 |
 |
I was wondering if anybody from the list would be able to help this person. We have been e-mailing each other recently and she could use some help. She hasn't subscribed to the PD list yet but would appreciate any helpful information that you could give her. She can be reached at: [log in to unmask] I'm a 37-year-old woman with mild PD who was diagnosed last November. I went on Mirapex which controlled my symptoms well, but in January, I developed urinary urge incontinence. I have occasional bouts of urgency & frequency during which I feel like I have to go all the time, but only a little comes out, and I drip constantly, even after I try to relieve myself. In between bouts, I have a constant drip. I DON'T LOSE THE TOTAL CONTENTS OF MY BLADDER. My parkinsonologist said that my PD is too mild to cause urge incontinence. My pharmacist said that it is a side effect of Mirapex, so I switched to Permax for 3 weeks. Things were slightly better after my urologist dilated the urethral opening; he said that I wasn't emptying my bladder fully, and that the "dribbling" was from overflow. However, the bouts of urge incontinence continued, and Permax did not control my symptoms. I couldn't write, which I need to do for my job. The urologist referred me to a neuro-urologist who did lots of tests that came out normal. He said that my urge incontinence is from PD and not Mirapex. Since the problem hadn't gone away and I attributed the improvement to the dilation, I went back on Mirapex. The neuro-urologist doesn't believe in dilation, and prescribed Detrol and estrogen in the form of Estrace cream. I've been on them 4 weeks, and my problem is worse! Now, I leak all the time, and the drip has increased to a trickle. My neuro-urologist doesn't know what to do with me because most people with urge incontinence have occasional leakage which stops after they relieve themselves. Also, I've found that these bouts of urgency & frequency are sometimes triggered by eating spicy foods or having a drink that contains caffeine, and by anxiety such as you would experience before surgery. Does anyone else out there have a CONSTANT drip or trickle, EVEN AFTER THEY RELIEVE THEMSELVES? If so, what medications were you on when it started, how did you treat it, and were any of the treatments/medications successful? I'd appreciate any help that any of you can give me. Three doctors haven't been able to help, so I need the advice of someone that has experienced this.