 |
 |
Barb, can you instruct me on how to get to Parkie chat. Thank you, [log in to unmask] -----Original Message----- From: Barb_MSN <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Saturday, April 03, 1999 12:23 PM Subject: Re: on the road ... pwp style >Hiya Beth... > >Just a quick note to let ya know that I have a spare bedroom >(currently just sitting there doin' nothing but housing a few odds >'n ends (read THAT as "misc. storage"). I'm in the process of >refurnishing it as a bedroom even as I type (meaning I've been >shopping for furnishing but haven't bought yet) <but WILL be >buying very soon!> > >IF you're passing thru the Los Angeles, California area - whether >overnite, a few days, or possibly even longer, you can count on me >for a roof over your head (and air conditioning!). <smile> > >Drop me a private email if ya wanna discuss this further, and/or >we can go into the #Parkie chat and discuss this further. > >YIPPEE!! <BIG smile on face> THIS'D be really NEAT! > >Barb Mallut >[log in to unmask] >-----Original Message----- >From: Elizabeth Leslie <[log in to unmask]> >To: [log in to unmask] <[log in to unmask]> >Date: Wednesday, March 31, 1999 1:26 AM >Subject: on the road ... pwp style > > >>Hello Listfolk - a long time since I dropped (visibly) in here - >I tend to >>hang out on the Digest on/off these days since I got some >effective >>treatment that allows me to feel ... most of the time ... like I >still have >>a life. But, knowing full well that nothing is certain in the >world of PD, >>I am off travelling in the second half of this year while I can >still >>muster the will and the energy. >> >>I plan to arrive in the US (west coast) with a friend (not pwp) >from NZ >>about mid/end June and to spend 1-2 months driving/hostelling >(not giving >>in to being 'packaged' just yet <g>) around US/CAN, heading east. >My >>friend is going on to the UK/EUR and I may/not decide to go with >him. >>Ideally I'd prefer to establish a base somewhere and dig in for a >bit if I >>can get a 6-month visa - this approach worked well in '95 (pre >dx) when I >>spent 5 months on the US east coast doing some research. >> >>With this in mind, is there anyone out there willing/able to >offer any >>reasonable/low cost/no cost accommodation--house-share, room with >use of >>facilities, granny flat, whatever, wherever--between, say, >July-Nov this >>year? (I imagine several local pwp/carers and well-known >contributors to >>this list will be happy to vouch for me should you wish for >references.) >>It would be great to make contact with support groups along the >way, and >>join in where possible with exercise classes ... I'm really going >to miss >>my weekly community physio and hydrotherapy groups. I'd also >like to meet >>up with pwp interested in non-conventional/nutritional approaches >to >>treatment/management (just read the excellent chapter on PD from >'The Brain >>Wellness Plan: Breakthrough Medical, Nutritional, and >Immuno-boosting >>Therapies' by Carl Germano and Jay Lombardo, Kensington >Publishing Corp., >>1997, and want to follow up on some supps they recommend that are >not >>available in Australia.) >> >>I did put out a feeler within the university network for anyone >interested >>in houseswapping with me, but without success so far ... I guess >I didn't >>get my act together soon enough ... or else my situation (I live >in >>Fremantle, Western Australia) sounds just a little too antipodean >... folk >>are inclined to be fearful of falling off the edge if they come >this far >><g> ... but if you are an intrepid adventurer and would like to >know more >>about this option, please get in touch soon before I find someone >local to >>rent my place. >> >>If you'd like further info, or have any offers/suggestions/advice >... >>please contact me ... off-list (otherwise I may miss your >response). >> >>Cheers >> >>Beth Leslie >> >>55 yrs/dx '96 >> >>... currently running pretty well on Eldepryl 5 mgs x 2, Madopar >100mgs x 3 >>+ 50 mgs at bedtime, heaps of supplements ... and yet to discover >just how >>roadworthy this model is when she's put to the big test! >>