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I agree with you, Ruth!! I appreciate especially your comments on why PD is at times, FATAL. By NOT sugar-glossing we can show the public the real truth. I guess I sound a little blunt. Ivan. On Thu, 1 Apr 1999 13:35:31 EST ".Joan Waterman" <[log in to unmask]> writes: >I had worked up an enthusiasm for helping "spread the word" that Jim's >letter >inspired and true to PD, my wobbly hand dragged across the numerical >delete >and I lost the whole thing! My letter of inspration destroyed. Now >I don't >know if I can get motivated or not. > >I will say that I have been negligent about getting involved with the >current >activities, but I shall try to do something now. The NPF has set up a >branch >(?)here in Jacksonville and I will call them to see what we can do >here to >educate the media about Parkinson Awareness. > >I think one step has been taken by two of the organizations merging >that will >help. I think the national organizations should work together more. > >As far as trying to get people to understand PD, I don't know if it >is >possible or not Sometimes I can't realize just what "designer disease" >is that >we live with. Most times our care givers and close family and friends >don' t >understand why you can be one way and the next minute another. Why >you can be >laughing and joking and suddenly wanting to cry! Why you can be >walking and >suddenly have to crawl! Why they may see you out to dinner and a short >time >later flat on your back on the bed! > >It is a mistake to say that PD doesn't kill. Our hearts cannot always >take >the strain, thus heart attacks. Our breathing problems bring on >pneumonia. >Constipation has brought about death. No doubt choking, because of >swallowing >problems have resulted in death. >While I'm not aware of any particular case, I'm sure ther have been >those who >could not handle the misery and took their own life! No we don't like >to >think like that, but it's reality. We should not always show such a >brave >public face. However, I doubt that people really want to know the bad >part! > >I haven't the eloquence I had worked up in my lost message, but the >meaning is >here so I'll let it go at that. Let's hope the Parkinson Awareness >movement >will work wonders for the future. > >Ruth Clark ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************