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-----Original Message----- FromDick Swindler<[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Tuesday, 30 March 1999 11:49 Subject: Re: DBS> You may remember I contacted you sometime ago. I have had a DBS to the sub thalamic nucleus almost two years ago and have had bad and painful dystonia as a result. I even went to Grenoble last October to see if they could fix it as the general apathetic response from the local Doctor was pretty hopeless. Professor Pollak, who works with Prof Benabid, was great and reset the stimulator also advising me to try and reduce my Sinemet and eventually arrest it altogether(I had already cut it in half since the surgery). As an alternative he prescribed Parlodel. I tried for three months but had bad shakes and eventually swelling of the feet and infected ankles. I then tried Permax but didn't fare much better. The sinemet now causes dystonia without much pain but total rigidity of the leg and thigh muscles. I tend to find myself with a John Cleese walk. I was delighted to see you had a good reaction to Mirapex, which will soon be available as Sifrol in Australia (sounds like a VD treatment). Could you tell me how much you're on and if you titrated how much did you start with? I am generally okay and don't regret having the surgery but it obviously clashes with the sinemet. Hope you are well. Kind regards Peter Dawkins