Hi Elizabeth,
I have a studio appt. top floor of my barn. I will not be able to put
you up for six months but you can stay here for a week. I like to keep the
place open for I get a lot of company. Janice 51/50/46
-----Original Message-----
From: Elizabeth Leslie <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, March 31, 1999 1:23 AM
Subject: on the road ... pwp style
>Hello Listfolk - a long time since I dropped (visibly) in here - I tend to
>hang out on the Digest on/off these days since I got some effective
>treatment that allows me to feel ... most of the time ... like I still have
>a life. But, knowing full well that nothing is certain in the world of PD,
>I am off travelling in the second half of this year while I can still
>muster the will and the energy.
>
>I plan to arrive in the US (west coast) with a friend (not pwp) from NZ
>about mid/end June and to spend 1-2 months driving/hostelling (not giving
>in to being 'packaged' just yet <g>) around US/CAN, heading east. My
>friend is going on to the UK/EUR and I may/not decide to go with him.
>Ideally I'd prefer to establish a base somewhere and dig in for a bit if I
>can get a 6-month visa - this approach worked well in '95 (pre dx) when I
>spent 5 months on the US east coast doing some research.
>
>With this in mind, is there anyone out there willing/able to offer any
>reasonable/low cost/no cost accommodation--house-share, room with use of
>facilities, granny flat, whatever, wherever--between, say, July-Nov this
>year? (I imagine several local pwp/carers and well-known contributors to
>this list will be happy to vouch for me should you wish for references.)
>It would be great to make contact with support groups along the way, and
>join in where possible with exercise classes ... I'm really going to miss
>my weekly community physio and hydrotherapy groups. I'd also like to meet
>up with pwp interested in non-conventional/nutritional approaches to
>treatment/management (just read the excellent chapter on PD from 'The Brain
>Wellness Plan: Breakthrough Medical, Nutritional, and Immuno-boosting
>Therapies' by Carl Germano and Jay Lombardo, Kensington Publishing Corp.,
>1997, and want to follow up on some supps they recommend that are not
>available in Australia.)
>
>I did put out a feeler within the university network for anyone interested
>in houseswapping with me, but without success so far ... I guess I didn't
>get my act together soon enough ... or else my situation (I live in
>Fremantle, Western Australia) sounds just a little too antipodean ... folk
>are inclined to be fearful of falling off the edge if they come this far
><g> ... but if you are an intrepid adventurer and would like to know more
>about this option, please get in touch soon before I find someone local to
>rent my place.
>
>If you'd like further info, or have any offers/suggestions/advice ...
>please contact me ... off-list (otherwise I may miss your response).
>
>Cheers
>
>Beth Leslie
>
>55 yrs/dx '96
>
>... currently running pretty well on Eldepryl 5 mgs x 2, Madopar 100mgs x 3
>+ 50 mgs at bedtime, heaps of supplements ... and yet to discover just how
>roadworthy this model is when she's put to the big test!
>
