><FONT =
size=3D3><FONT=20
size=3D3><TT>.<BR></TT></FONT></FONT></FONT></EM></FONT>So, if somebody =
needs=20
Jumex, I would be happy to help.......</DIV>
<DIV> </DIV>
<DIV>Sandor</DIV></BODY></HTML>
------=_NextPart_000_004D_01BE764C.25292C80--
=========================================================================
Date: Wed, 24 Mar 1999 23:35:02 +0100
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Sandor Halasz <[log in to unmask]>
Subject: Re: I have excess medicine for Parkinson disease
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
It will be very helpul for me, to get the Mirapex. As I wrote in some
messages, I have no other way to get Mirapex here, in Hungary.
If you would be so kind to send me the meds, I could be get it through my
friend, who often fly here, and deliver different goods.
The friend's address is:
Julius L. Kluger
Skyex Inc.
Andrews Commercenter
1408, SW 13th Court
Pompano Beach, Florida,
33069, USA
Tel.: (954) 941-8114
Fax: (954) 941-8105
E-Mail: [log in to unmask]
Thank you, in advance.
Sandor H.
----Eredeti üzenet----
Feladó: Dale Severance <[log in to unmask]>
Címzett: [log in to unmask] <[log in to unmask]>
Dátum: 1999. március 24. 15:08
Tárgy: I have excess medicine for Parkinson disease
>One of our suppore group members died and left me holding the following
>medicine.
>
>1. 25mg/250mg carbidopa/levodopa
>2. a second bottle of the above medicine
>3. Tasmar 200mg tablets
>4. Tasmar 100 mg tablets
>5. Mirapex 100mg
>
>If as in the past any listmember can use them e-mail privately to me
>
>Dale
>If
=========================================================================
Date: Wed, 24 Mar 1999 14:54:44 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
Comments: Authenticated sender is <[log in to unmask]>
From: "Robert A. Fink, M.D." <[log in to unmask]>
Organization: Robert A. Fink, MD, FACS, PC
Subject: Re: Kaddish
Comments: To: KF Etzold <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
KF Etzold wrote:
> I recognised that the kaddish does not mention the departed or death when I read
> it. But, as a philosophical question how did this become the prayer for the
> dead, and in fact how can one tell that this is intended as such, since as you
> mention it, it is in the praise of God. So the connection to me is less than
> obvious.
It is my understanding that the Kaddish, indeed, is merely a prayer
in praise of God. It starts and ends all Jewish liturgies. When one
attends synagogue, when the Kaddish is said at the end of the
service, all who are mourners stand and recite the Kaddish while the
rest of the congregation answers responsorially to support the
mourners. The mourners are defined as those who have lost a loved
one in the preceding 11 months, or who are observing the anniversary
of a death (called a "Yahrzeit", or "year time").
The other prayer which is said at a Jewish service for the dead is
another prayer of praise and "yielding" to the Will of God. This
prayer has also been adopted by Christian denominations. It is the
one which says, "The Lord giveth and the Lord taketh away. Blessed
be the Name of the Lord."
Best,
Bob
P. S.: This is not directly related to Parkinson's disease, but I
thought that it was useful.
***********************************
ROBERT A. FINK, M. D., F.A.C.S.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
Phone: (510) 849-2555 FAX: (510) 849-2557
WWW: <http://www.dovecom.com/rafink/>
mailto:[log in to unmask]
"Ex Tristitia Virtus"
***********************************
=========================================================================
Date: Wed, 24 Mar 1999 18:01:56 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: ERVIN J MCCARTHY <[log in to unmask]>
Subject: Re: RILUZOLE STUDY
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_000D_01BE7620.679B13C0"
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charset="iso-8859-1"
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Ida, thank you for your detailed response about Riluzole. I plan on =
gathering as much information as I can before I enter a study group.
-----Original Message-----
From: Ida & Andre Kamphuis <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Tuesday, March 23, 1999 11:17 AM
Subject: Re: RILUZOLE STUDY
=20
=20
At 13:52 22-3-99 -0800, ERVIN J MCCARTHY wrote:
>Does anyone on the list have information on Riluzole? I have been =
asked to
>join a group study on the drug. I believe it is in third phase =
study. I
>recall someone in the list had been involved in a previous group =
study. Any
>information would be helpful. Thank you.
>
>[log in to unmask]
=20
Erwin,
=20
Riluzole or Rilutex is an anti-glutamate. It diminishes the =
influence of the neurotransmitter
glutamate,which has an activating role in the Striatum. They are by =
some researchers
believed to be to active in PWP's and to have a crucial role in =
dyskinesia especially
the leva-dopa induced ones. The nuclei in which the glutamates are =
most activ are the same that
as are partly destroyed by pallidotomy. But it is not in the first =
place because of
that aspect why trials are run. It has been proven to have a =
neuroprotective effect
for ALS patients and that has in the first place attracted the =
Parkinson researchers,
because it might have the same neuroprotective effect for PWP,s. I =
am not sure but I
remember that for the trials to come, starting PWP's have been asked =
to participate, so
the only outcome of the research will be about its neuroprotective =
effect.
I regret that, because I am more interested in its potential =
anti-diskinetic power.
Next to the mentoned effects is Riluzole, if used in higher dosis a =
paini killer a tranquiliser and an anti -convulsive.
With theses URL.s more info can be retrieved,
ida
=20
http://parkinson.org/plll.htm
=20
WWW.rorer.com/PATIENTS_FAMILIES/trials/trials.rilutek.htm
=20
http://www.rpr.rpna.com/US/rilutek/ppi.html
=20
http://www.druginfonet.com/rilutek.htm
=20
=
http://neuro-www.mgh.harvard.edu/forum/ALSF/11.13.9812.56PMRilutek.html
=20
=
http://www.rpr.rpna.com/health_professionals/diseaseaware/rilutek.htm
=20
=20
=20
=20
=20
--------------------------------------------------------------
Vriendelijke Groeten / Kind regards,
=20
Ida Kamphuis mailto: [log in to unmask]
------=_NextPart_000_000D_01BE7620.679B13C0
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charset="iso-8859-1"
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<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
<HTML>
<HEAD>
<META content=3Dtext/html;charset=3Diso-8859-1 =
http-equiv=3DContent-Type>
<META content=3D'"MSHTML 4.72.3110.7"' name=3DGENERATOR>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><FONT size=3D2>Ida, thank you for your detailed response about=20
Riluzole. I plan on gathering as much information as I can before =
I enter=20
a study group.</FONT></DIV>
<BLOCKQUOTE=20
style=3D"BORDER-LEFT: #000000 solid 2px; MARGIN-LEFT: 5px; PADDING-LEFT: =
5px">
<DIV><FONT face=3DArial size=3D2><B>-----Original =
Message-----</B><BR><B>From:=20
</B>Ida & Andre Kamphuis <<A=20
=
href=3D"mailto:[log in to unmask]">[log in to unmask]</A>><BR><B>To:=
=20
</B><A=20
=
href=3D"mailto:[log in to unmask]">[log in to unmask]
CA</A>=20
<<A=20
=
href=3D"mailto:[log in to unmask]">[log in to unmask]
CA</A>><BR><B>Date:=20
</B>Tuesday, March 23, 1999 11:17 AM<BR><B>Subject: </B>Re: RILUZOLE =
STUDY<BR><BR></DIV></FONT>At 13:52 22-3-99 -0800, ERVIN J MCCARTHY=20
wrote:<BR>>Does anyone on the list have information on Riluzole? =
I have=20
been asked to<BR>>join a group study on the drug. I believe it is =
in=20
third phase study. I<BR>>recall someone in the list had been =
involved in=20
a previous group study. Any<BR>>information would be helpful. =
Thank=20
=
you.<BR>><BR>>[log in to unmask]<BR><BR>Erwin,<BR><BR>Riluz=
ole=20
or Rilutex is an anti-glutamate. It diminishes the influence of the=20
neurotransmitter<BR>glutamate,which has an activating role in the =
Striatum.=20
They are by some researchers<BR>believed to be to active in PWP's =
and to=20
have a crucial role in dyskinesia especially<BR>the leva-dopa =
induced ones.=20
The nuclei in which the glutamates are most activ are the same =
that<BR>as=20
are partly destroyed by pallidotomy. But it is not in the first =
place=20
because of<BR>that aspect why trials are run. It has been proven to =
have a=20
neuroprotective effect<BR>for ALS patients and that has in the first =
place=20
attracted the Parkinson researchers,<BR>because it might have the =
same=20
neuroprotective effect for PWP,s. I am not sure but I<BR>remember =
that for=20
the trials to come, starting PWP's have been asked to participate, =
so<BR>the=20
only outcome of the research will be about its neuroprotective =
effect.<BR>I=20
regret that, because I am more interested in its potential =
anti-diskinetic=20
power.<BR><?fontfamily><?param Times New Roman><?bigger>Next to the =
mentoned=20
effects is Riluzole, if used in higher dosis a paini killer a =
tranquiliser=20
and an anti -convulsive.<BR>With theses URL.s more info can be=20
=
retrieved,<BR>ida<BR><BR>http://parkinson.org/plll.htm<BR><BR>WWW.rorer.c=
om/PATIENTS_FAMILIES/trials/trials.rilutek.htm<BR><BR>http://www.rpr.rpna=
.com/US/rilutek/ppi.html<BR><BR>http://www.druginfonet.com/rilutek.htm<BR=
><BR>http://neuro-www.mgh.harvard.edu/forum/ALSF/11.13.9812.56PMRilutek.h=
tml<BR><BR>http://www.rpr.rpna.com/health_professionals/diseaseaware/rilu=
tek.htm<BR><BR><BR><?/bigger><?/fontfamily><BR><BR><BR>------------------=
--------------------------------------------<BR>Vriendelijke=20
Groeten / Kind regards,<BR><BR>Ida Kamphuis mailto:=20
[log in to unmask]</BLOCKQUOTE></BODY></HTML>
------=_NextPart_000_000D_01BE7620.679B13C0--
=========================================================================
Date: Wed, 24 Mar 1999 18:20:45 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Walter Pfiester <[log in to unmask]>
Subject: Re: NON-PD Ham Note
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
John,
I missed our 10 AM meeting on 7.250. By the time I noticed, it
was 10:30. Please accept my apologies for missing our meeting.
Keep up the Parkinson information it's neat!
Can we meet on Friday at 10 AM on 7.250 MHz?
Regards,
Walt W2TQK 57/4
<mailto:[log in to unmask]>
=========================================================================
Date: Wed, 24 Mar 1999 19:00:05 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jennifer Smith <[log in to unmask]>
Subject: Re: Settlement offered
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Sounds like you are breaking ground. congradulations,
Jennifer
Ivan M Suzman wrote:
> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
> Ivan Suzman 49/39/36 [log in to unmask] :-)
> Portland, Maine land of lighthouses 50 deg. F :-)
> ********************************************************************
> Deara friends,
>
> The City of Portland has recognized the unusual needs of a young-onset
> Parkinsonian at the beginning of his 14th year of the"battle of PD."
> Having done so, it has changed a series of responses it provided when
> considering the consequences of being a PWP.
>
> The results are that a SETTLEMENT has been offered, and court can be
> avoided. The attorney who
> is representing me is the civil rights director of the federally-funded
> (one in each state, I guess) program for people with disabilities.
>
> The main features include my right to share details of the settlement
> with no restrictions on freedom of speech, my right to expend what little
> monies I receive as I see fit, my right to provide a doctor's,
> physician's assistant's or nurse's writing as unchallenegeable proof of
> an expense being a "health" related necessity, and the
> annual,automatically renewed TAX (80%)and SEWER relief(100%)
> that I need.
> Finally, the City can never acquire the property if it is liened for
> the 20% ungranted.. Emergency General Assistance funds will pay tthe 20%,
> if that happens.
>
> Comments are welcome.
>
> Ivan Suzman 49/39/36
=========================================================================
Date: Wed, 24 Mar 1999 19:30:29 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Dominic Marchese, RPh." <[log in to unmask]>
Subject: Re: Support Group in Ohio
Mime-Version: 1.0
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There is a support group established in the Ravenna, Ohio area under the
direction of Donna Arn. If you would like information on contacting her,
please feel free to call me and I will give you her phone number.
My phone number is: 1-800-537-8899 ext. 6104
Dominic Marchese, RPh.
Athena Rx Home Pharmacy
=========================================================================
Date: Wed, 24 Mar 1999 20:35:45 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Re: NON-PD Ham Note
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Hi Walt: No problem on the re-sched; I was here working on next weeks
Parkinsaw report, and had the rig on 7250 for a while, and gave you a
call, There's alot of QRM so we should have some alternate freq
plan...maybe plus/minus 5 kc if there's too much interference on 7250.
I'll look for you at 10 am. Glad you enjoy the stories; I don't get
much feedback from the list members...lots of visits to the web site
(about 20/day)..that's why I didn't know if the report had gone out.
Talk to you Friday, Walt, Regards,
John
W4NSE
Walter Pfiester wrote:
> John,
>
> I missed our 10 AM meeting on 7.250. By the time I noticed, it
> was 10:30. Please accept my apologies for missing our meeting.
>
> Keep up the Parkinson information it's neat!
>
> Can we meet on Friday at 10 AM on 7.250 MHz?
>
> Regards,
>
> Walt W2TQK 57/4
> <mailto:[log in to unmask]>
=========================================================================
Date: Thu, 25 Mar 1999 02:48:20 +0100
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: NEWS-PD: GPI-1046
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There may be a whole new line of attack against the progressive
ravages of Parkinson's Disease. In early tests on lab animals, an
experimental compound appears to reverse the effects of the
disease. CBS News Correspondent John Roberts has
the latest on research that could help punch out Parkinson’s:
It's most famous sufferer is Mohammed Ali--spokesman for the National
Parkinson's foundation. Today, he called the foundation to find out about
the new drug--that in rodents--has shown promise of reversing the effects of
this debilitating disease. Greg Hamilton of Guilford Pharmaceuticals is on
the team that studied the compound--called GPI-1046. Says Guilford: "In mice
that had been made Parkinsonian GPI-1046 given orally was actually capable
of regenerating the damaged nerves in these mice. "
In a normal person, neurons the electrical pathways of the brain, produce
dopamine, a chemical that helps direct the body's movements. In Parkinson’s
disease, the neurons slowly deteriorate--reducing dopamine levels and
short-circuiting motor movements. GPI-1046, a substance that promotes nerve
growth, makes new pathways around the dead neurons, raising levels of
dopamine and restoring near normal function. Parkinson's specialist Dr.
Jonathan Pincus of Georgetown University believes this is a major step
forward: "I think it is tremendously exciting because it holds forth the
promise of a real treatment for Parkinson’s disease that would actually get
at the root of the disease, which is a deficiency of dopamine."
What's most exciting about this discovery say researchers is that GPI-1046
is able to cross from the blood stream into the brain where it can do its
work. Most other drugs are unable to do that. It has some people cautiously
uttering the word: Cure. Says Pincus: "If you define a cure as the
elimination of symptoms without the need for medication, that is in fact
what this would promise."
Researchers caution that just because the drug works in mice doesn't mean it
will work in Parkinson’s patients. They're currently testing GPI-1046 on
rhesus monkeys and hope to start human trials late this year. John Roberts,
CBS News, New York .
=========================================================================
Date: Wed, 24 Mar 1999 18:22:59 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Marling McReynolds <[log in to unmask]>
Subject: exhaustion
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Hello friends,
Last week I went to services for my mother-in-law. She was nearly 84
and had health difficulties. It was a mixed blessing for us as I am
glad she no longer suffers, and yet I will miss her so much.
While at the services my son's girl friend held my hand mainly to steady
me and keep me from falling over. After a couple of hours she said she
could now understand why I am exhausted all the time. She was exhausted
just holding my hand and steadying me for a couple of hours and could
not understand how I can go though a whole day with this tremor. I do
not know how I do it either.
On the days when tremor attacks me worst, I am so exhauted that I cannot
get out of bed. Other days the tremor is minor and I manage to move
around and get work done in my home. Does anyone ever really get used
to the amount of energy tremor takes out of you??
Marling McReynolds
50 (next Sat), diag 1995
=========================================================================
Date: Wed, 24 Mar 1999 21:54:30 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Blake-Krebs <[log in to unmask]>
Subject: National Early Onset Orgs - Need a rundown
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Hi...I would like to get in touch with the various early onset organizations,
or departments of organizations, but I don't have their email or other ways of
contacting at hand. Would appreciate those on the list contacting me, or info
on how to contact. Thanks.
Barbara Blake-Krebs in KS
[log in to unmask]
=========================================================================
Date: Wed, 24 Mar 1999 22:44:59 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Callie M. Judd" <[log in to unmask]>
Subject: Re: exhaustion
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Dear Marling: I read your letter about how much energy the tremors rob from
you
and wanted to share my husband's experience in case it could assist you-
When he was first diagnosed over l2 yr ago he only had minor tremors in
his
right hand and feet and had started shuffling in his walk. He was started on
Cogentin (Benztropine Mesylate) only- l mg. and built up to 8 mg/day over a
period
of 3 years- when he was started on Sinimet . We gradually reduced the
Cogentin
as he stabilized on Sinimet , but even today he still has to take l mg/day or
he
will have the tremors re-occur. He's tried stopping the Cogentin, always with
the
same result, more tremors. His Neuro says it shouldn't help him - but it
does!.
You didn't mention what meds you take - but several Dr. indications to us
has
been that the tremor is the easiest of the symptoms to control. I hate to
hear you
being plagued with such tremors because I know (second hand- but close) that
the
tremors may not be as life-threatening as falling- but they are an energy
drainer and
miserable to deal with. Also, there is a distinct difference between tremor
and
dyskinesia- each take different remedies....
Thinking and caring..... Marie Care-Partner
for Husband
=========================================================================
Date: Wed, 24 Mar 1999 23:35:57 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: News-Marijuana-Like Chemicals Could Treat...
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http://dailynews.yahoo.com/headlines/sc/story.html?s=v/nm/19990324/sc/marijuana_6.html
March 24, 1999
Marijuana-Like Chemicals Could Treat Disease
WASHINGTON (Reuters) - A marijuana-like chemical in the brain that helps
regulate body movement and coordination might be used to treat diseases
that produce tics and shaking, such as Parkinson's disease and
schizophrenia, researchers said.
University of California Irvine researchers found that the chemical,
known as anandamide, acts as a kind of brake on neural activity in the
brains of rats, and might be used to treat the side-effects of diseases
that cause uncontrollable movements.
Writing in the April issue of the journal Nature Neuroscience, they said
anandamide interferes with the effects of nerve cells that transmit
dopamine, the message-carrying chemical responsible for stimulating
movement and other motor behavior in the brain.
Uncontrolled production of dopamine has been blamed for some of the
symptoms of schizophrenia and the nervous tics and outbursts associated
with Tourette's syndrome. A lack of dopamine is blamed for the shaking
and motor hesitation that marks Parkinson's disease.
``This shows for the first time how anandamides work in the brain to
produce normal motor activity,'' Daniele Piomelli, an associate
professor of pharmacology at UCI who helped lead the study, said in a
statement.
``Patients with schizophrenia and other diseases have reported that
marijuana appears to relieve some of their symptoms, but scientists have
never found a physiological reason why. By understanding how the
anandamide system works similarly to marijuana, we can explore new ways
to treat these diseases more effectively.''
But Piomelli said cannabis itself did not offer any kind of cure.
``Marijuana doesn't provide the regulatory effects on dopamine in the
brain that we're looking for,'' he said.
Anandamide, named after the Sanskrit word for ``bliss and
tranquillity,'' is used by a network of nerve cells in an area of the
brain called the striatum, which coordinates body movements and other
motor behavior, the researchers said.
Normally nerve cells regulate this behavior by releasing anandamides at
the same time they release dopamine. The anandamides bind to cannabinoid
receptors, which are where tetrahydrocannabinol (THC), the active
ingredient in marijuana, docks onto cells.
When the team blocked these receptors, rats experienced severe nervous
tics and other uncontrolled motor activity.
Piomelli said new drugs that mimic the effects of anandamides could
offer gentler treatments for some diseases.
``Current drugs certainly halt the actions of dopamine, but the side
effects, including sedation and dizziness, are very severe,'' he said.
In a commentary, David Self of Yale University said the approach could
be used to develop drugs that help Parkinson's treatments, which try to
boost production of dopamine in the brain but whose effects wear off
after a few years.
Drugs that stimulate the cannabinoid receptor might also be used against
Huntington's disease, a fatal and incurable disease first marked by
jerks and spasms, Self added.
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
^^^
\ /
\ | / Today’s Research
\\ | // ...Tomorrow’s Cure
\ | /
\|/
```````
=========================================================================
Date: Wed, 24 Mar 1999 23:08:49 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: double a enterprises <[log in to unmask]>
Subject: Re: Settlement offered
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FANTASTIC!!!!!!!! SOUNDS LIKE YOU WON HANDS DOWN!!!!!! CONGRATULATIONS
BOB
=========================================================================
Date: Thu, 25 Mar 1999 00:12:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Comments: To: [log in to unmask]
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George Neavoll, Editorial Page Editor
Portland Press-Herald
Portland, Maine 04101
March 24, 1999
Dear George,
I am very grateful that you took the time to call me at home this
afternoon.
Below you will find forwarded the 3/21/99 Tutu bulletin sent by Barbara
Patterson, of McMaster University, Ontario, Canada, listowner of the
Parkinson's International Exchange Network.
It went out to 36 countries, and arrived at the computers of more than
1800 members.
I have been an active listmember since March, 1996, except for
August-December, 1996.
By the volume of e-mail rolling in day and night (597 messages flooding
my kitchen-corner
computer ), there is every indication that the unmet needs of SHUT-IN
Parkinson's sufferers
are, thanks to e-mail, just now at the dawn of being discovered by the
"outside" world.
George, I hope you can help me to voice my own hopes for World
Parkinson's Day (Sunday,
April 11th) . If you want a new picture of myself, one was taken in
February, and is available for use
by the Blethen Maine Newspapers.
We are very fortunate indeed to include distinguished editors like you
among our allies.
Very sincerely,
Ivan Mfowethu Suzman
PS You may also be interested in seeing the new WEB-PAGE created by
Bowdoin College's
library specialists, about my rare videotape collection, now donated to
the College, and about my life
in South Africa. Go to
http://www.bowdoin.edu/dept/library/arch/imgvid/suzman.html
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses showers, 38 deg. F :-)
********************************************************************
--------- Forwarded message ----------
From: Barbara Patterson <[log in to unmask]>
To: [log in to unmask]
Date: Sun, 21 Mar 1999 15:00:43 -0500
Subject: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Message-ID:
<[log in to unmask]>
Below is the text of a message which has been crafted by several members
of the list. I am asking each list member to forward this message to all
of the media in your area and, if possible, all of the religious
institutions. If you can't find an email address, please print the
message (removing this paragraph) and mail or deliver it to any and all
groups you can think of. If English is not the first language in
your area, please translate it and forward it on. Someone asked me where
I wanted this message to go. I said "everywhere in the world where there
is someone who can contribute to Parkinson's research. Let's spread the
word. Barb
***TUTU TO HELP PARKINSON'S DISEASE SUFFERERS***
South Africa's Desmond M. Tutu, Archbishop Emeritus and Nobel Peace
Laureate, Robert W. Woodruff Visiting Professor of Theology, Emory
University, Atlanta, Georgia, USA has offered to issue a prayer for all
those worldwide who are suffering from Parkinson's Disease to mark World
Parkinson's Awareness Month in April.
The Archbishop offered to write a prayer for the occasion following a
telephone conversation and a long emailed letter from Ivan Suzman,
Portland, Maine, who has advanced Young Onset Parkinson's. Suzman, a
disabled anthropologist, (and formerly a leading anti-apartheid activist)
has become a Parkinson's activist and a member of the Parkinson
Information Exchange Network (PIEN), an internet discussion list,
notified members of the list of the Archbishop's willingness to "do
something for those suffering from Parkinson's". Later, Tutu's office
notified the listowner, Barbara Patterson, another Young Onset"
Parkinsonian and a secretary at McMaster University School of Nursing,
Hamilton, Ontario, Canada, that the Archbishop had decided that his
prayer will be issued through PIEN.
Patterson's internet list has more than 1,800 subscribers in 36
countries.
Parkinson's Disease (PD) is a chronic, slowly progressive neurological
condition that affects a small area of cells in the mid brain known as
the substantia nigra. Gradual degeneration of these cells causes a
reduction in a vital chemical known as "dopamine". This decrease in
dopamine can produce one or more of the classic signs of Parkinson's
Disease.
Although an estimated 15% of patients are diagnosed before age 50, PD is
generally considered a disease which targets older adults. Parkinson's
disease affects up to 10%, in some populations, of those persons over the
age of 60. To date, there is no known prevention or cure for Parkinson's
Disease.
Notable persons with the disease include Pope John Paul II, Muhammad Ali,
American Attorney General, Janet Reno, Gandhi photographer Margaret
Bourke-White and actor Michael J. Fox.
========================================================================
===
Barbara Patterson
[log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
========================================================================
===
=========================================================================
Date: Wed, 24 Mar 1999 23:25:49 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: double a enterprises <[log in to unmask]>
Subject: Re: Tune into WGMS and WTOP
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Way to go Hilary! Sounds like you are having better days - more power to
you.
bob
=========================================================================
Date: Thu, 25 Mar 1999 00:48:09 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Marty Polonsky <[log in to unmask]>
Subject: Re: Kadish
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Bernie,
Was the funeral for Barb's mother today, or is it tomorrow? If it hasn't
taken place already, I'll be there--which is where? Please respond ASAP.
Marty Pololnsky
P.S. I also look forward to meeting you.
=========================================================================
Date: Thu, 25 Mar 1999 07:58:29 +0100
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Re: VERY OLD NEWS-PD: GPI-1046
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Hi all,
The GPI-1046 WAS news...................
It's an old story dated April 10th 1997.
Thanks Judith for notifying me!!
I guess with World Parkinson Day coming up
I'm a bit too much dreaming, wishing, hoping
for THE miracle: a cure NOW!!
Hans.
=========================================================================
Date: Thu, 25 Mar 1999 03:21:56 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: The chemistry of forgetting
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The chemistry of forgetting
Monday, March 22, 1999 Published at 22:10 GMT: The chemical key to
forgetfulness may have been uncovered, believe scientists in the US.
They have revealed the biochemical changes that happen when an event is
"written" into the brain's long-term memory. Their new understanding could
lead to treatments for amnesia, they suggest.
"One day we could restore the biochemical cascade in the brain that is
necessary for long-term memory," Stephen Taubenfeld, of Brown University,
told BBC News Online.
Short-term memories, such as what you had for breakfast, are stored for a
relatively short time. If an event, like a special romantic meal, is to be
stored for a longer time, it needs to be built into your brain by
rearranging the neurons.
This happens after a cascade of biochemical reactions. First, a protein
called Creb enters the nucleus of brain cells and switches on certain
genes, a process known as transcription.
The structural proteins these genes produce then "hard-wire" the memory
into the brain. This happens because the structural proteins change and
strengthen synapses in the brain and move neurons in and out of contact to
one another.
The new research makes the connection between forgetful behaviour, chemical
changes to the Creb protein and damage to a part of the brain that is
already known to result in amnesia in human patients.
The team, lead by Dr Cristina Alberini of Brown University, took two sets
of rats. One set had their fornix cut - this is a part of the brain which
connects to the memory-storing hippocampus - the other did not.
The rats were then given a choice between a light and dark chamber.
Entering the dark chamber resulted in a two-second electric shock to the feet.
The normal rats remembered this lesson for up to a month, but those with a
damaged fornix, forgot the danger after only six hours.
Examination of their brains showed that the Creb protein had only changed
chemically (adding a phosphate group) in the rats which could remember to
avoid the dark rooms.
This research breakthrough shows how the chain of events that make up
remembering is broken chemically if a part of the brain is injured. The
next step, says Taubenfeld, is to identify the specific genes on which Creb
acts.
The research is published in Nature Neuroscience.
BBC News Online: Sci/Tech
BBC News | Sci/Tech | The chemistry of forgetting
http://news.bbc.co.uk/low/english/sci/tech/newsid_301000/301150.stm
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 03:26:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: New study links 'motion blindness' to Alzheimer's
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New study links 'motion blindness' to Alzheimer's
(March 23, 1999 12:49 a.m. EST http://www.nandotimes.com) - A study
published Tuesday suggests that people with Alzheimer's disease tend to
become lost in familiar surroundings not so much because they're mentally
confused but because they are visually impaired.
The condition, called "motion blindness," may be the result of isolated
damage in one part of the brain, according to the study published in the
journal Neurology, scientific journal of the American Academy of Neurology.
Scientists at the University of Rochester in New York studied the ability of
three different groups of subjects to see and interpret visual patterns -
six healthy young people, 12 healthy elderly people, and 11 people with
Alzheimer's.
In one test, participants viewed a panoramic computer display with radiating
patterns of visual motion, simulating what you see as you move through your
surroundings. They were then asked whether they seemed to be moving left or
right. The Alzheimer's patients had more than twice as much difficulty
interpreting the patterns than the other groups.
The researchers also tested participants' spatial navigation by walking them
from the hospital lobby to the lab, telling them they would be asked
questions about the route. The young people answered questions correctly 88
percent of the time and the healthy elderly 72 percent of the time. But the
Alzheimer's patients answered correctly only 32 percent of the time.
The study counters the generally accepted impression that Alzheimer's is
just a memory disorder, the researchers said. "People with Alzheimer's get
lost not because they don't remember where they've been, but because they
can't see where they're going," said the lead author, Dr. Charles Duffy.
"This study gives us a whole new insight into what's going wrong with the
brain in Alzheimer's and also gives us a way to measure how debilitated an
individual will be by the disease," said Duffy, a neurologist.
Visual disorientation is often one of the first symptoms that shows up in
Alzheimer's patients and thus could be useful in making an early diagnosis.
The tests could also be used to identify those at particular risk for
getting lost, Duffy said, such as those who shouldn't be driving due to
their visual disorientation.
The researchers also suspect that the visual impairment of Alzheimer's
patients is so specific that patients may retain other perceptual tools or
strategies for finding their way around. Identifying these adjustments might
suggest ways to retrain Alzheimer's patients to use other clues to find
their way, Duffy said.
By LEE BOWMAN
Lee Bowman covers health and science for Scripps Howard News Service and can
be reached at [log in to unmask]
Copyright =A9 1999 Nando Media
Copyright =A9 1999 Scripps Howard News Service
http://www.nandotimes.com/noframes/story/0,2107,30648-49302-362771-0,00.html
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 06:23:31 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: Re: VERY OLD NEWS-PD: GPI-1046
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
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Hans van der Genugten wrote:
>The GPI-1046 WAS news...dated April 10th 1997...Thanks Judith for notifying me!!
Hans and All,
I wasn't notifying you...just thought I must have missed something. :)
I thought it strange I hadn't seen it during my cyberspace tours, and
yet it did sound familiar.
There's nothing wrong with posting articles such as this even if it
isn't new. For the newer members, it's valuable info and it's good to
jog the memories of the older members.
Judith -- also dreaming, wishing, hoping...
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
^^^
\ /
\ | / Today’s Research
\\ | // ...Tomorrow’s Cure
\ | /
\|/
```````
=========================================================================
Date: Thu, 25 Mar 1999 06:29:51 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: non PD.... testing
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Please reply if this is received.
I have had my settings at repro for a long time & have had no trouble with my
own posts coming back. However, I have sent 2 posts over the last 2 days but
have not seen them.
Thanks
Bonnie
=========================================================================
Date: Thu, 25 Mar 1999 05:33:44 -0600
Reply-To: "[log in to unmask]" <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Donna Kipp <[log in to unmask]>
Subject: DBS of the subthallmic nucleus
After 13 years of Parkinson's disease I am considering having deep
brain stimulation of the subthallmic nucleus . I would greatly appreciate
talking to someone who has already had this surgery, if you willing,
please e-mail me with your telephone numbers so I can call you.
=========================================================================
Date: Thu, 25 Mar 1999 05:43:34 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Nancy S. Shlaes" <[log in to unmask]>
Subject: Re: non PD.... testing
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Bonnie - Received in good condition!
Bonnie Rowley wrote:
> Please reply if this is received.
> I have had my settings at repro for a long time & have had no trouble with my
> own posts coming back. However, I have sent 2 posts over the last 2 days but
> have not seen them.
> Thanks
> Bonnie
=========================================================================
Date: Thu, 25 Mar 1999 06:57:45 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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James,
Are those 3 the only "offending"?
Are other AOL e-mails "behaving" right?
I have had similar situations but it's been only when AOL is having trouble.
It would also be all the e-mails that were just received.
Bonnie
In a message dated 3/24/99 3:41:00 PM Eastern Standard Time, [log in to unmask]
writes:
> am having technical problems in my e-mail that baffle me.
> I have messages that come in that can't be opened, forwarded, or
> deleted. I can't get them off the subject line. I can't get them out
> of my computer. All of them come from AOL and all of them come
> through the Parkinson' Listserv. If someone can tell me how to remove
> these e-mails, or write me if you have had simalar problems,
> I'd appreciate it. If you can just stop them from coming in. I have
sent
> e-mails on this before, but have only received one e-mail in
> response. I find the Parkinsn's Listserve very helpful, but I have to get
> these things out of my e-mail. Offending address are: BeaSmek,
> mehmoirs, BSCHIRLOFF, all at aol.com.
>
> Sincerely Yours,
>
> James Simmons
> [log in to unmask] com
>
=========================================================================
Date: Thu, 25 Mar 1999 07:08:31 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Dick Swindler <[log in to unmask]>
Subject: Re: non PD.... testing
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
bonnie: I received your script on Thursday morming about 6:00. Hope this is
helpful.
Dick
=========================================================================
Date: Thu, 25 Mar 1999 07:31:51 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: [log in to unmask]
Subject: AMWA/ agenda
Comments: To: [log in to unmask]
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Gretchen,and Lillian,
This is a neat new twist. Glad of the reminder.
Also ..AMWA mailing list spinoff, led me to a very interesting conference
(wed.Mar 24th) at Columbia Presyteian, now, New York Presbyterian
Medical Center.
Doctors represening several disciplines mainly prediatrics and childhood
diabetes exhorted a group of science-medical writers to learn all the facts
and acquire accurate inormation as to the inner worrkings of the medical
/surgical/sociologic event in order to enhance empathy between the community
and hospital.
Eliminating stress from the pediatric situation was dramatically
illustratedaed
when members of the Naomi Berrie Diabetes Center bunced to
dais and showed us how they do it: Kiwi the clown left us smiling and holding
a red carnation..
We do have the opportunity and responsibility .
I was jolly well glad I managed to attend despite the early morning cold rain.
Keep us posted AMWA !
[log in to unmask] (Mary Manfredi, AMW-NY)
=========================================================================
Date: Thu, 25 Mar 1999 08:15:04 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Tim Donovan <[log in to unmask]>
Subject: Re: non PD.... testing
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Rec'd
Tim
=========================================================================
Date: Thu, 25 Mar 1999 08:19:17 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bob Anibal <[log in to unmask]>
Subject: !!!!!!!!!!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
JUSTICE (IVAN AND PD) TRIUMPHS!!!!!!!!!!!!!!!!!!!!!!!!
Yes I know caps means shouting.
Please say a prayer for my princess - Cecily - tomorrow ( Fri 8 AM) she gets
a pacemaker.
Has anybody out there had a pacemaker and if so did you notice any change in
PD symptoms? One doctor - not a neuro - thinks that there may be some
change due to the better more consistent blood flow to the brain. The reason
for the pacemaker is a fluctuation in pulse - as low as 33 and pauses in the
beat.
Bob Anibal
=========================================================================
Date: Thu, 25 Mar 1999 09:39:15 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Fw: Archbishop Desmond Tutu (fwd)
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Content-Transfer-Encoding: QUOTED-PRINTABLE
I am forwarding a message sent to me from a new member, Bill Harshaw, who=
=20
is helping to spread the word about the Archibishop. Great job, Bill! Barb
---------- Forwarded message ----------
From: William Harshaw <[log in to unmask]>
To: [log in to unmask]
Subject: Fw: Archbishop Desmond Tutu
copies of my letters
Vice Chair
The Parkinson Foundation of Canada
March 23, 1999
The Rt. Rev. T. E. Finlay
Bishop of Toronto
135 Adeliade Street East
Toronto, Ontario
M5C 1L8
Dear Terry,
You cannot imagine how thrilled I was by your positive response to
Archbishop Tutu's initiative to heighten awareness of Parkinson's Disease.
I am sure that the rest of the Canadian Church will follow the example of
Toronto.
Your support as I have traveled on my Parkinsonian journey has been very
important to me. As you know attitudes today, in many ways, are little
changed from Biblical times when those that had =91the palsy' were classed
with the possessed and lunatics. People still cross over to the other side
to avoid what they do not know and understand.
World Parkinson Day, April 11, presents a wonderful teaching opportunity
for the Church on hope, inclusivity, and chronic illness. You have seen me
at my Parkinsonian worst and best: I have been given a second chance at
life.
I have attached a copy of the release announcing Tutu's initiative and
will deliver a copy of the Archbishop's prayer to you as soon as I can to
facilitate your circulating it to the clergy.
Thank you for your commitment to heightening the awareness of Parkinson's
Disease in the Diocese of Toronto.
Yours in Christ,
attachment cc The Most Rev. M. G. Peers
March 24, 1999
The Rev. Gordon Light
Executive Assistant to The Primate
The Anglican Church of Canada
600 Jarvis Street
Toronto, Ontario
M4Y 2J6
Dear Gordon,
As discussed on the =91phone yesterday, enclosed are copies of my letter to
Bishop Finlay and the announcement of Archbishop Tutu's initiative to
increase the public awareness of Parkinson's Disease.
World Parkinson Day, April 11, is an excellent opportunity for The Anglican
Church of Canada to adopt a leadership position in the crusade against
Parkinson's Disease.
I hope that Archbishop Peers shares Terry Finlay's enthusiasm for the Tutu
initiative. I will arrange to have the prayer in your hands to facilitate
The Primate's distribution of it.
Yours in Christ,
enclosures
=========================================================================
Date: Thu, 25 Mar 1999 08:19:48 -0600
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Kunz <[log in to unmask]>
Subject: Re: !!!!!!!!!!!
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Bob--
I'll keep Cecily -- and you-- in my prayers this week and hope it will also
benefit her PD symptoms. Over the years on the list I've admired your
devotion to your wife; my husband displays the same love! Cecily and I are
two lucky PWPs! ;Keep us posted--we care!!
Kathy Kunz
----------
> From: Bob Anibal <[log in to unmask]>
> To: [log in to unmask]
> Subject: !!!!!!!!!!!
> Date: Thursday, March 25, 1999 7:19 AM
>
> JUSTICE (IVAN AND PD) TRIUMPHS!!!!!!!!!!!!!!!!!!!!!!!!
> Yes I know caps means shouting.
> Please say a prayer for my princess - Cecily - tomorrow ( Fri 8 AM) she
gets
> a pacemaker.
> Has anybody out there had a pacemaker and if so did you notice any change
in
> PD symptoms? One doctor - not a neuro - thinks that there may be some
> change due to the better more consistent blood flow to the brain. The
reason
> for the pacemaker is a fluctuation in pulse - as low as 33 and pauses in
the
> beat.
> Bob Anibal
=========================================================================
Date: Thu, 25 Mar 1999 10:33:05 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: [log in to unmask]
Subject: Re: Introduction to linda potter
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hi Linda,
My name is Bettie, I live in Klamath Falls, Oregon. I was diagnosed 1 year
ago, I am 53 , mother of 5 grandmother of 13, I have rigidity , no tremors. My
neck hurts a great deal as do my legs. I am on Senemet, Mirapex, and Zoloft
for the depression. Is it normal to have a lot of pain in you legs????I am
taking Proamitine for my blood pressure . Should I take Valium for the
pain?????? I eat too many Tylenol.......................I will look for your
reply......Bettie,,,[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 07:45:48 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Al Trader <[log in to unmask]>
Subject: Re: non PD.... testing
In-Reply-To: Bonnie Rowley <[log in to unmask]>'s message of Thu, 25 Mar 1999
06:29:51 EST
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Message rec'd.
Arthur L. "Al" TRADER
MAKE IT A GREAT DAY!
=========================================================================
Date: Thu, 25 Mar 1999 10:51:14 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "LIST Helen K. Mason" <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hi Ivan,
You are usual are the force that makes things happen. I have contacted our
newspaper here in Portland, OR and have seen nothing, nada. Discouraging. Keep
up the fight. Two radio stations have responded but that is a drop in the
bucket.
Helen
=========================================================================
Date: Thu, 25 Mar 1999 10:05:15 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: !!!!!!!!!!!
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Thank you, Bob. I will be praying that Cecily and her prince will be all
right.
Ivan
On Thu, 25 Mar 1999 08:19:17 -0500 Bob Anibal <[log in to unmask]> writes:
>JUSTICE (IVAN AND PD) TRIUMPHS!!!!!!!!!!!!!!!!!!!!!!!!
>Yes I know caps means shouting.
>Please say a prayer for my princess - Cecily - tomorrow ( Fri 8 AM)
>she gets
>a pacemaker.
>Has anybody out there had a pacemaker and if so did you notice any
>change in
>PD symptoms? One doctor - not a neuro - thinks that there may be
>some
>change due to the better more consistent blood flow to the brain. The
>reason
>for the pacemaker is a fluctuation in pulse - as low as 33 and pauses
>in the
>beat.
>Bob Anibal
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Thu, 25 Mar 1999 10:10:03 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Terry Kempf <[log in to unmask]>
Subject: Re: non PD.... testing
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
I got it.
Terry
----------
> From: Bonnie Rowley <[log in to unmask]>
> To: [log in to unmask]
> Subject: non PD.... testing
> Date: Thursday, March 25, 1999 5:29 AM
>
> Please reply if this is received.
> I have had my settings at repro for a long time & have had no trouble
with my
> own posts coming back. However, I have sent 2 posts over the last 2 days
but
> have not seen them.
> Thanks
> Bonnie
=========================================================================
Date: Thu, 25 Mar 1999 11:15:28 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
I have attempted to summarize the places listmembers have sent the
announcement about Archbishop Tutu's prayer. If I have missed any,
please let me know. Also, please feel free to spread the word where ever
and everywhere you feel appropriate. Has anyone translated the
announcement? Let's keep Parkinson's in the media! Barb
1. Dallas Morning News
2. Newspaper and 2 radio stations in Portland, Oregon
3. Press-Herald in Portland, Maine
4. Riverdale Press, Bronx, New York
5. Most daily newspapers in Southern Ontario
6. Anglican Bishop of Toronto
7. Executive Assistant to Primate, The Anglican Church of Canada
8. Simon Coles' PDNEWS
9. The Parkinson's Foundation of Canada
10. The Spectator, Hamilton, Ontario (I will be interviewed)
11. CBC Newsworld
12. Canadian Council of Churches
13. World Council of Churches
14. Roman Catholic Diocese of Hamilton
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Thu, 25 Mar 1999 13:01:39 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "LIST Helen K. Mason" <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Please include OZ Koglin at the Oregonian newspaper in Oregon
=========================================================================
Date: Thu, 25 Mar 1999 13:02:18 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "LIST Helen K. Mason" <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Please include Dateline as well.
Helen
=========================================================================
Date: Thu, 25 Mar 1999 13:22:30 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Here is the updated list of 22 recipients of the announcement re Archbishop
Tutu's prayer...can we make it 222? Barb
1. Dallas Morning News
2. Newspaper and 2 radio stations in Portland, Oregon
3. Press-Herald in Portland, Maine
4. Riverdale Press, Bronx, New York
5. Most daily newspapers in Southern Ontario
6. Anglican Bishop of Toronto
7. Executive Assistant to Primate, The Anglican Church of Canada
8. Simon Coles' PDNEWS
9. The Parkinson's Foundation of Canada
10. The Spectator, Hamilton, Ontario (I will be interviewed)
11. CBC Newsworld
12. Canadian Council of Churches
13. World Council of Churches
14. Roman Catholic Diocese of Hamilton
15. Drew Miga - Washington correspondent of the boston HERALD
16. Nina Kimg - Literary editor of the Washington Post (she has PD)
17. Nikki Hoose - producer of the JIm lehrer hour
18. Dennis Becket., editor of 'Frontline' South African journal of
political commentary
19. Marike Sboros - health editor of the Johannesburg 'Star"
20. Sophie MacKenzie - editor of "Pathways to Health"
21. OZ Koglin at the Oregonian newspaper in Oregon
22. Dateline
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Thu, 25 Mar 1999 13:23:07 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: TUTU TO HELP PARKINSON (fwd)
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
---------- Forwarded message ----------
Date: Thu, 25 Mar 1999 09:07:42 -0600 (CST)
From: Billie Cook <[log in to unmask]>
To: [log in to unmask], [log in to unmask]
Subject: TUTU TO HELP PARKINSON
Responding to your request, have sent your mssg on to Dallas Morning
News (Dallas TX) hoping they'll print it. If I hear anything wll let you
know.
Billie Cook
=========================================================================
Date: Thu, 25 Mar 1999 14:58:19 -0330
Reply-To: Anne Rutherford <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Anne Rutherford <[log in to unmask]>
Subject: Re: Fw: Archbishop Desmond Tutu (fwd)
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Hello Bill Harshaw Welcome to the LIST.
Glad to hear the Anglican church in
central Canada has been contacted.
Parkinson Post (the new magazine in Canada) knows about Tutu.
I have started things rolling in Newfoundland.
I will call the Maritimes region.
Does anyone have an email address for the
Parkinson societies in Ottawa Sask. Alberta. BC.
Anne Rutherford
=========================================================================
Date: Thu, 25 Mar 1999 13:38:19 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: list Sue Maltais <[log in to unmask]>
Subject: Ativan & PWP?
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
My Dad's neuro has prescribed Ativan as a sedative for thier trip to
Maine (5 hours).when they went last year my Dad totally lost it on the ride
up, and on the way back. He thought he was being kidnapped and tried to get
out of the car. This year I'm going to drive them up, so Mom can settle him
down if needed. Also we thought giving him a sedative might help.
Has anyone had any experience with this drug? He's also on Eldepryl,
Sinemet, and florineff.
Thanks, Sue
daughter of Rocky (75/20)
=========================================================================
Date: Thu, 25 Mar 1999 12:55:32 -0600
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Kunz <[log in to unmask]>
Subject: How I Spent My Spring Break-PD sorta
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Hi Gang--
I had a rotten spring break--my left hip, actually. And after all my
supposedly sage advice in George Lussier's newsletter about falling, too.
In fact, my husband highlighted the pertinent part in magic marker for my
review. So I thought I'd add a few bits of addenda and errata, etc.
Don't stand for two hours peeling 20 lbs. of Irish potatoes and expect your
legs to be strong. I managed to deliver the butter and parsley safely to
the church kitchen's counter; unfortunately the legs didn't quite reach
that far and down I went. Then, like the foolish optimist I am, and with
cane still in the car (another no-no), I got up with help from husband and
friends, went into the bathroom, out to pose for a picture with the
leprechaun, made a spectacle of myself weeping in my tea until Don took me
out to sit in the sacristy to eat my corned beef, whereupon I discovered I
couldn't get up. At least this meandering told the docs the hip wasn't
likely to be displaced, and it wasn't: the ball in the joint was simply
cracked, requiring three screws to reassemble, which they couldn't find
space to do until Tuesday at 7 p.m.(I'd fallen at 11:20 a.m. Monday). Less
than 2 inch incision, little pain, six days in rehab (first 4 too easy and
last 2 strenuous enough) and I came home yesterday.
Missed my messages---Don signed me off for the duration--and hope I didn't
miss too much. I gather Barb Mallut's mother passed away; will e-mail her.
Just wanted to reiterate: when festinating, stop before the fall is
imminent, straighten your posture and begin again slowly (even if you do
drop the butter; better a jar than a hip). And use a cane if you need it.
It's great to be back.
Kathy Kunz
=========================================================================
Date: Thu, 25 Mar 1999 20:13:52 +0100
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Dutch Pressrelease Archbishop Tutu
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi all,
The Dutch Parkinson Association will issue a pressrelease
to the dutch media about the support Archbishop Tutu is
giving the worldwide Parkinson's community on the
occasion of World Parkinson's Day.
The word will of course also be spread through
NEDERPARK (the dutch PD-list).
There will be a special meeting on April 11th in Belgium,
where also a large group of dutch PWP will be present.
You can count on it that during this meeting there will be
a special moment for the prayer from Tutu.
Hans.
=========================================================================
Date: Thu, 25 Mar 1999 15:29:42 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: Re: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Comments: To: [log in to unmask]
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
I have e-mail this to Augusta Chronicle & faxed it to WJBF TV, Augusta, GA
Bonnie
daughter of Jim 77/3
In a message dated 3/21/99 3:05:11 PM Eastern Standard Time,
[log in to unmask] writes:
>
> ***TUTU TO HELP PARKINSON'S DISEASE SUFFERERS***
>
> South Africa's Desmond M. Tutu, Archbishop Emeritus and Nobel Peace
> Laureate, Robert W. Woodruff Visiting Professor of Theology, Emory
> University, Atlanta, Georgia, USA has offered to issue a prayer for all
> those worldwide who are suffering from Parkinson's Disease to mark World
> Parkinson's Awareness Month in April.
>
> The Archbishop offered to write a prayer for the occasion following a
> telephone conversation and a long emailed letter from Ivan Suzman,
> Portland, Maine, who has advanced Young Onset Parkinson's. Suzman, a
> disabled anthropologist, (and formerly a leading anti-apartheid activist)
> has become a Parkinson's activist and a member of the Parkinson
> Information Exchange Network (PIEN), an internet discussion list,
> notified members of the list of the Archbishop's willingness to "do
> something for those suffering from Parkinson's". Later, Tutu's office
> notified the listowner, Barbara Patterson, another Young Onset"
> Parkinsonian and a secretary at McMaster University School of Nursing,
> Hamilton, Ontario, Canada, that the Archbishop had decided that his
> prayer will be issued through PIEN.
> Patterson's internet list has more than 1,800 subscribers in 36 countries.
>
> Parkinson's Disease (PD) is a chronic, slowly progressive neurological
> condition that affects a small area of cells in the mid brain known as
> the substantia nigra. Gradual degeneration of these cells causes a
> reduction in a vital chemical known as "dopamine". This decrease in
> dopamine can produce one or more of the classic signs of Parkinson's
> Disease.
>
> Although an estimated 15% of patients are diagnosed before age 50, PD is
> generally considered a disease which targets older adults. Parkinson's
> disease affects up to 10%, in some populations, of those persons over the
> age of 60. To date, there is no known prevention or cure for Parkinson's
> Disease.
>
> Notable persons with the disease include Pope John Paul II, Muhammad Ali,
> American Attorney General, Janet Reno, Gandhi photographer Margaret
> Bourke-White and actor Michael J. Fox.
>
>
===========================================================================
> Barbara Patterson
[log in to unmask]
> HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>
===========================================================================
>
>
=========================================================================
Date: Thu, 25 Mar 1999 14:13:15 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: William Harshaw <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Barb,
Could you get Tutu's prayer to me asap so the Bishop can distribute it
to his clergy? When is it likely to be available/
Bill
-----Original Message-----
From: Barbara Patterson <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, March 25, 1999 10:23 AM
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
>I have attempted to summarize the places listmembers have sent the
>announcement about Archbishop Tutu's prayer. If I have missed any,
>please let me know. Also, please feel free to spread the word where ever
>and everywhere you feel appropriate. Has anyone translated the
>announcement? Let's keep Parkinson's in the media! Barb
>
>1. Dallas Morning News
>2. Newspaper and 2 radio stations in Portland, Oregon
>3. Press-Herald in Portland, Maine
>4. Riverdale Press, Bronx, New York
>5. Most daily newspapers in Southern Ontario
>6. Anglican Bishop of Toronto
>7. Executive Assistant to Primate, The Anglican Church of Canada
>8. Simon Coles' PDNEWS
>9. The Parkinson's Foundation of Canada
>10. The Spectator, Hamilton, Ontario (I will be interviewed)
>11. CBC Newsworld
>12. Canadian Council of Churches
>13. World Council of Churches
>14. Roman Catholic Diocese of Hamilton
>
>
>===========================================================================
=
>Barbara Patterson
[log in to unmask]
>HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>===========================================================================
=
>
=========================================================================
Date: Thu, 25 Mar 1999 13:49:49 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Rebecca Hudson <[log in to unmask]>
Subject: Excessive Meds?
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Dear Listmembers,
After a recent hospital stay my medication was greatly increased. A PWP
friend told me today she thought it sounded excessive. What do you
think?
Here is my schedule:
4am 50/200 CR sinemet
6am 1/2 of 25/250 sinemet
9am 1/2 of 25/250
2 .25 mg permax ( .5mg )
10am 50/200 CR sinemet
12pm 1/2 of 25/250 sinemet
2pm 2 permax
3pm 1/2 of 25/250 sinemet
4pm 50/200 CR sinemet
6pm 1/2 of 25/250 sinemet
9pm 150 mg doxapin
1/2 of 25/250 sinemet
50/200 CR sinemet
2 permax
I take propulsid 3 x a day (this is new)
And lorazipam as needed
We'd appreciate any thoughts on this.
Thanks,
Rebecca Hudson
=========================================================================
Date: Thu, 25 Mar 1999 16:17:31 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Terry Kempf <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Barb,
I sent a one to the Wisconsin State Journal here in Madison Wisconsin.
Still working e mail addresses for radio and television
----------
> From: Barbara Patterson <[log in to unmask]>
> To: [log in to unmask]
> Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
> Date: Thursday, March 25, 1999 12:22 PM
>
> Here is the updated list of 22 recipients of the announcement re
Archbishop
> Tutu's prayer...can we make it 222? Barb
>
> 1. Dallas Morning News
> 2. Newspaper and 2 radio stations in Portland, Oregon
> 3. Press-Herald in Portland, Maine
> 4. Riverdale Press, Bronx, New York
> 5. Most daily newspapers in Southern Ontario
> 6. Anglican Bishop of Toronto
> 7. Executive Assistant to Primate, The Anglican Church of Canada
> 8. Simon Coles' PDNEWS
> 9. The Parkinson's Foundation of Canada
> 10. The Spectator, Hamilton, Ontario (I will be interviewed)
> 11. CBC Newsworld
> 12. Canadian Council of Churches
> 13. World Council of Churches
> 14. Roman Catholic Diocese of Hamilton
> 15. Drew Miga - Washington correspondent of the boston HERALD
> 16. Nina Kimg - Literary editor of the Washington Post (she has PD)
> 17. Nikki Hoose - producer of the JIm lehrer hour
> 18. Dennis Becket., editor of 'Frontline' South African journal of
> political commentary
> 19. Marike Sboros - health editor of the Johannesburg 'Star"
> 20. Sophie MacKenzie - editor of "Pathways to Health"
> 21. OZ Koglin at the Oregonian newspaper in Oregon
> 22. Dateline
>
>
===========================================================================
> Barbara Patterson
[log in to unmask]
> HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
>
===========================================================================
=========================================================================
Date: Thu, 25 Mar 1999 14:23:21 PST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Lee Underwood <[log in to unmask]>
Subject: Re: Excessive Meds?
Mime-Version: 1.0
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>From: Rebecca Hudson <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange
<[log in to unmask]>
>To: [log in to unmask]
>Subject: Excessive Meds?
>Date: Thu, 25 Mar 1999 13:49:49 -0800
>MIME-Version: 1.0 (WebTV)
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>Message-ID: <[log in to unmask]>
>Sender: Parkinson's Information Exchange
<[log in to unmask]>
>
>Dear Listmembers,
>After a recent hospital stay my medication was greatly increased. A PWP
>friend told me today she thought it sounded excessive. What do you
>think?
>
>Here is my schedule:
>
>4am 50/200 CR sinemet
>6am 1/2 of 25/250 sinemet
>9am 1/2 of 25/250
> 2 .25 mg permax ( .5mg )
>10am 50/200 CR sinemet
>12pm 1/2 of 25/250 sinemet
>2pm 2 permax
>3pm 1/2 of 25/250 sinemet
>4pm 50/200 CR sinemet
>6pm 1/2 of 25/250 sinemet
>9pm 150 mg doxapin
> 1/2 of 25/250 sinemet
> 50/200 CR sinemet
> 2 permax
>I take propulsid 3 x a day (this is new)
>And lorazipam as needed
>We'd appreciate any thoughts on this.
>Thanks,
>Rebecca Hudson
Hello!
How do I unsubscribe from this list?
Thanks
[log in to unmask]
Get Your Private, Free Email at http://www.hotmail.com
=========================================================================
Date: Thu, 25 Mar 1999 16:54:08 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: double a enterprises <[log in to unmask]>
Subject: Re: Excessive Meds?
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Rebecca, first I ain't no doctor and second I'm real new at pd, but for what
it's worth, that's less than I'm taking, and looks about right. From what
my neuro said this week, take what you need, back off when you can, and let
them know if it doesn't work.
bob
=========================================================================
Date: Thu, 25 Mar 1999 15:28:20 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Gordon Seese <[log in to unmask]>
Subject: Re: Settlement offered
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
At 10:40 AM 3/24/99 -0500, you wrote:
>
>^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
> Ivan Suzman 49/39/36 [log in to unmask] :-)
> Portland, Maine land of lighthouses 50 deg. F :-)
>********************************************************************
> Deara friends,
>
> The City of Portland has recognized the unusual needs of a young-onset
>Parkinsonian at the beginning of his 14th year of the"battle of PD."
>Having done so, it has changed a series of responses it provided when
>considering the consequences of being a PWP.
>
>
> The results are that a SETTLEMENT has been offered, and court can be
>avoided. The attorney who
>is representing me is the civil rights director of the federally-funded
>(one in each state, I guess) program for people with disabilities.
>
> The main features include my right to share details of the settlement
>with no restrictions on freedom of speech, my right to expend what little
>monies I receive as I see fit, my right to provide a doctor's,
>physician's assistant's or nurse's writing as unchallenegeable proof of
>an expense being a "health" related necessity, and the
>annual,automatically renewed TAX (80%)and SEWER relief(100%)
>that I need.
> Finally, the City can never acquire the property if it is liened for
>the 20% ungranted.. Emergency General Assistance funds will pay tthe 20%,
> if that happens.
>
>Comments are welcome.
>
>Ivan Suzman 49/39/36
>
> Quite an inspiration to us all, Ivan. Also very pleased for you..Gordon
and Thea Seese
=========================================================================
Date: Thu, 25 Mar 1999 16:04:14 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Ronald F. Vetter" <[log in to unmask]>
Organization: retiree - volunteer
Subject: Re: Excessive Meds?
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Rebecca Hudson wrote:
> Here is my schedule:
>
> 4am 50/200 CR sinemet
> 6am 1/2 of 25/250 sinemet
> 9am 1/2 of 25/250
> 2 .25 mg permax ( .5mg )
> 10am 50/200 CR sinemet
> 12pm 1/2 of 25/250 sinemet
> 2pm 2 permax
> 3pm 1/2 of 25/250 sinemet
> 4pm 50/200 CR sinemet
> 6pm 1/2 of 25/250 sinemet
> 9pm 150 mg doxapin
> 1/2 of 25/250 sinemet
> 50/200 CR sinemet
> 2 permax
> I take propulsid 3 x a day (this is new)
> And lorazipam as needed
you are taking 275 mg. of carbidopa while 75 mg is sufficient; 1050
mg.of levodopa which is more than many take. the estimated blood plasma
concentration using graphical addition of average actual data yields
four peaks at 20, 24, 24, and 24 mcg per deciliter with valleys of 10,
11, & 10. this is not very uniform concentration.
you are basically medicating around the clock. Many, including myself,
have never done that. I do take one Mirapex just before retiring to keep
that agonist in my system essentially as level as four tablets can be:
6, 12, 6, and 10 o'clock.
The expense of CR is not of much benefit since you are dosing at 9
different times with sinemet. It also overloads carbidopa.
I urge you to consider telling your doctor that you would like to try
dissolved tablets that are stirred to make sure of uniformity and taken
as aliquots. My calculations indicate that dissolving the three 25/250
tablets in water or diluted orange juice with some vitamin C powder and
taking one-eigth of the liquid at two hour intervals: 6, 8, 10, 12, 2,
4, 6, & 8 o'clock - will give better overall results.
If you have a web browser and can open .gif or .jpg attachment files,
reply that you would like to see the plot of plasma concentration of
your current regimen relative to levodopa. I will send it to you. you
may see some of this sort of information on my web site. URL is bottom
line below.
--
Ron Vetter 1936, '84 PD dz
[log in to unmask]
http://www.ridgecrest.ca.us/~rfvetter
=========================================================================
Date: Thu, 25 Mar 1999 18:49:29 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Re: Archbishop Tutu and World Parkinson's Day
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Dear List members,
Barbara gave me the go-ahead on posting the following two ideas. Are any
plans in the works about #1? Also, if anyone is interested in composing
a message to the other PD lists as described in #2 - please contact me.
Thanks,
Linda Herman
[log in to unmask]
--------- Forwarded message ----------
From: [log in to unmask]
To: [log in to unmask]
Date: Wed, 24 Mar 1999 19:30:43 -0500
Subject: Re: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Message-ID: <[log in to unmask]>
Hi Barbara,
We are faxing the press release to the Buffalo News - they don't accept
e-mails. Thank you for organizing all of this.
I had two thoughts in relation to the Archbishop's prayer and World
Parkinson's Day that I wanted to run by you first.
1. Do you know if any web site owners from our list are planning to
post the prayer on their sites, or on a separate Web site?. It could get
much wider attention that way, and could be accessible for an indefinite
amount of time.
2. Also, I was thinking that on World Parkinson's Day it would be a nice
gesture to exhange messages with the other PD Lists around the world.
Maybe a small group could draft a message, forward it to the other list
owners, and ask them to translate and post it on their lists. We might
even have members of this list who could translate first - according to
Simon Coles listing, there are French, Dutch and German language lists.
The other list owners might also be asked if they would like to
participate in the same way.
Please let me know if you think I should forward this to the list.
Thanks,
Linda Herman
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 18:43:59 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: exhaustion
Comments: cc: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Hi Marling,
Please type your complete 24-hour medication schedule, including any
non-prescription and non-PD medications. Please add any comments you have
about what seems to help you the most, and what seems to stop the meds
from working.
I hope some of us can help you!
Hang in there
Ivan :-)
On Wed, 24 Mar 1999 18:22:59 -0800 Marling McReynolds
<[log in to unmask]> writes:
>Hello friends,
>Last week I went to services for my mother-in-law. She was nearly 84
>and had health difficulties. It was a mixed blessing for us as I am
>glad she no longer suffers, and yet I will miss her so much.
>
>While at the services my son's girl friend held my hand mainly to
>steady
>me and keep me from falling over. After a couple of hours she said
>she
>could now understand why I am exhausted all the time. She was
>exhausted
>just holding my hand and steadying me for a couple of hours and could
>not understand how I can go though a whole day with this tremor. I
>do
>not know how I do it either.
>
>On the days when tremor attacks me worst, I am so exhauted that I
>cannot
>get out of bed. Other days the tremor is minor and I manage to move
>around and get work done in my home. Does anyone ever really get
>used
>to the amount of energy tremor takes out of you??
>
>Marling McReynolds
>50 (next Sat), diag 1995
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Thu, 25 Mar 1999 19:36:33 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Debbie White <[log in to unmask]>
Subject: Breathless
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
I know I've brought the subject up before, but my mother Joyce (69) now has
among her symptom list: being winded. When I speak to her on the phone, she
sounds out of breath.
She has gotten this checked out and there is no other problem to
account for this.
Does anyone have this symptom and a good way of handling it? Thanks.
Debbie White
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 19:40:33 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Hi, Bill. The Archbishop's office is unable to set a specific date for
the release of the prayer. They are trying for April 11 but cannot
guarantee it will be then. As soon as I receive it, I will post it to
the list. Barb
On Thu, 25 Mar 1999, William Harshaw wrote:
> Barb,
> Could you get Tutu's prayer to me asap so the Bishop can distribute it
> to his clergy? When is it likely to be available/
>
> Bill
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Thu, 25 Mar 1999 20:00:10 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Spreading the word about TUTU TO HELP PARKINSON'S DISEASE
SUFFERERS
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Here is the further updated list of 29+ recipients of the announcement re
Archbishop Tutu's prayer...can we make it 222? Barb
1. Dallas Morning News
2. Newspaper and 2 radio stations in Portland, Oregon
3. Press-Herald in Portland, Maine
4. Riverdale Press, Bronx, New York
5. Most daily newspapers in Southern Ontario
6. Anglican Bishop of Toronto
7. Executive Assistant to Primate, The Anglican Church of Canada
8. Simon Coles' PDNEWS
9. The Parkinson's Foundation of Canada
10. The Spectator, Hamilton, Ontario (I will be interviewed)
11. CBC Newsworld
12. Canadian Council of Churches
13. World Council of Churches
14. Roman Catholic Diocese of Hamilton
15. Drew Miga - Washington correspondent of the boston HERALD
16. Nina Kimg - Literary editor of the Washington Post (she has PD)
17. Nikki Hoose - producer of the JIm lehrer hour
18. Dennis Becket., editor of 'Frontline' South African journal of
political commentary
19. Marike Sboros - health editor of the Johannesburg 'Star"
20. Sophie MacKenzie - editor of "Pathways to Health"
21. OZ Koglin at the Oregonian newspaper in Oregon
22. Dateline
23. Buffalo News, Buffalo, New York
24. Parkinson Post (Canada) + Newfoundland & Maritime Provinces
25. Dutch Parkinson Association press release to Dutch media
26. Nederpark (Dutch PD list)
27. Augusta Chronicle, Georgia
28. WJBF TV, Augusta, Georgia
29. Wisconsin State Journal, Madison, Wisconsin
Has the local paper in Parkinsaw been alerted? :)
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Thu, 25 Mar 1999 21:53:32 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Kaddish
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
KF Etzold wrote:
> I recognised that the kaddish does not mention the departed or death
>when I read it. But, as a philosophical question how did this become
the
>prayer for the dead, and in fact how can one tell that this is intended
as
>such, since as you mention it, it is in the praise of God. So the
connection
>to me is less than obvious.
My Rabbi wrote:
Dear Michel,
The recitation of the kaddish, at every service for one year
following
the death of a loved one, is indeed a praise of God (technically it is
called a "doxology") and is said for protection of the loved one's soul
as
it ascends the heavenly heights to be with God.
From a cosmological point-of-view, after death a soul can either go
directly to "Paradise" (Garden of Eden), or, if there has been some
sinfulness in the person's life, the soul goes to "Gehanna" to
experreince
a cleansing for a period of up to one year. After a year, the soul then
is allowed to go to Paradise to join everyone else. This experience in
Gehenna is perilous, and so we say a prayer of praise to God in order to
ask God for protection of that soul during its sojourn there.
I hope this is helpful to you and to your colleague. Let me know if
you need more.
--Jonathan Biatch
=========================================================================
Date: Thu, 25 Mar 1999 22:13:14 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Callie M. Judd" <[log in to unmask]>
Subject: Re: Ativan & PWP?
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Dear Sue: My husband has not had experience with the sedative Altivan- but
he
did have an episode much like your dad's while he was on Eldepryl. He had
been
on Sinimet about 6 yr. and we read the news of what Eldepryl was supposed to
do
and pressed our neuro. for a prescription. About 6 weeks later we were
travelling in
our mobile home and Judd became totally disoriented, paranoid, and began
talking
about being an FBI agent and was going to make a huge deposit to our bank,
etc....
It was rather scary for me at the time, though he never did anything too
dangerous,
but he did want to leave and "go places". Needless to say, we immediately
dis-
continued the Eldepry and he has never had such a severe break with reality
since.
There have been some other mild hallucinations but we know that the Eldepryl
was
causing some severe mental changes and were not willing to continue with it
for the
alleged benefits ( we never found them and I haven't heard anyone attest to
knowing
that Eldepryl really does extend or help the Sinimet, as claimed). I can only
caution
you about what is happening in your case , but perhaps you may want to
investigate
the situation further - keeping in mind that adding sedatives and additonal
meds may add additional side effects of other kinds even.
My husband and I still travel over 200 miles to make appts. and any
travel is
stressful anymore but we feel like he can handle it best with as clear a mind
as
possible. Just some thoughts you might want to consider as you work to help
your
dad maintain as enjoyable a life as possible....
My thoughts, prayers are with you..... Marie Care-partner
husband 69/l2
=========================================================================
Date: Thu, 25 Mar 1999 23:27:43 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: Re: Breathless
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Debbie,
When there's a shortage of dopamine neuro transmitter, it is hard to expand
the chest cavity.
Sometimes a bit more Sinemet will do the job. Recommend that she take care
of her posture. If she watches TV, put the TV where she will look up to it
rather than down where she slumps.
Walking is good if she can do it. There are lots of tricks which can be
used. Depends on the person.
Will Johnnston
A.P.D.A. DelMarVA Chapter Pres.
4049 Oakland School Road
Salisbury MD 21804 USA 410-543-0110
----------
From: Debbie White <[log in to unmask]>
To: [log in to unmask]
Subject: Breathless
Date: Thursday, March 25, 1999 7:36 PM
I know I've brought the subject up before, but my mother Joyce (69) now has
among her symptom list: being winded. When I speak to her on the phone, she
sounds out of breath.
She has gotten this checked out and there is no other problem to
account for this.
Does anyone have this symptom and a good way of handling it? Thanks.
Debbie White
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 23:35:52 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: Re: Excessive Meds?
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Rebecca,
Excessive or inadequate depends on the person and how advance the PD is.
For someone who has had PD about 10 years, it looks about right. Some
progress faster than others. We have one from our support group who has
cut back to only 17 Sinemet per day. We have a couple of people who take no
Sinemet at all.
Will Johnnston
A.P.D.A. DelMarVA Chapter Pres.
4049 Oakland School Road
Salisbury MD 21804 USA 410-543-0110
----------
From: Rebecca Hudson <[log in to unmask]>
To: [log in to unmask]
Subject: Excessive Meds?
Date: Thursday, March 25, 1999 4:49 PM
Dear Listmembers,
After a recent hospital stay my medication was greatly increased. A PWP
friend told me today she thought it sounded excessive. What do you
think?
Here is my schedule:
4am 50/200 CR sinemet
6am 1/2 of 25/250 sinemet
9am 1/2 of 25/250
2 .25 mg permax ( .5mg )
10am 50/200 CR sinemet
12pm 1/2 of 25/250 sinemet
2pm 2 permax
3pm 1/2 of 25/250 sinemet
4pm 50/200 CR sinemet
6pm 1/2 of 25/250 sinemet
9pm 150 mg doxapin
1/2 of 25/250 sinemet
50/200 CR sinemet
2 permax
I take propulsid 3 x a day (this is new)
And lorazipam as needed
We'd appreciate any thoughts on this.
Thanks,
Rebecca Hudson
=========================================================================
Date: Thu, 25 Mar 1999 22:43:32 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Callie M. Judd" <[log in to unmask]>
Subject: Re: Excessive Meds?
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Dear Rebecca: Your amount of meds may not be as excessive as the timing is.
My husband has had experience with Sinimet CR and 25/250 and we are presently
on the agonist Bromocriptine. (We asked our Neuro. about Permax and all he
indicated was that he "didn't like Permax" but would give us a presc. for
Mirapex if
we felt it might be better than Bromo). He also used the Lorazipam to aid
sleeping
while we were making a stressful move, but he felt able to discontinue it as
soon as
he got comfortable in life style again.
Your Dr. may know your symptoms and feel they require the frequency of
the
Sinimet - but what do you feel? My husband also takes Sinimet CR 800mg/day,
distributed equally in 6 hr intervals( seems to work best for him though
we've tried
more frequent intervals at Dr. request and found difficulties). Lately, we
have started
to "pinch-hit" with Sinimet 25/l00 st ( as effective as the l/2 -25/250 we
used some
years ago). We only use the l00 Sinimets when the symptoms of dyskinesia show
up, or he starts having freezing and rigidity due to end of dose times (
fluctuations
he's only noticed starting the last few months- been diagnosed over l2 yrs.
now)
You will have to discover what works best for you - but generally it
sounds like
such an uncomfortable, busy pill-taking schedule to me. I would recommend you
stay flexible in your attempts to find the best times and amounts give you the
best
results- We often have had to manipulate the planned and rigid regimen of
doses
"prescribed" and make it work for us. It takes patiance and sometimes
endurance
since the symptoms can fluctuate and be evasive about what the regular
schedule
should be , since it can take weeks to actually stabilize on adjusted amounts.
Keep in mind, though, YOU KNOW YOU better than anyone and the rest
of
us can only encourage, share, and hopefully help.....
Someone who cares........ Marie Care-
Partner for husband
=========================================================================
Date: Thu, 25 Mar 1999 22:55:38 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Blake-Krebs <[log in to unmask]>
Subject: TUTU press releases - Kansas City area
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Hi...I faxed the PIEN release with a local angle paragraph added in the
middle to
1. The Kansas City Star's
a. national/international news desk
b. the religion desk
c. the Shawnee Mission bureau in KS
2. The Sun Newspapers, Johnson Co., KS
3. The Journal Herald, Shawnee/Merriam, KS
4. The Kansan, Kansas City, KS
5. TV stations - NBC, CBS, ABC, Fox affiliates
6. Radio stations - KCUR (NPR), KKFI, KCMO, KMBZ, KFEW, KPHN (CNN)
I do not know if anyone has used it.
Barbara Blake-Krebs in KS
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 20:19:38 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mary Holt <[log in to unmask]>
Subject: Hello, this is my introduction
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Hello Friends,
My name is Mary, and I want to introduce myself to the list. I just
found this list after doing a search for information about Parkinson's
Disease. This information is not for myself, but for my mom, Eileen (she
is 68 years old). Last summer, I noticed that her face seemed to have
more of a tremor/shake - around her mouth, her hands are also quite
shaky. She tries to hide her hands by holding them, but the shake is
still present. Dad and I have also noticed that Mom appears to be
experiencing some memory problems, such as knowing the
definitions/meanings for certain words that she always knew, and
forgetting certain people that were known to her. My mother also appears
to be withdrawn even though we encourage her to attend certain social
events such as card parties. Her hand shainess is only mind, but could
this be part of the reason for her not wanting to attend? I think
another reason is underlying depression.
Do all of her symptoms appear to be suggestive of early Parkinson's
Disease?
I'm trying to convince her to return to her family doctor, actually, I
would prefer if she were to change to a different one. The doctor that
she has now is not doing a very good job in terms of follow-up. I would
also like for my mom to see a neurologist, I've heard that one of the
top Parkinson's Disease specialist for our province, Nova Scotia is a
Dr. Jock Murray in Halifax. If anyone knows of any other specialists
who my mom may consider, I would like to know.
We also appear to have a family history for Parkinson's Disease - my
mother's mom had it, I also have a cousin, and an uncle who are
currently experiencing Parkinson's.
I probably will be mostly lurking for a while, as I do not know enough
about Parkinson's Disease to provide any information.
Thank-you in advance for any information that you are able to provide.
Take care:)
Mary
_________________________________________________________
Do You Yahoo!?
Get your free @yahoo.com address at http://mail.yahoo.com
=========================================================================
Date: Thu, 25 Mar 1999 20:43:10 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Marling McReynolds <[log in to unmask]>
Subject: Re: exhaustion
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Ivan and others,
Last Nov, after 7 days in the hospital and 9 more at home with home
health doing vitals twice a day, I finally had the opportunity to go
over my years worth of blood tests with the doctor. There was nothing
wrong with me. NOTHING (except of course the PD)
It seems that the requip has edema as a side effect and they had tried
to medicate the side effect, with each med adding another side effect.
By Dec 1 I stopped all medications. I went cold turkey off everything.
I do not remember much of December and part of January. It was the last
week in January when I began to come out of it.
Now I take Sinemet CR when my symptoms ( either the stiffness or tremor)
are so severe that I cannot move. Then I usually take one 25/100
crushed and about a half hour later one whole. This usually breaks up
the symptoms.
I find that the worst times are a result of stress such as the recent
death in the family.
Otherwise I am not on anything. The main reason I do not take the
Sinemet all the time is that I am prone to dystonia and often dyskinesia
going up and coming down. I try to avoid this as it seems this is as
bad or worse than just shaking/being stiff.
I remember someone telling me that even though you do exercise when you
are at work or doing house cleaning, since it is part of your daily
activity, it does not count as exercise to strength the body or lose
weight. I think in the same way I am now used to my minor tremors as
they are always with me. However, when I am stressed and the tremor is
intense for hours, then I sweat and am exhausted.
Marling McReynolds
50/diag 1995
=========================================================================
Date: Fri, 26 Mar 1999 05:56:50 +0100
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Re: Archbishop Tutu and World Parkinson's Day
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Thu, 25 Mar 1999 18:49:29 -0500
Linda J Herman <[log in to unmask]> wrote:
>>> 1. Do you know if any web site owners from our
list are planning to post the prayer on their sites <<<
Linda,
The press release can be put on these sites too!!
I intend to put the pressrelease (in dutch) on my site.
Also the prayer will be put on in english and after
translation in dutch too.
I'll suggest to the organising committee of the meeting
I'm attending on april 11th to say the prayer together
(in dutch) f.e. before our joint lunch.
I suppose all organising committees of WPD-meetings
will include a moment for this prayer in their program.
In Holland there are a lot of general health-lists with
mailinglists. They are most willing to put it in their
mailing and on their news-pages of their sites.
I think this is also a great possibility in other countries
to spread the word.
I tried to find a possibility to approach the Pope (yes!!),
but he must run a one way communications system.
At least I could not find an emailaddress, no faxnumber,
no phones to approach the Vatican so far on the WWW.
>> French, Dutch and German language lists. <<
There is also a belgian and a spanish list.
>> The other list owners might also be asked if
they would like to participate in the same way. <<
It has been posted to the NEDERPARK list.
The prayer will be posted on the list.
Everything newsworthy on PIEN concerning
WPD will be posted on my list and my site.
I think the other owners should (shall) do the same!!
Are the big PD Associations in the USA already
taking action to get involved???
Hans.
=========================================================================
Date: Fri, 26 Mar 1999 00:02:16 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jane Koenig <[log in to unmask]>
Subject: Re: Breathless
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
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Debbie,
You've talked about your mother's extreme head slump, which my father
shares. Ever since Dad began to show this stooped posture, all the
therapists have been concerned that he would not be breathing deeply
enough, which could lead to pneumonia. He makes an effort every day to do
some deep breathing exercises even though it's difficult for him to
straighten up enough to do this well. Maybe this would help Joyce as well.
Jane
=========================================================================
Date: Fri, 26 Mar 1999 00:08:37 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: CAMILLA'S COMPUTER CONTINUES KAPUT!!
Comments: To: [log in to unmask]
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I have just received a messsage from Camilla. Her computer is still on the
blink, and she can be contacted c/o her daughter at :
[log in to unmask]
Camilla, I hope you'll be back with us soon.
Hilary Blue
=========================================================================
Date: Fri, 26 Mar 1999 00:45:51 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Michel Margosis <[log in to unmask]>
Subject: Statistics
Comments: To: "PARKINSON CG, OHIO" <[log in to unmask]>
MIME-Version: 1.0
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With such a vast array of talent out there, has any one ever collected
and studied the epidemiology of PD anywhere. Does the Center in Atlanta
or other agencies or groups, public or private, ever studied the
problem. If so, is it available, or if not, would it be worthwhile?
Michel Margosis
=========================================================================
Date: Fri, 26 Mar 1999 00:51:02 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: Tutu Press Release
MIME-Version: 1.0
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I have sent the Tutu press release to:
Radio stations: CREC, Strathroy
BX 93, London
CFPL, London
TV stations: London, Windsor, Wingham
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
^^^
\ /
\ | / Today’s Research
\\ | // ...Tomorrow’s Cure
\ | /
\|/
```````
=========================================================================
Date: Fri, 26 Mar 1999 00:33:59 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Archbishop Tutu and World Parkinson's Day
MIME-Version: 1.0
Content-Type: text/plain
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Hans van den Genugten writes:
>Are the big PD Associations in the USA already
>taking action to get involved???
>
>Hans.
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses 26 deg. F :-)
********************************************************************
Dear APDA, PAN, NPF, PDF:
Please let us know how you plan to be involved in World Parkinson's Day
(April, April 11th).
We need your active support! Thank you.
IMS
=========================================================================
Date: Fri, 26 Mar 1999 05:10:19 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: Thinking and typing
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Thinking and typing
Thursday, March 25, 1999 Published at 13:13 GMT: Scientists in Germany have
developed a computer system that enables people who are completely
paralysed to communicate by interpreting their brainwaves.
Although details of the breakthrough were first reported by BBC News Online
in January, the researchers have now agreed to talk about their work for
the first time and have released pictures of those involved in the study.
A letter written by one of patients has also been published in this week's
science journal Nature.
The computer system depends on an individual's ability to control their
brainwaves. Two electrodes, the size of contact lenses, are taped on to the
head.
This allows an electroencephalogram to detect brain signals, which can be
passed to a computer. By using the power of thought alone, patients can
then drive a cursor on a video screen that selects letters of the alphabet.
"First the patient has to learn consciously to control a particular kind of
brain activity which is called slow cortical potential, which everybody
has," says Professor Niels Birbaumer of the University of T=FCbingen in=
Germany.
"It comprises slow changes in the excitation level of the brain. Patients
learning to control this see their own brain activity on a computer screen
in the form of a trace that moves up and down - so they can observe it
continuously.
"Then the computer or a therapist asks the patient to control the shape of
the trace and to use it to move a cursor on the screen.
"The computer helps by saying 'That's good, that's perfect', and so on and
so on."
Patients can write on the screen at a rate of one letter every six seconds,
and by using letters to represent key words that rate can be speeded up
enormously. It can be used to control household appliances such as
television sets.
The device costs about $20,000 to produce.
It will benefit people who suffer from a progressive nervous disease called
Amyotrophic lateral sclerosis (ALS), in which the nerve cells controlling
movement, so-called motor neurons, progressively die off with the result
that patients lose all control over their bodies.
There is no cure or effective treatment. The frustration and horror
experienced by patients who find themselves in such a state was famously
described by Jean-Dominique Bauby's book 'The Diving Bell and The
Butterfly'. Bauby dictated the book, letter by letter, by winking.
"It describes the terrible locked-in state he faced before he died,"
Professor Birbaumer. "Such a state can be brought about by strokes or
accidents as well as Amyotrophic lateral sclerosis.
"The intellect is intact but the muscles are dead. The butterfly is the
patient's thoughts which are trapped in the bell jar of their paralysis.
The thoughts are the only thing left for them."
BBC News Online: Sci/Tech http://news.bbc.co.uk/low/english/sci/tech/
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 05:11:13 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: NEWS: Eating chocolate could be good for your heart,
new research suggests
Mime-Version: 1.0
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Eating chocolate could be good for your heart, new research suggests
LOS ANGELES (March 24, 1999 9:47 p.m. EST http://www.nandotimes.com) -
There is more good news from the scientific community for chocolate lovers
-- eating chocolate may reduce their chance of heart disease by helping
arteries remain unclogged.
A study released on Wednesday, sponsored by Mars Inc., the makers of M&M's
and Snickers, and conducted by Mars and the University of California Davis,
found that cocoa contains flavonoids that act as antioxidants and can help
prevent plaque from sticking to artery walls.
"What we found is that these individual flavonoids in some of our chocolate
products actually have significantly different antioxidant activities,"
Mars researcher doctor Harold Schmitz told Reuters.
"This is very significant. About 100 years ago people found vitamins, 50
years later they found various vitamins all do different things," he said
after the findings were presented at the American Chemical Society's
national meeting in Anaheim, Calif.
The report went further than previous studies by identifying particular
flavonoids found in chocolate that inhibit the oxidation of so-called bad
cholesterol.
That oxidation is believed to be a key event leading to build-up of plaque
in arteries, which can lead to their blockage and ultimately cardiovascular
disease.
Researchers told a cocoa experts meeting in Spain last year that cocoa
contained more than 600 chemicals that may help fight cancer and heart
disease, and could also help protect the human immune system, fight
rheumatism and combat stress.
Another report last December by the Harvard School of Public Health said
eating candy could increase longevity.
The Harvard study was spurred by the belief that since candy has been part
of the diet from the days of Ancient Egyptians, Arabs and Chinese, it
presumably had some value. The study showed that eating candy appeared to
add a year to life expectancy.
Flavonoids are also the chemical found in wine that studies have indicated
are linked to a lower risk of heart disease and stroke.
Copyright 1999 Nando Media Copyright 1999 Reuters News Service
http://www.nandotimes.com/noframes/story/0,2107,31272-50270-373500-0,00.html
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Thu, 25 Mar 1999 15:05:52 -0300
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Joao Paulo Carvalho <[log in to unmask]>
Subject: Re: non PD.... testing
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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There is Bonnie ... :-)
Best wishes,
Joao
Bonnie Rowley wrote:
> Please reply if this is received.
> I have had my settings at repro for a long time & have had no trouble with my
> own posts coming back. However, I have sent 2 posts over the last 2 days but
> have not seen them.
> Thanks
> Bonnie
--
+----| Joao Paulo de Carvalho |------ +
| [log in to unmask] |
+--------| Salvador-Bahia-Brazil |------+
=========================================================================
Date: Fri, 26 Mar 1999 07:51:52 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Greetings for Camilla from her friends in Parkinsaw, MI
Comments: To: [log in to unmask]
MIME-Version: 1.0
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Hello Camilla: It's a beautiful day in the North Country; just
wondering when you'll be back on line. In your absense, the mayor has
approved you as an Honorary Citizen, so you're all set there. We'll
save you a copy of the latest reports if you loose them somehow in all
the technical confusion. Big day today. Will travel to Fairfax, VA to
meet with neuro and evaluate efficacy of meds for this World Class
Tremor. Take care...
John Bjork
A View from the Lighter Side
Parkinsaw, MI (An imaginary place for PWP)
=========================================================================
Date: Fri, 26 Mar 1999 08:31:54 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Robert Isosaari <[log in to unmask]>
Subject: INTRODUCTION
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I'm Robert Isosaari. I have an M. S. in Health Education and work part
time as an instructor at the University of West Florida and also am a
professional tennis instructor. My interest in this list is to increase my
knowledge and awareness of Parkinson's diseasse.
My e-mail is [log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 09:00:47 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re-post: Newbies: acronyms / purpose of our list / cyber-dad
Mime-Version: 1.0
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----------------------------------------------------------------------------
1998/02/18 acronyms / purpose of our list / cyber-dad
----------------------------------------------------------------------------
hi all
...those of us who have been privileged
to have access to the internet for some time
are frequently guilty of using 'insider' language and short-forms
without regard for the newer internet adventurers
i consciously try to avoid using such insider 'lingo'
in consideration of the above-mentioned 'newbies' and
in consideration of the international aspect of this list-family
i am privileged in that
english [my native language - albeit the canadian version]
is becoming or already has become
the internet's primary language
i only have admiration for those who have learned english
as a second [or third, or fourth...] language
so...
SPAM
= that canned manufactured pseudo ham
= 'junk' e-mail spewed to all and sundry
LOL
= laughing out loud
ROTFLOL
= rolling on the floor, laughing out loud
PD
= parkinson's disease
PWD or PWP
= person with parkinson's disease
PARKIE
= another version of person with parkinson's disease
in re the above two terms:
you pays your money and you takes your choice!
...
words / ideas that are written can be easily misunderstood
[especially, it seems, when the tone is casual and teasing]
since there is no body language / facial expression
to assist the receiver in interpretation
so short-forms and 'emoticons' like:
<g> = grin or giggle
:-) = smile
have developed for clarity's sake
the internet and e-mail are a brand new communications phenomenon
so in the larger sense, we are all 'newbies' to this medium...
IMHO = in my humble opinion,
FWIW = for whatever it's worth,
sometimes very short messages can 'backfire'
in the sense that the sender may intend a kindness in being brief
but the receiver may interpret the brevity
as curtness or criticism
some of our cyber-family want short messages
some want long messages
some want jokes
some want purely pd-related info
we are each of us totally unique one-of-a-kind individuals
[how's that for excess redundancy?]
we have to do
what we have to do
to be true to ourselves
and not be overly concerned with others' opinions of us
i believe that the purpose of this list is sharing
[of which our 'list-mom' barb patterson perpetrated the ultimate
by starting this list in november 1993]
if we feel the need to share
news about pd or non-pd
grief or celebration
anger or humour
joy or pain
so be it
...i hope all of us continue writing to all of us
we are in this 'boat' together and for the 'long haul'
each one of us
regardless of our skill or comfort level with the internet
has something to contribute which might benefit others
...i think that 99% of angry reactions
are caused by mis-understandings or mis-interpretations
and the best [maybe only] way to clear out the mess
is to talk it all out
back to our favourite cyber-dad don mckinley
and his expression I.Y.Q.:
which as pronounced in english sounds like:
'eye why kew'
which if said quickly can sound like:
'i wike you'
which can sometimes be interpreted as 'baby-talk' for:
'i like you'
i have always found the expression delightful
as well as more than a tad goofy
which is another reason why
i.y.q. 2!
[mr. don and mr. pd both!]
your cyber-sibling in silliness
[yr cybyr-cyblyng yn syllynyss]
janet
----------------------------------------------------------------------------
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 09:11:55 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Pallidotomy
MIME-Version: 1.0
Content-Type: text/plain
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Bob-
I've been concentrating on pushing for the cure, on taking medications
carefully, and on my support system. I try to maintain a positive
attitude, keep to a good diet and exercise, and I pray for strength each
morning. I will only have surgery as a LAST resort.
Surgery can cause loss of speech, loss of memory, loss of vision or a
part of the visual field or even worse.
Glad your neuro thinks that the new medication schedule is OK.
Ivan :-)
On Tue, 23 Mar 1999 14:16:25 -0800 Barb_MSN <[log in to unmask]>
writes:
>OBVIOUSLY, Bob, your MD just bought a Rolls Royce and needs YOU to
>help with the car payments.
>
>Don't just sit there, fella - get that pallidotomy NOW! <grin>
>
>Barb Mallut
>[log in to unmask]
>-----Original Message-----
>From: double a enterprises <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Monday, March 22, 1999 8:48 PM
>Subject: Pallidotomy
>
>
>I saw my neuro today, and he suggested that I begin thinking about
>a pallidotomy - that I was on a fast track for treatment? I've
>only been diagnosed for 5 months or so, and the meds seem to be
>working ok, especially since Ivan suggested stretching out the
>Sinemet (Ivan, the neuro agreed with you on the times). Can
>anyone suggest why he is pushing to have the surgery soon? I've
>had 7 operations in the past 6 years, and I'm not sure I'm ready
>for more. Also, where can I find more information on this
>procedure? Thanks in advance for your help,
>bob [log in to unmask]
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Fri, 26 Mar 1999 09:31:29 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Sid Roberts <[log in to unmask]>
Subject: Re: FWD: Support Group in Ohio
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
On 03:29 PM 3/24/99 -0500, janet paterson, sent a message saying:
>>From: "Martha Eggler" <[log in to unmask]>
>>To: <[log in to unmask]>
>>Subject: Support Group
>>Date: Tue, 23 Mar 1999 14:55:27 -0500
>>
>>Please advise where, or if, there are support group meetings in the
>>Ravenna, Akron or Brook Park, Middleburg Hts., Ohio area. My brother was
>>diagnosed with Parkinsons in September and we are still in the "What is
>>going on - What medicine's will work - What is happening to me stage".
There are several support groups in the area you indicate. I suggest you
phone the following people for information on time and place of meetings.
Portage Support group, Jessie Brown, (330) 673-1146
Portage SupportGroup, Linda Husvar, (330) 325-2849
Canton Support Group, Ken/Verna Blyer, (330) 492-0743
Akron Support group, James/June Cowan, (330) 836-0368
Your brother will be pleased with the support available to him in Northeast Ohio
__________
Sid Roberts 69/4 <[log in to unmask] > Youngstown, Ohio
=========================================================================
Date: Fri, 26 Mar 1999 11:30:48 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "LIST Helen K. Mason" <[log in to unmask]>
Subject: Re: Spreading the word about TUTU TO HELP PARKINSON'S DISEASE
SUFF
Mime-Version: 1.0
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Have emailed San Jose, CA Mercury
Helen
=========================================================================
Date: Fri, 26 Mar 1999 11:32:10 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bob Anibal <[log in to unmask]>
Subject: Thanx
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Just came from the hospital Cecily is OK - a little groggy but Doc says
she did real well Thanx for all your prayers
Linda, your card came to her room before she got back from the recovery
room - merci beaucoup.
Bob A.
=========================================================================
Date: Fri, 26 Mar 1999 08:52:32 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bill Bell <[log in to unmask]>
Subject: Seattle Media
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Barb,
I have sent the release to the Seattle Post Intelligencer and the Seattle
Times. We will carry the release in or bi-monthly newsletter as well.
Stay well
Bill
-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of Automatic digest
processor
Sent: Thursday, March 25, 1999 7:46 PM
To: Recipients of PARKINSN digests
Subject: PARKINSN Digest - 25 Mar 1999 - Special issue (#1999-140)
Bill Bell
Executive Director
Northwest Parkinson's Foundation
425-746-5556 / [log in to unmask]
http://www.nwpf.org
=========================================================================
Date: Fri, 26 Mar 1999 12:35:11 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: A request to re-post Press Release
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
Fri, 26 Mar 1999 10:54:17 EST
To: [log in to unmask]
Judith,
Would you please post the press release again.
Thank you, I am sure I am not the only one that would apprecite seeing
it once in a while. Helen
-----
Originally posted 22 March 1999...
From: Barbara Patterson <[log in to unmask]>
Subject: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
Below is the text of a message which has been crafted by several members
of the list. I am asking each list member to forward this message to
all
of the media in your area and, if possible, all of the religious
institutions. If you can't find an email address, please print the
message (removing this paragraph) and mail or deliver it to any and all
groups you can think of. If English is not the first language in
your area, please translate it and forward it on. Someone asked me
where
I wanted this message to go. I said "everywhere in the world where
there
is someone who can contribute to Parkinson's research. Let's spread the
word. Barb
***TUTU TO HELP PARKINSON'S DISEASE SUFFERERS***
South Africa's Desmond M. Tutu, Archbishop Emeritus and Nobel Peace
Laureate, Robert W. Woodruff Visiting Professor of Theology, Emory
University, Atlanta, Georgia, USA has offered to issue a prayer for all
those worldwide who are suffering from Parkinson's Disease to mark World
Parkinson's Awareness Month in April.
The Archbishop offered to write a prayer for the occasion following a
telephone conversation and a long emailed letter from Ivan Suzman,
Portland, Maine, who has advanced Young Onset Parkinson's. Suzman, a
disabled anthropologist, (and formerly a leading anti-apartheid
activist)
has become a Parkinson's activist and a member of the Parkinson
Information Exchange Network (PIEN), an internet discussion list,
notified members of the list of the Archbishop's willingness to "do
something for those suffering from Parkinson's". Later, Tutu's office
notified the listowner, Barbara Patterson, another Young Onset"
Parkinsonian and a secretary at McMaster University School of Nursing,
Hamilton, Ontario, Canada, that the Archbishop had decided that his
prayer will be issued through PIEN.
Patterson's internet list has more than 1,800 subscribers in 36
countries.
Parkinson's Disease (PD) is a chronic, slowly progressive neurological
condition that affects a small area of cells in the mid brain known as
the substantia nigra. Gradual degeneration of these cells causes a
reduction in a vital chemical known as "dopamine". This decrease in
dopamine can produce one or more of the classic signs of Parkinson's
Disease.
Although an estimated 15% of patients are diagnosed before age 50, PD is
generally considered a disease which targets older adults. Parkinson's
disease affects up to 10%, in some populations, of those persons over
the
age of 60. To date, there is no known prevention or cure for Parkinson's
Disease.
Notable persons with the disease include Pope John Paul II, Muhammad
Ali,
American Attorney General, Janet Reno, Gandhi photographer Margaret
Bourke-White and actor Michael J. Fox.
===========================================================================
Barbara Patterson
[log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
^^^
\ /
\ | / Today’s Research
\\ | // ...Tomorrow’s Cure
\ | /
\|/
```````
=========================================================================
Date: Fri, 26 Mar 1999 11:59:39 -0600
Reply-To: Jim Snyder <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Snyder <[log in to unmask]>
Subject: Re: Re-post: Newbies: acronyms / purpose of our list / cyber-dad
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Content-Transfer-Encoding: 7bit
Hi, Janet,
Can I share more acronyms with you, (some of which were printed in our
local paper last fall):
AKA also known as
ASAP as soon as possible
F2F face to face
GMTA great minds think alike
HHOK ha ha only kidding
IDK I don't know
IMnsHO In my not so humble opinion
ITA I totally agree
J/K Just kidding
MOTOS members of the opposite sex
MYOB mind your own business
BTW by the way
OTOH on the other hand
SUL see you later
TGIF thank God it's friday
TTYL talk to you later
WTG way to go
K? OK?
R&D runnin' & duckin'
Then there are EMOTICONs:
:-) smiley face, generic
]:-) feeling like royalty
8-( ) smiley face with glasses & mustache
>:-( angry face
*<( :-{ ) Santa Claus
I hope nobody thinks this is too trivial to waste BBS space on. It's the
cyberspace language of our grandkids (who will replace us.)
IOOH (I'm out of here) Jim (age/gauge: 69/64/59)
-----Original Message-----
From: janet paterson <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, March 26, 1999 8:08 AM
Subject: Re-post: Newbies: acronyms / purpose of our list / cyber-dad
>---------------------------------------------------------------------------
-
> 1998/02/18 acronyms / purpose of our list / cyber-dad
>---------------------------------------------------------------------------
-
>
>
> hi all
>
> ...those of us who have been privileged
> to have access to the internet for some time
> are frequently guilty of using 'insider' language and short-forms
> without regard for the newer internet adventurers
>
> i consciously try to avoid using such insider 'lingo'
> in consideration of the above-mentioned 'newbies' and
> in consideration of the international aspect of this list-family
>
> i am privileged in that
> english [my native language - albeit the canadian version]
> is becoming or already has become
> the internet's primary language
>
> i only have admiration for those who have learned english
> as a second [or third, or fourth...] language
>
> so...
>
> SPAM
> = that canned manufactured pseudo ham
> = 'junk' e-mail spewed to all and sundry
>
> LOL
> = laughing out loud
>
> ROTFLOL
> = rolling on the floor, laughing out loud
>
> PD
> = parkinson's disease
>
> PWD or PWP
> = person with parkinson's disease
>
> PARKIE
> = another version of person with parkinson's disease
>
> in re the above two terms:
> you pays your money and you takes your choice!
>
> ...
> words / ideas that are written can be easily misunderstood
> [especially, it seems, when the tone is casual and teasing]
> since there is no body language / facial expression
> to assist the receiver in interpretation
> so short-forms and 'emoticons' like:
> <g> = grin or giggle
> :-) = smile
> have developed for clarity's sake
>
> the internet and e-mail are a brand new communications phenomenon
> so in the larger sense, we are all 'newbies' to this medium...
>
> IMHO = in my humble opinion,
> FWIW = for whatever it's worth,
> sometimes very short messages can 'backfire'
> in the sense that the sender may intend a kindness in being brief
> but the receiver may interpret the brevity
> as curtness or criticism
>
> some of our cyber-family want short messages
> some want long messages
> some want jokes
> some want purely pd-related info
>
> we are each of us totally unique one-of-a-kind individuals
> [how's that for excess redundancy?]
> we have to do
> what we have to do
> to be true to ourselves
> and not be overly concerned with others' opinions of us
>
> i believe that the purpose of this list is sharing
> [of which our 'list-mom' barb patterson perpetrated the ultimate
> by starting this list in november 1993]
> if we feel the need to share
> news about pd or non-pd
> grief or celebration
> anger or humour
> joy or pain
> so be it
>
> ...i hope all of us continue writing to all of us
> we are in this 'boat' together and for the 'long haul'
>
> each one of us
> regardless of our skill or comfort level with the internet
> has something to contribute which might benefit others
>
> ...i think that 99% of angry reactions
> are caused by mis-understandings or mis-interpretations
> and the best [maybe only] way to clear out the mess
> is to talk it all out
>
> back to our favourite cyber-dad don mckinley
> and his expression I.Y.Q.:
> which as pronounced in english sounds like:
> 'eye why kew'
> which if said quickly can sound like:
> 'i wike you'
> which can sometimes be interpreted as 'baby-talk' for:
> 'i like you'
>
> i have always found the expression delightful
> as well as more than a tad goofy
> which is another reason why
> i.y.q. 2!
> [mr. don and mr. pd both!]
>
> your cyber-sibling in silliness
> [yr cybyr-cyblyng yn syllynyss]
>
> janet
>
>
>---------------------------------------------------------------------------
-
>
>janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
><http://www.newcountry.nu/pd/members/janet/index.htm>
>[log in to unmask]
>
=========================================================================
Date: Fri, 26 Mar 1999 11:27:35 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: More on purple pigs
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Jerry, I posted your article to some nutrition listservs, where it has
prompted some searches and concern. Here's a reply I got:
If you go to http://www.msnbc.com/local/wcau/132784.asp there is an
updated story on the EPA situation in the Gilbertsville/Pottstown are
community. The new EPA report won't be out for a month.
Best,
Kathrynne
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Fri, 26 Mar 1999 13:39:13 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Re-post: Newbies: acronyms / FAQ FILE
Comments: cc: Jim Snyder <[log in to unmask]>
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
At 11:59 1999/03/26 -0600, jim wrote:
>Hi, Janet,
> Can I share more acronyms with you, (some of which were printed in our
>local paper last fall):
>
> AKA also known as
> ASAP as soon as possible
> F2F face to face
> GMTA great minds think alike
> HHOK ha ha only kidding
> IDK I don't know
> IMnsHO In my not so humble opinion
> ITA I totally agree
> J/K Just kidding
> MOTOS members of the opposite sex
> MYOB mind your own business
> BTW by the way
> OTOH on the other hand
> SUL see you later
> TGIF thank God it's friday
> TTYL talk to you later
> WTG way to go
> K? OK?
> R&D runnin' & duckin'
>
>
>Then there are EMOTICONs:
>
> :-) smiley face, generic
>
> ]:-) feeling like royalty
>
> 8-( ) smiley face with glasses & mustache
>
> >:-( angry face
>
> *<( :-{ ) Santa Claus
>
>I hope nobody thinks this is too trivial to waste BBS space on. It's the
>cyberspace language of our grandkids (who will replace us.)
>IOOH (I'm out of here) Jim (age/gauge: 69/64/59)
thank you jim!
i am slowly assembling information for a
FAQ
- ono, another one! i mean -
a Frequently Asked Questions file
for new members of the pd list and/or internet and/or computerworld
i need all the inpurt i can get!
janet
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 12:54:06 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Nita Andres <[log in to unmask]>
Subject: Re: Re-post: Newbies: acronyms / FAQ FILE
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Janet,I have received this and I think it means a wink ; -) who knows. Looks
good though.
janet paterson wrote:
> hi all
>
> At 11:59 1999/03/26 -0600, jim wrote:
> >Hi, Janet,
> > Can I share more acronyms with you, (some of which were printed in our
> >local paper last fall):
> >
> > AKA also known as
> > ASAP as soon as possible
> > F2F face to face
> > GMTA great minds think alike
> > HHOK ha ha only kidding
> > IDK I don't know
> > IMnsHO In my not so humble opinion
> > ITA I totally agree
> > J/K Just kidding
> > MOTOS members of the opposite sex
> > MYOB mind your own business
> > BTW by the way
> > OTOH on the other hand
> > SUL see you later
> > TGIF thank God it's friday
> > TTYL talk to you later
> > WTG way to go
> > K? OK?
> > R&D runnin' & duckin'
> >
> >
> >Then there are EMOTICONs:
> >
> > :-) smiley face, generic
> >
> > ]:-) feeling like royalty
> >
> > 8-( ) smiley face with glasses & mustache
> >
> > >:-( angry face
> >
> > *<( :-{ ) Santa Claus
> >
> >I hope nobody thinks this is too trivial to waste BBS space on. It's the
> >cyberspace language of our grandkids (who will replace us.)
> >IOOH (I'm out of here) Jim (age/gauge: 69/64/59)
>
> thank you jim!
>
> i am slowly assembling information for a
> FAQ
> - ono, another one! i mean -
> a Frequently Asked Questions file
> for new members of the pd list and/or internet and/or computerworld
>
> i need all the inpurt i can get!
>
> janet
>
> janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
> <http://www.newcountry.nu/pd/members/janet/index.htm>
> [log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 14:01:12 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Linda Potter <[log in to unmask]>
Subject: Re: Spreading the word about TUTU TO HELP PARKINSON'S DISEASE SUFF
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Copies sent to Winona Daily News - Winona, MN
St. Paul Dispatch Pioneer Press - Winona, MN
Buffalo County Journal - Cochrane, WI
Diocese of La Crosse Times Review - La
Crosse, WI
La Crosse Trobune - La Crosse, WI
Linda
=========================================================================
Date: Fri, 26 Mar 1999 12:11:45 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mary Holt <[log in to unmask]>
Subject: Hello - My Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hello Friends,
My name is Mary, and I want to introduce myself to the list. I just
found this list after doing a search for information about Parkinson's
Disease. This information is not for myself, but for my mom, Eileen (she
is 68 years old). Last summer, I noticed that her face seemed to have
more of a tremor/shake - around her mouth, her hands are also quite
shaky. She tries to hide her hands by holding them, but the shake is
still present. Dad and I have also noticed that Mom appears to be
experiencing some memory problems, such as knowing the
definitions/meanings for certain words that she always knew, and she is
also forgetting certain people that were known to her. My mother also
appears to be withdrawn even though we encourage her to attend certain
social events such as card parties. Her hand shakiness is only mild, but
could this be part of the reason for her not wanting to attend card
parties? She always has enjoyed them, and mom and dad used to host some
of them at our home. I think another reason for her not wanting to
attend outings maybe underlying depression.
Do all of her symptoms appear to be suggestive of early Parkinson's
Disease?
I'm trying to convince her to return to her family doctor, actually, I
would prefer if she were to change to a different one. The doctor that
she has now is not doing a very good job in terms of providing
follow-up. I would also like for my mom to see a neurologist, I've heard
that one of the top Parkinson's Disease specialist for our province,
Nova Scotia is a Dr. Jock Murray (I think this his is name) in Halifax.
If anyone knows of any other specialists who my mom may consider, I
would like to know.
We also appear to have a family history for Parkinson's Disease - my
mother's mom had it, I also have a cousin, and an uncle who have been
diagnosed with Parkinson's.
I probably will be mostly lurking for a while, as I do not know enough
about Parkinson's Disease to provide any information.
Thank-you in advance for any information that you are able to provide.
Take care:)
Mary
_________________________________________________________
Do You Yahoo!?
Get your free @yahoo.com address at http://mail.yahoo.com
=========================================================================
Date: Fri, 26 Mar 1999 13:01:23 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mary Holt <[log in to unmask]>
Subject: Hello- My Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hello Friends,
My name is Mary, and I want to introduce myself to the list. I just
found this list after doing a search for information about Parkinson's
Disease. This information is not for myself, but for my mom, Eileen (she
is 68 years old). Last summer, I noticed that her face seemed to have
more of a tremor/shake - around her mouth, her hands are also quite
shaky. She tries to hide her hands by holding them, but the shake is
still present. Dad and I have also noticed that Mom appears to be
experiencing some memory problems, such as knowing the
definitions/meanings for certain words that she always knew, and she is
also forgetting certain people that were known to her. My mother also
appears to be withdrawn even though we encourage her to attend certain
social events such as card parties. Her hand shakiness is only mild, but
could this be part of the reason for her not wanting to attend card
parties? She always has enjoyed them, and mom and dad used to host some
of them at our home. I think another reason for her not wanting to
attend outings maybe underlying depression.
Do all of her symptoms appear to be suggestive of early Parkinson's
Disease?
I'm trying to convince her to return to her family doctor, actually, I
would prefer if she were to change to a different one. The doctor that
she has now is not doing a very good job in terms of providing
follow-up. I would also like for my mom to see a neurologist, I've heard
that one of the top Parkinson's Disease specialist for our province,
Nova Scotia is a Dr. Jock Murray (I think this his is name) in Halifax.
If anyone knows of any other specialists who my mom may consider, I
would like to know.
We also appear to have a family history for Parkinson's Disease - my
mother's mom had it, I also have a cousin, and an uncle who have been
diagnosed with Parkinson's.
I probably will be mostly lurking for a while, as I do not know enough
about Parkinson's Disease to provide any information.
Thank-you in advance for any information that you are able to provide.
Take care:)
Mary
===
Visit the Kid's Place home page: http://members.tripod.com/kidsplaceonline/index.html
~Because the greatest gift of all is a child's smile and
laughter.~
" Obstacles are those frightful things you see when you
take your eyes off your goal. "
~ Henry Ford ~
_________________________________________________________
Do You Yahoo!?
Get your free @yahoo.com address at http://mail.yahoo.com
=========================================================================
Date: Fri, 26 Mar 1999 15:06:25 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Linda Potter <[log in to unmask]>
Subject: To Bettie
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Hi Bettie. You ask about neck pain - don't know if it is a sx of PD, but
I have a constant ache in my right scapula. I had it when I was writing
left-handed and still have it writing right-handed. And I have calf
cramps at night, usually in the left ( affected side ) leg. Upping my
dose of vit. E to 800 iu. daily and trying to drink more water has
helped. As far as my PD, I take mirapex 4.5 mg daily. My other
prescription meds are premarin and provera. OTCs are aspirin, St. John's
Wort (for wellbeing ), vit. E, vit B-complex, and coenzymeQ10. I was dx'd
10 months ago, so this is still new to me, and I'm in the learning
process. PD takes a good part of my thoughts each day. I have not been
able to put it out of my mind. I try to get to my gym and yoga classes.
So I keep busy most of the time. Working is still going okay, I'm slower
but am able to do my work ( I'm a nurse ). I'd like to keep in touch with
you , but the e-mail address I wrote down is wrong. Please contact me if
you are interested in talking. Linda
[log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 17:11:45 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Spreading the word
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Here is an updated list of those who have received the announcement re
Archbishop Tutu. It has been sent to 60 different groups or
individuals. Let's see how many more we can do. (I haven't seen any
information re Parkinsaw publications. :) Barb
1. Dallas Morning News
2. Newspaper and 2 radio stations in Portland, Oregon
3. Press-Herald in Portland, Maine
4. Riverdale Press, Bronx, New York
5. Most daily newspapers in Southern Ontario
6. Anglican Bishop of Toronto
7. Executive Assistant to Primate, The Anglican Church of Canada
8. Simon Coles' PDNEWS
9. The Parkinson's Foundation of Canada
10. The Spectator, Hamilton, Ontario
11. CBC Newsworld
12. Canadian Council of Churches
13. World Council of Churches
14. Roman Catholic Diocese of Hamilton
15. Drew Miga - Washington correspondent of the Boston Herald
16. Nina King - Literary editor of the Washington Post (she has PD)
17. Nikki Hoose - producer of the Jim Lehrer hour
18. Dennis Becket., editor of 'Frontline' South African journal of
political commentary
19. Marike Sboros - health editor of the Johannesburg "Star"
20. Sophie MacKenzie - editor of "Pathways to Health"
21. OZ Koglin at the Oregonian newspaper in Oregon
22. Dateline
23. Buffalo News, Buffalo, New York
24. Parkinson Post (Canada)
25. Dutch Parkinson Association - Press release to Dutch media
26. Nederpark (Dutch PD list)
27. Augusta Chronicle, Augusta Georgia
28. WJBF TV, Augusta Georgia
29. The Kansas City Star's
a. national/international news desk
b. the religion desk
c. the Shawnee Mission bureau in KS
30. The Sun Newspapers, Johnson Co., KS
31. The Journal Herald, Shawnee/Merriam, KS
32. The Kansan, Kansas City, KS
33. TV stations - NBC,
34. TV stations - CBS,
35. TV stations - ABC,
36 TV stations - Fox affiliates
37. Radio stations - KCUR
38. Radio stations -(NPR),
39. Radio stations - KKFI,
40. Radio stations - KCMO,
41. Radio stations - KMBZ,
42. Radio stations - KFEW,
43. Radio stations - KPHN
44. Radio stations - (CNN)
45. Radio stations: CREC, Strathroy
46. Radio stations: BX 93, London
47. Radio stations: CFPL, London
48. TV stations: London,
49. TV stations: Windsor,
50. TV stations: Wingham
51. Atlanta Journal-Constitution in Atlanta, GA
52. Mercury, San Jose, CA
53. Seattle Post Intelligencer, Seattle, Washington
54. Seattle Times, Seattle, Washington
55. Bi-monthly Newsletter, Seattle, Washington
56. Winona Daily News - Winona, MN
57. St. Paul Dispatch Pioneer Press - Winona, MN
58. Buffalo County Journal - Cochrane, WI
59. Diocese of La Crosse Times Review - La Crosse, WI
60. La Crosse Tribune - La Crosse, WI
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Fri, 26 Mar 1999 17:39:24 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Maryhelen Davila <[log in to unmask]>
Subject: Re: Spreading the word - announcement re Archbishop Tutu.
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
RE the announcement re Archbishop Tutu.
Dear Barbara and friends
I can't seem to keep up... Could someone please post or send to me - the
suggested verbiage or an example of what wording they used to "get the word
out". I'd like to use it to send it to nnewspapers, radio stations etc. It
would save me as I feel I need help composing this.
Thank you
]maryhelen
[log in to unmask]
=========================================================================
Date: Fri, 26 Mar 1999 17:49:56 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Re: Spreading the word
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Barb: You are 100% correct in your analysis. Even imaginary communities have
real newspapers, and there are also a couple around here where I hang my hat
when I'm not busy in Parkinsaw, MI. The Announcement will be sent to these
organs forthwith. Also, as you are aware, the View from the Lighter Side report
appears weekly on the web site, in addition to being sent to the PIE List.
Anyway, if you think it appropriate, I can add a special area for the
Announcement on the web site, prominently placed, until the event occurs. In
fact, although I'm thinking out loud here, there really could be a permanent
"area" on the web site for important events, promotions ect. This is in the
spirit of every little bit helps. Thank you so much for reminding us up here in
the frozen North to lay-off the Levodopa beer and bratwurst until we get our
work done. Let me know your thinking on the web site idea, Barb, I'm new to all
this and don't want to go against the grain, so to speak.
John Bjork
A View from the Lighter Side
Parkinsaw, MI (An imaginary place for PWP)
www.mikeauldridge.com/parknsaw.htm
Barbara Patterson wrote:
> Here is an updated list of those who have received the announcement re
> Archbishop Tutu. It has been sent to 60 different groups or
> individuals. Let's see how many more we can do. (I haven't seen any
> information re Parkinsaw publications. :) Barb
>
> 1. Dallas Morning News
> 2. Newspaper and 2 radio stations in Portland, Oregon
> 3. Press-Herald in Portland, Maine
> 4. Riverdale Press, Bronx, New York
> 5. Most daily newspapers in Southern Ontario
> 6. Anglican Bishop of Toronto
> 7. Executive Assistant to Primate, The Anglican Church of Canada
> 8. Simon Coles' PDNEWS
> 9. The Parkinson's Foundation of Canada
> 10. The Spectator, Hamilton, Ontario
> 11. CBC Newsworld
> 12. Canadian Council of Churches
> 13. World Council of Churches
> 14. Roman Catholic Diocese of Hamilton
> 15. Drew Miga - Washington correspondent of the Boston Herald
> 16. Nina King - Literary editor of the Washington Post (she has PD)
> 17. Nikki Hoose - producer of the Jim Lehrer hour
> 18. Dennis Becket., editor of 'Frontline' South African journal of
> political commentary
> 19. Marike Sboros - health editor of the Johannesburg "Star"
> 20. Sophie MacKenzie - editor of "Pathways to Health"
> 21. OZ Koglin at the Oregonian newspaper in Oregon
> 22. Dateline
> 23. Buffalo News, Buffalo, New York
> 24. Parkinson Post (Canada)
> 25. Dutch Parkinson Association - Press release to Dutch media
> 26. Nederpark (Dutch PD list)
> 27. Augusta Chronicle, Augusta Georgia
> 28. WJBF TV, Augusta Georgia
> 29. The Kansas City Star's
> a. national/international news desk
> b. the religion desk
> c. the Shawnee Mission bureau in KS
> 30. The Sun Newspapers, Johnson Co., KS
> 31. The Journal Herald, Shawnee/Merriam, KS
> 32. The Kansan, Kansas City, KS
> 33. TV stations - NBC,
> 34. TV stations - CBS,
> 35. TV stations - ABC,
> 36 TV stations - Fox affiliates
> 37. Radio stations - KCUR
> 38. Radio stations -(NPR),
> 39. Radio stations - KKFI,
> 40. Radio stations - KCMO,
> 41. Radio stations - KMBZ,
> 42. Radio stations - KFEW,
> 43. Radio stations - KPHN
> 44. Radio stations - (CNN)
> 45. Radio stations: CREC, Strathroy
> 46. Radio stations: BX 93, London
> 47. Radio stations: CFPL, London
> 48. TV stations: London,
> 49. TV stations: Windsor,
> 50. TV stations: Wingham
> 51. Atlanta Journal-Constitution in Atlanta, GA
> 52. Mercury, San Jose, CA
> 53. Seattle Post Intelligencer, Seattle, Washington
> 54. Seattle Times, Seattle, Washington
> 55. Bi-monthly Newsletter, Seattle, Washington
> 56. Winona Daily News - Winona, MN
> 57. St. Paul Dispatch Pioneer Press - Winona, MN
> 58. Buffalo County Journal - Cochrane, WI
> 59. Diocese of La Crosse Times Review - La Crosse, WI
> 60. La Crosse Tribune - La Crosse, WI
>
> ============================================================================
> Barbara Patterson [log in to unmask]
> HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
> ============================================================================
=========================================================================
Date: Fri, 26 Mar 1999 16:06:39 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Spreading the word
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Barb,
I've sent it to our local newspaper, The Coloradoan.
Also, I asked for, and received the "Pennies for Parkinson" packet of
materials, and I thought the list might like to know how nice these are.
There are labels, to be placed on a jar, and given to local merchants
for donations -- or just for members to keep in their own homes, and
deposit their spare change. There are also nice brochures and fact
sheets about "Pennies for Parkinsons" and about PAN.
I strongly urge all of you to call for this packet of materials, if you
haven't already done so. The number is 888-331-4673, the materials are
free. I met with our PD support group Board this week to discuss
placement of the labels, and the Board is quite enthusiastic about this;
in fact, we will try to get the labels out into surrounding communities
throughout the county as well.
Best,
Kathrynne
Barbara Patterson wrote:
>
> Here is an updated list of those who have received the announcement re
> Archbishop Tutu. It has been sent to 60 different groups or
> individuals. Let's see how many more we can do. (I haven't seen any
> information re Parkinsaw publications. :) Barb
>
> 1. Dallas Morning News
> 2. Newspaper and 2 radio stations in Portland, Oregon
> 3. Press-Herald in Portland, Maine
> 4. Riverdale Press, Bronx, New York
> 5. Most daily newspapers in Southern Ontario
> 6. Anglican Bishop of Toronto
> 7. Executive Assistant to Primate, The Anglican Church of Canada
> 8. Simon Coles' PDNEWS
> 9. The Parkinson's Foundation of Canada
> 10. The Spectator, Hamilton, Ontario
> 11. CBC Newsworld
> 12. Canadian Council of Churches
> 13. World Council of Churches
> 14. Roman Catholic Diocese of Hamilton
> 15. Drew Miga - Washington correspondent of the Boston Herald
> 16. Nina King - Literary editor of the Washington Post (she has PD)
> 17. Nikki Hoose - producer of the Jim Lehrer hour
> 18. Dennis Becket., editor of 'Frontline' South African journal of
> political commentary
> 19. Marike Sboros - health editor of the Johannesburg "Star"
> 20. Sophie MacKenzie - editor of "Pathways to Health"
> 21. OZ Koglin at the Oregonian newspaper in Oregon
> 22. Dateline
> 23. Buffalo News, Buffalo, New York
> 24. Parkinson Post (Canada)
> 25. Dutch Parkinson Association - Press release to Dutch media
> 26. Nederpark (Dutch PD list)
> 27. Augusta Chronicle, Augusta Georgia
> 28. WJBF TV, Augusta Georgia
> 29. The Kansas City Star's
> a. national/international news desk
> b. the religion desk
> c. the Shawnee Mission bureau in KS
> 30. The Sun Newspapers, Johnson Co., KS
> 31. The Journal Herald, Shawnee/Merriam, KS
> 32. The Kansan, Kansas City, KS
> 33. TV stations - NBC,
> 34. TV stations - CBS,
> 35. TV stations - ABC,
> 36 TV stations - Fox affiliates
> 37. Radio stations - KCUR
> 38. Radio stations -(NPR),
> 39. Radio stations - KKFI,
> 40. Radio stations - KCMO,
> 41. Radio stations - KMBZ,
> 42. Radio stations - KFEW,
> 43. Radio stations - KPHN
> 44. Radio stations - (CNN)
> 45. Radio stations: CREC, Strathroy
> 46. Radio stations: BX 93, London
> 47. Radio stations: CFPL, London
> 48. TV stations: London,
> 49. TV stations: Windsor,
> 50. TV stations: Wingham
> 51. Atlanta Journal-Constitution in Atlanta, GA
> 52. Mercury, San Jose, CA
> 53. Seattle Post Intelligencer, Seattle, Washington
> 54. Seattle Times, Seattle, Washington
> 55. Bi-monthly Newsletter, Seattle, Washington
> 56. Winona Daily News - Winona, MN
> 57. St. Paul Dispatch Pioneer Press - Winona, MN
> 58. Buffalo County Journal - Cochrane, WI
> 59. Diocese of La Crosse Times Review - La Crosse, WI
> 60. La Crosse Tribune - La Crosse, WI
>
> ============================================================================
> Barbara Patterson [log in to unmask]
> HSC 2J22 905-525-9140, ext. 22403
> School of Nursing
> ============================================================================
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Fri, 26 Mar 1999 16:21:17 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: JaneRoss <[log in to unmask]>
Subject: Fwd: Re: LEVADOPA
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
>Date: Fri, 26 Mar 1999 10:18:34 -0800
>To: Ruth J Clark <[log in to unmask]>
>From: JaneRoss <[log in to unmask]>
>Subject: Re: LEVADOPA
>Cc:
>Bcc:
>X-Attachments:
>
>Dear Ruth,
>
>I'm going to answer your questions to the list because they are the same
>questions I get over and over.
>
>I have always been happy with the results of the surgery just not with
>finding out 6 months after I had it done that I was going to have to pay
>for it. My insurance company failed to pay for the surgery (complicated
>story filled with a lot of frustration). Maybe I am a little happier with
>it now that we have finished paying for it and can see the refund on this
>year taxes. (smile)
>
>The infusion study was a "blind" study so I don't have a lot of
>information to share. I don't know how much levadopa was infused but it
>didn't feel like an excessive amount.
>
>It has been three years since the surgery, the first year I tried to work
>with the sinemet but from that point I found I would rather have the
>residue of a tremor in my right hand rather than dyskinesia throughout my
>body, juggling pills and worst of all avoiding protein. The infusions
>were given as a drip over a two hour time period and they lasted between 5
>and 6 hours.
>
>Ruth, it truly is heaven to be freed from the medications. All I take is
>1 mg of Mirapex twice a day along with high blood pressure medication.
>Hard to remember to take.
>
>Warning to anyone considering this surgery: I got remarkable improvement,
>the best of all the patients I have met or heard about. I want everyone
>to be free of the control that Parkinson's takes from you. but it is a
>risky surgery.
>
>I too wish they would approve the STN DBS. I would not trade my surgery
>for one in the pallatal area even it took away the rest of my tremor. Wow
>I just made an assumption that my surgery is in the thalamus area of my
>brain. I still don't know where it is located.
>
>Hope this helps.
>
>
>>From: Ruth J Clark <[log in to unmask]>
>>
>>Jane,
>>
>>You were so good some time ago about answering my questions about STNDBS
>>that I have presumed upon you to answer again. It seems at that time,
>>you were not real happy with it and I wonder if you are now. You say that
>>in the study you had Levadopa "infusions". How were the infusions given
>>and how much? during the year after the implants, what medicines were
>>you taking if not Levadopa? It sounds wonderful to me that one could go
>>without the terrible fluctuations we get from the long term use of
>>L-dopa. Right now, in order to get around, I'm having bad dyskenisia!
>>
>>It seems to me the implants would be my best hope, but few PWPs seem
>>interested. I wish that it would get approved by FDA or that
>>Mayo-Jacksonville
>>would get the funding for the studies they want to do,as I could be a
>>part of that
>>study!
>>
>>Please let me know how you feel about the success of the implants in your
>>life and do you know how successful they consider the study.?
>>
>>Ruth Clark
>>
>>___________________________________________________________________
>>You don't need to buy Internet access to use free Internet e-mail.
>>Get completely free e-mail from Juno at http://www.juno.com/getjuno.html
>>or call Juno at (800) 654-JUNO [654-5866]
>>
>>--GAAAA00164.922446451/m16.boston.juno.com--
>>
>>
>>--------- End forwarded message ----------
>>
>>___________________________________________________________________
>>You don't need to buy Internet access to use free Internet e-mail.
>>Get completely free e-mail from Juno at http://www.juno.com/getjuno.html
>>or call Juno at (800) 654-JUNO [654-5866]
>
>
>
jjjane
http://www.parkinsonalliance.net/medical/palross/palross.htm
=========================================================================
Date: Fri, 26 Mar 1999 19:16:54 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bob Anibal <[log in to unmask]>
Subject: Kadish
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I was telling our Minister about the Kadish prayer- he knew nothing about it
so I volunteered to print it off for him , but my deleted file folder turned
up empty, so will somebody send it to me by email, please
Bob Anibal
boba@macronet
=========================================================================
Date: Fri, 26 Mar 1999 19:35:23 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: ERVIN J MCCARTHY <[log in to unmask]>
Subject: Re: PARKINSN Digest - 22 Mar 1999 (#1999-131)
MIME-Version: 1.0
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charset="iso-8859-1"
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Can anyone on the list tell me if they have any information on IP6. I =
recall something was posted about it in the past. If anyone has any =
information on it would they please posted to the list again, or write =
me off list. Thank you.
[log in to unmask]
-----Original Message-----
From: Michael F. Martelli, Ph.D. <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, March 24, 1999 4:08 AM
Subject: Re: PARKINSN Digest - 22 Mar 1999 (#1999-131)
=20
=20
=20
Villa Martelli INet Disability Resources:=20
> http://www.angelfire.com/va/MFMartelliPhD=20
>=20
> Description:=20
> A comprehensive listing of some of the most useful links for=20
> professionals and patients who assess, treat, or cope with =
physical or=20
> neurologic injury or impairment, including brain injury and=20
> neurobehavioral disorders, stroke, Parkinsons, dementia or other=20
> neurologic diseases, Multiple Sclerosis and other neuromuscular=20
> diseases, chronic pain, musculoskeletal disorders, etc. Resources =
> include numerous organizations, medical, psychological assessment =
and=20
> practical treatment strategies, assessment and treatment reviews,=20
> including some of the newest treatment methodologies, support =
groups,=20
> list serve groups, assistive technology, computer applications,=20
> downloadable information and books, government resources, etc.=20
>=20
> Keywords:=20
> Disability, Rehabilitation, Brain Injury, CVA, MS, Neurologic,=20
> Neuropsychology, Parkinsons, Chronic Pain biofeedback, cognitive=20
> rehabilitation=20
=20
------=_NextPart_001_003A_01BE77BF.CA7867E0
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
<HTML>
<HEAD>
<META content=3Dtext/html;charset=3Diso-8859-1 =
http-equiv=3DContent-Type><!doctype html public "-//w3c//dtd html 4.0 =
transitional//en">
<META content=3D'"MSHTML 4.72.3110.7"' name=3DGENERATOR>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><FONT size=3D2>Can anyone on the list tell me if they have any =
information on=20
IP6. I recall something was posted about it in the =
past. If=20
anyone has any information on it would they please posted to the list =
again, or=20
write me off list. Thank you.</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A>=
</FONT></DIV>
<BLOCKQUOTE=20
style=3D"BORDER-LEFT: #000000 solid 2px; MARGIN-LEFT: 5px; PADDING-LEFT: =
5px">
<DIV><FONT face=3DArial size=3D2><B>-----Original =
Message-----</B><BR><B>From:=20
</B>Michael F. Martelli, Ph.D. <<A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A>><BR><B>To: =
</B><A=20
=
href=3D"mailto:[log in to unmask]">[log in to unmask]
CA</A>=20
<<A=20
=
href=3D"mailto:[log in to unmask]">[log in to unmask]
CA</A>><BR><B>Date:=20
</B>Wednesday, March 24, 1999 4:08 AM<BR><B>Subject: </B>Re: =
PARKINSN Digest=20
- 22 Mar 1999 (#1999-131)<BR><BR></DIV></FONT><IMG height=3D60=20
src=3D"cid:003101be7802$d8928020$fa7cfcd1@erv" width=3D468>=20
<P>Villa Martelli INet Disability Resources: <BR>> <A=20
=
href=3D"http://www.angelfire.com/va/MFMartelliPhD">http://www.angelfire.c=
om/va/MFMartelliPhD</A>=20
<BR>> <BR>> Description: <BR>> A comprehensive listing of =
some of=20
the most useful links for <BR>> professionals and patients who =
assess,=20
treat, or cope with physical or <BR>> neurologic injury or =
impairment,=20
including brain injury and <BR>> neurobehavioral disorders, =
stroke,=20
Parkinsons, dementia or other <BR>> neurologic diseases, Multiple =
Sclerosis and other neuromuscular <BR>> diseases, chronic pain,=20
musculoskeletal disorders, etc. Resources <BR>> include =
numerous=20
organizations, medical, psychological assessment and <BR>> =
practical=20
treatment strategies, assessment and treatment reviews, <BR>> =
including=20
some of the newest treatment methodologies, support groups, <BR>> =
list=20
serve groups, assistive technology, computer applications, <BR>>=20
downloadable information and books, government resources, etc. =
<BR>>=20
<BR>> Keywords: <BR>> Disability, Rehabilitation, Brain =
Injury, CVA,=20
MS, Neurologic, <BR>> Neuropsychology, Parkinsons, Chronic Pain=20
biofeedback, cognitive <BR>> rehabilitation <BR> =20
</P></BLOCKQUOTE></BODY></HTML>
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kAgJGQEBADs=
------=_NextPart_000_0039_01BE77BF.CA7867E0--
=========================================================================
Date: Fri, 26 Mar 1999 19:38:06 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Rick Nuss <[log in to unmask]>
Subject: incontinence
MIME-Version: 1.0
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I was wondering if anybody from the list
would be able to help this person. We
have been e-mailing each other recently
and she could use some help. She hasn't
subscribed to the PD list yet but would
appreciate any helpful information that you
could give her. She can be reached at:
[log in to unmask]
I'm a 37-year-old woman with mild PD who was diagnosed last November. I
went
on Mirapex which controlled my symptoms well, but in January, I developed
urinary urge incontinence. I have occasional bouts of urgency & frequency
during which I feel like I have to go all the time, but only a little comes
out, and I drip constantly, even after I try to relieve myself. In between
bouts, I have a constant drip. I DON'T LOSE THE TOTAL CONTENTS OF MY
BLADDER.
My parkinsonologist said that my PD is too mild to cause urge incontinence.
My pharmacist said that it is a side effect of Mirapex, so I switched to
Permax for 3 weeks. Things were slightly better after my urologist dilated
the urethral opening; he said that I wasn't emptying my bladder fully, and
that the "dribbling" was from overflow. However, the bouts of urge
incontinence continued, and Permax did not control my symptoms. I couldn't
write, which I need to do for my job.
The urologist referred me to a neuro-urologist who did lots of tests that
came out normal. He said that my urge incontinence is from PD and not
Mirapex. Since the problem hadn't gone away and I attributed the
improvement
to the dilation, I went back on Mirapex. The neuro-urologist doesn't
believe
in dilation, and prescribed Detrol and estrogen in the form of Estrace
cream.
I've been on them 4 weeks, and my problem is worse! Now, I leak all the
time, and the drip has increased to a trickle. My neuro-urologist doesn't
know what to do with me because most people with urge incontinence have
occasional leakage which stops after they relieve themselves. Also, I've
found that these bouts of urgency & frequency are sometimes triggered by
eating spicy foods or having a drink that contains caffeine, and by anxiety
such as you would experience before surgery.
Does anyone else out there have a CONSTANT drip or trickle, EVEN AFTER THEY
RELIEVE THEMSELVES? If so, what medications were you on when it started,
how
did you treat it, and were any of the treatments/medications successful?
I'd appreciate any help that any of you can give me. Three doctors haven't
been able to help, so I need the advice of someone that has experienced
this.
=========================================================================
Date: Fri, 26 Mar 1999 20:43:32 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Nita Andres <[log in to unmask]>
Subject: Re: incontinence
MIME-Version: 1.0
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Rick, has you friend been put on prophylactic bacterium? Sometime for pwps the
most simple solutions are overlooked and she also need to drink 8 glasses of
water a day if she can. And if she can stand it, avoid caffeine If she cannot
stand it ,then she should drink as little as possible. I answered on the list ,
because so many people out there have good knowledge. Nita
Rick Nuss wrote:
> I was wondering if anybody from the list
> would be able to help this person. We
> have been e-mailing each other recently
> and she could use some help. She hasn't
> subscribed to the PD list yet but would
> appreciate any helpful information that you
> could give her. She can be reached at:
> [log in to unmask]
> I'm a 37-year-old woman with mild PD who was diagnosed last November. I
> went
> on Mirapex which controlled my symptoms well, but in January, I developed
> urinary urge incontinence. I have occasional bouts of urgency & frequency
> during which I feel like I have to go all the time, but only a little comes
> out, and I drip constantly, even after I try to relieve myself. In between
> bouts, I have a constant drip. I DON'T LOSE THE TOTAL CONTENTS OF MY
> BLADDER.
> My parkinsonologist said that my PD is too mild to cause urge incontinence.
> My pharmacist said that it is a side effect of Mirapex, so I switched to
> Permax for 3 weeks. Things were slightly better after my urologist dilated
> the urethral opening; he said that I wasn't emptying my bladder fully, and
> that the "dribbling" was from overflow. However, the bouts of urge
> incontinence continued, and Permax did not control my symptoms. I couldn't
> write, which I need to do for my job.
> The urologist referred me to a neuro-urologist who did lots of tests that
> came out normal. He said that my urge incontinence is from PD and not
> Mirapex. Since the problem hadn't gone away and I attributed the
> improvement
> to the dilation, I went back on Mirapex. The neuro-urologist doesn't
> believe
> in dilation, and prescribed Detrol and estrogen in the form of Estrace
> cream.
> I've been on them 4 weeks, and my problem is worse! Now, I leak all the
> time, and the drip has increased to a trickle. My neuro-urologist doesn't
> know what to do with me because most people with urge incontinence have
> occasional leakage which stops after they relieve themselves. Also, I've
> found that these bouts of urgency & frequency are sometimes triggered by
> eating spicy foods or having a drink that contains caffeine, and by anxiety
> such as you would experience before surgery.
> Does anyone else out there have a CONSTANT drip or trickle, EVEN AFTER THEY
> RELIEVE THEMSELVES? If so, what medications were you on when it started,
> how
> did you treat it, and were any of the treatments/medications successful?
> I'd appreciate any help that any of you can give me. Three doctors haven't
> been able to help, so I need the advice of someone that has experienced
> this.
=========================================================================
Date: Fri, 26 Mar 1999 21:58:07 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: david clark and margaret clark <[log in to unmask]>
Organization: magda
Subject: re World PD Day
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The Connecticut chapter of the APDA is having a luncheon and
lecture.April 10th in Norwalk CT. The speaker being Parkinson Expert
Robert E Feldman MD>
Professor and Chairman.Dept. Of Neurology Boston University School of
Medicine and Neurologist in Chief Boston MedicalCenter The lecture is to
be Tips for visiting your Neurologist and building a positive
relationship.
I think we are honored to have such a knowledgeable speaker.
Sincerely
Margaret Clark 59?11 love hope and faith for a cure...........
=========================================================================
Date: Fri, 26 Mar 1999 22:37:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Spreading the word
MIME-Version: 1.0
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Please add Maine Meeting Place, which publishes a newsletter for the
community of people living
with disabilities.
Ivan
On Fri, 26 Mar 1999 17:11:45 -0500 Barbara Patterson
<[log in to unmask]> writes:
>Here is an updated list ...
=========================================================================
Date: Fri, 26 Mar 1999 23:23:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS (fwd)
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
As requested, I am re-sending the original announcement. Please feel
free to distribute it anywhere or put it on you websites.
******
Below is the text of a message which has been crafted by several members
of the list. I am asking each list member to forward this message to all
of the media in your area and, if possible, all of the religious
institutions. If you can't find an email address, please print the
message (removing this paragraph) and mail or deliver it to any and all
groups you can think of. If English is not the first language in
your area, please translate it and forward it on. Someone asked me where
I wanted this message to go. I said "everywhere in the world where there
is someone who can contribute to Parkinson's research. Let's spread the
word. Barb
***TUTU TO HELP PARKINSON'S DISEASE SUFFERERS***
South Africa's Desmond M. Tutu, Archbishop Emeritus and Nobel Peace
Laureate, Robert W. Woodruff Visiting Professor of Theology, Emory
University, Atlanta, Georgia, USA has offered to issue a prayer for all
those worldwide who are suffering from Parkinson's Disease to mark World
Parkinson's Awareness Month in April.
The Archbishop offered to write a prayer for the occasion following a
telephone conversation and a long emailed letter from Ivan Suzman,
Portland, Maine, who has advanced Young Onset Parkinson's. Suzman, a
disabled anthropologist, (and formerly a leading anti-apartheid activist)
has become a Parkinson's activist and a member of the Parkinson
Information Exchange Network (PIEN), an internet discussion list,
notified members of the list of the Archbishop's willingness to "do
something for those suffering from Parkinson's". Later, Tutu's office
notified the listowner, Barbara Patterson, another Young Onset"
Parkinsonian and a secretary at McMaster University School of Nursing,
Hamilton, Ontario, Canada, that the Archbishop had decided that his
prayer will be issued through PIEN.
Patterson's internet list has more than 1,800 subscribers in 36 countries.
Parkinson's Disease (PD) is a chronic, slowly progressive neurological
condition that affects a small area of cells in the mid brain known as
the substantia nigra. Gradual degeneration of these cells causes a
reduction in a vital chemical known as "dopamine". This decrease in
dopamine can produce one or more of the classic signs of Parkinson's
Disease.
Although an estimated 15% of patients are diagnosed before age 50, PD is
generally considered a disease which targets older adults. Parkinson's
disease affects up to 10%, in some populations, of those persons over the
age of 60. To date, there is no known prevention or cure for Parkinson's
Disease.
Notable persons with the disease include Pope John Paul II, Muhammad Ali,
American Attorney General, Janet Reno, Gandhi photographer Margaret
Bourke-White and actor Michael J. Fox.
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Sat, 27 Mar 1999 00:29:39 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Dick Swindler <[log in to unmask]>
Subject: Re: Introduction
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Karen -
My husband had a similar reaction to Sinemet. He had more dystonia (very
painful) than dyskinesia, but wasn't able to tolerate enough Sinemet to
relieve his PD symptoms. He had DBS (short for deep brain stimulation),
specifically pallidal stimulation, bilaterally three years ago, and that
worked wonders. He has also had tremendous success with Mirapex. He was able
to cut his Sinemet intake in half once he started Mirapex, and got good relief
from many of his remaining symptoms. He was able to get more dopamine into
his system and bypass the nasty side effects of Sinemet.
Is there a good movement disorder specialist in your area? Or a PD
specialist? That would be beneficial. You might ask your neuro/doctor about
trying Mirapex. It seems to me that you'd be a good candidate for the kind of
benefits Dick got from it.
BTW, Dick's age of onset was 37, and he was diagnosed at age 38. He has had
PD now for 17 years. You'll find a lot of young-onset Parkinsonians on this
list, plus a tremendous amount of help and support.
I think our children were about 11 and 13 when Dick was diagnosed. I don't
have any good advice for helping your daughter deal with your diagnosis and
your symptoms, but I do know that teenagers are notoriously easily embarrassed
by their parents, and any hint of "differentness" can be very difficult for
them to deal with. Your daughter will be able to cope with it better when
she's a few years older. Meanwhile, if Mirapex or another med would help
decrease your symptoms, that will help her cope for now. I also think it's
pretty frightening to teenagers deep down inside when their parents prove
vulnerable to disease. Our children are adults now, and are extremely
supportive of Dick.
Wishing you the best.
Margie Swindler, cg for Dick, 54/17
=========================================================================
Date: Sat, 27 Mar 1999 00:48:13 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Dick Swindler <[log in to unmask]>
Subject: Re: Introduction
Mime-Version: 1.0
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Silvana -
My reply may be rather late - I have been away from the list for a couple of
weeks.
Welcome to the list. Your English is good. I wish I could speak German or
Portuguese as well as you write in English!
This list is a good place to ask the questions you've asked. I don't know
whether anyone else has answered them, so I'll try. Forgive me if you've
already heard all of this before.
In the US, most people with Parkinson's consult a Movement Disorder Specialist
or a Parkinson's Specialist. I don't know whether these specialists would be
available for your friend, or what they would be called there. The best I can
suggest is for your friend to see a neurologist, which I'm guessing is
"neurologista" or something similar in Portuguese.
My husband's doctor sees his Parkinson's patients every six months, spending
only about ten minutes or fifteen minutes with them. Many times there is no
change in his medications, but occasionally the doctor will add a new
medication or change the dosage.
There are no actual measurements such as blood tests for Parkinsons. The
tests the doctors use are tests of function. That's the best way I can think
of to describe them.
I hope someone can help you find a Parkinson's organization in Portugal. If
your friend can find a neurologist who knows something about Parkinson's
disease, the doctor might know of an organization. However, I think the best
place to look is on the internet and right here on this list.
I think it's wonderful that you want to help your friend. You sound like a
very kind and caring person.
I hope this list will be helpful to you.
Warm regards,
Margie Swindler
=========================================================================
Date: Sat, 27 Mar 1999 01:13:10 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Stan or Joan Snyder <[log in to unmask]>
Subject: UPDATE: PD Awareness Day
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Hello to one & all: Here is an update on our plans in central Illinois
to observe
PD Awareness Day. On Monday, I was invited by the mayor of Chillicothe
to attend the City council meeting. There, the mayor read and then
presented to me a letter of Proclamation naming Sunday, April 11,1999
officially PD Awareness Day in Chillicothe. It was entered into the
minutes of the meeting and reported in both area newspapers. Monday was
also our first full day of fundraising under the auspices of The Tuchman
Foundation. I am thrilled to report that in 3 days of fundraising to
underwrite the expenses of putting on the Art Exhibit: The Letting
Go-A Parkinson's Story by local artist Jane Scott & her photographer
friend Mark Esser; we have collected $1230 and expect to close our at
around $1500.
The real "star" of this show is Jane's father Claude Scott who was a
local educator for 35 yrs. Since beginning this project, I have become
overwhelmed by the outpouring of love generated by this man, who's
battle w/ PD is so powerfully portrayed in this exhibit! Thus, I have
had to rethink my original numbers from 250 to 500 people. An old friend
of mine, internationally known artist & musician Preston Jackson has
offered to bring four players with him & to play two sets of jazz-Claude
Scott's music of choice. He will be playing for free-asking only nominal
fees for his players. His name alone will bring in a large number of our
target crowd and help to make the day an EVENT! My girlfriend, Connie
Hellman, who owns "A Matter of Taste" catering business has offered to
cater the event for $1 a person. She will be making fruit ka-bobs w/
dip, veggie trays, her signature "tureen" appetizers among others. The
local Subway has offered sandwiches for us to serve & my friends from
church are making desserts. We will offer coffee, raspberry iced tea &
punch. Available to be ordered will be white sweatshirts painted w/ navy
blue varsity letters: PD with a pink tulip growing between the letters.
Also available to be ordered will be T-shirts w/ the logo: "There's
nothing wrong with __________ (choose one: me, mom, dad, grandma,
grandpa, sister, brother, friend, my wife or my husband) that a cure for
PD wouldn't fix!" (Logo courtesy of my friend Dennis Greene.) We will
also be passing out ribbonsthat will be navy blue (signifying the young
onsetters) looped like the aids ribbon but tied with a silver bow
(representing the older people who get PD) united in their struggle w/
this disease. Yesterday I received a large box of handouts from APDA-if
anyone has additional materials to be used as hand outs for this large
crowd that we are expecting, please let me know! Also prominately
located on this yable will be a large box for donations. If anyone lives
in the Peoria area, I invite you to come out. Sandy Norris from North
Carolina will be making the trip back and Carter Stewart from Chicago
will make the trip back. If anyone else is interested in coming, please
let me know. Next step is a massive media blitz! I will update you as
that unfolds. Please continue to keep our project in your prayers!
--
Joan E. Snyder (47-8-10) <[log in to unmask]>
"In the depths of winter I finally learned there
was in me an invincible summer" Albert Camus
http://www.newcountry.nu/pd/members/snyder/page1.htm
=========================================================================
Date: Sat, 27 Mar 1999 02:19:58 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Maryhelen Davila <[log in to unmask]>
Subject: Re: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS (fwd)
Mime-Version: 1.0
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beautiful
thank you
will do
maryhelen
=========================================================================
Date: Sat, 27 Mar 1999 15:36:14 +0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bob & Joy Graham <[log in to unmask]>
Subject: Re: Spreading the word
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hi Kathrynne,
I like the sound of "Pennies for Parkinson" Is there any chance you could
send me some more information?
Many thanks
JOY
On a qiuet Saturday afternoon - Bob gone to the cricket and I am steeling
myself to type an "article" about April 11 Awareness Day. I have just
downloaded the Tutu letter to use and intend to try to get this into our
local rag.
I am sitting at a new computer desk which we bought yesterday. When I get
the foot rest I shall feel really set up and better protected (skeletally,
anyway!)
To work!!
Our love to you and Steve
=========================================================================
Date: Fri, 26 Mar 1999 23:39:30 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "J. R. Bruman" <[log in to unmask]>
Subject: Restless Legs Syndrome
MIME-Version: 1.0
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RESTLESS LEG SYNDROME 26 mAR 1999
Restless Legs Syndrome (RLS) is poorly understood, insufficiently
studied, and often misdiagnosed. I think that PD patients who
report RLS may possibly at times confuse it with other movement
disorders such as levodopa-induced dyskinesia or parkinsonian
tremor. There is indeed a close relation between RLS and PD, as
will be seen below. In any case the current (23 Mar 99) issue of
Neurology contains 6 articles about RLS, which may illuminate the
subject a little bit:
Turjanski N it al; Neur 1999;52:932-937:
RLS is a common disorder experienced by as much as 5% of the
population. Positron Emission Tomography (PET) studies of
striatal dopaminergic function in 13 RLS patients support the
hypothesis of central dopaminergic dysfunction in RLS.
Montplaisir J et al; Neur 1999;52:938-943:
A controlled trial in 10 RLS patients of pramipexole (Mirapex),
a new dopamine D3 agonist effective against PD, showed it to be
the most potent therapeutic agent yet tested for RLS.
Wetter T et al; Neur 1999;52:944-950:
The long-acting D1 and D2 agonist pergolide (Permax) is already
known to reduce RLS symptoms and subjectively to improve sleep
quality. A formal crossover study in 30 patients confirmed that
pergolide in low doses, combined with domperidone, is effective
and well-tolerated treatment of sensorimotor symptoms and sleep
disturbances in RLS.
Tergau F et al; Neur 1999;52:1060-1063:
They studied the effect of Transcranial Magnetic Stimulation
(TMS) in 18 RLS patients and 17 controls, finding that the
motor cortex is hyperexcitable in RLS, but suggesting that the
origin of RLS is subcortical (supraspinal).
Gemignani F et al; Neur 1999;52:1064-1096:
Evaluating the frequency of RLS in 44 patients having Charcot-
Marie-Tooth disease (another movement disorder) they found it
in about 1/3 of those with CMT type 2, but nearly absent in
other variants of CMT. They conclude that a disorder of
sensory input plays a role in RLS.
Chokroverty S, Jankovic J; Neur 1999;52:907-910 (editorial):
Poor recognition, frequent misdiagnosis, and under-reporting
have impeded studies of RLS. The agreed minimal diagnostic
criteria are (1) intense, irresistible urge to move the legs,
usually associated with peculiar sensation; (2) motor
restlessness; (3) symptoms worse at rest and relieved by
movement; and (4) symptoms worse in evening or at night.
Movements during sleep are seen in about 80% of patients.
Cheers,
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
=========================================================================
Date: Sat, 27 Mar 1999 07:17:25 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: David and Sandra Norris <[log in to unmask]>
Subject: Re: UPDATE: PD Awareness Day
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Bravo Joan...Bravo....as I sit here with tears in my eyes at each update =
that I read brings a more personal reaction. You would think that the =
wellspring of tears would have dried up after living 19 years with =
Parkinson's Disease. I thank the Lord each day for the blessing of =
healing tears. I cannot tell you the magnitude of emotion, Joan that =
your valiant efforts to pull off this momentous day has brought forth in =
me. But then again knowing that we share a kindred spirit you probably =
know just what I am speaking of. A sistership, a oneness, a belonging, =
a knowing, a familiarity of suffering, of surviving, of fighting and =
running the race toward a final goal. To reach the finish line alive, =
maybe bruised and battered with battle scars, but alive. Though the =
battle with Pd rages, as long as each one of us continues in the fight =
toward the goal of a cure and our efforts remain as valiant as yours =
Joan my heart cannot help but wait with bated breath with hope of a cure =
in our near future. I lift my glass and tip my hat to you Joan. I love =
you sister, friend, and confidant.
Sandy Norris
=========================================================================
Date: Sat, 27 Mar 1999 08:26:38 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: Re: UPDATE: PD Awareness Day
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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Hear! Hear!
Hilary Blue
*****************************
David and Sandra Norris wrote:
>
> Bravo Joan...Bravo....as I sit here with tears in my eyes at each update that I read brings a more personal reaction. You would think that the wellspring of tears would have dried up after living 19 years with Parkinson's Disease. I thank the Lord each day for the blessing of healing tears. I cannot tell you the magnitude of emotion, Joan that your valiant efforts to pull off this momentous day has brought forth in me. But then again knowing that we share a kindred spirit you probably know just what I am speaking of. A sistership, a oneness, a belonging, a knowing, a familiarity of suffering, of surviving, of fighting and running the race toward a final goal. To reach the finish line alive, maybe bruised and battered with battle scars, but alive. Though the battle with Pd rages, as long as each one of us continues in the fight toward the goal of a cure and our efforts remain as valiant as yours Joan my heart cannot help but wait with bated breath with hope of a cure i!
n !
> our near future. I lift my glass and tip my hat to you Joan. I love you sister, friend, and confidant.
>
> Sandy Norris
=========================================================================
Date: Sat, 27 Mar 1999 08:59:01 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hilary Blue <[log in to unmask]>
Subject: test
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
this a test
=========================================================================
Date: Sat, 27 Mar 1999 07:22:39 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: George Jones <[log in to unmask]>
Subject: Fw: Therese A Even SSND <[log in to unmask]>: Frances
Schulter-Ellis <[log in to unmask]>: [log in to unmask]: Fwd: (Fwd)
"Jeni Lee Byars" <[log in to unmask]>: Jesus!
Comments: To: Peter Willman <[log in to unmask]>,
Clinton Willman <[log in to unmask]>,
Shirley Kondic <[log in to unmask]>, George Burdey <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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-----Original Message-----
From: [log in to unmask] <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Friday, March 26, 1999 3:58 PM
Subject: Therese A Even SSND <[log in to unmask]>: Frances Schulter-Ellis
<[log in to unmask]>: [log in to unmask]: Fwd: (Fwd) "Jeni Lee Byars"
<[log in to unmask]>: Jesus!
>This is a good one. You might want to forward it to others.
>
>
>
>Subject: Jesus!
>
>
>
>>> VOTE FOR JESUS CHRIST
>>>
>>> Time Magazine is allowing us to vote for Time Magazine's Person
>>> of the Century, which will be in their December 1999 issue. I propose
>>> that we can vote for Christ.
>>>
>>> Each of us knows at least one person with email. CONTACT HIM.
>>> Pass this on to everyone you know. Let's start a wave of votes for
>>> Jesus Christ - Person of the Century.
>>>
>>> To vote go to:
>>> http://www.pathfinder.com/time/time100/toppersonmain.html
>>>
>>> When you get to the site you must write Jesus Christ in exactly
>>> this way. Upper case J, upper case C, all the rest lower case.
>>> Apparently the poll is case sensitive and writing it any other way
>>> does not allow your vote to be counted as Jesus Christ.
>>> Remember to PASS THIS ON to everyone you care about.
>>>
>>> PS From what I heard, the winner of the poll will have their
>>> picture on the front cover of the magazine in Dec 99, which should
>>> be a challenge for the graphics dept. at TIME!!! And so far Jesus is
>>> leading!!!
>>>
>>
>
>___________________________________________________________________
>You don't need to buy Internet access to use free Internet e-mail.
>Get completely free e-mail from Juno at http://www.juno.com/getjuno.html
>or call Juno at (800) 654-JUNO [654-5866]
=========================================================================
Date: Sat, 27 Mar 1999 09:44:51 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Spreading the Word
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Barb, the Bulletin has been sent to the following news media in the
Parkinsaw, MI area:
Cadillac Evening News
Petosky Eagle News
WLUCTV6, Marquette
Escanaba Daily Press
Houghton Daily Mining Gazette
Iron Mountain Daily News
Marquette Mining Journal
Traverse City News
Alpena News Up North
The Martinsburg Journal
Winchester Star
Sarasota Herald Tribune
I'll await your guidance re placing the Bulletin on the Parkinsaw, MI
website(www.mikeauldridge.com/parknsaw.htm)
John Bjork
A View from the Lighter Side
=========================================================================
Date: Sat, 27 Mar 1999 08:53:02 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Charles T. Meyer, M.D." <[log in to unmask]>
Subject: Changes
MIME-Version: 1.0
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Listfriends:
I just want to let people know that my near absence on the list over the
past week or 2 although it coincided in time with the change in the list
defaults has nothing to do with the change. I received an e-mail off
line concerned that that was true (that I might be angered about my idea
being reversed by Barb and the group) -
Not true, I brought it up as a suggestion to try. we tried it and I
admit it had its problems which probably outweighed it virtues.
My low activity has to do primarily with my own medical condition about
which I would like to update you. I have been having increasing problems
with dystonia which is both painful and debilitating. I can only sit at
the keyboard (or anywhere else for that matter) for comparatively brief
periods. I have been trying different combinations of requip and
sinemet (consulting with my MD). Increased Requip made me spacey (even
more than usual) and now we are going the other direction decreasing the
Requip and increasing the Sinemet.
I am scheduled tentatively for bilateral STN surgery at the end of May.
We may need to move it up if I don't get more relief from the med
changes. I would rather put it off until my wife's school semester is
over (she teaches part-time at a small local College), not complicate
my son's college semester with worry, and my daughter's pregnancy and
delivery (and the birth of our first grandchild). I also would like to
iron out insurance issues prior to having the surgery.
I have been inconstant in my replies and follow-up on issues and I
wanted people to know that it is not because of the changes on the list
or lack of interest. I have part of a FAQ Instructing listmembers on
how to manage the high volume of mail. I had said I would do it and
hope to get it done over the next few weeks. In the meantime until my
meds are better adjusted or I have the surgery, I will certainly
continue participating on the list as much as possible.
Charlie
PS Hillary- There does appear in the literature search that I have done
to be relationships between PD ADD and Tourette's Syndrome but
clinically what these relationships are I think is anybody's guess (
that in TS it appears that there is a dopamine excess).
PPS Ivan and Barb- Congrats on your work involving WPD and Rev Tutu.
--
******************************************************************************************
Charles T. Meyer, M.D.
Middleton (Madison), Wisconsin
[log in to unmask]
******************************************************************************************
=========================================================================
Date: Sat, 27 Mar 1999 16:32:29 +0000
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Brian Collins <[log in to unmask]>
Subject: Re: Excessive Meds?
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; CHARSET=US-ASCII
On Thu 25 Mar, Rebecca Hudson wrote:
> Dear Listmembers,
> After a recent hospital stay my medication was greatly increased. A PWP
> friend told me today she thought it sounded excessive. What do you
> think?
>
> Here is my schedule:
>
> 4am 50/200 CR sinemet
> 6am 1/2 of 25/250 sinemet
> 9am 1/2 of 25/250
> 2 .25 mg permax ( .5mg )
> 10am 50/200 CR sinemet
> 12pm 1/2 of 25/250 sinemet
> 2pm 2 permax
> 3pm 1/2 of 25/250 sinemet
> 4pm 50/200 CR sinemet
> 6pm 1/2 of 25/250 sinemet
> 9pm 150 mg doxapin
> 1/2 of 25/250 sinemet
> 50/200 CR sinemet
> 2 permax
> I take propulsid 3 x a day (this is new)
> And lorazipam as needed
> We'd appreciate any thoughts on this.
> Thanks,
> Rebecca Hudson
>
>
>
Hello Rebecca, I think your sinemet schedule could well be the cause of
problems in later years. Remember that in a newly-diagnosed PWP, it was
only a few months ago that you still had enough Dopamine-producing cells
to enble you to function normally. Now that a few more cells have died
off what you really want is a dose of 'Artificial Dopamine' (which is
what you get from Sinemet or Madopar tablets) of a magnitude to replace
those recent losses. Instead, you find doctors prescribing enormous doses
(such as 250 mg )- a size of tablet which I would outlaw if I could).
They do it because the effective duration of such a tablet is very large,
simply because a fraction of the tablet replaces the missing dopamine,
and the rest goes to feed a huge overdose. To understand how we manage
to cope with overdoses at that time, yet in later years it becomes a
critical factor, I would suggest that you read a couple of articles which
I wrote to explain that and other aspects of Sinemet. It remains the single
most important drug to PWPs even though the new Dopamine Agonists take
some of the load. Between them, we get a better deal than ever before.
Try this URL: http://james.parkinsons.org.uk.html
--
Brian Collins <[log in to unmask]>
=========================================================================
Date: Sat, 27 Mar 1999 11:24:43 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Spreading the word
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi!!! I'm really enjoying the picture of you at your new computer desk,
especially as I can remember your office so well. (I'm adding Pebbles to
the picture, too!)
> I like the sound of "Pennies for Parkinson" Is there any chance you could
> send me some more information?
I'll try -- it's a great idea, I think. The Parkinson Action Netword has
developed sheets of self-adhesive 3" x 4" labels, printed:
Pennies for Parkinson's
Every penny counts
(logo of an hourglass, with the words "The Parkinson Alliance -- Time
for a Cure" encircling it)
For Information
888-331-4673
1250 24th Street, NW, Ste. 300, Washington, DC 20003
The Parkinson Alliance is an affiliate of the National Parkinson
Foundation, Inc.
========
The idea is, you put the sticky label on a jar or can. You can keep it
in your own home and deposit your change in it every day. Or you can
take the can to a local merchant and ask them to display it by their
cash register for customers to drop change in.
Periodically, you, or your PD support group, collects all the jars and
change and takes it to the bank, gets the cash, and sends a check to the
National Park.Foundation.
I think it's a good way to bring awarenss of PD to the local community
-- as well as getting some cash for PD research.
A better person to ask, though, would be Margaret Tuchman,
[log in to unmask]
She's the one who announced it to the list and got my attention. I then
phoned Bill Turenne in Washington and he sent the packet. Besides the
labels, you get brochures describing "Pennies" to give out, and also a
flyer on PAN.
I hope this was fairly clear; I'm not the best at describing materials!!
I'm looking forward to meeting up with my family the end of April; I'll
be speaking to a Kansas City symposium, and my mother and brother live
only about 20 minutes north of Kansas City, so one of my sisters is
planning to come down with her kids for the weekend. That will be really
nice.
I'll be leaving for Florida on Monday to spend a couple weeks there with
Steve; he's on reserve solidly till April 6 and can't get back home. I
hate his new schedule. We're thinking of getting a small condo unit
there so I can spend more time with him and he won't have to commute so
often. I don't like Florida much; but it's preferable to not seeing him
or having him make the long commute.
Well, back to work, there's lots to do before I can leave. Thank
heavenfor laptop computers!!
Love,
Kathrynne
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Sat, 27 Mar 1999 11:34:44 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: jo young <[log in to unmask]>
Subject: Re: incontinence
Comments: To: [log in to unmask]
My urologist created an immediate turn-around for me with the addition of
"Terazosin Hcl" and "Oxybutynin Chloride."
It has been a major decision for me to consider even a 30 minute auto
trip because of the anticipated bladder urge. However, after the first
use of the meds and within one day, I attended a three hour meeting
without fear of control! My nuro did not offer help but the urologist
claimed that this problem is directly related to PD. These medications
may respond differently to a female, ask your doctor?
Bob
=========================================================================
Date: Sat, 27 Mar 1999 11:09:41 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: jo young <[log in to unmask]>
Subject: Re: Re-post: Newbies: acronyms / purpose of our list / cyber-dad
Thanks for the clarification. New critter on board!
GR
=========================================================================
Date: Sat, 27 Mar 1999 14:13:58 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Lanny Weddel <[log in to unmask]>
Subject: Re: RILUZOLE STUDY
MIME-Version: 1.0
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Ervin, I'm in the open Label phase of the Baylor Univ Riluzole test. I
can't put any eloquence around the experience, but I'd share.
Lanny 56/53/Riluzole and recently Mirapex.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
ERVIN J MCCARTHY wrote:
>
> Ida, thank you for your detailed response about Riluzole. I plan on
> gathering as much information as I can before I enter a study group.
>
> -----Original Message-----
> From: Ida & Andre Kamphuis <[log in to unmask]>
> To: [log in to unmask]
> <[log in to unmask]>
> Date: Tuesday, March 23, 1999 11:17 AM
> Subject: Re: RILUZOLE STUDY
>
> At 13:52 22-3-99 -0800, ERVIN J MCCARTHY wrote:
> >Does anyone on the list have information on Riluzole? I
> have been asked to
> >join a group study on the drug. I believe it is in third
> phase study. I
> >recall someone in the list had been involved in a previous
> group study. Any
> >information would be helpful. Thank you.
> >
> >[log in to unmask]
>
> Erwin,
>
> Riluzole or Rilutex is an anti-glutamate. It diminishes the
> influence of the neurotransmitter
> glutamate,which has an activating role in the Striatum. They
> are by some researchers
> believed to be to active in PWP's and to have a crucial role
> in dyskinesia especially
> the leva-dopa induced ones. The nuclei in which the
> glutamates are most activ are the same that
> as are partly destroyed by pallidotomy. But it is not in the
> first place because of
> that aspect why trials are run. It has been proven to have a
> neuroprotective effect
> for ALS patients and that has in the first place attracted
> the Parkinson researchers,
> because it might have the same neuroprotective effect for
> PWP,s. I am not sure but I
> remember that for the trials to come, starting PWP's have
> been asked to participate, so
> the only outcome of the research will be about its
> neuroprotective effect.
> I regret that, because I am more interested in its potential
> anti-diskinetic power.
> <?fontfamily><?param Times New Roman><?bigger>Next to the
> mentoned effects is Riluzole, if used in higher dosis a
> paini killer a tranquiliser and an anti -convulsive.
> With theses URL.s more info can be retrieved,
> ida
>
> http://parkinson.org/plll.htm
>
> WWW.rorer.com/PATIENTS_FAMILIES/trials/trials.rilutek.htm
>
> http://www.rpr.rpna.com/US/rilutek/ppi.html
>
> http://www.druginfonet.com/rilutek.htm
>
> http://neuro-www.mgh.harvard.edu/forum/ALSF/11.13.9812.56PMRilutek.html
>
> http://www.rpr.rpna.com/health_professionals/diseaseaware/rilutek.htm
>
> <?/bigger><?/fontfamily>
>
> --------------------------------------------------------------
> Vriendelijke Groeten / Kind regards,
>
> Ida Kamphuis mailto: [log in to unmask]
=========================================================================
Date: Sat, 27 Mar 1999 15:07:50 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: [log in to unmask]
Subject: PD Awareness New Jersey
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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The new agenda came out for Monday's Assembly Health Committee and the
Assembly and Senate Resolutions for Parkinson's Disease Awareness Month were
NOT included to be considered.
All residents of New Jersey should let Assemblywoman Vandervalk know how
important it is to us.
Please call NJ Assemblywoman Charlotte Vandervalk's office. She is Chairwoman
of the Assembly Health Committee.
Ask her to, "Please post the Resolutions for consideration in the Assembly
Health Committee."
Her number is 201-666-0881. Please spread the word.
Barbara Schirloff
=========================================================================
Date: Sat, 27 Mar 1999 15:20:21 -0500
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
Subject: Happy 99 virus I passed along
Comments: To: vivian anderson <[log in to unmask]>,
Troy <[log in to unmask]>, suzanne tovar <[log in to unmask]>,
Stephen Eftink <[log in to unmask]>,
Shirley King <[log in to unmask]>, Shane <[log in to unmask]>,
Ryan Bartlett <[log in to unmask]>,
Ron and Marilou Meditz <[log in to unmask]>,
Robert Horne <[log in to unmask]>,
Rick/Nancy Bradford <[log in to unmask]>,
Renee Jenkins <[log in to unmask]>,
Reb <[log in to unmask]>, Micky <[log in to unmask]>,
Mary Lou Brooks <[log in to unmask]>,
"Kathrynne Holden, MS,RD" <[log in to unmask]>,
JuliaSan <[log in to unmask]>, John French <[log in to unmask]>,
John Beckman <[log in to unmask]>, Jason <[log in to unmask]>,
Derek Kjar <[log in to unmask]>,
Charlyn Green <[log in to unmask]>, Carol <[log in to unmask]>,
[log in to unmask], Brittany <[log in to unmask]>,
Brenda <[log in to unmask]>, Becky <[log in to unmask]>,
Adonna & Jeff <[log in to unmask]>
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Go to this link and get rid of it!!
http://members.tripod.com/docsmiley/happy99.htm
Jeana
[log in to unmask]
Business site: http://www.agoraexpress.com=20
Personal site: http://www.mindspring.com/~jeana/
=20
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<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
<HTML>
<HEAD>
<META content=3Dtext/html;charset=3Diso-8859-1 =
http-equiv=3DContent-Type><Bass=20
href=3D"file://C:\Program Files\Common Files\Microsoft =
Shared\Stationery\">
<STYLE>
<!--
body {
margin-left: 4em;
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</HEAD>
<BODY background=3Dcid:000f01be788f$3d22cd60$28fcf7a5@jeana =
bgColor=3D#ffffff>
<DIV>Go to this link and get rid of it!!</DIV>
<DIV><A=20
href=3D"http://members.tripod.com/docsmiley/happy99.htm">http://members.t=
ripod.com/docsmiley/happy99.htm</A><BR></DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV>Jeana<BR><A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A><BR>Business=
=20
site: <A=20
href=3D"http://www.agoraexpress.com">http://www.agoraexpress.com</A> =
<BR>Personal=20
site: <A=20
href=3D"http://www.mindspring.com/~jeana/">http://www.mindspring.com/~jea=
na/</A></DIV> =20
</BODY></HTML>
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------=_NextPart_000_0017_01BE7865.545D8E40--
=========================================================================
Date: Sat, 27 Mar 1999 17:04:14 -0500
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
Subject: For your info
Comments: To: vivian anderson <[log in to unmask]>,
Troy <[log in to unmask]>, suzanne tovar <[log in to unmask]>,
Stephen Eftink <[log in to unmask]>,
Shirley King <[log in to unmask]>, Shane <[log in to unmask]>,
Ryan Bartlett <[log in to unmask]>,
Ron and Marilou Meditz <[log in to unmask]>,
Robert Horne <[log in to unmask]>,
Rick/Nancy Bradford <[log in to unmask]>,
Renee Jenkins <[log in to unmask]>,
Patrick French <[log in to unmask]>, Patrick <[log in to unmask]>,
Micky <[log in to unmask]>, Mary Lou Brooks <[log in to unmask]>,
"Kathrynne Holden, MS,RD" <[log in to unmask]>,
JuliaSan <[log in to unmask]>, John French <[log in to unmask]>,
Joe French <[log in to unmask]>,
John Beckman <[log in to unmask]>, Jason <[log in to unmask]>,
Derek Kjar <[log in to unmask]>,
Christine Shaw <[log in to unmask]>,
Carol <[log in to unmask]>, Charlyn Green <[log in to unmask]>,
[log in to unmask], Brenda <[log in to unmask]>,
Becky <[log in to unmask]>, Adonna & Jeff <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Happy99.Worm
VirusName: Happy99.Worm
Aliases: Trojan.Happy99, I-Worm.Happy
Likelihood: Common
Region Reported: World Wide
Characteristics: Trojan Horse, Worm
Description:
This is a worm program, NOT a virus. This program has reportedly been
received through email spamming and USENET newsgroup posting. The file is
usually named HAPPY99.EXE in the email or article attachment.
When being executed, the program also opens a window entitled "Happy New
Year 1999 !!" showing a firework display to disguise its other actions. The
program copies itself as SKA.EXE and extracts a DLL that it carries as
SKA.DLL into WINDOWS\SYSTEM directory. It also modifies WSOCK32.DLL in
WINDOWS\SYSTEM directory and copies the original WSOCK32.DLL into
WSOCK32.SKA.
WSOCK32.DLL handles internet-connectivity in Windows 95 and 98. The
modification to WSOCK32.DLL allows the worm routine to be triggered when a
connect or send activity is detected. When such online activity occurs, the
modified code loads the worm's SKA.DLL. This SKA.DLL creates a new email or
a new article with UUENCODED HAPPY99.EXE inserted into the email or article.
It then sends this email or posts this article.
If WSOCK32.DLL is in use when the worm tries to modify it (i.e. a user is
online), the worm adds a registry entry:
HKEY_LOCAL_MACHINE\Software\Microsoft\Windows\CurrentVersion\RunOnce=SKA.EXE
The registry entry loads the worm the next time Windows start.
Removing the worm manually:
delete WINDOWS\SYSTEM\SKA.EXE
delete WINDOWS\SYSTEM\SKA.DLL
in WINDOWS\SYSTEM\ directory, rename WSOCK32.DLL to WSOCK32.BAK
in WINDOWS\SYSTEM\ directory, rename WSOCK32.SKA to WSOCK32.DLL
delete the downloaded file, usually named HAPPY99.EXE
Windows prevents you to do step #3 and #4 above if the machine is still
connected to the Internet. The file "windows\system\wsock32.dll" is used
whenever the machine is connected to Internet (i.e. through dial-up or LAN
connection).
If you are using dial-up connection (i.e. America Online), you need to do
the following:
terminate internet connection
delete WINDOWS\SYSTEM\SKA.EXE
delete WINDOWS\SYSTEM\SKA.DLL
in WINDOWS\SYSTEM\ directory, rename WSOCK32.DLL to WSOCK32.BAK
in WINDOWS\SYSTEM\ directory, rename WSOCK32.SKA to WSOCK32.DLL
delete the downloaded file, usually named HAPPY99.EXE
If you are connected to Internet through LAN (i.e. in the office or cable
modem), you need to do the following:
From the Start menu, select shutdown-restart in MS DOS mode
type CD \windows\system when DOS prompt (C:\)appears
type RENAME WSOCK32.DLL WSOCK32.BAK
type RENAME WSOCK32.SKA WSOCK32.DLL
type DEL SKA.EXE
type DEL SKA.DLL
Safe Computing:
This worm and other trojan-horse type programs demonstrate the need to
practice safe computing. One should not execute any executable-file
attachment (EXE, SHS, MS Word or MS Excel file) that comes from an email or
a newsgroup article from an untrusted source.
Norton AntiVirus users can protect themselves from this virus by downloading
the current virus definitions either through LiveUpdate or from the
following webpage:
http://www.symantec.com/avcenter/download.html
Jeana
[log in to unmask]
Business site: http://www.agoraexpress.com
Personal site: http://www.mindspring.com/~jeana/
=========================================================================
Date: Sat, 27 Mar 1999 15:28:31 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeff and Joan Heyser <[log in to unmask]>
Subject: Deep brain stimulation surgery
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Content-Transfer-Encoding: quoted-printable
Last Tuesday my wife had surgery...Deep Brain Stimulation of the =
subthalamic nucleus. It involves inserting a wire lead deep into the =
brain near the area where pallidotomies are performed. There are =
electrodes on the end of the wire lead which connect to a stimulator =
implanted (like a pacemaker) under the skin near the collarbone. Unlike =
a pallidotomy, there is no permanent damage to the brain. Instead, =
stimulation gets the brain back in balance. The surgery is technically =
still experimental, but it is being done at a number of locations =
worldwide (several in the US) and some insurance companies are paying =
for it.
Everything went very well. They let the brain heal for one month before =
they activate the stimulator, so we will know more then.
DBS may be much safer than a pallidotomy and help a wider range of =
symptoms. There is a lot of info on the NYU website:
http://mcns10.med.nyu.edu/CMD/CMDmain.html
Let me know if you want more information.
Jeff
=========================================================================
Date: Sat, 27 Mar 1999 17:48:32 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bill Olson <[log in to unmask]>
Subject: Re: request for help
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
-----Original Message-----
From: janet paterson <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Monday, March 22, 1999 9:21 PM
Subject: request for help
>hi all;
>
>i received this message privately
>and need your help in answering "Lady J"
>
>please post your replies to the list and i'll make sure she gets them
>
>thanks
>
>janet
>
>
>>Date: Fri, 19 Mar 1999 01:04:59 -0600
>>Hello,
>> I have Parkins. I have had it for almost 9 years. Last
>>November it took my ability to speak. I am realy depressed
>>about this and cry alot. Is there anyone who can help me
>>through the depression. At times I feel like killing myself.
>>Please, help me.
>> Sincerely,
>> "J"
>
>janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
><http://www.newcountry.nu/pd/members/janet/index.htm>
>[log in to unmask]
>
Dear Janet: Thanyou for giving us an opportunity to encourage Lady "J"
Dear Lady "J": Youhave been having a tough time lately, and we all know that
it can seem overwhelming. After all, Parkinson's isn't for "Sissies".The
first thing I would encourage you to do is share your feelings with your
Physician. There are many of us on various pills that make us less
discouraged. Chemical imbalances in the brain have much to do with how we
feel when we wake up in the morning.
You are a child of God and His love is the greatest love anyone can
know. His love has sustained me through many difficulties, and I know that
He will always be there for us! You have reached out for help from us
Parkies, but let me suggest that the power to keep on keeping on can only be
met through God's great, never-ending love. It was Jesus who said ,"Come
unto me all ye who labor and are heavy laden and I will give you rest. Take
my yoke upon you and learn of me, for I am meek and lowly in heart and ye
shall find rest unto your souls.For my yoke is easy, and my burden is light.
May these be words of new hope for you, Lady "J". Bill Olson, 69, dx 1983.
=========================================================================
Date: Sat, 27 Mar 1999 18:27:42 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Linda Potter <[log in to unmask]>
Subject: Re: Deep brain stimulation surgery
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Jeff - my prayers are with Joan and you. This is a ray of hope for all of
us down the line. Joan is helping to further our chances of a better
existence by taking part in this surgery. I pray for a complete recovery
for Joan. Thank you and her for everything. Love Linda
=========================================================================
Date: Sat, 27 Mar 1999 19:58:42 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: John Hancock <[log in to unmask]>
Subject: exercise prescription protocols
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
I am a graduate student, and my class project involves creating exercise
prescription programs for Parkinson's disease patients. I have read many books
about this subject, but I have not been able to find what I am looking for. I
would like to find some "real life" exercise protocols, so that the
information I present to my classmates is the most accurate and usable. I do
not feel that it would be beneficial for my classmates to recieve poor
information, and then in turn, not provide the quality care that Parkinson's
disease patients deserve. Since I do not work with Parkinson's disease
patients on a regular basis, I feel the need to search for help from
professionals with more experience and knowledge than myself on this topic.
Thank you for any help provided!
=========================================================================
Date: Sat, 27 Mar 1999 17:30:24 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mary Holt <[log in to unmask]>
Subject: Hello: My Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hello Friends,
Please excuse this message if it has already come through to the list
before. My messages do not seem to be going through for some reason.
My name is Mary, and I want to introduce myself to the list. I just
found this list after doing a search for information about Parkinson's
Disease. This information is not for myself, but for my mom, Eileen (she
is 68 years old). Last summer, I noticed that her face seemed to have
more of a tremor/shake - around her mouth, her hands are also quite
shaky. She tries to hide her hands by holding them, but the shake is
still present. Dad and I have also noticed that Mom appears to be
experiencing some memory problems, such as knowing the
definitions/meanings for certain words that she always knew, and she is
also forgetting certain people that were known to her. My mother also
appears to be withdrawn even though we encourage her to attend certain
social events such as card parties. Her hand shakiness is only mild, but
could this be part of the reason for her not wanting to attend card
parties? She always has enjoyed them, and mom and dad used to host some
of them at our home. I think another reason for her not wanting to
attend outings maybe underlying depression.
Do all of her symptoms appear to be suggestive of early Parkinson's
Disease?
I'm trying to convince her to return to her family doctor, actually, I
would prefer if she were to change to a different one. The doctor that
she has now is not doing a very good job in terms of providing
follow-up. I would also like for my mom to see a neurologist, I've heard
that one of the top Parkinson's Disease specialists for our province,
Nova Scotia is a Dr. Jock Murray (I think this his is name) in Halifax.
If anyone knows of any other specialists who my mom may consider, I
would like to know.
We also appear to have a family history for Parkinson's Disease - my
mother's mom had it, I also have a cousin, and an uncle who have been
diagnosed with Parkinson's.
I probably will be mostly lurking for a while, as I do not know enough
about Parkinson's Disease to provide any information.
Thank-you in advance for any information that you are able to provide.
Take care:)
Mary
===
Visit the Kid's Place home page: http://members.tripod.com/kidsplaceonline/index.html
~Because the greatest gift of all is a child's smile and
laughter.~
" Obstacles are those frightful things you see when you
take your eyes off your goal. "
~ Henry Ford ~
_________________________________________________________
Do You Yahoo!?
Get your free @yahoo.com address at http://mail.yahoo.com
=========================================================================
Date: Sun, 28 Mar 1999 04:08:17 +0200
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Re: Spreading the word
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Barb,
I sent copies of your press release, and a request to pass it
on to their members and any media in their country, to:
Tina Semal, list-owner Belgapark (belgian list), Belgium
Ana Mari del Arco, list-owner Parkinson Universal (spanish list), Spain
Dietmar Wessel, list-owner Deupark (german list), Germany
Bernard Joly, list-owner Parkliste (french list), France
Geert Arien, chairman JeePees (Young Onset Parkies), Belgium
Poul Vinther, chairman DanYups (Young Onset Parkies), Denmark
A.I.P., Italian Parkinson Association, Italy.
Hans.
=========================================================================
Date: Sat, 27 Mar 1999 18:33:08 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: JaneRoss <[log in to unmask]>
Subject: Re: Deep brain stimulation surgery
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear Jeff and Joan,
Welcome to the world of the bionic brain. I am truly thrilled for Joan, she
will have a whole new life. I am praying her surgery turns out at least as
well as mine has.
>Last Tuesday my wife had surgery...Deep Brain Stimulation of the
>subthalamic nucleus. It involves inserting a wire lead deep into the
>brain near the area where pallidotomies are performed. There are
>electrodes on the end of the wire lead which connect to a stimulator
>implanted (like a pacemaker) under the skin near the collarbone. Unlike a
>pallidotomy, there is no permanent damage to the brain. Instead,
>stimulation gets the brain back in balance. The surgery is technically
>still experimental, but it is being done at a number of locations
>worldwide (several in the US) and some insurance companies are paying for
>it.
>
>Everything went very well. They let the brain heal for one month before
>they activate the stimulator, so we will know more then.
>
>DBS may be much safer than a pallidotomy and help a wider range of
>symptoms. There is a lot of info on the NYU website:
>
>http://mcns10.med.nyu.edu/CMD/CMDmain.html
>
>
>Let me know if you want more information.
>
>Jeff
jjjane
http://www.parkinsonalliance.net/medical/palross/palross.htm
=========================================================================
Date: Sat, 27 Mar 1999 22:44:07 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Back online
MIME-version: 1.0
Content-type: text/plain; charset="us-ascii"
Friends-- I just got my iMAC back from the shop after nearly 3 weeks--and
found more than 500 posts waiting! Can't figure it out, as I had asked
someone to have Barb put me on no mail-- any how, I'm trying to catch up.
and will read them as fast as I can and answer those needing my reply.
Apologies to anyone who may have been waiting to hear from me.....
Camilla Flintermann, CG for Peter 80/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
=========================================================================
Date: Sat, 27 Mar 1999 22:02:52 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: double a enterprises <[log in to unmask]>
Subject: Re: #501
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Welcome Back!!!!!
bob
=========================================================================
Date: Sat, 27 Mar 1999 21:54:56 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mark Bastian <[log in to unmask]>
Subject: Thanks to all . . .
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
I would like to thank all of the people who have responded to Karen's
introduction over the past few days. The response and the amount of
information that is communicated over this list is amazing. I have
printed out all of the information since we started the list and am in
the process of bringing Karen up to date on how to use the e-mail and
the list. She will be responding in the near future. Thanks again!
Sincerely, Mark and Karen Bastian 8o)
=========================================================================
Date: Sun, 28 Mar 1999 00:21:14 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Philip Connors <[log in to unmask]>
Subject: Re: Back online
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Welcome back. Just what you needed -- one more email
Phil
=========================================================================
Date: Sat, 27 Mar 1999 23:52:27 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Nancy S. Shlaes" <[log in to unmask]>
Subject: Re: exercise prescription protocols
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="------------B043F1368CC2D03BE3E79E1B"
--------------B043F1368CC2D03BE3E79E1B
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
There is a 58 page spiral bound orange booklet which was published last year by
the National Parkinson Foundation. Its Title: Parkinson's Disease: Fitness
Counts. It should give you all the information you need. You can reach NPF by
telephone (305) 547-6666; by fax (305) 243-4403.
We would all appreciate it if you would share the results of your research with
this Parkinson's group.
Nancy Shlaes deGrazia 62/57/??
John Hancock wrote:
> I am a graduate student, and my class project involves creating exercise
> prescription programs for Parkinson's disease patients. I have read many books
> about this subject, but I have not been able to find what I am looking for. I
> would like to find some "real life" exercise protocols, so that the
> information I present to my classmates is the most accurate and usable. I do
> not feel that it would be beneficial for my classmates to recieve poor
> information, and then in turn, not provide the quality care that Parkinson's
> disease patients deserve. Since I do not work with Parkinson's disease
> patients on a regular basis, I feel the need to search for help from
> professionals with more experience and knowledge than myself on this topic.
> Thank you for any help provided!
--------------B043F1368CC2D03BE3E79E1B
Content-Type: text/html; charset=us-ascii
Content-Transfer-Encoding: 7bit
<!doctype html public "-//w3c//dtd html 4.0 transitional//en">
<html>
There is a 58 page spiral bound orange booklet which was published last
year by the National Parkinson Foundation. Its Title: <i><u>Parkinson's
Disease: Fitness Counts. </u></i>It should give you all the information
you need. You can reach NPF by telephone (305) 547-6666; by fax (305)
243-4403.
<p>We would all appreciate it if you would share the results of your research
with this Parkinson's group.
<p>Nancy Shlaes deGrazia 62/57/??
<p>John Hancock wrote:
<blockquote TYPE=CITE>I am a graduate student, and my class project involves
creating exercise
<br>prescription programs for Parkinson's disease patients. I have read
many books
<br>about this subject, but I have not been able to find what I am looking
for. I
<br>would like to find some "real life" exercise protocols, so that the
<br>information I present to my classmates is the most accurate and usable.
I do
<br>not feel that it would be beneficial for my classmates to recieve poor
<br>information, and then in turn, not provide the quality care that Parkinson's
<br>disease patients deserve. Since I do not work with Parkinson's disease
<br>patients on a regular basis, I feel the need to search for help from
<br>professionals with more experience and knowledge than myself on this
topic.
<br>Thank you for any help provided!</blockquote>
</html>
--------------B043F1368CC2D03BE3E79E1B--
=========================================================================
Date: Sun, 28 Mar 1999 02:01:03 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Gisela Steinert <[log in to unmask]>
Subject: Vacation
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hello Listmembers,
my vacation has an end. My Husband and I where in USA to visit Gran Canyon,
Bryce Canyon, Monument Valley, Las Vegas and so on. It was very wonderful. Now
I am at home and has he list soon subscribe .
Is the PC from Camilla ok ?
I hope you are all feeling well.
Greetings
Gisela
41/4
=========================================================================
Date: Sun, 28 Mar 1999 03:34:07 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: MAINE NEWS:You are INVITED to witness PASSAGE!
Comments: cc: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Dear friends,
Hello from the pre-dawn crew here on the shores of the cold North
Atlantic.........it is 03:40 AM....
I am the recipient of a large number of e-mail, surface mail and
telephone calls indicating that the 1999 PD Awareness Month Resolution
which several of us have rewritten and updated, is doing very well. We
anticipate PASSAGE, as well as jacket-and-tie ceremonies recognizing our
efforts .
You are invited to join us.
On Monday morning, April 5th, at 10:00 AM, the Senate is scheduled to
take up Senate Paper 685, currently Tabled and awaiting further action,
the Joint Resolution Recognizing Parkinson's DIsease Awareness Month. The
sponsor is the President of the Senate, Sen. Mark Lawrence, District 35,
York County (Eliot, Kittery, Ogunquit South Berwick, York, part of
Berwick).
The House of Representatives is expected to vote to PASS the Resolution
later that same day. The
House sponsor is my own Representative, Bill Norbert, District 110 (part
of Portland).
Our 1999 resolution states the need for the following, among many other
points:
-the training and education of the medical community, including vital
people like rescue crews and hospital emergency room personnel;
-the education of the legal community, so that the rights of PWP's can
be protected;
-full funding of the Udall Act, "critical" to finding the cure for
this potentially fatal Disease,
-providing exhausted patients, and families and friends who are
caregivers, with support.
Telephone calls from PD support group members have been credited with
alerting and winning over
many members of both the House and Senate.
As soon as I get the OFFICIAL wording of the Resolution transferred to me
from the Secretary of the Senate , I will post it to the List.
Does anyone know if any other State or Country has a Resolution in
progress?
Ivan Suzman 49/39/36
Portland, Maine USA
=========================================================================
Date: Sun, 28 Mar 1999 06:32:10 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Virginia Christiansen <[log in to unmask]>
Subject: Re: PARKINSN Digest - 27 Mar 1999 (#1999-146)
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
In a message dated 3/28/99 12:08:37 AM Eastern Standard Time,
[log in to unmask] writes:
<< From: Camilla Flintermann <[log in to unmask]>
Subject: Back online
Friends-- I just got my iMAC back from the shop after nearly 3 weeks--and
found more than 500 posts waiting! Can't figure it out, as I had asked
someone to have Barb put me on no mail-- any how, I'm trying to catch up.
and will read them as fast as I can and answer those needing my reply.
>>
WElcome back ..... no reply needed ...... your are the heart and soul as well
as bountiful resource for the list.
Virginia Christiansen
[log in to unmask]
White Plains, NY
=========================================================================
Date: Mon, 29 Mar 1999 02:16:21 +0300
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Gil Lieberman <[log in to unmask]>
Subject: Our condolences
Comments: To: Barb_MSN <[log in to unmask]>
Comments: cc: "Bernard Barber,Ph.D." <[log in to unmask]>,
"Kathrynne Holden, MS,RD" <[log in to unmask]>,
"Robert A Fink,M.D." <[log in to unmask]>,
[log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask]
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear Barbara,
Blessed be the Judge of truth.
Sorry I missed wednesday's "Internet Kaddish".
What a thoughtful idea!It brings up a whole gamut of issues
concerning the observance of religious practices in a distributed computer
network.
Did someone provide Katherynne with the text of the Kadddish?
If not,I will be glad to send it.
I would like to point out that the Jewish "Shiva",seven day
of mourning period is quite different from a "wake".
Some good references to Jewish mourning customs are:
1.Maurice Lamm,The Jewish Way in Deathe and Mourning,
Jonathan David Publishers,NY,1969.
2.Chaim B. Goldberg,Mourning in Halacha,Mesora Pubs.1991
May God console you among the mourners of Zion and Jerusalem.
Warm regards.
Gil Lieberman,CG for Aliza
=========================================================================
Date: Sun, 28 Mar 1999 08:26:00 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: QT: interest
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
if you empty your purse into your head, no one can take it away from you.
an investment of knowledge always pays the best interest.
benjamin franklin
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Sun, 28 Mar 1999 10:11:03 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Spreading the Word
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Barb: Please add the following newspapers to the list:
Ann Arbor News
Detroit Free Press
Detroit News
Holland Sentinel
Huron Daily Tribune
Lapeer County Press
The Macomb Press
Muskegon Chronicle
Saginaw News
Kalamazoo Gazette
Grand Rapids Press
Additionally, the Bulletin has been included in this week's A View from
the Lighter Side report from Parkinsaw, MI, which will bee posted to the
list at noon today; the report containing the Bulletin will also be
available at the Parkinsaw web site, www.mikeauldridge.com/parknsaw/htm.
John Bjork
A View from the Lighter Side
Parkinsaw, MI (An imaginary place for PWP)
=========================================================================
Date: Sun, 28 Mar 1999 07:35:35 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jay Henkelman <[log in to unmask]>
Subject: MEDIA RELEASE: A new computer virus
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
To Listmembers,
This virus is for real. You may want to read the following:
>Delivered-To: moderator for [log in to unmask]
>X-Sender: [log in to unmask]
>X-Mailer: QUALCOMM Windows Eudora Pro Version 4.1=20
>Date: Sat, 27 Mar 1999 17:42:41 +0200
>To: [log in to unmask],
> [log in to unmask],
> [log in to unmask], [log in to unmask],
> [log in to unmask],
> [log in to unmask]
>From: Marita N=E4sman-Repo
> <[log in to unmask]>
>Subject: MEDIA RELEASE: A new computer virus spread globally within
> hours of discovery
>
>>Media release
>For immediate release
>
>
>A new computer virus spread globally within hours of discovery
>
>Melissa virus infects Word documents, e-mails itself to other users
>
>Espoo, Finland, March 27, 1999. - DataFellows, one of the world=92s leading
>developers of anti-virus and encryption software, is warning computer users
>about a virulent and widespread computer virus found on Friday, March 26,
1999.
>This virus has spread all over the globe within just hours of initial
>discovery, apparently spreading faster than any other virus before.=20
>
>The virus, known as W97M/Melissa, spreads by e-mailing itself automatically
>from one user to another. The virus activates by modifying the user's
>documents, inserting comments from the TV series =93The Simpsons=94. Even
worse, it
>can send out confidential information from the computer without the user=92=
s
>noticing it.
>
>The virus was discovered late Friday evening European time, early morning=
US
>time. For this reason, the virus spread in the USA during Friday. Many
>multinational companies reported widespread infections, including
Microsoft and
>Intel. Microsoft closed down their whole e-mail system to prevent a further
>spreading of the virus. The number of infected computers so far is
estimated at
>tens of thousands, and rising quickly.
>
>"We've never seen a virus spread so rapidly," comments Mikko Hypponen,
>DataFellows' Manager of Anti-Virus Research. "We've seen a handful of=
viruses
>that distribute themselves automatically over e-mail, but not one of them=
has
>been as successful as Melissa in the real world."
>
>W97M/Melissa was initially distributed in an Internet discussion group=
called
>alt.sex. The virus was sent in a file called LIST.DOC, which contained
>passwords for X-rated websites. When users downloaded the file and opened
it in
>Microsoft Word, a macro inside the document executed and e-mailed the
LIST.DOC
>file to 50 people listed in the e-mail alias file of the user. The e-mail
>looked as follows:
>
> From: (name of infected user)
> Subject: Important Message From (name of infected user)
> To: (50 names from alias list)
>
> Here is that document you asked for ... don't show anyone else ;-)
>
> Attachment: LIST.DOC
>
>Most recipients are likely to open such a file, as it usually comes from
>someone they know.
>
>After sending itself out, the virus continues to infect other Word=
documents
>which the user accesses, i.e. it is not restricted to the initial LIST.DOC
>file. Eventually, these infected files can end up being mailed to other=
users
>as well. This can be potentially disastrous, as a user might inadvertently
send
>out confidential data to outsiders.
>
>The virus activates if it is executed when the minutes of the hour match=
the
>day of the month - for example 18:27 on the 27th day of a month. At this=
time
>the virus will insert the following phrase into the current document which
the
>user has open in Word: "Twenty-two points, plus triple-word-score, plus=
fifty
>points for using all my letters. Game's over. I'm outta here". This
text, as
>well as the alias name of the virus author, "Kwyjibo", are references to=
the
>popular "Simpsons" cartoon TV series.
>=20
>"The virus won't spread much during this weekend. We will see the real
problem
>on Monday morning," continues Hypponen. "When a big company gets infected,
>their e-mail servers are seriously slowed down and might even crash, as
>computers start e-mailing large document attachments without the sender
>realising it."=20
>
>W97M/Melissa works with Microsoft Word 97, Microsoft Word 2000 and=
Microsoft
>Outlook e-mail client. It can infect both Windows and Macintosh users. If=
the
>infected machine does not have Outlook or Internet access at all, the virus
>will continue to spread locally within the documents the user accesses.
>
>Data Fellows provides a free solution to the W97M/Melissa virus problem.
>Evaluation copies of the F-Secure Anti-Virus toolkit as well as an update=
to
>detect and disinfect the virus are available from the company's website at
>http://www.DataFellows.com
>
>Data Fellows is one of the world's leading developers of data security
>products. The company develops, markets and supports integrated anti-virus,
>data security and cryptography software products for corporate computer
>networks. It has corporate headquarters in San Jose, California and Espoo,
>Finland, with additional offices as well as partners, VARs and other
>distributors in over 80 countries around the world.=20
>
>For more information, contact
>Data Fellows, 675 North First Street, 8th floor,=20
>San Jose, CA 95112;=20
>tel 408-938-6700; fax 408-938-6701
>
>http://www.DataFellows.com or [log in to unmask]
>
>or=20
>
>Data Fellows Corporation
>Mikko Hypp=F6nen, Manager, Anti-Virus Research.
>PL 24
>FIN-02231 ESPOO=20
>tel s +358 9 8599 0513
>fax +358 9 8599 0599
>e-mail: [log in to unmask]
>
>http://www.DataFellows.com/
>
>Note to editors: Screenshots of LIST.DOC, where it all started, are=
available
>on the Data Fellows web site at the Virus Activation Screenshots Archive:
>http://www.DataFellows.com/v-pics/
>=20
>------------------
>Marita N=E4sman-Repo tel: +358 9 8599 0613
>Communicator, Media relations fax: +358 9 8599 0813
> mobile: +358 40 517 4613
>Data Fellows Ltd. http://www.DataFellows.com=20
> =20
>F-Secure products: Integrated Solutions for Enterprise Security=20
>
=========================================================================
Date: Sun, 28 Mar 1999 11:32:08 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Billie Cook <[log in to unmask]>
Subject: Re: virus alert
Comments: To: PSP Discussion <[log in to unmask]>
In-Reply-To: Quequeg <[log in to unmask]>'s message of Sun, 28 Mar 1999
05:13:17 -0500
Content-Type: Multipart/Mixed; Boundary=WebTV-Mail-862128182-170
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
--WebTV-Mail-862128182-170
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
There was a big article in the Dallas Moring News about the Melissa
virus and how rapidly it spreads, seems it has caused several large
corps,.to shut down their email servers.Affects Microsoft Outlook and
Outlook Express(Windows 98 and some 95).i don't have a computer so I
won't have a problem but tho't some of you might. Email infected with
the Melissa virus has a topic line that begins "Important Message
From.'' Next is a sender's name which is often the name of someone known
to recipient.The message says "Here is that document you asked
for...don't show anyone else ;-)" Attached to it is 40K Microsoft Word
document named list.doc. They say don't open the attachment, opening
message will not cause virus to copy address list and send itself
out.Disabling macros in MS Word will make it ineffective. For more info
Carnegie Mellon University's Computer Emergency Response team has
posted info about Melissa on the web at
www.cert.org/advisories/CA-99-04-
Melissa-Macro-Virus.html/.
Microsoft also has a patch available at
www.microsoft.corn/security/bulletins/ms
990-002.asp.
Sendmail has a patch at
www.sendmail.com.
I'm send all this for whatever it may be worth.
Have fun and BFN.
Billie Cook
--WebTV-Mail-862128182-170
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Date: Sun, 28 Mar 1999 05:13:17 -0500
To: "PSP Discussion" <[log in to unmask]>
From: Quequeg <[log in to unmask]>
Subject: virus alert
In-Reply-To: <[log in to unmask]>
References: <00c201be78d1$7c581d40$83f5fea9@ron> <[log in to unmask]>
<000701be78ae$aa6f0e00$8a55fea9@ron> <004501be78bb$5ee78040$8a55fea9@ron>
<[log in to unmask]> <00c201be78d1$7c581d40$83f5fea9@ron>
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Hello all,
I thought I would pass this along to you. I don't know if any of you use Word
97 and Outlook mail (full version not Outlook express) but if you do be advised
that there is a nasty virus going around that can potentially bring down mail
servers. It is called a macro virus and it affects documents created in word97.
When you open an infected document it is able to "capture" your address book in
Outlook and send out 50 email messages with an infected document attached. If
enough people who use the same mail provider get infected it can cause the mail
server to stop working.
Again let me make it clear that if you do not use Word97/Outlook (full
version not Outlook express) then you do not have to worry about this virus. If
you do use those programs then I have included some links to find out how to
avoid it or get rid of it.
A word of advice to everyone here who is new to the Internet. Purchase some
anti virus software and be careful of attachments from anyone. A common mistake
that people make is assuming because a friend or a relative has sent the
attachment that it is safe. The truth is that probably 90% of the time viruses
are passed along by people who don't realize they are infected and the file
they are sending is also.
Hope this saves somebody some headaches.
If you have any questions feel free to ask
Henry
http://www.zdnet.com/zdnn/stories/news/0,4586,2233130,00.html
This site has the solutions:
http://www.cert.org/advisories/CA-99-04-Melissa-Macro-Virus.html
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--WebTV-Mail-862128182-170--
=========================================================================
Date: Sun, 28 Mar 1999 12:59:32 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Weekly Report: 'A View from the Lighter Side'from Parkinsaw,
MI (3/28/99)
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
View from the Lighter Side Weekly Report
Parkinsaw, MI
March 28, 1999
Welcome to Parkinsaw, MI, a certified imaginary community located in
Michigan's Upper Peninsula, populated largely by individuals stricken by
Parkinson's Disease. Stories, locations, situations and characters are
fictitious and are presented in the belief that laughter, as music of
the soul, is God's gift to us all, and is good medicine for PD. The
Chamber of Commerce is waiting to serve you. Remember, all weekly
reports, and there are eight available now, can be found at the web site
www.mikeauldridge.com/parknsaw.htm
Well, friends and neighbors, it's a fine day to be out in the brush, but
this little Parky stays home today to finish his report. Do you know
what I really dislike about PD in my case? It's when I awake in the
morning, I know that's as good as I'm going to feel all day. A comic
once said: "There's no such thing as a good morning, on account of they
all begin with waking up." Well, that couldn't be truer than in my
case. I must be getting old; when I was younger I knew it would be a
bad day when I woke up face down in the driveway. Another reason why
mornings are such a shock, is that in the past 20 years I've had PD, the
disease never, ever has made an appearance in my dreams. I just don't
have it when in a dream state. It does not exist until I awake and then
there they are: my friends the Tremor-Boys, and their companion buddies,
Mr. Exhaustion and Mr. Slowness, all of whom stay with me until I fall
asleep again at night. How slow am I you ask, I'm so slow that by the
time I've fixed an iced tea, the ice cubes have melted. Go figure.
Well, the Tremor-Boys and their nasty buddies are not going to wipe the
smile off this Parky's face, even though at times it might resemble a
grimace. Shoot! Do you know what stupid maneuver I just pulled? With
my mouth full of hot coffee, I suddenly was overcome with an urge to
cough. And, as I did, my hand jerked and the coffee went flying. Now
my monitor looks like it just completed the last leg of the Baja
Off-Road race. Darn, I hate it when that happens! Well, we not only
report the news; we make it as well. Spilling coffee might be thought
of as "grounds" for being an idiot. Time out while I clean this mess
up, then we'll take a look at the week's happenings around here. (A new
PWP product may come out of all this: The Mess-B-Gone bib, for those
who consistently spill things. Stay tuned)
First off, we've been quite busy this week with the planning for World
Parkinson's Awareness Month, in April. The Parkinson's Information
Exchange Network had forwarded a Bulletin prepared by its members
announcing that South Africa's Desmond M. Tutu was going to help
Parkinson's Disease Sufferers world-wide by saying a special prayer for
them during a service to be held on April 11, marking World Parkinson's
Awareness Month. Everyone was asked to spread the word by making the
Bulletin available to the local media, and we forwarded copies of the
Bulletin to news editors at newspapers serving the Parkinsaw area, in
addition to WLUC-TV6 at Marquette. We all felt pretty good after all
that work and went directly to the Northern Lights for a Levolager
brewsky. For all of you first time visitors to Parkinsaw who may not
have seen the Bulletin in question, it is conveniently appended to this
report.
You remember Tom Shelton, our best-known fisherman? Well, ole Tom has
placed the final touches on his latest invention that he calls
Bait-Buddy. For years Tom has been complaining about the number of
minnows he's lost while fishing due to his tremor problem. "No matter
how I fastened the darn things to the hook, as soon as I put the line
in, the shaking in my hands would vibrate the minnow right off the
hook. I was going through 150 minnows a day. So I invented the
Bait-Buddy." The Bait-Buddy is an ingenious device, operated by
battery, which automatically secures the minnow to the hook, using
ordinary dental floss. The importance of using dental floss is not only
is it easily available everywhere, its odorless and colorless, and
stronger than steel. Here's how it works: The dental floss is installed
in a special indented cavity (unintended pun), and threaded into the
main minnow compartment. Then, a hook is placed in its slot, the minnow
placed into the compartment, the minnow is gently secured in place, and
the box closed. The button is depressed, and with a whir and a click,
the minnow is securely wrapped to the hook with the dental floss. No
mater how severe the tremor, the minnow stays right on the hook.
Beautiful! And, does it catch fish? You betcha! Tom plans to set-up
his business on the Internet and start a PWP Fishing Forum, through
which he'll market the Bait-Buddy. He's also thinking of expanding
that new web site to specialize in products for just PWP, including the
previously described Shave n' Pooper and Be-The-Doc.
This week we noticed this personal ad in local newspaper: "WF, 70,
w/PD, pleasingly plump, attractive, seeks WM, tall, 60-80, intelligent,
with pick-up truck and snowmobile. No chewing tobacco. Need help
rolling over in bed. Loves pizza, bratwurst, watching the Green Bay
Packers, K-Mart Blue Light Specials, ice fishing, the new Levolager
Beer, and listening to Da Yoopers. Must be at ease with pet pig."
Well, friends and neighbors, it's getting dark here in Parkinsaw, the
deer are restless and hungry, and, now that I think of it, so am I.
Tonight, I'm heading over to the Northern Lights microbrewery for a
bratwurst (low protein) and a couple of Levolagers. I think the
Dopaminos are playing tonight, and I understand that prolific bunch has
a new song parody out: An Ode to Tasmar: "When Your Liver has Gone."
So, that's it until next time. Remember not to let PD rob you of God's
gift of your smile, your laughter and your sense of humor.
John Bjork (60/20)
Here appended is the Bulletin Announcing South Africa's Desmond M. Tutu
to help Parkinson's Disease Sufferers with a prayer on World Parkinson's
Awareness Month, April 11, 1999.
***TUTU TO HELP PARKINSON'S DISEASE SUFFERERS***
South Africa's Desmond M. Tutu, Archbishop Emeritus and Nobel Peace
Laureate, Robert W. Woodruff Visiting Professor of Theology, Emory
University, Atlanta, Georgia, USA has offered to issue a prayer for all
those worldwide who are suffering from Parkinson's Disease to mark World
Parkinson's Awareness Month in April.
The Archbishop offered to write a prayer for the occasion following a
telephone conversation and a long emailed letter from Ivan Suzman,
Portland, Maine, who has advanced Young Onset Parkinson's. Suzman, a
disabled anthropologist, (and formerly a leading anti-apartheid
activist) has become a Parkinson's activist and a member of the
Parkinson
Information Exchange Network (PIEN), an internet discussion list,
notified members of the list of the Archbishop's willingness to "do
something for those suffering from Parkinson's". Later, Tutu's office
notified the listowner, Barbara Patterson, another Young Onset"
Parkinsonian and a secretary at McMaster University School of Nursing,
Hamilton, Ontario, Canada, that the Archbishop had decided that his
prayer will be issued through PIEN. Patterson's internet list has more
than 1,800 subscribers in 36 countries.
Parkinson's Disease (PD) is a chronic, slowly progressive neurological
condition that affects a small area of cells in the mid brain known as
the substantia nigra. Gradual degeneration of these cells causes a
reduction in a vital chemical known as "dopamine". This decrease in
dopamine can produce one or more of the classic signs of Parkinson's
Disease.
Although an estimated 15% of patients are diagnosed before age 50, PD is
generally considered a disease which targets older adults. Parkinson's
disease affects up to 10%, in some populations, of those persons over
the age of 60. To date, there is no known prevention or cure for
Parkinson's
Disease.
Notable persons with the disease include Pope John Paul II, Muhammad
Ali American Attorney General, Janet Reno, Gandhi photographer Margaret
Bourke-White and actor Michael J. Fox.
=========================================================================
Date: Sun, 28 Mar 1999 13:02:11 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Carolyn Johnston <[log in to unmask]>
Subject: Re: Ativan & PWP?
Mime-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Sue,
My husband with pd had the same experience with Ativan. He was in the
hospital for a pace maker, Ativan was given to him before and after
surgery. Immedistely following surgery the symptoms started. It got so
bad he had to be restrained as he kept trying to get out of bed and he
had hallucinations galore. This went on for 5 days as the hospital
continued to give him Ativan.
Finally my son looked in the PDR to learn more about the drug since this
behavior continued to be so unlike anything we had ever experienced.
First, it said not to give the medication to seniors following surgery (
in my opinion not before surgery either). It also said how long it would
take for the medication to leave his system. We demanded the hospital
discontinue Ativan, not an easy thing to do as they follow the doctors
orders. It was stopped and within the exact time stated he started
getting better. He apparently had an over dose which kept him in the
hospital for over a week.
He is now in the hospital and Ativan is written on everything that he is
not under any circumstanes to be given this drug. Unfortunately he has
been in the hospital for a month in serious condition. He had quadruple
by pass surgery which was successful, however his heart was having
fibrillation problems and the cardiologist said he would need a
defibrillator. This surgery did not go well and shortly following the
surgery he had a stroke leaving his left side paralyzed. He is having a
hard time pulling out of this, we think his best chance of recovery in
through prayer.
Good luck to your father. You are wise to check medication that effects
some this way.
Carolyn Johnston [log in to unmask]
"I am only one, but I am one. I cannot do everything, but I will not let
what I cannot do interfere with what I can do."
- Edward Everette Hale
=========================================================================
Date: Sun, 28 Mar 1999 10:12:59 -0800
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: JaneRoss <[log in to unmask]>
Subject: Re: exercise prescription protocols
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/enriched; charset="us-ascii"
John,
<excerpt>I have a very amateur video tape of me doing my exercises. It
is truely primative but you could get the idea of what has helped me
for years. The tape was made back when I had had Parkinson's for 14
years, but the exercises haven't changed even after having Parkinson's
surgery. I would be willing to share it with you if you would return
it and with the understanding that it was made for my home use.
John Hancock wrote:
<excerpt>I am a graduate student, and my class project involves
creating exercise prescription programs for Parkinson's disease
patients. I have read many books
about this subject, but I have not been able to find what I am looking
for. I
would like to find some "real life" exercise protocols, so that the
information I present to my classmates is the most accurate and usable.
I do
not feel that it would be beneficial for my classmates to recieve poor
information, and then in turn, not provide the quality care that
Parkinson's
disease patients deserve. Since I do not work with Parkinson's disease
patients on a regular basis, I feel the need to search for help from
professionals with more experience and knowledge than myself on this
topic.
Thank you for any help provided!
</excerpt></excerpt>
jjjane
http://www.parkinsonalliance.net/medical/palross/palross.htm
=========================================================================
Date: Sun, 28 Mar 1999 11:13:39 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Weekly Report: 'A View from the Lighter Side'from
Parkinsaw,MI (3/28/99)
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
John,
Would you allow me to forward this post to a member of our local PD
support group? I think they would enjoy Parkinsaw, and also would
benefit from hearing about your promotion of Dr. Tutu's message.
Best,
Kathrynne
john bjork wrote:
>
> View from the Lighter Side Weekly Report
> Parkinsaw, MI
> March 28, 1999
>
> Welcome to Parkinsaw, MI, a certified imaginary community located in
> Michigan's Upper Peninsula, populated largely by individuals stricken by
> Parkinson's Disease. Stories, locations, situations and characters are
> fictitious and are presented in the belief that laughter, as music of
> the soul, is God's gift to us all, and is good medicine for PD. The
> Chamber of Commerce is waiting to serve you. Remember, all weekly
> reports, and there are eight available now, can be found at the web site
> www.mikeauldridge.com/parknsaw.htm
>
> Well, friends and neighbors, it's a fine day to be out in the brush, but
> this little Parky stays home today to finish his report. Do you know
> what I really dislike about PD in my case? It's when I awake in the
> morning, I know that's as good as I'm going to feel all day. A comic
> once said: "There's no such thing as a good morning, on account of they
> all begin with waking up." Well, that couldn't be truer than in my
> case. I must be getting old; when I was younger I knew it would be a
> bad day when I woke up face down in the driveway. Another reason why
> mornings are such a shock, is that in the past 20 years I've had PD, the
> disease never, ever has made an appearance in my dreams. I just don't
> have it when in a dream state. It does not exist until I awake and then
> there they are: my friends the Tremor-Boys, and their companion buddies,
> Mr. Exhaustion and Mr. Slowness, all of whom stay with me until I fall
> asleep again at night. How slow am I you ask, I'm so slow that by the
> time I've fixed an iced tea, the ice cubes have melted. Go figure.
> Well, the Tremor-Boys and their nasty buddies are not going to wipe the
> smile off this Parky's face, even though at times it might resemble a
> grimace. Shoot! Do you know what stupid maneuver I just pulled? With
> my mouth full of hot coffee, I suddenly was overcome with an urge to
> cough. And, as I did, my hand jerked and the coffee went flying. Now
> my monitor looks like it just completed the last leg of the Baja
> Off-Road race. Darn, I hate it when that happens! Well, we not only
> report the news; we make it as well. Spilling coffee might be thought
> of as "grounds" for being an idiot. Time out while I clean this mess
> up, then we'll take a look at the week's happenings around here. (A new
> PWP product may come out of all this: The Mess-B-Gone bib, for those
> who consistently spill things. Stay tuned)
>
> First off, we've been quite busy this week with the planning for World
> Parkinson's Awareness Month, in April. The Parkinson's Information
> Exchange Network had forwarded a Bulletin prepared by its members
> announcing that South Africa's Desmond M. Tutu was going to help
> Parkinson's Disease Sufferers world-wide by saying a special prayer for
> them during a service to be held on April 11, marking World Parkinson's
> Awareness Month. Everyone was asked to spread the word by making the
> Bulletin available to the local media, and we forwarded copies of the
> Bulletin to news editors at newspapers serving the Parkinsaw area, in
> addition to WLUC-TV6 at Marquette. We all felt pretty good after all
> that work and went directly to the Northern Lights for a Levolager
> brewsky. For all of you first time visitors to Parkinsaw who may not
> have seen the Bulletin in question, it is conveniently appended to this
> report.
>
> You remember Tom Shelton, our best-known fisherman? Well, ole Tom has
> placed the final touches on his latest invention that he calls
> Bait-Buddy. For years Tom has been complaining about the number of
> minnows he's lost while fishing due to his tremor problem. "No matter
> how I fastened the darn things to the hook, as soon as I put the line
> in, the shaking in my hands would vibrate the minnow right off the
> hook. I was going through 150 minnows a day. So I invented the
> Bait-Buddy." The Bait-Buddy is an ingenious device, operated by
> battery, which automatically secures the minnow to the hook, using
> ordinary dental floss. The importance of using dental floss is not only
> is it easily available everywhere, its odorless and colorless, and
> stronger than steel. Here's how it works: The dental floss is installed
> in a special indented cavity (unintended pun), and threaded into the
> main minnow compartment. Then, a hook is placed in its slot, the minnow
> placed into the compartment, the minnow is gently secured in place, and
> the box closed. The button is depressed, and with a whir and a click,
> the minnow is securely wrapped to the hook with the dental floss. No
> mater how severe the tremor, the minnow stays right on the hook.
> Beautiful! And, does it catch fish? You betcha! Tom plans to set-up
> his business on the Internet and start a PWP Fishing Forum, through
> which he'll market the Bait-Buddy. He's also thinking of expanding
> that new web site to specialize in products for just PWP, including the
> previously described Shave n' Pooper and Be-The-Doc.
>
> This week we noticed this personal ad in local newspaper: "WF, 70,
> w/PD, pleasingly plump, attractive, seeks WM, tall, 60-80, intelligent,
> with pick-up truck and snowmobile. No chewing tobacco. Need help
> rolling over in bed. Loves pizza, bratwurst, watching the Green Bay
> Packers, K-Mart Blue Light Specials, ice fishing, the new Levolager
> Beer, and listening to Da Yoopers. Must be at ease with pet pig."
>
> Well, friends and neighbors, it's getting dark here in Parkinsaw, the
> deer are restless and hungry, and, now that I think of it, so am I.
> Tonight, I'm heading over to the Northern Lights microbrewery for a
> bratwurst (low protein) and a couple of Levolagers. I think the
> Dopaminos are playing tonight, and I understand that prolific bunch has
> a new song parody out: An Ode to Tasmar: "When Your Liver has Gone."
> So, that's it until next time. Remember not to let PD rob you of God's
> gift of your smile, your laughter and your sense of humor.
>
> John Bjork (60/20)
>
> Here appended is the Bulletin Announcing South Africa's Desmond M. Tutu
> to help Parkinson's Disease Sufferers with a prayer on World Parkinson's
> Awareness Month, April 11, 1999.
>
> ***TUTU TO HELP PARKINSON'S DISEASE SUFFERERS***
>
> South Africa's Desmond M. Tutu, Archbishop Emeritus and Nobel Peace
> Laureate, Robert W. Woodruff Visiting Professor of Theology, Emory
> University, Atlanta, Georgia, USA has offered to issue a prayer for all
> those worldwide who are suffering from Parkinson's Disease to mark World
>
> Parkinson's Awareness Month in April.
>
> The Archbishop offered to write a prayer for the occasion following a
> telephone conversation and a long emailed letter from Ivan Suzman,
> Portland, Maine, who has advanced Young Onset Parkinson's. Suzman, a
> disabled anthropologist, (and formerly a leading anti-apartheid
> activist) has become a Parkinson's activist and a member of the
> Parkinson
> Information Exchange Network (PIEN), an internet discussion list,
> notified members of the list of the Archbishop's willingness to "do
> something for those suffering from Parkinson's". Later, Tutu's office
> notified the listowner, Barbara Patterson, another Young Onset"
> Parkinsonian and a secretary at McMaster University School of Nursing,
> Hamilton, Ontario, Canada, that the Archbishop had decided that his
> prayer will be issued through PIEN. Patterson's internet list has more
> than 1,800 subscribers in 36 countries.
>
> Parkinson's Disease (PD) is a chronic, slowly progressive neurological
> condition that affects a small area of cells in the mid brain known as
> the substantia nigra. Gradual degeneration of these cells causes a
> reduction in a vital chemical known as "dopamine". This decrease in
> dopamine can produce one or more of the classic signs of Parkinson's
> Disease.
>
> Although an estimated 15% of patients are diagnosed before age 50, PD is
>
> generally considered a disease which targets older adults. Parkinson's
> disease affects up to 10%, in some populations, of those persons over
> the age of 60. To date, there is no known prevention or cure for
> Parkinson's
> Disease.
>
> Notable persons with the disease include Pope John Paul II, Muhammad
> Ali American Attorney General, Janet Reno, Gandhi photographer Margaret
> Bourke-White and actor Michael J. Fox.
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Sun, 28 Mar 1999 12:38:13 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Billie Cook <[log in to unmask]>
Subject: Re: Weekly Report: 'A View from the Lighter Side'from Parkinsaw,
MI (3/28/99)
In-Reply-To: john bjork <[log in to unmask]>'s message of Sun, 28 Mar 1999
12:59:32 -0500
Content-Type: Text/Plain; Charset=US-ASCII
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Just got your report. I used to know it was going to be a bad day when
I got up and missed the floor.
Also, here's my order for some of your new bibs.They should sell like
hotcakes.
BFN
Billie in TX
=========================================================================
Date: Sun, 28 Mar 1999 13:43:02 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Greene <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Through the encouragement of some of y au folks I have gotten a referral for
my mother to the Emory Parkinson's Clinic. I don't know where my head was,
to have such a resource just 40 minutes away and to not consider it first
was not so bright of me. But I guess I will learn more and more as this
journey continues. Already I have learned that the Docs aren't always right
and that if I feel it is bad advice I can take control until I find better
advice. Mom is more awake, alert and ambulatory now that I took my own
advice and D/C'd the nuerontin. Also, no more hallucinations since I
lowered the sinemet dose and stopped the CR type. This list gave me the
courage to trust my instincts. Thank You.
I have a couple of questions. How do I get to the 'archives' I have seen
mentioned? Also, besides stool softeners what advice do you experienced
people have to stay on top of the constipation problem? Thanks in advance.
(Whoever thought a listserve would be my most important link to the world?)
Kathy
=========================================================================
Date: Sun, 28 Mar 1999 12:53:24 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Billie Cook <[log in to unmask]>
Subject: Fwd: Re: virus alert
Comments: To: [log in to unmask]
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--WebTV-Mail-272310572-1144
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From: [log in to unmask] (Billie Cook)
Date: Sun, 28 Mar 1999 11:32:08 -0600 (CST)
To: [log in to unmask] (PSP Discussion), [log in to unmask]
Subject: Re: virus alert
Message-ID: <[log in to unmask]>
In-Reply-To: Quequeg <[log in to unmask]>'s message of Sun, 28 Mar 1999
05:13:17 -0500
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--WebTV-Mail-862128182-170
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There was a big article in the Dallas Moring News about the Melissa
virus and how rapidly it spreads, seems it has caused several large
corps,.to shut down their email servers.Affects Microsoft Outlook and
Outlook Express(Windows 98 and some 95).i don't have a computer so I
won't have a problem but tho't some of you might. Email infected with
the Melissa virus has a topic line that begins "Important Message
From.'' Next is a sender's name which is often the name of someone known
to recipient.The message says "Here is that document you asked
for...don't show anyone else ;-)" Attached to it is 40K Microsoft Word
document named list.doc. They say don't open the attachment, opening
message will not cause virus to copy address list and send itself
out.Disabling macros in MS Word will make it ineffective. For more info
Carnegie Mellon University's Computer Emergency Response team has
posted info about Melissa on the web at
www.cert.org/advisories/CA-99-04-
Melissa-Macro-Virus.html/.
Microsoft also has a patch available at
www.microsoft.corn/security/bulletins/ms
990-002.asp.
Sendmail has a patch at
www.sendmail.com.
I'm send all this for whatever it may be worth.
Have fun and BFN.
Billie Cook
--WebTV-Mail-862128182-170
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Hello all,
I thought I would pass this along to you. I don't know if any of you use Word
97 and Outlook mail (full version not Outlook express) but if you do be advised
that there is a nasty virus going around that can potentially bring down mail
servers. It is called a macro virus and it affects documents created in word97.
When you open an infected document it is able to "capture" your address book in
Outlook and send out 50 email messages with an infected document attached. If
enough people who use the same mail provider get infected it can cause the mail
server to stop working.
Again let me make it clear that if you do not use Word97/Outlook (full
version not Outlook express) then you do not have to worry about this virus. If
you do use those programs then I have included some links to find out how to
avoid it or get rid of it.
A word of advice to everyone here who is new to the Internet. Purchase some
anti virus software and be careful of attachments from anyone. A common mistake
that people make is assuming because a friend or a relative has sent the
attachment that it is safe. The truth is that probably 90% of the time viruses
are passed along by people who don't realize they are infected and the file
they are sending is also.
Hope this saves somebody some headaches.
If you have any questions feel free to ask
Henry
http://www.zdnet.com/zdnn/stories/news/0,4586,2233130,00.html
This site has the solutions:
http://www.cert.org/advisories/CA-99-04-Melissa-Macro-Virus.html
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=========================================================================
Date: Sun, 28 Mar 1999 11:36:24 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: LISA CRUMRINE <[log in to unmask]>
Subject: IF I HAD MY LIFE TO LIVE OVER
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
hi all, I'm back ( never really left) I 'm doing way much better after my
onslaught of lifes trials and tribulations. I'm here, I'm strong and I'm
gonna kick some butt...
watch out world I have arrived.
lisa in paradise
IF I HAD MY LIFE TO LIVE OVER
WRITTEN BY 85 YR OLD NADINE STAIR OF LOUISVILLE KY
I'd dare make more mistakes next time
I'd relax, I would limber up, I would be sillier than I have been this
trip.
I would take fewer things seriously
I would take more chances
I would take more trips.
I would climb more mountains, swim more rivers,
I would eat more icecream and less beans.
I would perhaps have more actual troubles but fewer imaginary ones.
You see I 'm one of these people who live sensibly and sanely hour after
hour, day after day, oh, I've had my moments and if I had to do it over
again I 'd rather have more of them.
In fact, I'd try to have nothing else.
Just moments, one after another instead of living so many years ahead of
each day.
I've been one of those persons who never goes anywhere without a
thermometer, a hot water bottle,a raincoat, a parachute.
If I had to do it over again I would travel lighter than I have.
If I had my life to live over, I would start barefoot earlier in the spring
and stay that way later in the fall.
I would go to more dances.'
I would ride more merry go rounds
I would pick more daisies...
=========================================================================
Date: Sun, 28 Mar 1999 14:07:32 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barbara Patterson <[log in to unmask]>
Subject: Spreading the Word
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Here is the most recent update on our 'spread the word' campaign. Have I
missed any?
Let's keep Parkinson's in the news. Let's give the Archbishop's upcoming
contribution to Parkinson's awareness as much publicity as we can. There
are over 1800 of us now. If each one of us informed one newspaper
editor, radio station, tv station, church/synagogue/mosque, or support
group, just think how much more valuable Archbishop Tutu's kind gesture
will be to funding for Parkinson's research.
We will be Silent No More!'
1. Dallas Morning News
2. Newspaper and 2 radio stations in Portland, Oregon
3. Press-Herald in Portland, Maine
4. Riverdale Press, Bronx, New York
5. Most daily newspapers in Southern Ontario
6. Anglican Bishop of Toronto
7. Executive Assistant to Primate, The Anglican Church of Canada
8. Simon Coles' PDNEWS
9. The Parkinson's Foundation of Canada
10. The Spectator, Hamilton, Ontario
11. CBC Newsworld
12. Canadian Council of Churches
13. World Council of Churches
14. Roman Catholic Diocese of Hamilton
15. Drew Miga - Washington correspondent of the Boston Herald
16. Nina King - Literary editor of the Washington Post (she has PD)
17. Nikki Hoose - producer of the Jim Lehrer hour
18. Dennis Becket., editor of 'Frontline' South African journal of
political commentary
19. Marike Sboros - health editor of the Johannesburg "Star"
20. Sophie MacKenzie - editor of "Pathways to Health"
21. OZ Koglin at the Oregonian newspaper in Oregon
22. Dateline
23. Buffalo News, Buffalo, New York
24. Parkinson Post (Canada)
25. Dutch Parkinson Association - Press release to Dutch media
26. Nederpark (Dutch PD list)
27. Augusta Chronicle, Augusta Georgia
28. WJBF TV, Augusta Georgia
29. The Kansas City Star's
a. national/international news desk
b. the religion desk
c. the Shawnee Mission bureau in KS
30. The Sun Newspapers, Johnson Co., KS
31. The Journal Herald, Shawnee/Merriam, KS
32. The Kansan, Kansas City, KS
33. TV stations - NBC, Ch 41, Greater Kansas City
34. TV stations - CBS, Ch 5, Greater Kansas City
35. TV stations - ABC, Ch 9, Greater Kansas City
36 TV stations - Fox, Ch 4, Greater Kansas City
37. Radio stations - KCUR 89.3 FM (NPR affiliate), Greater Kansas City
38. Radio stations - KKFI 90.1 FM, Greater Kansas City
39. Radio stations - KCMO 710 AM, Greater Kansas City
40. Radio stations - KMBZ 980 AM, Greater Kansas City
41. Radio stations - KFEQ 680 AM, Greater Kansas City
42. Radio stations - KPHN (CNN affiliate), Greater Kansas City
43. Radio stations: CREC, Strathroy
44. Radio stations: BX 93, London
45. Radio stations: CFPL, London
46. TV stations: London
47. TV stations: Windsor
48. TV stations: Wingham
49. Atlanta Journal-Constitution in Atlanta, GA
50. Mercury, San Jose, CA
51. Seattle Post Intelligencer, Seattle, Washington
52. Seattle Times, Seattle, Washington
53. Bi-monthly Newsletter, Seattle, Washington
54. Winona Daily News - Winona, MN
55. St. Paul Dispatch Pioneer Press - Winona, MN
56. Buffalo County Journal - Cochrane, WI
57. Diocese of La Crosse Times Review - La Crosse, WI
58. La Crosse Tribune - La Crosse, WI
59. Tina Semal, list-owner Belgapark (belgian list), Belgium
60. Ana Mari del Arco, list-owner Parkinson Universal (spanish list), Spain
61. Dietmar Wessel, list-owner Deupark (german list), Germany
62. Bernard Joly, list-owner Parkliste (french list), France
63. Geert Arien, chairman JeePees (Young Onset Parkies), Belgium
64. Poul Vinther, chairman DanYups (Young Onset Parkies), Denmark
65. A.I.P., Italian Parkinson Association, Italy.
66. Ann Arbor News
67. Detroit Free Press
68. Detroit News
69. Holland Sentinel
70. Huron Daily Tribune
71. Lapeer County Press
72. The Macomb Press
73. Muskegon Chronicle
74. Saginaw News
75. Kalamazoo Gazette
76. Grand Rapids Press
77. www.mikeauldridge.com/parknsaw/htm
78. Cadillac Evening News
79 Petosky Eagle News
80. WLUCTV6, Marquette
81. Escanaba Daily Press
82. Houghton Daily Mining Gazette
83. Iron Mountain Daily News
84. Marquette Mining Journal
85. Traverse City News
86. Alpena News Up North
87. The Martinsburg Journal
88. Winchester Star
89. Sarasota Herald Tribune
90. The Coloradoan
91. Maine Meeting Place, a newsletter for the community of people
living with disabilities
92. The Phoenix, newsletter of Hamilton Support Group
93. Newfoundland Chapter, Parkinson's Disease Foundation of Canada
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
=========================================================================
Date: Sun, 28 Mar 1999 12:17:34 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mark Bastian <[log in to unmask]>
Subject: Re: MEDIA RELEASE: A new computer virus
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
Thanks for such an in depth and timely notification of what will keep e-mail
servers busy tommorow. Everyine beware of those e-mail attachements - diasbling
macros in Microsoft Word will keep the virus out of your computer even if
attachment is opened - but why take any chances. Thanks again Jay,
-Mark Bastian-
Jay Henkelman wrote:
> To Listmembers,
>
> This virus is for real. You may want to read the following:
>
> >Delivered-To: moderator for [log in to unmask]
> >X-Sender: [log in to unmask]
> >X-Mailer: QUALCOMM Windows Eudora Pro Version 4.1
> >Date: Sat, 27 Mar 1999 17:42:41 +0200
> >To: [log in to unmask],
> > [log in to unmask],
> > [log in to unmask], [log in to unmask],
> > [log in to unmask],
> > [log in to unmask]
> >From: Marita Näsman-Repo
> > <[log in to unmask]>
> >Subject: MEDIA RELEASE: A new computer virus spread globally within
> > hours of discovery
> >
> >>Media release
> >For immediate release
> >
> >
> >A new computer virus spread globally within hours of discovery
> >
> >Melissa virus infects Word documents, e-mails itself to other users
> >
> >Espoo, Finland, March 27, 1999. - DataFellows, one of the world’s leading
> >developers of anti-virus and encryption software, is warning computer users
> >about a virulent and widespread computer virus found on Friday, March 26,
> 1999.
> >This virus has spread all over the globe within just hours of initial
> >discovery, apparently spreading faster than any other virus before.
> >
> >The virus, known as W97M/Melissa, spreads by e-mailing itself automatically
> >from one user to another. The virus activates by modifying the user's
> >documents, inserting comments from the TV series “The Simpsons”. Even
> worse, it
> >can send out confidential information from the computer without the user’s
> >noticing it.
> >
> >The virus was discovered late Friday evening European time, early morning US
> >time. For this reason, the virus spread in the USA during Friday. Many
> >multinational companies reported widespread infections, including
> Microsoft and
> >Intel. Microsoft closed down their whole e-mail system to prevent a further
> >spreading of the virus. The number of infected computers so far is
> estimated at
> >tens of thousands, and rising quickly.
> >
> >"We've never seen a virus spread so rapidly," comments Mikko Hypponen,
> >DataFellows' Manager of Anti-Virus Research. "We've seen a handful of viruses
> >that distribute themselves automatically over e-mail, but not one of them has
> >been as successful as Melissa in the real world."
> >
> >W97M/Melissa was initially distributed in an Internet discussion group called
> >alt.sex. The virus was sent in a file called LIST.DOC, which contained
> >passwords for X-rated websites. When users downloaded the file and opened
> it in
> >Microsoft Word, a macro inside the document executed and e-mailed the
> LIST.DOC
> >file to 50 people listed in the e-mail alias file of the user. The e-mail
> >looked as follows:
> >
> > From: (name of infected user)
> > Subject: Important Message From (name of infected user)
> > To: (50 names from alias list)
> >
> > Here is that document you asked for ... don't show anyone else ;-)
> >
> > Attachment: LIST.DOC
> >
> >Most recipients are likely to open such a file, as it usually comes from
> >someone they know.
> >
> >After sending itself out, the virus continues to infect other Word documents
> >which the user accesses, i.e. it is not restricted to the initial LIST.DOC
> >file. Eventually, these infected files can end up being mailed to other users
> >as well. This can be potentially disastrous, as a user might inadvertently
> send
> >out confidential data to outsiders.
> >
> >The virus activates if it is executed when the minutes of the hour match the
> >day of the month - for example 18:27 on the 27th day of a month. At this time
> >the virus will insert the following phrase into the current document which
> the
> >user has open in Word: "Twenty-two points, plus triple-word-score, plus fifty
> >points for using all my letters. Game's over. I'm outta here". This
> text, as
> >well as the alias name of the virus author, "Kwyjibo", are references to the
> >popular "Simpsons" cartoon TV series.
> >
> >"The virus won't spread much during this weekend. We will see the real
> problem
> >on Monday morning," continues Hypponen. "When a big company gets infected,
> >their e-mail servers are seriously slowed down and might even crash, as
> >computers start e-mailing large document attachments without the sender
> >realising it."
> >
> >W97M/Melissa works with Microsoft Word 97, Microsoft Word 2000 and Microsoft
> >Outlook e-mail client. It can infect both Windows and Macintosh users. If the
> >infected machine does not have Outlook or Internet access at all, the virus
> >will continue to spread locally within the documents the user accesses.
> >
> >Data Fellows provides a free solution to the W97M/Melissa virus problem.
> >Evaluation copies of the F-Secure Anti-Virus toolkit as well as an update to
> >detect and disinfect the virus are available from the company's website at
> >http://www.DataFellows.com
> >
> >Data Fellows is one of the world's leading developers of data security
> >products. The company develops, markets and supports integrated anti-virus,
> >data security and cryptography software products for corporate computer
> >networks. It has corporate headquarters in San Jose, California and Espoo,
> >Finland, with additional offices as well as partners, VARs and other
> >distributors in over 80 countries around the world.
> >
> >For more information, contact
> >Data Fellows, 675 North First Street, 8th floor,
> >San Jose, CA 95112;
> >tel 408-938-6700; fax 408-938-6701
> >
> >http://www.DataFellows.com or [log in to unmask]
> >
> >or
> >
> >Data Fellows Corporation
> >Mikko Hyppönen, Manager, Anti-Virus Research.
> >PL 24
> >FIN-02231 ESPOO
> >tel s +358 9 8599 0513
> >fax +358 9 8599 0599
> >e-mail: [log in to unmask]
> >
> >http://www.DataFellows.com/
> >
> >Note to editors: Screenshots of LIST.DOC, where it all started, are available
> >on the Data Fellows web site at the Virus Activation Screenshots Archive:
> >http://www.DataFellows.com/v-pics/
> >
> >------------------
> >Marita Näsman-Repo tel: +358 9 8599 0613
> >Communicator, Media relations fax: +358 9 8599 0813
> > mobile: +358 40 517 4613
> >Data Fellows Ltd. http://www.DataFellows.com
> >
> >F-Secure products: Integrated Solutions for Enterprise Security
> >
=========================================================================
Date: Sun, 28 Mar 1999 17:17:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Guy Juneau <[log in to unmask]>
Subject: Re: Kathy's mother
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hi Kathy,
That sounds good. I have PD since late 1991. It seems to be, in a large
measure, empirical. I have the same question about archives. The method is
explained in "The Parkinsns Guide" which Barbara sends you when you join. I
have a question, which is, when I get a title from archives how do I get the
article it describes?
For your last question, stewed prunes annd exercise are my first line of
defence. Next come the stool softners.
Good luck. Guy [log in to unmask]
P.S. Where is the Emory Parkinson's Clinic?
At 01:43 PM 3/28/99 -0500, you wrote:
>Through the encouragement of some of y au folks I have gotten a referral for
>my mother to the Emory Parkinson's Clinic. I don't know where my head was,
>to have such a resource just 40 minutes away and to not consider it first
>was not so bright of me. But I guess I will learn more and more as this
>journey continues. Already I have learned that the Docs aren't always right
>and that if I feel it is bad advice I can take control until I find better
>advice. Mom is more awake, alert and ambulatory now that I took my own
>advice and D/C'd the nuerontin. Also, no more hallucinations since I
>lowered the sinemet dose and stopped the CR type. This list gave me the
>courage to trust my instincts. Thank You.
>I have a couple of questions. How do I get to the 'archives' I have seen
>mentioned? Also, besides stool softeners what advice do you experienced
>people have to stay on top of the constipation problem? Thanks in advance.
>(Whoever thought a listserve would be my most important link to the world?)
>Kathy
>
>
=========================================================================
Date: Sun, 28 Mar 1999 17:20:56 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Allan Rosenberg <[log in to unmask]>
Subject: Melissa Virus
Comments: To: [log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask], [log in to unmask], [log in to unmask]
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Sunday's NY Times carried a story about a new virus that has "taken the
Internet by storm". Called Melissa, it come through e-mail with the subject
"Important Message from..." The message itself (supposedly from a friend) is
short but has a file attached. If you open the file it sends the virus on to
the first 50 names in your e-mail address book. The cure is avoidance: don't
open the attached document.
Allan
=========================================================================
Date: Sun, 28 Mar 1999 17:30:09 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Allan Rosenberg <[log in to unmask]>
Subject: Re: Deep brain stimulation surgery
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Yes, re:more info. Where was the surgery done? Who is the contact.
Thanks.
[log in to unmask]
=========================================================================
Date: Sun, 28 Mar 1999 17:30:36 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Joan Etheridge <[log in to unmask]>
Subject: Sorrow
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
You are a wonderful bunch. Thank you so much for your sharing with me. I
realize I was not much help. The last three weeks were very hard to live
through. My husband suffered very much & had no reason to live. We were
scheduled to see a Dr. at Rush Presbyterian on Thursday with hopefully some
help. Meanwhile God saw that we could not take it any longer. Chuck died
early Saturday morning. Keep us in prayer as I will pray for all of you both
those of you who are suffering with this terrible disease as well as those of
you loving caregivers. I'm signing off. Good Luck and God Bless you all.
Joan (the one who spoke to soon)
=========================================================================
Date: Sun, 28 Mar 1999 18:05:16 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: ? about apomorphine
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
apo 98112
jack tibbs
zoo.uk
List friends:
My father is wondering about something that he read about in a post that I had
printed out for him some time back.
The original post was dated 97-11-2 & it was from jack tibbs of the UK..
A request to his neuro was made to have a paloditomy done but the neuro wanted
to see what effects the patient had from apomorphine. After that test, the dx
was then Multiple System Atrophy instead of PD - according to the old post
printed out that my dad has.
Can anyone give more info re apomorphine?
Thanks
Bonnie
daughter of Jim 77/3
=========================================================================
Date: Sun, 28 Mar 1999 16:24:57 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Melissa Virus
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
I just got this information on "Melissa" from another listserv:
If you have WORD 97 or WORD 2000 programs, please read this!
A new virus is out, your virus checker will NOT pick this up because it
is
a brand new virus.
Please go to
http://www.cert.org/advisories/CA-99-04-Melissa-Macro-Virus.html
A Microsoft patch is available at:
http://www.microsoft.com/security/bulletins/ms99-002.asp
This is NOT a hoax. An infected document is sent as attachments to
emails
with heading most frequently "Subject: Important Message From" the name
of
person whose computer relayed the virus. The body of the message says
"Here
is that document you asked for...don't show it to anyone else ;-). The
virus propagates itself by reading the users' email address book and
sending an infected message to the first 50 entries.
This is expected to cause lots of problems come Monday, (03/29/99). This
information is from the Computer Emergency Response Team (CERT). This
is
only the second time since CERT was founded 10 years ago that it has
considered a virus important enough to warrant a public announcement.
This email will come to you in a .doc form. Please do not open. Delete
immediately.
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Sun, 28 Mar 1999 16:28:11 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mark Bastian <[log in to unmask]>
Subject: Insomnia . .zzzz. .
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Does anyone out there have problems with sleeping because of PD and/or
meds. Any suggestions would be appreciated. Karen (diagnosed 2 months
ago@ 42 - now 43)
8-)
=========================================================================
Date: Sun, 28 Mar 1999 16:31:18 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Bernard Barber,Ph.D." <[log in to unmask]>
Subject: Re: exercise prescription protocols
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hi John,
By now you have probably received a good amount of replies. I am a Clinical
Psychologist working in the area of geriatrics and a special interest in
Parkinson's.
You may be getting a number of different perspectives, and the reason for
this is that there rarely is one size fits all, age, degree of disability,
individual status, sex, general health, reactions to medications all play a
very important role. Gale Kittler, R.N., M. P.H.. and I are developing a 5
part series of workshops that will deal with Wellness, and one such section
will be on physical fitness. Gail is the coordinator at the Ali Research
Center, St.Joseph's Hospital and Medical Center here in Phoenix, Az.. Your
"real life " quest is that there are many individual approaches, i.e., a PT
who has developed an Aquatic program, here in AZ., UCLA, Dept of Neurology,
Movement Disorder Clinic, along with the YMCA in West Los Angeles,
developed a Video training tape with PWP, using light weights, stretching,
relaxation and so on. We have a program using Dyna Bands and Disk Sits for
balance. The basis of all program is to promote stimulation and hopefully
retard the disease.
Good Luck,
Bernie Barber
At 07:58 PM 3/27/99 -0500, you wrote:
>I am a graduate student, and my class project involves creating exercise
>prescription programs for Parkinson's disease patients. I have read many
books
>about this subject, but I have not been able to find what I am looking for. I
>would like to find some "real life" exercise protocols, so that the
>information I present to my classmates is the most accurate and usable. I do
>not feel that it would be beneficial for my classmates to recieve poor
>information, and then in turn, not provide the quality care that Parkinson's
>disease patients deserve. Since I do not work with Parkinson's disease
>patients on a regular basis, I feel the need to search for help from
>professionals with more experience and knowledge than myself on this topic.
>Thank you for any help provided!
>
=========================================================================
Date: Sun, 28 Mar 1999 19:40:15 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: U.P.F / P.D.F. MERGER - EXCERPT FROM DelMarVa Chapt newsletter
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 8bit
PARKINSON'S NEWSLETTER of the Delmarva Chapter, American Parkinson
Disease Association
Mar - Apr 1999 4049 Oakland School Road Salisbury, Maryland
21804-2716 410-543-0110
FAX (410) 543-1378 e-mail
[log in to unmask]
The Parkinson's Disease Foundation (Manhattan,New York) recently announced
completion of the merger of the United Parkinson Foundation (Chicago,
Illinois) into the Parkinson's Disease Foundation.
The P.D.F. will maintain a Midwest Office in Chicago with strong ties to
Rush Presbyterian-St.
Luke's Medical Center. Mrs. Judy Rosner executive director of the U.P.F.
for many years
under the late Dr. Harold Klawans, will continue as science writer and
editor for the P.D.F.
The main P.D.F. office will remain in Manhattan, New York, with close ties
to Columbia
Presbyterian Medical Center. Mr. Robin Elliott will continue as executive
director of the P.D.F.
Mr. Elliott is relatively new to PD but seems quite knowledgeable about
Parkinson's disease,
people with Parkinson's, and the politics of what needs to be done.
The merger is complete, but there are still a few loose ends. There is
leftover U.P.F. literature
which is generally well written and still timely. The medical/scientific
boards of the two groups
have not been united. The U.P.F.'s medical board had not had a formal
meeting for more than a
year, but it had people the new P.D.F. will want to ţkeep on board.
This reduces the number of major national Parkinson's disease organizations
to three. We are
affiliated with the American Parkinson Disease Association (A.P.D.A.) which
is the largest,
measured in number of chapters and support groups. The A.P.D.A. main office
is in Staten
Island, New York. Our nearest support group, the Lower Delaware Parkinson
Disease Support
Group which meets in Harrington, is affiliated with the National Parkinson
Foundation which has
its main office in Miami. Two West Coast organizations, the Parkinson's
Action Network
and the Parkinson's Institute, are nationally involved with political
lobbying(PAN) and
medical research(PI).
We wish success to the new P.D.F. and hope this is another step toward
creating unity of purpose
and action among the various Parkinson's disease organizations.
=========================================================================
Date: Sun, 28 Mar 1999 19:53:57 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: A Pet Can be Good Therapy,
BUT...Excerpted from PARKINSON'S NEWSLETTER of the APDA DelMarVa
Chapter
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
PARKINSON'S NEWSLETTER of the Delmarva Chapter, American Parkinson
Disease Association
Mar - Apr 1999 4049 Oakland School Road Salisbury, Maryland
21804-2716 410-543-0110
FAX (410) 543-1378 e-mail
[log in to unmask]
A PET CAN BE GOOD THERAPY, BUT...
Many books and magazine articles recommend having a pet as good therapy for
almost anything that ails you, but watch out. Last spring I decided that a
dog would be a good companion for walks in the neighborhood. The
responsibility for walking the dog would encourage me to walk myself,
thereby getting
much of the exercise I need. Walking is good exercise, and a dog will help
make many friendships as you walk.
A visit to the Wicomico County Humane Shelter is an emotional event. There
are so many dogs and cats who would like to go home with you, and you have
decided that one is enough. There was an almost
shepherd dog who seemed to be particularly anxious to be my dog. The people
at the animal shelter said he was about eighteen months to two years old
and was full grown. His name was Harley, and the people who had left him
there had moved to a place where pets were not allowed. There was a patch
of red on
his back where a little girl had spilled finger nail polish. He had been
fixed, and the previous owners had pre-paid all the cost of his adoption.
The animal shelter building has high ceilings and large rooms which make
dogs seem smaller. Harley was more dog than we had realized. The Humane
Shelter people were not quite right about his being full grown. They
weren't even close! They lied! His weight has increased about 80%.
In spite of his size, his appetite, and the ever-present dog fur which he
sheds continuously, he is good company. He is very strong and wants the
neighbors' cats for lunch and dinner. Holding on when a cat comes into view
or the neighborhood children get off the school bus is difficult.
Harley has not been trained as an assistance dog. He is a member of the
family and a responsibility. He wants to go with me whenever I leave home
in the van and barks his disapproval if I go out alone. Get a dog? I
recommend having a pet, but suggest caution when visiting the pound.
Will
=========================================================================
Date: Mon, 29 Mar 1999 10:16:40 +1000
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Slattery <[log in to unmask]>
Subject: Re: Misdiagnosis or missed diagnosis
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
I don't think that most on this list blame doctors generally for
misdiagnosis, or missed diagnosis (two distinctly different problems).
There has been so much research in recent years, and so much progress in the
treatment of illness of every kind, that I don't envy any MD who has to run
like hell just to stay in one place.
That said, I *do* blame some who teach medicine, and some researchers, who
start out with a misconception and perpetuate it, ignoring empirical
evidence to the contrary. Even if they don't believe the evidence offered
by others, they should at least gather the evidence themselves, whilst
avoiding the trap of a priori reasoning, and biased selection procedures.
As an example, I read the report of a recent research project as to whether
or not there was any evidence linking agricultural pesticides to PD. In one
section of the survey, they only carried out testing on subjects who said
they *had* been exposed to such chemicals. There were several problems
here - What pesticides? For how long? What constitutes "exposure"? When did
it occur in relation to onset of PD or chronological age? - the other being
that by improper selectivity, one ignores the possibility that similar
results may be obtained from those *not* selected, as from those who are.
This is not a recrimination of medical professions - just a plea on the one
hand to consider *all* possibilities, and on the other, to *listen* to
sufferers and carers, and not dismiss them as ignorant laity, not only with
PD, but *any* medical problem, and to consider the whole person. In other
words holistic medicine.
Jim Slattery, Australia
[log in to unmask]
Webmaster, Central West PD Web
http://www.lisp.com.au/~cwpdweb
[log in to unmask]
=========================================================================
Date: Mon, 29 Mar 1999 10:16:41 +1000
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Slattery <[log in to unmask]>
Subject: Re: MEDIA RELEASE: A new computer virus
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Almost all my email is sent as plain unformatted text - no word processing,
no colours, graphics, macros etc.
I do this for two reasons - one, it avoids any problems for recipients; two,
it makes for smaller files.
We should remember that a lot of the time, email passes through computers
run by non-commercial organisations, or even private individuals, and we
should be aware of space- and time-wasting.
Jim Slattery
[log in to unmask]
=========================================================================
Date: Sun, 28 Mar 1999 18:37:05 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Nita Andres <[log in to unmask]>
Subject: Re: A Pet Can be Good Therapy,
BUT...Excerpted from PARKINSON'S NEWSLETTER of the APDA DelMarVa
Chapter
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Will, dogs can and are trained, just to be nice dogs and it costs very little.
Gives you something to do also, because you must reinforce the training. Nita
will johnston wrote:
> PARKINSON'S NEWSLETTER of the Delmarva Chapter, American Parkinson
> Disease Association
> Mar - Apr 1999 4049 Oakland School Road Salisbury, Maryland
> 21804-2716 410-543-0110
> FAX (410) 543-1378 e-mail
> [log in to unmask]
> A PET CAN BE GOOD THERAPY, BUT...
> Many books and magazine articles recommend having a pet as good therapy for
> almost anything that ails you, but watch out. Last spring I decided that a
> dog would be a good companion for walks in the neighborhood. The
> responsibility for walking the dog would encourage me to walk myself,
> thereby getting
> much of the exercise I need. Walking is good exercise, and a dog will help
> make many friendships as you walk.
>
> A visit to the Wicomico County Humane Shelter is an emotional event. There
> are so many dogs and cats who would like to go home with you, and you have
> decided that one is enough. There was an almost
> shepherd dog who seemed to be particularly anxious to be my dog. The people
> at the animal shelter said he was about eighteen months to two years old
> and was full grown. His name was Harley, and the people who had left him
> there had moved to a place where pets were not allowed. There was a patch
> of red on
> his back where a little girl had spilled finger nail polish. He had been
> fixed, and the previous owners had pre-paid all the cost of his adoption.
> The animal shelter building has high ceilings and large rooms which make
> dogs seem smaller. Harley was more dog than we had realized. The Humane
> Shelter people were not quite right about his being full grown. They
> weren't even close! They lied! His weight has increased about 80%.
> In spite of his size, his appetite, and the ever-present dog fur which he
> sheds continuously, he is good company. He is very strong and wants the
> neighbors' cats for lunch and dinner. Holding on when a cat comes into view
> or the neighborhood children get off the school bus is difficult.
> Harley has not been trained as an assistance dog. He is a member of the
> family and a responsibility. He wants to go with me whenever I leave home
> in the van and barks his disapproval if I go out alone. Get a dog? I
> recommend having a pet, but suggest caution when visiting the pound.
>
> Will
=========================================================================
Date: Sun, 28 Mar 1999 19:49:36 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Greene <[log in to unmask]>
Subject: Re: Kathy's mother
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
The Emory Parkinson's Clinic is at Emory University Medical Center, here in
Atlanta, Ga. I believe it is headed by a Dr. Watts.
Thanks for hints on bowels. I already give her prunes at almost every
breakfast, but I don't believe they are stewed, just regular ol' Sunsweet
and also give her prune juice, usually once a day. The exercise part is
hard due to multiple back surgeries. At her assisted living facility where
she lived before coming here they had an exercise tape done by a PT for
older folks sitting in chairs. I need to find something similar to it for
home.
I hope I haven't lost the directions to archives. Do they explain how to
open they files like you asked, or it that somewhere else? I guess I will
figure all this out eventually. thanks, Kathy
=========================================================================
Date: Sun, 28 Mar 1999 18:05:09 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: Re: MEDIA RELEASE: A new computer virus
Mime-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: quoted-printable
Can someone who's pc knowledgeable tell those who are not how to turn off =
the
macros. I, for one am running Win98.
In a message dated 3/28/99 2:21:09 PM Eastern Standard Time, [log in to unmask]
M
writes:
> Thanks for such an in depth and timely notification of what will keep e-=
mail
> servers busy tommorow. Everyine beware of those e-mail attachements -
> diasbling
> macros in Microsoft Word will keep the virus out of your computer even =
if
> attachment is opened - but why take any chances. Thanks again Jay,
> -Mark Bastian-
>
> Jay Henkelman wrote:
>
> > To Listmembers,
> >
> > This virus is for real. You may want to read the following:
> >
> > >Subject: MEDIA RELEASE: A new computer virus spread globally within
> > > hours of discovery
> > >
> > >>Media release
> > >For immediate release
> > >
> > >
> > >A new computer virus spread globally within hours of discovery
> > >
> > >Melissa virus infects Word documents, e-mails itself to other users
> > >
> > >Espoo, Finland, March 27, 1999. - DataFellows, one of the world=92s
leading
> > >developers of anti-virus and encryption software, is warning compute=
r
> users
> > >about a virulent and widespread computer virus found on Friday, Marc=
h
26,
> > 1999.
> > >This virus has spread all over the globe within just hours of initia=
l
> > >discovery, apparently spreading faster than any other virus before.
> > >
> > >The virus, known as W97M/Melissa, spreads by e-mailing itself
> automatically
> > >from one user to another. The virus activates by modifying the user'=
s
> > >documents, inserting comments from the TV series =93The Simpsons=94.=
Even
> > worse, it
> > >can send out confidential information from the computer without the
> user=92s
> > >noticing it.
> > >
.............snip....................
=========================================================================
Date: Sun, 28 Mar 1999 19:06:58 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: ROBERT A MARTONE <[log in to unmask]>
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Barb,
If the prayer is available it will be read at the Houston
Area Parkinson Society Syposium on April 10. If we have it
in time I will try to get it read in the Episcopal Diocese
of Texas
which is the largest diocese in the United States. This will
take a bit of lead time sine there are hundreds of churches.
I will at least contact our priest about reading it Sunday
April 11.
Bob Martone
http://www.kingwoodcable.com/martone
-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of
Barbara Patterson
Sent: Thursday, March 25, 1999 10:15 AM
To: [log in to unmask]
Subject: Re: Fw: TUTU TO HELP PARKINSON'S DISEASE SUFFERERS
I have attempted to summarize the places listmembers have
sent the
announcement about Archbishop Tutu's prayer. If I have
missed any,
please let me know. Also, please feel free to spread the
word where ever
and everywhere you feel appropriate. Has anyone translated
the
announcement? Let's keep Parkinson's in the media! Barb
1. Dallas Morning News
2. Newspaper and 2 radio stations in Portland, Oregon
3. Press-Herald in Portland, Maine
4. Riverdale Press, Bronx, New York
5. Most daily newspapers in Southern Ontario
6. Anglican Bishop of Toronto
7. Executive Assistant to Primate, The
Anglican Church of Canada
8. Simon Coles' PDNEWS
9. The Parkinson's Foundation of Canada
10. The Spectator, Hamilton, Ontario (I will be
interviewed)
11. CBC Newsworld
12. Canadian Council of Churches
13. World Council of Churches
14. Roman Catholic Diocese of Hamilton
====================================================
========================
Barbara Patterson
[log in to unmask]
HSC 2J22
905-525-9140, ext. 22403
School of Nursing
====================================================
========================
=========================================================================
Date: Sat, 27 Mar 1999 19:56:47 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bill Olson <[log in to unmask]>
Comments: To: parkinsn info exchng <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
set parkinsn repro
>
>
>this is for bob:
>if you don't receive copies of your own messages
>you might need to 'SET PARKINSN REPRO'
>
>the complete set of instructions is below
>please let me know if you have any problems
>
>janet
>the pd list elf
>
>-------------------------------------------------------
>How to Subscribe to the
>Parkinsn Information Exchange Network {PIEN):
>-------------------------------------------------------
>
>To subscribe, send this 'instruction' message:
>SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME
>
>After you confirm your subscription by return e-mail, you will
>start receiving messages as they are posted to the PIEN.
>
>E-mail all 'instruction' messages to the listserv computer at:
>[log in to unmask]
>
>-------------------------------------------------------
>How to Change your Subscription Settings for the
>Parkinsn Information Exchange Network {PIEN):
>-------------------------------------------------------
>
>There are various settings which can change the way your
>subscription is managed and there are specific words
>aka 'commands' aka 'instructions' that the listserv computer
>will recognize and respond to.
>
>All 'instructions' to the computer should be in the 'body' section
>of your e-mail message; any words in the 'subject line' will be
>ignored by the listserv computer.
>
>Since the listserve at the University of Toronto manages several
>mailing lists in addition to PARKINSN, all commands affecting your
>subscription must include the name of the mailing list too.
>
>(The listserv name for the PIEN is PARKINSN - there is no "O")
>
>To find out what your subscription settings currently are:
>QUERY PARKINSN
>
>The computer will send back a message to you listing your current
>subscription settings with a brief description of each.
>
>If you have not seen your own messages on the list
>you may need to change a one of the settings.
>
>The default setting for new subscriptions in re sending you copies
>of the messages that you send to the list membership is: NO REPRO
>
>To change the setting so that you receive reproductions of your own
>messages as well as the other listmail:
>SET PARKINSN REPRO
>
>To change your subscription setting to receive the digest format:
>SET PARKINSN DIGEST
>
>To change your subscription setting back from digest format
>to individual messages:
>SET PARKINSN MAIL
>
>To stop the incoming mail temporarily *** [for vacations, etc]:
>SET PARKINSN NOMAIL
>
>To resume incoming mail:
>SET PARKINSN MAIL
>
>[***
>This means that you 'miss out' on the mail during your vacation
>but if you want to 'catch up' on what you've missed
>you can always request old messages from the listserver]
>
>To stop incoming mail permanently and to terminate your subscription:
>SIGNOFF PARKINSN
>
>-------------------------------------------------------
>How to Post a Public Message to the
>Parkinsn Information Exchange Network (PIEN):
>-------------------------------------------------------
>
>After you have subscribed to the PIEN, to post a 'public'
>message for all the other subscribers to read, type your message
>in the 'body' area and fill in the 'subject line' with a brief
>description of your topic.
>
>E-mail all 'public' messages to the listserv computer at:
>[log in to unmask]
>
>-------------------------------------------------------
>
>janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
><http://www.newcountry.nu/pd/members/janet/index.htm>
>[log in to unmask]
>
=========================================================================
Date: Sun, 28 Mar 1999 19:38:52 -0600
Reply-To: Jim Snyder <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Snyder <[log in to unmask]>
Subject: Beatitudes For Friends of the Aged
MIME-Version: 1.0
Content-Type: multipart/mixed;
boundary="----=_NextPart_000_077E_01BE7952.D7F09520"
This is a multi-part message in MIME format.
------=_NextPart_000_077E_01BE7952.D7F09520
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
Dear friends,
I'm sharing a short reading with you I found in a collection of essays,
poems and readings my mother left to me. It's of special interest to all
caregivers who wonder about dealing with grandkids who are embarrassed by
the frailties of the aged.
I'm attaching it so one can print it out if hard copy is needed. It's
written in Microsoft Word. Here's the typical, scrambled email version
below:
Cheers, 8-( ) Jim
BEATITUDES FOR FRIENDS OF THE AGED
Blessed are they who understand
my faltering steps and shaking hand,
Blessed are they who know that my ears today
must strain to catch the words they say.
Blessed are they who seem to know
that my eyes are dim and my wits are slow.
Blessed are they who look away
when coffee spilled today.
Blessed are they with a cheery smile
who stop and chat for awhile.
Blessed are they who never say,
"You’ve told that story twice today."
Blessed are they who know the ways
to bring back lovely yesterdays.
Blessed are they who make it known
that I am loved, not left alone.
Blessed are they who know the loss
of strength I need to bear the cross.
Blessed are they who ease the days
on my journey home in so many loving ways.
---unknown
------=_NextPart_000_077E_01BE7952.D7F09520
Content-Type: message/rfc822
Content-Description: Beatitudes For Friends of the Aged
Content-Disposition: attachment
Reply-To: "Jim Snyder" <[log in to unmask]>
From: "Jim Snyder" <[log in to unmask]>
To: <Parkinsn List>
Bcc: "Jim & Ria Snyder" <[log in to unmask]>
Subject: Beatitudes For Friends of the Aged
MIME-Version: 1.0
Content-Type: text/plain;
charset="iso-8859-1"
X-Priority: 3
X-MSMail-Priority: Normal
X-MimeOLE: Produced By Microsoft MimeOLE V4.72.3110.3
Content-Transfer-Encoding: 8bit
Hello friends,
I'm sharing a short reading with you I found in a collection of essays,
poems and readings my mother left to me. It's of special interest to all
caregivers who wonder about dealing with grandkids who are embarrassed by
the frailties of the aged.
I'm attaching it so one can print it out if hard copy is needed. It's
written in Microsoft Word. Here's the typical, scrambled email version
below:
Cheers, 8-( ) Jim
BEATITUDES FOR FRIENDS OF THE AGED
Blessed are they who understand
my faltering steps and shaking hand,
Blessed are they who know that my ears today
must strain to catch the words they say.
Blessed are they who seem to know
that my eyes are dim and my wits are slow.
Blessed are they who look away
when coffee spilled today.
Blessed are they with a cheery smile
who stop and chat for awhile.
Blessed are they who never say,
"You’ve told that story twice today."
Blessed are they who know the ways
to bring back lovely yesterdays.
Blessed are they who make it known
that I am loved, not left alone.
Blessed are they who know the loss
of strength I need to bear the cross.
Blessed are they who ease the days
on my journey home in so many loving ways.
---unknown
------=_NextPart_000_077E_01BE7952.D7F09520--
=========================================================================
Date: Sun, 28 Mar 1999 19:56:18 -0600
Reply-To: Jim Snyder <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Snyder <[log in to unmask]>
Subject: Re: constipation
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Content-Transfer-Encoding: 7bit
Kathy, on the subject of constipation I can recommend Super Dieters Tea,
sold in health food stores. Also Herbal Fiberblend by the makers of
BarleyGreen. Please email me directly and I'll send you more detail, some
brochures if I have an address. I've used these items since Aug. 1993.
They've helped me. Jim,
<[log in to unmask]>
-----Original Message-----
From: Kathy Greene <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, March 28, 1999 12:49 PM
>Through the encouragement of some of y au folks I have gotten a referral
for
>my mother to the Emory Parkinson's Clinic. I don't know where my head was,
>to have such a resource just 40 minutes away and to not consider it first
>was not so bright of me. But I guess I will learn more and more as this
>journey continues. Already I have learned that the Docs aren't always
right
>and that if I feel it is bad advice I can take control until I find better
>advice. Mom is more awake, alert and ambulatory now that I took my own
>advice and D/C'd the nuerontin. Also, no more hallucinations since I
>lowered the sinemet dose and stopped the CR type. This list gave me the
>courage to trust my instincts. Thank You.
>I have a couple of questions. How do I get to the 'archives' I have seen
>mentioned? Also, besides stool softeners what advice do you experienced
>people have to stay on top of the constipation problem? Thanks in advance.
>(Whoever thought a listserve would be my most important link to the world?)
>Kathy
>
=========================================================================
Date: Sun, 28 Mar 1999 21:29:15 EST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Dick Swindler <[log in to unmask]>
Subject: Re: Insomnia . .zzzz. .
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Karen -
Insomnia seems to be fairly common in PD, although I believe it's more common
several years after diagnosis than right at first. I notice you were just
diagnosed. If you didn't have insomnia prior to your diagnosis, and your
current insomnia isn't a result of lying awake worrying about the diagnosis
and the changes it will make in your life, then I'd look at your meds.
The one med I know about which seems to cause insomnia, according to anecdotal
reports, is Eldepryl. In a support group we used to belong to, about half the
people ended up going off the Eldepryl, or dropping from two pills a day to
one, because of the insomnia they thought it caused. I do know Eldepryl is
best taken at breakfast and at lunch so as to provide as long an interval as
possible between that dose and bedtime.
If you're not taking Eldepryl, you might write to the list and tell us what
meds you're taking.
Hope this helps.
Margie Swindler, cg for Dick, 54/17
=========================================================================
Date: Sun, 28 Mar 1999 20:35:29 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Merlin H Brown <[log in to unmask]>
Subject: Re: Insomnia . .zzzz. .
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
i take two trazidone before bedtime. no pills==no sleep. also handles
any depression i had
murph brown
=========================================================================
Date: Sun, 28 Mar 1999 21:44:00 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Insomnia . .zzzz. . / my 'perceptions' messages on clinical
depression
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
At 16:28 1999/03/28 -0700, karen wrote:
>Does anyone out there have problems with sleeping because of PD and/or
>meds. Any suggestions would be appreciated. Karen (diagnosed 2 months
>ago@ 42 - now 43)
> 8-)
'they' say that
between 40% and 60% of all people with parkinson's disease [pd]
also have clinical depression [cd]
sleep disturbance - either not enough or too much -
is one of the primary symptoms of cd
i have written several messages to the list in the past about cd
and have posted them on my website
janet
janet paterson - 52 now /41 dx /37 onset - almonte/ontario/canada
<http://www.newcountry.nu/pd/members/janet/index.htm>
[log in to unmask]
=========================================================================
Date: Sun, 28 Mar 1999 21:48:55 -0500
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
Subject: Re: Insomnia . .zzzz. .
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Karen,
I take Bayer PM or Tylenol PM. My neuro seems to think it's OK. Also,
Celestial Seasonings Tea has a 'SleepyTime Tea".
Jeana
[log in to unmask]
46/14/33
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Date: Sun, 28 Mar 1999 23:11:29 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: Eldepryl Equivalent Could Save $$,
But..[excerpt from Parkinson's Newsletter DelMarVa Chapter APDA
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The latest entry into the selegiline market is ANIPRYL from Pfizer, the
maker of Viagra. The tablets come in varying strengths, going from 2 mg to
30 mg, six times the strength of Eldepryl. Thirty of the 30 mg tablets cost
$71.00 at the Wicomico Veterinary Hospital. Cutting the 30 mg 6ths would
yield 180 normal doses at a cost of less than 40 cents per dose. That is
far less than the $2.56 list price per dose foe Eldepryl or the $1.25 per
dose "good price" for the generics. Don't get too excited since you will
get a bill from your veterinarian who may also recommend distemper shots.
ANIPRYL has been advertized on television for treatment of canine cognitive
dysfunction syndrome. The insert says it is chemically identical to
Eldepryl and cites use in humans in warnings about drug interactions.
Will Johnnston
A.P.D.A. DelMarVA Chapter Pres.
4049 Oakland School Road
Salisbury MD 21804 USA 410-543-0110
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Date: Sun, 28 Mar 1999 23:21:38 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: will johnston <[log in to unmask]>
Subject: Re: A Pet Can be Good Therapy,BUT...Excerpted from PARKINSON'S
NEWSLETTER of the APDA DelMarVaChapter
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Yes, Nita, Harley and I are very good friends. We wrestle for a few
minutes every morning on the bedroom floor for fun. Then we go out for the
morning newspaper and maybe take a walk. It's sort of like marrying a poor
girl when you could have just as easily have fallen in love with a rich
girl. I married for love and no money. Guess I can love a BIG dog as much
as a convenient little dog. Yet, Harley is an awful lot of dog and still
growing. It would be a real problem if he weren't so nice.
Will
----------
From: Nita Andres <[log in to unmask]>
To: [log in to unmask]
Subject: Re: A Pet Can be Good Therapy,BUT...Excerpted from PARKINSON'S
NEWSLETTER of the APDA DelMarVaChapter
Date: Sunday, March 28, 1999 7:37 PM
Will, dogs can and are trained, just to be nice dogs and it costs very
little.
Gives you something to do also, because you must reinforce the training.
Nita
will johnston wrote:
> PARKINSON'S NEWSLETTER of the Delmarva Chapter, American Parkinson
> Disease Association
> Mar - Apr 1999 4049 Oakland School Road Salisbury, Maryland
> 21804-2716 410-543-0110
> FAX (410) 543-1378 e-mail
> [log in to unmask]
> A PET CAN BE GOOD THERAPY, BUT...
> Many books and magazine articles recommend having a pet as good therapy
for
> almost anything that ails you, but watch out. Last spring I decided that
a
> dog would be a good companion for walks in the neighborhood. The
> responsibility for walking the dog would encourage me to walk myself,
> thereby getting
> much of the exercise I need. Walking is good exercise, and a dog will
help
> make many friendships as you walk.
>
> A visit to the Wicomico County Humane Shelter is an emotional event.
There
> are so many dogs and cats who would like to go home with you, and you
have
> decided that one is enough. There was an almost
> shepherd dog who seemed to be particularly anxious to be my dog. The
people
> at the animal shelter said he was about eighteen months to two years old
> and was full grown. His name was Harley, and the people who had left him
> there had moved to a place where pets were not allowed. There was a patch
> of red on
> his back where a little girl had spilled finger nail polish. He had been
> fixed, and the previous owners had pre-paid all the cost of his adoption.
> The animal shelter building has high ceilings and large rooms which make
> dogs seem smaller. Harley was more dog than we had realized. The Humane
> Shelter people were not quite right about his being full grown. They
> weren't even close! They lied! His weight has increased about 80%.
> In spite of his size, his appetite, and the ever-present dog fur which he
> sheds continuously, he is good company. He is very strong and wants the
> neighbors' cats for lunch and dinner. Holding on when a cat comes into
view
> or the neighborhood children get off the school bus is difficult.
> Harley has not been trained as an assistance dog. He is a member of the
> family and a responsibility. He wants to go with me whenever I leave
home
> in the van and barks his disapproval if I go out alone. Get a dog? I
> recommend having a pet, but suggest caution when visiting the pound.
>
> Will
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Date: Sun, 28 Mar 1999 22:31:51 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Re: Kathy, re:constipation
In-Reply-To: <07a501be7987$b1039360$02000003@x7c1h0>
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Kathy-- the archives have lots re: constipation, and here's how to get there:
the pd list archives web-site
[which is maintained by simon coles]
[and which is part of the pwp web-ring maintained by jerry finch]
is at:
http://james.parkinsons.org.uk/
>-----Original Message-----
>From: Kathy Greene <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Sunday, March 28, 1999 12:49 PM
snipped
>>I have a couple of questions. How do I get to the 'archives' I have seen
>>mentioned? Also, besides stool softeners what advice do you experienced
>>people have to stay on top of the constipation problem? Thanks in advance.
>>(Whoever thought a listserve would be my most important link to the world?)
>>Kathy
>>
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Date: Sun, 28 Mar 1999 22:32:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: CARE list
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NEWCOMERS TO THE PD LIST : DO YOU KNOW ABOUT "CARE" ?
CARE is a sublist of this one, which was created because it appeared that
the caregivers (CGs)of people with Parkinsons (PWPs) needed a place where
they could find support of all kinds, vent frustrations, and exchange ideas
without fear of hurting anyone's feelings. It is, so to speak, a "virtual"
support group, as many CGs do not have a local group , or are "long
distance CGs'".
The CARE list (Caregivers Are Really Essential) is much smaller than the
main PD list, so there is less traffic daily and fewer messages to read.
It does NOT shut off participation on the main PD list, although a few CGs
find both lists are too much to follow, and decide to read only CARE. We
operate through a listserv at Miami University in Oxford, OH, and are a
*closed* list, meaning that any CG who wishes to join should send to:
[log in to unmask]
this command --in body of post:--no signature, please:
SUBscribe CARE your full name
The request will be forwarded to the co-owners of the list, who will add
you, and send you further instructions.
Questions? Ask me--- Camilla Flintermann, [log in to unmask]
or---Jeff Jones, [log in to unmask]
Camilla Flintermann, CG for Peter 80/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
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Date: Sun, 28 Mar 1999 23:10:42 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Margaret Tuchman <[log in to unmask]>
Subject: NEW JERSEY - ACTION NEEDED
Comments: To: William Williams <[log in to unmask]>,
Terrie Whitling <[log in to unmask]>,
"Stephan M. Schwartz" <[log in to unmask]>,
Rayna Gillman <[log in to unmask]>,
Phil Tompkins <[log in to unmask]>,
Marvin Weiss <[log in to unmask]>, Louis Tischler <[log in to unmask]>,
Ken Aidekman <[log in to unmask]>, Irene <[log in to unmask]>,
Friaan Hakim <[log in to unmask]>,
Dolores Gross <[log in to unmask]>,
Dick Miller <[log in to unmask]>,
Carol Nuss <[log in to unmask]>,
Barbara Schirloff <[log in to unmask]>,
B & N Nothnagel <[log in to unmask]>,
Anita Lipstein <[log in to unmask]>
Comments: cc: Russ Annich <[log in to unmask]>,
Lauren Barbero <[log in to unmask]>,
Kathleen C Francis <[log in to unmask]>
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Hello friends,
We are almost there!! The New Jersey Resolution proclaiming April as
Parkinson's Disease Awareness Month is a step away from reality.
We, our families and friends, need to make phone calls to
Assemblywoman Charlotte Vandervalk's office to urge her to post AJR73
and SJR53 Joint Resolutions for consideration in the Assembly Health
Committee on Monday. She is the Chairwoman of the committee and is in
position to place it on the agenda.
All residents of New Jersey should let Assemblywoman Vandervalk know
that this is a very important issue for all of us.
Her phone number is: (201) 666-0881 and the Fax number is: (201)
666-5255.
At 9:00 AM on Monday, March 29, call Assemblywoman Charlotte
Vandervalk's office,
ask her to, "post the Resolutions for consideration in the Assembly
Health Committee."
Margaret
Margaret Tuchman
Princeton, NJ
B1941/Dx1980
[log in to unmask]
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Date: Sun, 28 Mar 1999 21:36:39 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mark Bastian <[log in to unmask]>
Subject: Re: Insomnia . .zzzz. .
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Thanks Marge - I was on Eldapril - been off of it for a week - maybe it takes time
to "clear" the system.
Dick Swindler wrote:
> Karen -
>
> Insomnia seems to be fairly common in PD, although I believe it's more common
> several years after diagnosis than right at first. I notice you were just
> diagnosed. If you didn't have insomnia prior to your diagnosis, and your
> current insomnia isn't a result of lying awake worrying about the diagnosis
> and the changes it will make in your life, then I'd look at your meds.
>
> The one med I know about which seems to cause insomnia, according to anecdotal
> reports, is Eldepryl. In a support group we used to belong to, about half the
> people ended up going off the Eldepryl, or dropping from two pills a day to
> one, because of the insomnia they thought it caused. I do know Eldepryl is
> best taken at breakfast and at lunch so as to provide as long an interval as
> possible between that dose and bedtime.
>
> If you're not taking Eldepryl, you might write to the list and tell us what
> meds you're taking.
>
> Hope this helps.
>
> Margie Swindler, cg for Dick, 54/17
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Date: Sun, 28 Mar 1999 21:39:19 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Mark Bastian <[log in to unmask]>
Subject: Re: Insomnia . .zzzz. .
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Thanks for the info Merlin - I am on Paxil for depression right now - mabe
I should change - will talk to the doc. Thanks again. -Karen-
Merlin H Brown wrote:
> i take two trazidone before bedtime. no pills==no sleep. also handles
> any depression i had
>
> murph brown
