Hi Susan,
I was glad to see this posting on the PIENS list. You may recall that I
wrote you a few days ago about getting some background material on young-onset
PD.
Were you able to figure out what to send me?
I think I would be interested in any educational material that addresses the
progression of the disease in younger patients as opposed to those dx age 60
or higher.
I think I have already mentioned any stats you might have.
I would be interested in a copy of your newsletter. Thanks.
Barbara Blake-Krebs 58/44
Barbara Blake-Krebs Ph: (913) 677-4419
8520 W. 61st Street Fax: (913) 789-7043
Merriam, KS 66202 E-mail: [log in to unmask]
In a message dated 3/29/99 3:35:55 PM, you wrote:
<<Hi Everyone,
There seem to be many folks with young-onset PD posting lately, so we thought
perhaps it would be helpful to remind everyone again about our APDA National
Young-Onset Information & Referral Center
The American Parkinson Disease Assocation supports an Information & Referral
Center established to provide educational and supportive resources to the
younger PD population. We are committed to educating and encouraging the
individual and his/her family and friends. We also provide information to the
medical and mental health service providers who treat and support people with
Parkinson's
The Center offers many free services:
An Information Helpline with staff to answer your questions (1-800-223-9776);
The Young Parkinson's Handbook: A Guide for Patients and Families, as well as
booklets on a variety of topics and issues relevant to the younger person;
Young Parkinson's Newsletter; referrals to physicians and services thoughout
the U. S.; nationwide support group referrals; assistance in establishing
young on-set support groups; Person to Person Program providing one-to-one
contact with other young people with your interests or concerns; a library of
books/videos for loan.
The APDA Young-Onset Information & Referral Center is always looking for
contributors to the Young Parkinson's Newsletter as well as any suggestions or
assistance in developing new programs or services.
Call us at 1-800-223-9776 or email us with your suggestions or needs. We are
here for you.
Susan Reese, RN, LCSW
National Coordinator
APDA Young-Onset Information & Referral Center
>>
