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Hiya Beth... Just a quick note to let ya know that I have a spare bedroom (currently just sitting there doin' nothing but housing a few odds 'n ends (read THAT as "misc. storage"). I'm in the process of refurnishing it as a bedroom even as I type (meaning I've been shopping for furnishing but haven't bought yet) <but WILL be buying very soon!> IF you're passing thru the Los Angeles, California area - whether overnite, a few days, or possibly even longer, you can count on me for a roof over your head (and air conditioning!). <smile> Drop me a private email if ya wanna discuss this further, and/or we can go into the #Parkie chat and discuss this further. YIPPEE!! <BIG smile on face> THIS'D be really NEAT! Barb Mallut [log in to unmask] -----Original Message----- From: Elizabeth Leslie <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Wednesday, March 31, 1999 1:26 AM Subject: on the road ... pwp style >Hello Listfolk - a long time since I dropped (visibly) in here - I tend to >hang out on the Digest on/off these days since I got some effective >treatment that allows me to feel ... most of the time ... like I still have >a life. But, knowing full well that nothing is certain in the world of PD, >I am off travelling in the second half of this year while I can still >muster the will and the energy. > >I plan to arrive in the US (west coast) with a friend (not pwp) from NZ >about mid/end June and to spend 1-2 months driving/hostelling (not giving >in to being 'packaged' just yet <g>) around US/CAN, heading east. My >friend is going on to the UK/EUR and I may/not decide to go with him. >Ideally I'd prefer to establish a base somewhere and dig in for a bit if I >can get a 6-month visa - this approach worked well in '95 (pre dx) when I >spent 5 months on the US east coast doing some research. > >With this in mind, is there anyone out there willing/able to offer any >reasonable/low cost/no cost accommodation--house-share, room with use of >facilities, granny flat, whatever, wherever--between, say, July-Nov this >year? (I imagine several local pwp/carers and well-known contributors to >this list will be happy to vouch for me should you wish for references.) >It would be great to make contact with support groups along the way, and >join in where possible with exercise classes ... I'm really going to miss >my weekly community physio and hydrotherapy groups. I'd also like to meet >up with pwp interested in non-conventional/nutritional approaches to >treatment/management (just read the excellent chapter on PD from 'The Brain >Wellness Plan: Breakthrough Medical, Nutritional, and Immuno-boosting >Therapies' by Carl Germano and Jay Lombardo, Kensington Publishing Corp., >1997, and want to follow up on some supps they recommend that are not >available in Australia.) > >I did put out a feeler within the university network for anyone interested >in houseswapping with me, but without success so far ... I guess I didn't >get my act together soon enough ... or else my situation (I live in >Fremantle, Western Australia) sounds just a little too antipodean ... folk >are inclined to be fearful of falling off the edge if they come this far ><g> ... but if you are an intrepid adventurer and would like to know more >about this option, please get in touch soon before I find someone local to >rent my place. > >If you'd like further info, or have any offers/suggestions/advice ... >please contact me ... off-list (otherwise I may miss your response). > >Cheers > >Beth Leslie > >55 yrs/dx '96 > >... currently running pretty well on Eldepryl 5 mgs x 2, Madopar 100mgs x 3 >+ 50 mgs at bedtime, heaps of supplements ... and yet to discover just how >roadworthy this model is when she's put to the big test! >