You might be a parkie if....
you are listening to (and enjoying) you favorite song, but your foot is
enjoying (and keeping beat with) a DIFFERENT song...
-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Monday, April 12, 1999 11:09 PM
Subject: PARKINSN Digest - 12 Apr 1999 (#1999-190)
=========================================================================
Date: Tue, 13 Apr 1999 07:27:08 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Cordy <[log in to unmask]>
Subject: Congratulations Joan and Illinoise
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Joan,
It was great to hear of your success. I hope that others read and gain
confidence that they to can have impact. Its never too late to get started.
April 11 might have been Parkinson's day in the rest of the world but you
can make it when you want it in your community. In Pittsburgh,we had
Parkinson's awareness week in September one year.
Last week I was in a meeting with the new director of the National Institute
of Neurological Disease and Stroke, Dr. Fischbach, he was very supportive of
our Seed Grant program as a vehicle for stimulating new and additional
Parkinson's research.
I spoke with another leading researcher at NIH, who deals with stem cells.
His optimism exceeded even mine. He feels that the advances in stem cell
research is the key that will unlock yet more of the secrets of the brain
and to rapid progress in curing degenerative illnesses like PD.
One of the goals of the Parkinson's Alliance is to empower people with
Parkinson's. Success empowers people. Joan, you have been empowered. Your
success prepares you for your next success and hopefully encourages others
to try.
Jim Cordy
=========================================================================
Date: Tue, 13 Apr 1999 07:50:36 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: William Heitman <[log in to unmask]>
Subject: Re: this is a test
MIME-Version: 1.0
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In a message dated 4/12/99 8:46:09 PM Central Daylight Time,
[log in to unmask] writes:
<< We just down loaded Microsoft and want to know if mail gets out. Janice >>
Janice,
Read you L&C here..
WHH
55/38/37
=========================================================================
Date: Tue, 13 Apr 1999 07:52:31 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jennifer Smith <[log in to unmask]>
Subject: JOKE: Healthy lifestyle
Comments: To: Alan Belcher <[log in to unmask]>,
"[log in to unmask]" <[log in to unmask]>,
Brenda Rodriguez <[log in to unmask]>,
Buzzy <[log in to unmask]>,
Cathey Norfleet <[log in to unmask]>, Chris <[log in to unmask]>,
Dave Zimmerman <[log in to unmask]>,
"Dr. Korkeila" <[log in to unmask]>,
"Dr. Stuart Shipko" <[log in to unmask]>,
"Dr. Stuppy" <[log in to unmask]>, ELECTRICTION <[log in to unmask]>,
"[log in to unmask]" <[log in to unmask]>,
Janet and CB <[log in to unmask]>, JOEL WEATHERS <[log in to unmask]>,
Lori Wolf <[log in to unmask]>, Martha <[log in to unmask]>,
pat claybaker <[log in to unmask]>,
"R.T.Thomas" <[log in to unmask]>,
Robert and Caridad <[log in to unmask]>,
Sharon <[log in to unmask]>, Shumaker <[log in to unmask]>,
Stan and Betty <[log in to unmask]>, Waltah <[log in to unmask]>,
Willie and Pat <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Grandpa Cartmell was celebrating his 100th birthday and
everybody complimented him on how athletic and
well-preserved he appeared.
"Gentlemen, I will tell you the secret of my success," he
cackled. "I have been in the open air day after day for some
75 years now."
The celebrants were impressed and asked how he managed to
keep up his rigorous fitness regime.
"Well, you see my wife and I were married 75 years ago. On
our wedding night, we made a solemn pledge. Whenever we had
a fight, the one who was proved wrong would go outside and
take a walk."
=========================================================================
Date: Tue, 13 Apr 1999 07:16:13 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Leo Fuhr <[log in to unmask]>
Subject: Re: are you being covered by the media? AKA Joan Snyder's
successes
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
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Joan, You are truly an inspiration to all of us. Congratulations on the
successof your Art Exhibit and the money raised on PD Awareness Day. Also,
best of luck w/the upcoming surgery.
Jeanette Fuhr 48/47/44?
Joan Snyder said in part:
> Dear listfriends:
> I'm happy to report that here in central Illinois, we are getting
> almost more news coverage than I can handle!! For my event for PD
> Awareness Day, we received excellent local coverage. To refresh your
> memory, we planned & pulled off beautifully (praise the Lord!) an Art
> Exhibit by local artist Jane Scott & Marc Esser entitled: "The Letting
> Go: A Parkinson's Story." ,
I think that after expenses we will have $1700 or thereabouts
> to donate to The Tuchman Foundation & to The Parkinson's Alliance. Our
> event was covered extensively by NBC affiliate WEEK-TV in Peoria who did
> 6 (at least) stories covering it & 2 live interviews to plug the event.
> The same station is also working on a news series covering my upcoming
> collagen injections which will be this week.
>
> Thanks to you
> all for your prayers & support and just maybe, with a little bit of
> God's grace & some old fashioned luck, this art exhibit may be made
> available to your group as a fund-raiser & wonderful vehicle for
> awareness!
=========================================================================
Date: Tue, 13 Apr 1999 08:26:15 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: William Heitman <[log in to unmask]>
Subject: Re: Fw: Fw: pet alert
Comments: cc: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
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Dear List,
I have no idea if this is a hoax. However, at the risk of causing undue
grief to the Febreze folks, I decided our dogs and (yes, Barb M) our kitties
are too important to us to just drop it.
I got this from a young lady who bought one of our last litter of (Miniature
poodle) puppies.
In a message dated 4/12/99 1:56:31 PM Central Daylight Time,
[log in to unmask] writes:
<<
> >> FYI
> >>
> >> SAVE YOUR ANIMALS!
> >>
> >>
> >>
> >>> This is a message from the Veterinary Emergency Center in
> >>> Needham
> >>> regarding a product called Febreze:
> >>> Febreze, a new product that is used to get odors out of
> >>> fabrics, has been causing deaths and illness in dogs, cats,
> >>> birds, and other domestic animals . There have been multiple
> >>> instances reported in the past few weeks of these animals
> >>> dying after Febreze was used anywhere near them.
> >>> Some pets have gotten very ill, and others have died.
> >>> Febreze contains zinc chloride, which is the culprit.
> >>> If you have recently sprayed your pet's bedding with
> >>> this product, please wash it until you get all of the
> >>> Febreze out or, better yet, purchase new bedding.
> >>> Please pass the word along to your animal-loving
> >>> friends so we can prevent further deaths.
> >>>
> >>>
=========================================================================
Date: Tue, 13 Apr 1999 07:43:55 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Billie Cook <[log in to unmask]>
Subject: Re: this is a test
In-Reply-To: Janice Morgan <[log in to unmask]>'s message of Mon, 12 Apr 1999
18:50:54 -0700
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
got to Grand Prairie TX ok.
Billie Cook
=========================================================================
Date: Tue, 13 Apr 1999 09:42:12 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: QT: test
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
At 07:25 1999/04/13 -0400, john wrote:
>Morning Janet:
>
>Looking at the Gravity of Jest
>
>There once was a man from the west
>Who examined the gravity of jest
>But so false was his wit
>that it helped not a bit
>and his suspicions could not meet the test
>
>John Bjork
>A View from the Jesty Side of PD
my cats still stop and stare when i laugh out loud at the computer
thank you, john
janet
janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
Scan some of My Past Posts at:
http://www.newcountry.nu/pd/members/janet/index.htm
Mine the PD List Archives at:
http://james.parkinsons.org.uk/
Cull Nine Million Pub-Med Medical Studies at:
http://www.ncbi.nlm.nih.gov/PubMed/
Comb the 'People With Parkinson's' Web-Ring at:
http://www.webring.org/cgi-bin/webring?ring=parkie;list
=========================================================================
Date: Tue, 13 Apr 1999 10:13:41 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: News Media Follow-Up
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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To: Barbara, Ivan, Hillary, Jennifer and all:
This morning I've been following up on about a dozen of the news media
organizations I had originally contacted re World Parkinson's Awareness
Month, and Archbishop's TuTu's Prayer. Although I've only received one
reply so far (it's just been an hour), I believe it to be significant.
WLUCTV6, in Marquette, MI, actually called me back on the phone to
inform me that based on our information package, the station is planning
a special program on Parkinson's Disease in two weeks. They promised to
look into the possibility of making a copy of the program available to
me after the program airs.
Basically, I had sent an email to the news department reminding them of
the original 2 submissions I had sent to them, the fact that I wasn't in
the area and didn't know whether the item had aired or not, but if it
hadn't, why not? Did I make any mistake in dealing with the station or
news department which contributed to their decision, that I could
correct for the next time? If they had aired the item, I extended my
thanks and appreciation to them on behalf on the PD sufferers all over
the world.
I'm very encouraged by WLUCTV's pro active attitude and by their
decision not only to air the item, but to put together a special program
on Parkinson's Disease. This morning I completed contacting
organizations on my list located in Michigan's Upper Peninsula.. This
PM perhaps I can finish contacting the 50-odd remaining stations from
my original submission list. I'll report back any good news, and any
"lessons learned" from this endeavor.
Well, time to get busy.
John Bjork
A View from the Lighter Side of PD
Parkinsaw, MI
=========================================================================
Date: Tue, 13 Apr 1999 09:23:50 -0500
Reply-To: Jim Snyder <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jim Snyder <[log in to unmask]>
Subject: Re: you might be a Parkie
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Content-Transfer-Encoding: 7bit
to rford: your post reminded me that I hadn't sent yet my recent
observation that "you might be a Parkie" if your right foot is doing the
Merengue while your left foot is doing a slow waltz.
Cheers, 8<{ ) Jim
----- Original Message -----
From: rford <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, April 13, 1999 5:30 AM
Subject: you might be a Parkie
> You might be a parkie if....
>
> you are listening to (and enjoying) you favorite song, but your foot is
> enjoying (and keeping beat with) a DIFFERENT song...
>
>
> -----Original Message-----
> From: Automatic digest processor <[log in to unmask]>
> To: Recipients of PARKINSN digests <[log in to unmask]>
> Date: Monday, April 12, 1999 11:09 PM
> Subject: PARKINSN Digest - 12 Apr 1999 (#1999-190)
>
=========================================================================
Date: Tue, 13 Apr 1999 10:44:09 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Current Internet Hoaxes, Urban Legends, and other Digital Lies
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
hi all
the MiningCo web site at:
<http://urbanlegends.miningco.com/>
is an important internet resource=20
especially for those testing their ethereal wings
just because it comes dressed up as e-mail=20
doesn't mean it ain't graffiti
the miningco's list of current hoaxes/rumours/junk/urban legends follows.
janet
whose ethereal olfactory abilities [at least] are still intact
----------------------------------------------------------
LSD/Strychnine on Pay Phone Buttons [Rumor]=20
More pay phone hysteria, courtesy of the Internet.
The Great 'GAS OUT' [Junk]=20
A rather silly chain letter attempting to rally Americans to protest the
rising price of gasoline.
The Y2K / VCR Conspiracy [Rumor]=20
Are VCR manufacturers hiding a simple solution to the Y2K bug?
HIV Needle-Stick Incidents in Dallas and Denver [UL]=20
New versions of last year's email rumors.
Febreze Warning [Rumor]=20
An email warning in circulation since January warns that the fabric
deodorizer Febreze is toxic to pets.
Petition to Save PBS / NPR / NEA [Junk]=20
"The Case of the Pointless Petition" =96 a cautionary tale.
NUD - 'No Urban Dictate' [Rumor]=20
From David Spalding's 'Hoax du Jour' =96 Do some corporations apply racist
criteria when deciding where to advertise?
Missing Child Alert - 'Andrew Russell Steinmetz' [Junk]=20
Another defunct alert. Andrew Steinmetz was kidnapped by his father, but
recovered safe and sound by authorities in February.
Y2K Bank Scam [Rumor]=20
Based on conflicting reports from bankers and the media, we can confidently
say that this rumor may or may not be true!
'Video Clip' Chain Letter [Hoax]=20
The "coolest chain letter ever" claims that a funny video will appear on
your screen if you forward it to 11 people.
Blue Mountain Greeting Cards 'Virus' [Hoax]=20
According to this false AOL rumor, electronic greeting cards from Blue
Mountain are infected with a virus.
Procter & Gamble's Killer Sponges [Hoax]=20
A new email alert claims that "pot scrubbers" from P&G contain a toxic
chemical.
Missing Child Alert - 'Krystava Patients Schmidt' [Junk]=20
A message still circulating many months after the fact pleads for help
finding a missing child, but the youngster is safe and sound.
'Slow Dance' Chain Letter [Hoax]=20
Another opportunity to help save the life of a dying child who doesn't=
exist.
'Guinness Book of Records' Chain Letter [Hoax]=20
Just forward this message and get your name listed in Guinness =96 along wit=
h
a million or so other folks.
Exit23b.com 'Free Stock' Chain Letter [Junk]=20
The good news is: it's not a scam or a hoax. The bad news is: the offer has
expired.
Walt Disney Jr.'s 'Email Tracking' Giveaway [Hoax]=20
It's running rampant again! This hoax declares you can win $5,000 or a trip
to Disney World just by forwarding a chain letter.
Petition for Afghan Women's Rights [Junk]=20
Not a hoax, but a sincere effort gone astray.
Long Distance Rates for Internet Access? [Rumor]=20
A "new" old rumor =96 the U.S. government is going to make us pay long
distance rates for Internet access.
Hypodermic Needles in Pay Phone Coin Slots [UL]=20
Malicious drug addicts are out to kill us! Also: update on possible copycat
incidents in Virginia.
'Welcome to the world of AIDS' [UL]=20
Email scare story =96 randomly chosen victims are being injected with the
AIDS virus in crowded theaters and night clubs around the world.
More AIDS/HIV Sneak Attacks [UL]=20
A new email variant of the "AIDS pin prick" legend.
'Guts to Say Jesus' Virus Alert [Hoax]=20
Symantec debunks this latest variant of the "Good Times" virus hoax.
Dave Matthews Chain Letter [Hoax]=20
The latest variation on the "save a dying child" chain letter purports to
have the enthusiastic support of musician Dave Matthews.
David 'Darren' Bucklew Chain Letter [Hoax]=20
This one's a rewrite of the old "Timothy Flyte" chain letter =96 just as
bogus, just as annoying.
Aspartame Warning [Rumor]=20
A slipshod, overblown email flyer dating from 1995, alleging that
NutraSweet causes just about every malady known to humankind. Scientists=
balk.
Tommy Hilfiger Made Racist Statements on Oprah [Rumor]=20
That's what the email rumor claims, at any rate. This outright lie dates
back several years.
'Inside Edition' Mall Abduction Scams [Rumor]=20
This "warning to women" claims that elaborate scams are being used by
abductors to lure female shoppers out of malls and into waiting vans.
Another Close Call at the Mall [UL]=20
A murderous, well-dressed "good samaritan" supposedly lurks in the parking
lots of shopping malls just about everywhere.
Deadly Rat Urine on Soda Pop Cans [UL]=20
Three variations of a new cautionary tale making the email rounds since
October.
Cockroach Egg Tacos at Taco Bell [UL]=20
A fast-food horror story, as told in six different locations around the U.S.
Asbestos: Secret Ingredient in Tampons [Rumor]=20
Two versions of this email alert are circulating, one more true than the
other.
Headlight Flashing 'Gang Initiation Rite' [UL]=20
Urban legend from the early '90s re-emerges as a frightening email alert.
Snakes in Burger King's Ball Pit! [UL]=20
Email version of an old amusement park legend, in the form of a warning to
parents.
The 'Blue Star' LSD Tattoo [UL]=20
Email alert claims that colorful cartoon stickers laced with LSD pose a
threat to children everywhere.
The 90# Telephone Scam [Rumor]=20
A half dozen or so variations of this alert have been in wide circulation
since last February. The scam is real, but it does not affect typical
residential phone customers.
'Win a Holiday' Virus Alert [Hoax]=20
A recent copycat of the 'Join the Crew' virus hoax, this alert falsely
claims that reading an email message will unleash a virus that will erase
your hard drive.
Shampoo Cancer Warning [Rumor]=20
A new chain letter falsely claims that an ingredient found in many
brand-name shampoos is carcinogenic.
Black Voting Rights to Expire in 2007 [Rumor]=20
This email alert, bouncing around the Internet since January, 1997, has
most of the facts wrong.
Corpses of Children Used to Traffic Drugs [UL]=20
An old urban legend (c. 1973) dressed up in new clothes for the Internet.
Perennials
A.I.D.S. Virus Warning [Hoax]=20
According to the bogus alert in constant circulation, this
email-transmitted virus will completely destroy your computer!
Bud Frogs Screen Saver Warning [Hoax]=20
Newly tweaked to deceive you, this one-year-old virus hoax is still going
strong.
The Craig Shergold Chain Letter [UL]=20
Story of the little boy whose life was saved by a chain letter that won't=
die.
Gerber Savings Bond Giveaway [Rumor]=20
Fax and email alerts falsely claim that Gerber Products Co. lost a class
action suit and now must pay out restitution to millions of American
children in the form of $500 savings bonds.
The Jessica Mydek Chain Letter [Hoax]=20
Jessica Mydek, a seven-year-old girl dying of cancer, does not exist, nor
will the American Cancer Society contribute money to research in her name
every time this chain letter is forwarded. (Also see the many Mydek
copycats: David Lawitts, Tamara Martin, Rick Connor, and Timothy Flyte.)
Join the Crew/Penpal Greetings/Undeliverable Mail [Hoax]=20
Three aging virus hoaxes that won't go away, now most often circulated in
"combination alerts."
Kidney Thieves [UL]=20
The venerable organ snatching legend erupts in Austin, Texas. This
hysterical warning is a hodgepodge of various mutations of the legend
cut-and-pasted together.
'Need some extra $$$ for the summer?' [Hoax]=20
Make millions just by forwarding this chain letter! Funded by "National
Banks everywhere!!" Teaches kids how to manage money!!!
Neiman Marcus (Mrs. Fields)=20
Cookie Recipe [UL] Posh department store charges $250 for a cookie recipe;
victim gets even by sharing it with the world. All the ingredients of a
legend!
Prehistoric Barbie [Hoax]=20
This amusing counterfeit letter purporting to originate from the
Smithsonian responds to an interesting backyard archaeological discovery.
The Timothy Flyte Chain Letter [Hoax]=20
Also known as the "David 'Darren' Bucklew" chain letter =96 another variatio=
n
on the "save a dying child" hoax.
Veterans' Dividend Hoax [Hoax]=20
Bogus offer to U.S. veterans involving alleged dividends on insurance
policies.
Copyright 1999 MiningCo.com, Inc. All rights reserved.
http://urbanlegends.miningco.com/library/blhoax.htm?pid=3D2733&cob=3Dhome
----------------------------------------------------------
janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
Scan some of My Past Posts at:
http://www.newcountry.nu/pd/members/janet/index.htm
Mine the PD List Archives at:
http://james.parkinsons.org.uk/
Cull Nine Million Pub-Med Medical Studies at:
http://www.ncbi.nlm.nih.gov/PubMed/
Comb the 'People With Parkinson's' Web-Ring at:
http://www.webring.org/cgi-bin/webring?ring=3Dparkie;list
=========================================================================
Date: Tue, 13 Apr 1999 13:36:23 -0400
Reply-To: Jeana Bartlett <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jeana Bartlett <[log in to unmask]>
Organization: Personal
Subject: Carl Miller- April 17
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Carl,
Thanks for the info on the meeting at Emory on the 17th. My husband and I
are going. Do you know if we have to contact them and sign up?
Thanks
Jeana
46/14/33
=========================================================================
Date: Tue, 13 Apr 1999 14:22:41 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: News-CDN man receives specially trained dog...
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
Company Press Release
SOURCE: Health Strategy Group
Notice to Media - Special American Dog Brings Hope to a Canadian Man
with Parkinsons Disease
TORONTO, April 12, 1999 /CNW-PRN/ -
What: There will be a news conference on Tuesday, April 13 in Toronto to
introduce the first Canadian to receive a specially-trained dog to
manage Parkinsons symptoms of ``freezing'' and balance problems. The
news conference will explore the benefits service dogs can bring to
people with Parkinsons and it will describe the newly-developed training
program these dogs undergo at the Independence Dog institute in
Pennsylvania, the first such program in the world. It will also report
on a Canadian study
designed to better understand the role of service dog interventions.
Who: Ian Pearson
Mr. Pearson, a Parkinsonian from the Toronto area, was diagnosed
with the disease 10 years ago, at age 37. He will be the first
Canadian to receive an Independence Dog.
Dr. Janis Miyasaki, neurologist and movement disorders
specialist, The Movement Disorders Clinic of the Toronto Western
Hospital Dr. Miyasaki will conduct a study on the physical therapeutic
value of service dogs to people with Parkinsons.
Dr. Peter Morabito, a Parkinsonian, and Victor the Great Dane,
an Independence Dog Prior to receiving Victor, Dr. Morabito, a retired
dentist from Washington, D.C., had balance problems that caused him to
fall several times a day.
Eddie Gray, President, SmithKline Beecham PharmaSmithKline Beecham
Pharma is sponsoring the Canadian Independence Dog pilot.
Julie Van Vliet, Independence Dog Master Trainer, and Jax, an
Independence Dog in training Jax, a black Lab, will become Mr. Pearson's
service dog after completing training with Ms. Van Vliet.
Blair McRobie, President and CEO, Parkinson Foundation of Canada
Mr. McRobie will address raising awareness of Parkinsons.
Where: The Toronto Western Hospital, 399 Bathurst Street (at
Dundas), Fell Wing (Main entrance), 4th Floor, Room 103. A demonstration
of Victor's abilities as a Parkinsons dog will take place in the
adjacent atrium.
Date: Tuesday, April 13
Time: 10:30 a.m. ET
Copyright © 1999 PRNewswire.
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
=========================================================================
Date: Tue, 13 Apr 1999 13:26:28 CST
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Margaret Mates <[log in to unmask]>
Subject: Mattress for parkies?
Do any of my fellow PWPs out there have any experience
sleeping on a "Tempur-Pedic" mattress? This is advertised
as a "pressure relieving Swedish mattress and pillow...with
viscoelastic memory cells that conform to every curve and
angle of your body. Ventilating channels dissipate heat to
provide perspiration-free comfort."
Any PWP with experience sleeping on this mattress:::does it
make it any easier to turn over????
Thank you for any first hand info.
=========================================================================
Date: Tue, 13 Apr 1999 13:38:55 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Terry Kempf <[log in to unmask]>
Subject: Re: Non PD-Web Site
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Judith,
Seeing those old tv shows reminded me of listening to
"Space Patrol" on the radio before we had a tv. Then I also
thought about "Pluck your magic twanger, Froggie". Everybody
always looks at me funny when I say that. So I went to Yahoo
and did a search on twanger and froggie. There it was - on the
best of Buster Brown - Froggie and his magic twanger. I'm
not as demented as they all think.
Terry
----------
> From: judith richards <[log in to unmask]>
> To: [log in to unmask]
> Subject: Non PD-Web Site
> Date: Monday, April 12, 1999 10:36 PM
>
> For all you oldies but goodies... :)
>
> http://www.yesterdayland.com/
> --
> Judith Richards, London, Ontario, Canada
> <[log in to unmask]>
=========================================================================
Date: Tue, 13 Apr 1999 14:37:20 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: News-The origins of the shaking palsy
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http://news.bbc.co.uk/hi/english/health/newsid_317000/317413.stm
BBC News
April 12, 1999
The origins of the shaking palsy
Michael J Fox of Back to the Future fame has Parkinson's Disease.
Dr James Parkinson was better known in his time for his work on fossils
than for his essay on "the shaking palsy".
But it was this that would make his name famous around the globe two
centuries after he was born.
The multi-talented GP is the name behind Parkinson's disease, the
progressive neurological disorder whose sufferers include Muhammad Ali
and film star Michael J Fox.
It can affect all aspects of a person's life and occurs when cells in
the part of the brain which controls movement are lost.
Born in London in 1755, Dr Parkinson studied Latin, Greek, natural
philosophy and shorthand - subjects which he considered as important
basic tools for a physician.
His father was a GP and he took over his practice.
Dr Parkinson was by no means a typical GP. He had wide-ranging interests
and, in his day, was probably better known for his three volume work on
fossils than for his essay on the "shaking palsy".
Other medical works included a treatise on gout and he also published
books on social, political and geological subjects.
He was extremely interested in bringing medicine to the masses and
published a selection of self-help manuals aimed at encouraging people
to adopt better sanitary standards.
His political beliefs were fairly revolutionary.
At a time when the French revolution was taking place, he advocated
universal suffrage and an annual parliament.
However, it is for his "Essay on the shaking palsy", published in 1817 -
11 years before his death, that he has become universally known.
Symptoms
He was the first person to make an accurate description of the disorder
which affects one in 500 people in the UK.
Its symptoms include shaking, slowness of movement and muscle stiffness.
Despite Dr Parkinson's success in describing the condition, his work was
only recognised by French neuropathologist Dr Jean Martin Charcot 60
years after it was first published.
And it was not until the second half of the 20th century that scientists
discovered what caused the disease.
They found that the lack of a chemical messenger called dopamine was
responsible.
The symptoms of Parkinson's only appear after the death of 80% of the
cells which produce dopamine which is linked to co-ordination.
Currently, the condition is treated with drugs which mimic the action of
the chemical messengers.
Patients also often turn to alternative therapies. For example, massage
has been found to be very helpful in the treatment of the disease.
Liz Cockerill, who has Parkinson's, told Radio Four's A Name to Remember
programme: "It has been a life saver for me. Otherwise my muscles would
just seize up."
In the last few years, there have been significant advances in the
treatment of late stage Parkinson's.
For example, dopamine can now be injected and pacemakers have been
fitted into some patients' brains with interesting results.
Some doctors predict there could be a cure or a preventive treatment for
the disease in the next 20 years once scientists understand its genetic
and environmental triggers.
They believe "a window of opportunity" exists between the time the cells
start dying and the time symptoms begin to show.
This week has been named Parkinson's Awareness Week by the Parkinson's
Disease Society.
A Name to Remember is about the names behind major diseases and is being
run on BBC Radio Four at 3.30pm BST from 12 to 16 April.
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
^^^
\ /
\ | / Today’s Research
\\ | // ...Tomorrow’s Cure
\ | /
\|/
```````
=========================================================================
Date: Tue, 13 Apr 1999 14:47:54 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: News-Public ignorance about Parkinson's attacked
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http://news.bbc.co.uk/hi/english/health/newsid_315000/315617.stm
Sunday, April 11, 1999
BBC News
Public ignorance about Parkinson's attacked
Misconceptions about Parkinson's Disease can make it harder for patients
to get the treatment they need, says a leading charity.
The Parkison's Disease Society (PDS) is marking Parkinson's Awareness
Week with a campaign to dispel myths about the condition which affects
one in 500 people in the UK.
It says the public often think only elderly people get the disease; that
they are stupid and always suffer from tremors.
Many doctors are ignorant about the condition as well, it states.
The PDS has produced a checklist of symptoms for doctors to help them
make a referral.
"Many people find it difficult to get a referral to a consultant
neurologist and many do not have their medication reviewed for years,"
it says.
It has set up a charity to promote understanding of the disease as part
of its 30th anniversary celebrations.
Parkinson's is a progressive, neurological disorder, which is mainly
treated with drugs.
It can affect all aspects of a person's life and occurs when cells in
the part of the brain which controls movement are lost.
he cells produce a chemical messenger which aids co-ordination.
It is not known what the cells die, but once 80% have been destroyed,
the symptoms of Parkinson's will appear. They include shaking, slowness
of movement and muscle stiffness.
Well-known sufferers include film star Michael J Fox, Muhammad Ali and
artist Salvador Dali.
Around 120,000 people in the UK have the disease.
Drugs normally are very effective at treatment of the initial symptoms,
but long-term use leads to severe side effects.
The PDS says that, in the early stages, people with Parkinson's can have
a good lifestyle, but people often perceive them to be stupid, a misery
and ignorant.
Most think all sufferers experience tremors when, in fact, about 15%
never do.
"A diagnosis of Parkinson's cannot be ruled out simply because someone
does not experience a tremor," says the PDS.
It is widely thought that only elderly people get Parkinson's when one
in 20 sufferers are under 40.
The public also tend to think people with Parkinson's are stupid, mainly
because of their difficulty in communicating in the later stages of the
disease.
People with Parkinson's can lose up to 93% of their ability to
communicate, says the charity.
It defines communication as not only speaking, but also tone of voice,
intonation, volume and facial expression.
This can lead to them becoming very isolated and frustrated.
The PDS says: "People with Parkinson's often appear impassive because of
difficulties with facial expressions such as frowning and smiling.
"Movements also become increasingly slow and difficult," it says.
"As facial expression and body language are a vital part of
communication, the person with Parkinson's may wrongly be perceived as
being rude, miserable or stupid.
"When these symptoms are combined with slurred speech, also a common
result of Parkinson's, some people may assume they are drunk."
Parkinson's Awareness Week runs from 10 to 18 April.
For more information, contact the PDS on 0171 931 8080.
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
=========================================================================
Date: Tue, 13 Apr 1999 14:53:28 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: 2nd Follow-Up Report of Spreading the Word to Media Organizations
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Barbara: I sent follow-up email messages to these TV Stations asking
about the status of the original Bulletin and Prayer: I'll report back
anything that is learned about the process and procedures dealing with
the news media.
KXAN-TV - Austin, TX
KMIZ-TV - Columbia, MO
KARK-TV - Little Rock, AR
KBHK-TV - San Francisco
KBJR-TV - Duluth, MN
KCNC-TV- Denver, CO
KELO-TV - Sioux Falls, SD
KSTU-TV - Salt Lake City, UT
WSAZ-TV - Huntington, WV
WNEM-TV -Sault Ste Marie, MI
WBAL-TV - Baltimore, MD
WHOH-TV -Boston, MA
FOX5-TV -Atlanta, GA
WSB-TV -Altanta, GA
KAKE-TV -Wichita, KS
John Bjork
A View from the Lighter Side of PD
Parkinsaw, MI
=========================================================================
Date: Tue, 13 Apr 1999 14:55:09 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: News-Hospitals form unique collaboration
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http://biz.yahoo.com/prnews/990412/mi_beaumon_1.html
Company Press Release
SOURCE: William Beaumont Hospital
Beaumont-Henry Ford Collaboration Expands Neurosurgery Services in
Oakland County
ROYAL OAK, Mich., April 12, 1999 /PRNewswire/ -- Henry Ford and William
Beaumont hospitals have formed a unique collaboration to expand
neurosurgery services for adults and children in Oakland County.
Under an affiliation agreement between the neurosurgery departments at
the two hospitals, four Henry Ford neurosurgeons will join with Beaumont
neurologists and neurosurgeons in providing some patient services at
Beaumont Hospital, Royal Oak.
The affiliation combines the expertise of the state's most renowned
specialists in the treatment of Parkinson's disease and other movement
disorders.
Henry Ford neurosurgeon Fred Junn, M.D., will perform high-tech tremor
control surgeries at Beaumont, Royal Oak, working in conjunction with
Beaumont neurologists Peter LeWitt, M.D., and Richard Trosch, M.D.,
renowned specialists in movement disorders. Dr. Junn is the most
experienced neurosurgeon in the state for performing deep brain
stimulation, a revolutionary therapy using an implantable device to send
electrical pulses to the thalamus for tremor control.
Pediatric neurosurgery services at Beaumont will be expanded with the
addition of Henry Ford pediatric neurosurgeon Henry Bartkowski, M.D.,
Ph.D. Dr. Bartkowski will work in conjunction with Beaumont
neurosurgeon Karol Zakalik, M.D., in providing coverage for children
requiring neurosurgery at Beaumont. Dr. Bartkowski will also continue to
provide pediatric neurosurgery services at Henry Ford Hospital in
Detroit.
``It's rare for two health care giants to join together like this in a
collaboration designed to expand services for patients, while containing
health care costs,'' said Mark Rosenblum, M.D., department chair of
Neurosurgery at Henry Ford. Rosenblum and Ford Neurosurgery department
vice chair Ghaus Malik, M.D., will be able to provide consultations for
neurosurgery patients at Beaumont.
``This affiliation will benefit residents of Oakland County by expanding
the availability of state-of-the-art neurosurgery services,'' said
Gordon Scratch, M.D., director of Beaumont's Neurosurgery division.
Henry Ford Health System, one of the country's largest health care
systems, integrates primary and specialty care with research and
education. It includes 13 owned or affiliated hospitals, a
550,000-member health maintenance organization, a 1,000 multispecialty
physician group, 28 ambulatory centers and 40 other health-related
entities located throughout Southeastern Michigan. Last year, the system
recorded 2.5 million ambulatory visits. Henry Ford Hospital, the
flagship of Henry Ford Health System, is a 903-bed tertiary care
hospital, a multi-organ transplantation center and a Level I trauma
center. For more information, go to: www.henryfordhealth.org.
Beaumont includes more than 1,300 private-practice physicians, two
hospitals with five medical office buildings, a rehabilitation and
health center, primary and specialty care clinics, five nursing care
centers, a research institute, home care, a hospice and fundraising
foundation. Beaumont's 929-bed Royal Oak hospital is a major teaching
and referral center with Level I trauma center designation. It ranks
among the five top hospitals in the nation for its number of admissions
and surgeries. Beaumont's 189-bed acute care community hospital in Troy
is among the nation's leading community hospitals. Beaumont is on the
web at www.beaumont.edu.
Copyright © 1999 PRNewswire.
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
=========================================================================
Date: Tue, 13 Apr 1999 14:16:58 PDT
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Phyllis Riely <[log in to unmask]>
Subject: Re: Mattress for parkies?
In-Reply-To: <13APR99.14516450.0034.MUSIC@SEMOVM>
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Tempur-Pedic has helped me rest and sleep if you use a belt tied to bed
post turning is not a problem and find it is worth the cost for me parkies
are so different || Phyllis
----------
>
> Do any of my fellow PWPs out there have any experience
> sleeping on a "Tempur-Pedic" mattress? This is advertised
> as a "pressure relieving Swedish mattress and pillow...with
> viscoelastic memory cells that conform to every curve and
> angle of your body. Ventilating channels dissipate heat to
> provide perspiration-free comfort."
>
> Any PWP with experience sleeping on this mattress:::does it
> make it any easier to turn over????
>
> Thank you for any first hand info.
>
=========================================================================
Date: Tue, 13 Apr 1999 14:20:00 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Nita Andres <[log in to unmask]>
Subject: Re: Mattress for parkies?
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My husband and I have that mattress. He is the PWP. At first it was
fine. then became too soft. The back store told me that they had told me
that it would becom softer, but they did not. No use fighting city hall.
Later I will get a new boxspring (someplace else) I have put bedboards
under that mattress but it did not help. We both have bad backs though.
My husband literally hates that mattress. Nita
argaret Mates wrote:
> Do any of my fellow PWPs out there have any experience
> sleeping on a "Tempur-Pedic" mattress? This is advertised
> as a "pressure relieving Swedish mattress and pillow...with
> viscoelastic memory cells that conform to every curve and
> angle of your body. Ventilating channels dissipate heat to
> provide perspiration-free comfort."
>
> Any PWP with experience sleeping on this mattress:::does it
> make it any easier to turn over????
>
> Thank you for any first hand info.
=========================================================================
Date: Tue, 13 Apr 1999 15:28:31 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: FYI-CDN man and his dog
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Global TV will air the press conference re Ian Pearson and his specially
trained dog during the evening news broadcast between 5.30 and 7pm. I
hope they don't cut it too short.
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
=========================================================================
Date: Tue, 13 Apr 1999 21:44:51 +0200
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Re: FYI-CDN man and his dog
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-----Oorspronkelijk bericht-----
Van: judith richards <[log in to unmask]>
Aan: [log in to unmask] <[log in to unmask]>
Datum: dinsdag 13 april 1999 21:34
Onderwerp: FYI-CDN man and his dog
>> Global TV will air the press conference re Ian Pearson and his specially
trained dog during the evening news broadcast between 5.30 and 7pm. I
hope they don't cut it too short. <<
Hi Judith,
Can you tell me if this TV station is available on real video.
Or can you give me the URLof the station's site??
Thanks, Hans.
=========================================================================
Date: Tue, 13 Apr 1999 22:01:13 +0200
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: C.O.P.S.
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Hi all,
I m trying to locate an organisation for CWPWPD
(Children With Parent With PD), called C.O.P.S.
The person in charge is called Jo Rosen.
I have a phone number, but that's a bit expensive
from Holland to the USA.
Can someone tell me an emailaddress of COPS,
Jo Rosen or anyone else in that organisation.
Or know of a website of COPS??
Thanks, Hans.
=========================================================================
Date: Tue, 13 Apr 1999 16:15:22 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Richard Bohn <[log in to unmask]>
Subject: Re: C.O.P.S.
MIME-Version: 1.0
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Children of Parkinsonians
73-700 El Paseo, Palm Springs , Ca. 92260
e-mail: [log in to unmask]
=========================================================================
Date: Tue, 13 Apr 1999 16:19:10 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "M. Giles" <[log in to unmask]>
Subject: Re: you might be a Parkie
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You might be a Parkie if your mouth says yes while
your head says no.
Marvin Giles.
=========================================================================
Date: Tue, 13 Apr 1999 15:20:38 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: rford <[log in to unmask]>
Subject: you might be a Parkie
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Content-Type: text/plain; boundary="BeCYEeJNcXSCFAKHCUUVEaLRdHUBOE";
charset="iso-8859-1"
you might be a parkie if eating jello with a spoon is like a NON-parkie
trying to eat jello with chopsticks.
-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Tuesday, April 13, 1999 9:49 AM
Subject: PARKINSN Digest - 12 Apr 1999 to 13 Apr 1999 - Special issue
(#1999-191)
=========================================================================
Date: Tue, 13 Apr 1999 15:43:11 +0000
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: serenityplus <[log in to unmask]>
Organization: AT&T
Subject: Re: C.O.P.S.
MIME-Version: 1.0
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I believe there is a PD organization in Southern Calif called COPS. I
don't have any info on them in front of me, but I will try and get it
for you and sent it e-mail soon. Ann
Hans van der Genugten wrote:
>
> Hi all,
>
> I m trying to locate an organisation for CWPWPD
> (Children With Parent With PD), called C.O.P.S.
> The person in charge is called Jo Rosen.
> I have a phone number, but that's a bit expensive
> from Holland to the USA.
> Can someone tell me an emailaddress of COPS,
> Jo Rosen or anyone else in that organisation.
> Or know of a website of COPS??
>
> Thanks, Hans.
=========================================================================
Date: Tue, 13 Apr 1999 21:41:43 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "LIST Helen K. Mason" <[log in to unmask]>
Subject: Oregon PD action in April
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Dear List Friends,
The Willamette Parkinsonian Society (Will-Cope) has sent out 3000 pieces of
mail to all Oregon hospitals, nursing homes, retirement facilites, foster
care home, assisted living facilities, senior centers and social agencies as
well as all newspapers and radio stations telling all that this is
Parkinson's Awareness Month and that Will Cope and all the support groups
(24) under its nonprofit umbrella are available to them when needed.
The Archbishop's prayer came too late for inclusion I am sorry to say..
We have also installed an 800 number for Will-Cope to take care of all the
responses we hope to receive requesting info on PD.
In the packet of info we included a letter about Will-Cope, a brochure, a
rolladex card with our phone number & address and a copy of our Oregon
proclamation from our gov that April is declares April as PD awareness month.
Also, once again Safeway stores (a very larege grocery chain) has placed a
Will-Cope ad on the side of their grocery bag for April.
Two Portland TV stations have agreed to air our PSA's this month also.
We are grateful to all that assisted in this effort.
Helen Mason
Will Cope volunteer
=========================================================================
Date: Tue, 13 Apr 1999 21:51:26 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Andrea Poirier <[log in to unmask]>
Subject: Re: Welcome
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In a message dated 4/13/99 3:57:46 PM Eastern Daylight Time,
[log in to unmask] writes:
<< Dear Andrea:
Welcome to the PARKINSN list. Please send a message to the list
(if you want to) introducing yourself and any Parkinson's-related
topics you would like.
>>
Hi! My name is Andrea, and I'm a speech language pathology student in
New Jersey. This is my first experience with a listserv. Thanks for
letting me join.
=========================================================================
Date: Tue, 13 Apr 1999 22:04:59 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Dominic Marchese <[log in to unmask]>
Subject: Re: Passion Flower
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Dear Group-
The only info I could find regarding passion flower indicates that its use
may result in CNS depression at large doses (15-35mg). The pharmacological
activity is attributed to the alkaloids and flavonoids. Some of the
alkaloids, the harmala alkaloids have been found to inhibit MAO and may
account for part of the pharmacologic effect. The neurodepressive effects of
the extracts have been used to treat sleep disorders but few clinical trials
exist to support this therapeutic effect.
Dominic Marchese, RPh.
1-800-537-8899 ext. 6104
Athena Rx Home Pharmacy
1-800-5-ATHENA
=========================================================================
Date: Tue, 13 Apr 1999 19:07:03 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bob Chapman <[log in to unmask]>
Subject: Re: C.O.P.S.
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
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serenityplus wrote:
>
> I believe there is a PD organization in Southern Calif called COPS. I
> don't have any info on them in front of me, but I will try and get it
> for you and sent it e-mail soon. Ann
>
> Hans van der Genugten wrote:
> >
> > Hi all,
> >
> > I m trying to locate an organisation for CWPWPD
> > (Children With Parent With PD), called C.O.P.S.
> > The person in charge is called Jo Rosen.
> > I have a phone number, but that's a bit expensive
> > from Holland to the USA.
> > Can someone tell me an emailaddress of COPS,
> > Jo Rosen or anyone else in that organisation.
> > Or know of a website of COPS??
> >
> > Thanks, Hans
.
Hans, here is the info I think you are looking for:
Children of Parkinsonians (COPS)
The Joslyn Senior Center
73750 Catalina Way
Palm Desert, CA, USA
Attention: Jo Rosen
Phone: 1-760-773-5628
I don't know if they have an e-mail address but I will call them in
the morning and if they do I will pass it on to you.
Bob Chapman 66/61/50
The California Desert
<[log in to unmask]>
=========================================================================
Date: Tue, 13 Apr 1999 22:20:16 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Greene <[log in to unmask]>
Subject: Re: sleep disorder
MIME-Version: 1.0
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Carol, How did your second opinion go? Any help with the wandering at
night?
Kathy
[log in to unmask]
=========================================================================
Date: Tue, 13 Apr 1999 22:28:38 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jennifer Smith <[log in to unmask]>
Subject: Something nice
Comments: To: Alan Belcher <[log in to unmask]>,
"[log in to unmask]" <[log in to unmask]>,
Brenda Rodriguez <[log in to unmask]>,
Buzzy <[log in to unmask]>,
Cathey Norfleet <[log in to unmask]>, Chris <[log in to unmask]>,
Dave Zimmerman <[log in to unmask]>,
"Dr. Korkeila" <[log in to unmask]>,
"Dr. Stuart Shipko" <[log in to unmask]>,
"Dr. Stuppy" <[log in to unmask]>, ELECTRICTION <[log in to unmask]>,
"[log in to unmask]" <[log in to unmask]>,
Gary Ely <[log in to unmask]>, Janet and CB <[log in to unmask]>,
JOEL WEATHERS <[log in to unmask]>, Lori Wolf <[log in to unmask]>,
Martha <[log in to unmask]>,
pat claybaker <[log in to unmask]>,
"R.T.Thomas" <[log in to unmask]>,
Robert and Caridad <[log in to unmask]>,
Sharon <[log in to unmask]>, Shumaker <[log in to unmask]>,
Stan and Betty <[log in to unmask]>, Waltah <[log in to unmask]>
MIME-Version: 1.0
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I really hate chain letters but thought this one was rather nice>
Around the corner I have a friend
In this great city that has no end,
Yet the days go by and weeks rush on,
And before I know it, a year is gone
And I never see my old friend's face,
For life is a swift and terrible race,
He knows I like him just as well
As in the days when I rang his bell,
And he rang mine.
We were younger then,
And now we are busy, tired men.
Tired of playing a foolish game,
Tired of trying to make a name.
"Tomorrow" I say "I will call on Jim"
"Just to show that I'm thinking of =20
him."
But tomorrow comes and tomorrow
goes, And
distance between us grows and grows.
Around the corner!- yet miles away,
"Here's a telegram sir-"
"Jim died today."
So remember...
If you love someone, tell them.
Remember always to say what you
mean.
Never be afraid to express yourself.
Take this opportunity to tell someone
what they mean to you.
Seize the day and have no regrets.
Most importantly, stay close to your
friends and family, for they have
helped make you the person
that you are today
and are what it's all about anyway.
Pass this along to your friends. Let
it make a difference in your day and
theirs. The difference between
expressing love and having regrets
is that the regrets may stay around
forever.
Within 1 hour you must send this to
other people. Within five days you
will have a miraculous occurrence in
your relationships. You will find new
love or have an old love rekindled.
If you do not send it, you will have
once again passed up the opportunity
to do something loving and beautiful
and continue the trend that gives you
problems in your relationships.
If you've received this it is because
someone cares for you and it means
there is probably at least someone for
whom you care. If you're too busy to
take the few minutes that it would take
right now to forward this to ten people,
would it be the first time you didn't
do that little thing that would make a
difference in your relationship ?
=========================================================================
Date: Tue, 13 Apr 1999 19:59:04 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Barb_MSN <[log in to unmask]>
Subject: Re: C.O.P.S.
Hans....
You can snail mail COPS/Jo Rosen (and she's one terrific person,
in my book!) in care of:
Children of Parkinsonians
73-700 El Paseo, Suite #2
Palm Desert , CA 92260
I don't know if COPS has an email address - Sorry...
Barb Mallut
[log in to unmask]
-----Original Message-----
From: Hans van der Genugten <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Tuesday, April 13, 1999 1:11 PM
Subject: C.O.P.S.
>Hi all,
>
>I m trying to locate an organisation for CWPWPD
>(Children With Parent With PD), called C.O.P.S.
>The person in charge is called Jo Rosen.
>I have a phone number, but that's a bit expensive
>from Holland to the USA.
>Can someone tell me an emailaddress of COPS,
>Jo Rosen or anyone else in that organisation.
>Or know of a website of COPS??
>
>Thanks, Hans.
>
=========================================================================
Date: Tue, 13 Apr 1999 20:14:56 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
Comments: Authenticated sender is <[log in to unmask]>
From: "Robert A. Fink, M.D." <[log in to unmask]>
Organization: Robert A. Fink, MD, FACS, PC
Subject: Re: C.O.P.S.
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Hans wrote:
> Hi all,
>
> I m trying to locate an organisation for CWPWPD
> (Children With Parent With PD), called C.O.P.S.
> The person in charge is called Jo Rosen.
> I have a phone number, but that's a bit expensive
> from Holland to the USA.
> Can someone tell me an emailaddress of COPS,
> Jo Rosen or anyone else in that organisation.
> Or know of a website of COPS??
>
> Thanks, Hans.
>
I belong to another organization called C.O.P.S. The letters stand
for Coalition of Parent Support, and it is a California lobbying
organization for single parents and step-parents. We have a Website,
but it has nothing to do with PD.
Best,
Bob
***********************************
ROBERT A. FINK, M. D., F.A.C.S.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
Phone: (510) 849-2555 FAX: (510) 849-2557
WWW: <http://www.dovecom.com/rafink/>
mailto:[log in to unmask]
"Ex Tristitia Virtus"
***********************************
=========================================================================
Date: Tue, 13 Apr 1999 23:07:26 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Margaret Tuchman <[log in to unmask]>
Subject: NEWS: WSJ, 4/13, Stem Cell Research -- PART 1
Comments: cc: Peter Morabito <[log in to unmask]>,
Carol Walton <[log in to unmask]>,
"\"Dale Severance\" <" <[log in to unmask]>,
"James T. Cordy" <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
There is real, concrete, you can smell/feel/see kind of evidence....
From the Archives -- WSJ Interactive Edition
April 13, 1999
Stem Cells From Adults
Have an Edge Battling Disease
By LAURA JOHANNES
Staff Reporter of THE WALL STREET JOURNAL
The isolation of stem cells from an aborted fetus a few
months ago
sparked great excitement among scientists. Some of them
speculated
that the embryonic cells were a kind of miraculous clay
that, given
the proper nudge, could be turned into any type of human
cell -- and
even entire organs.
But a humbler type of stem cell may prove much more useful
to
medical science. Unlike the embryonic cell, this type,
called a
"precursor" cell, has already had its fate broadly
determined. For
example, scientists have discovered a blood precursor cell
that can
become any type of blood cell --say, a white cell or red
cell -- but
never a skin or bone cell.
While precursor cells' morphing potential is narrower,
many
scientists believe that turning them into medical
treatments will be
much easier, because they are further along in their
development.
That opens up a whole world of potential injectable
therapies that
would harness the body's capacity to regenerate itself.
"If you're trying to travel from Boston to San Francisco,
this would
be the equivalent of starting in Des Moines instead of
Boston," says
Mitchell J. Weiss, a senior scientist at Ontogeny Inc., of
Cambridge, Mass. Ontogeny is working with Biogen Inc. to
activate
precursor cells that it believes are in the brain in an
effort to
regenerate brain cells lost in Parkinson's disease.
Scientists used to think that such potential for cellular
regeneration was present only in embryos -- that, for
example,
humans had made their lifetime supply of brain cells by
age 17.
But that canon is steadily eroding. In the early 1990s,
researchers
isolated human blood stem cells from adults. And earlier
this month,
researchers at Osiris Therapeutics Inc. in Baltimore found
a stem
cell in adult bone marrow that is capable of becoming
bone,
cartilage or fat. Researchers also believe they may be
close to
identifying stem cells in the liver, brain and pancreas.
They're Everywhere
"I think we will find these stem cells in any organ that
we look,"
says Harvard Medical School researcher Evan Y. Snyder, who
has
already isolated brain stem cells from a human fetus and
believes it
won't be long before someone finds them in adult humans.
"I think
that when nature develops a strategy for development and a
strategy
for self-repair, it doesn't make it up each time for every
organ."
Some scientists remain skeptical that stem cells will be
found in
every organ. And hunting is a laborious process. Brain
stem cells
were found in animals a decade ago, but scientists are
still working
to find them in humans. But if and when they are found,
precursor
cells would circumvent the ethical and legal problems of
working
with embryonic stem cells taken from aborted fetuses.
Douglas A. Melton, chairman of the department of molecular
and cell
biology at Harvard University, has found promising results
in mouse
and frog stem cells but hasn't been able to obtain human
embryonic
cells to apply the work to humans.
The National Institutes of Health has said it will permit
federally
funded researchers to use stem cells as long as they don't
actually
handle aborted fetuses, but the cells won't be available
until
formal guidelines for their use have been published.
Meanwhile, work
with the stem cells found in adults is moving along
rapidly.
In early clinical trials in the area of AIDS, Novartis AG
is
purifying blood stem cells from HIV patients' own blood,
altering
them by inserting anti-HIV genes and then reinjecting them
in the
patients. "We expect the modified stem cells will give
rise to
progeny cells that are HIV-resistant," says Carol
Grundfest, a
Novartis spokeswoman.
Margaret Tuchman
Princeton, NJ
B1941/Dx1980
[log in to unmask]
=========================================================================
Date: Tue, 13 Apr 1999 23:10:34 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Margaret Tuchman <[log in to unmask]>
Subject: NEWS: WSJ, 4/13, Stem Cell Research -- PART 2
Comments: cc: "James T. Cordy" <[log in to unmask]>,
"\"Dale Severance\" <" <[log in to unmask]>,
Carol Walton <[log in to unmask]>,
Peter Morabito <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Scientists used to think that such potential for cellular
regeneration was present only in embryos -- that, for
example,
humans had made their lifetime supply of brain cells by
age 17.
But that canon is steadily eroding. In the early 1990s,
researchers
isolated human blood stem cells from adults. And earlier
this month,
researchers at Osiris Therapeutics Inc. in Baltimore found
a stem
cell in adult bone marrow that is capable of becoming
bone,
cartilage or fat. Researchers also believe they may be
close to
identifying stem cells in the liver, brain and pancreas.
They're Everywhere
"I think we will find these stem cells in any organ that
we look,"
says Harvard Medical School researcher Evan Y. Snyder, who
has
already isolated brain stem cells from a human fetus and
believes it
won't be long before someone finds them in adult humans.
"I think
that when nature develops a strategy for development and a
strategy
for self-repair, it doesn't make it up each time for every
organ."
Some scientists remain skeptical that stem cells will be
found in
every organ. And hunting is a laborious process. Brain
stem cells
were found in animals a decade ago, but scientists are
still working
to find them in humans. But if and when they are found,
precursor
cells would circumvent the ethical and legal problems of
working
with embryonic stem cells taken from aborted fetuses.
Douglas A. Melton, chairman of the department of molecular
and cell
biology at Harvard University, has found promising results
in mouse
and frog stem cells but hasn't been able to obtain human
embryonic
cells to apply the work to humans.
The National Institutes of Health has said it will permit
federally
funded researchers to use stem cells as long as they don't
actually
handle aborted fetuses, but the cells won't be available
until
formal guidelines for their use have been published.
Meanwhile, work
with the stem cells found in adults is moving along
rapidly.
In early clinical trials in the area of AIDS, Novartis AG
is
purifying blood stem cells from HIV patients' own blood,
altering
them by inserting anti-HIV genes and then reinjecting them
in the
patients. "We expect the modified stem cells will give
rise to
progeny cells that are HIV-resistant," says Carol
Grundfest, a
Novartis spokeswoman.
Cytotherapeutics Inc., of Lincoln, R.I., is looking for
stem cells
in the liver, the pancreas and the brain. It reasons that
a single
type of stem cell may prove useful against many
conditions -- a
brain precursor cell, for example, could be used against
Parkinson's, Alzheimer's and other degenerative brain
diseases.
"The best concept is a drug-in-a-bottle concept -- a cell
product
that is not patient-specific that could be used to treat a
wide
spectrum of diseases," says the company's chief executive,
Richard
Rose.
Developing Substances
Some companies aren't waiting for specific types of
precursor cells
to be discovered. Instead, acting on the belief that such
cells do
exist in certain body areas, they are developing
substances that can
activate them.
One such company is Creative BioMolecules Inc. of
Hopkinton, Mass.
Its drug, osteogenic protein, is now being implanted in
broken legs
that have been slow to heal in clinical trials, and the
company says
results are promising. It believes the drug works by
spurring bone
stem cells to create new bone, says in-house scientist
Marc
Charette.
"The body has a large amount of stem cells, and what you
really need
is the signals to cause them to differentiate," he says.
If the Food and Drug Administration approves the company's
drug, it
will be sold by partner Stryker Corp., of Kalamazoo, Mich.
Biogen is hoping it has found a chemical signal that
causes brain
stem cells to become the type of cells that produce the
neurotransmitter dopamine. Those cells are damaged in
people with
Parkinson's disease, causing its sufferers to have
difficulty moving
and talking. In a collaboration with Ontogeny, Biogen is
injecting
rats with a type of protein known as a "hedgehog," which
has been
shown to play a key role in fetal development.
To simulate Parkinson's disease, the rats are injected
with a toxic
chemical. Normally, the toxin shuts down the animal's fine
motor
control and causes the rat to spin uncontrollably, like a
top. But
the company found that rats given brain injections of the
hedgehog
protein in addition to the toxic injection got a much less
severe
case of the spins, says Joseph M. Davie, the company's
senior vice
president of research
At the very least, says Dr. Davie, the hedgehog protein
appears to
be protecting the brain from the toxin. At best, hedgehog
may
actually direct stem cells in the brain to create new
nerve cells to
replace those destroyed. In a separate project, Ontogeny
is hoping
to generate a therapy that would cause pancreatic tissue
to
regenerate itself, restoring insulin-making capability and
freeing
diabetics from daily injections.
The first step, which the company is now working on, is to
find the
chemical signals -- generally proteins -- that tell a
developing
embryo to make a pancreas in the first place. If they can
be found,
they could be injected into the pancreas in order to spur
stem cells
to turn into insulin-producing cells.
Margaret Tuchman
Princeton, NJ
B1941/Dx1980
[log in to unmask]
=========================================================================
Date: Wed, 14 Apr 1999 00:14:06 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: Re: FYI-CDN man and his dog
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hans van der Genugten wrote:
Judith Richards wrote:
>> Global TV will air the press conference re Ian Pearson and his specially trained dog during the evening news broadcast between 5.30 and 7pm. I hope they don't cut it too short. <<
>Hi Judith,
>Can you tell me if this TV station is available on real video.
Or can you give me the URL of the station's site??
Hans,
I couldn't find the Global TV web site. Maybe I'm just too tired. At
any rate, there was only a small segment showing Ian and his dog, a bit
about Peter Morabito and Victor. Quite disappointing really, especially
since it was followed by a longer segment about some guy who operates a
poop-scoop company in Toronto. Isn't that just special...?
Judith
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
=========================================================================
Date: Wed, 14 Apr 1999 01:01:13 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: KEn Becker <[log in to unmask]>
Subject: FAST WAY TO SPREAD PARKINSONS STORY!
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Content-Transfer-Encoding: 7bit
This MAY seem like I am just wasting time, but it could work! It seems to me
that over the internet, urban legends spread like wildfire. Within hours of
one starting, I often get warned from at least half a dozen sources. So why
not start some PD rumors circulating on the internet, which will get people
talking about Parkinson's and maybe the publicity will bring enough money to
finally find the CURE?
Here are some ideas I have come up with:
1. Not eating chocolate can cause Parkinsons in young people.
2. Handling pig droppings can cure Parkinsons.
3. Using public payphones can cause Parkinsons.
4 Drinking four Martini's can eliminate parkinson's symptoms.
5 Drinking Coca Cola when taking Parkinson's meds can make them work faster
and more effectively.
6 No one living in Staten Island New York has ever gotten Parkinson's.
7. Using computer monitors 15 or less inches can cause Parkinson's but
changing to a 17 to 21 inch monitor can reverse the disease.
8. Everyone who lives in Staten Island New York has Parkinson's Disease.
9. People who live in Northern Michigan and listen to Garrison Keilor on the
radio, are more susceptible to Parkinson's.
10 Copper pennies kept in glass or plastic jars more than one month, emit
rays that cause Parkinson's so they should be sent to a Parkinson's charity
of your choice, as soon as more than 500 are stored in the jar.
11 Dishes with flowers or leaves painted on them can cause Parkinsons, but
warming your hands on a Lava Lamp can reverse the damage within a few months.
12 Eating 2 quarts of prunes and an Exlax bar can help Parkinsonians move
faster, but seem to give them an affinity for large porceline bowls filled
with water.
13 People born on days of the week that end in the letter "y" have a chance
of getting Parkinson's
14 Air traffic Controller with Parkinsons caused an American Airlines plane
to fly into the dark side of the moon.
15 Melting a Hershey chocolate bar and rubbing it in your hair, kills
bacteria that cause Parkinsons Disease.
16 Money that was earmarked for Parkinson's research was spent instead on
building luxurious vacation compound for (_______________________) *
*fill in name of politician you detest!
OKAY, if anyone has the guts to start sending these out, it will be
interesting to see how long it takes to circle the globe!
Just print it out and let your kids find it!
=========================================================================
Date: Wed, 14 Apr 1999 03:59:06 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: full_name|OFF Tell LISTSERV about your name <[log in to unmask]>
Subject: Permax Withdrawl
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Content-Transfer-Encoding: 7bit
Does anybody on the list have experience with stopping use of Permax? My
husband has been taking Permax for 4 years at a dosage of 1.5mg per day.
Everytime he stops taking Permax, he cannot sleep for days.We are interested
to know how long the sleep disorder lasts given his chronic use of the drug.
Helen
=========================================================================
Date: Wed, 14 Apr 1999 04:06:03 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: ".Joan Waterman" <[log in to unmask]>
Subject: Re: Mattress for parkies?
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
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Sleep? What's that? I'm not too familiar with it!
I'm going to leave the list for awhili, I will miss you. Wish me well on a
trip to visit relatives that gives me pleasure,but a case of doubt. I hope I
can keep my "down" time to a minimum. Crawling before my grand nieces and
nephews is something I'd rather not have to do!
Ruth Clark
=========================================================================
Date: Tue, 13 Apr 1999 16:05:25 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Nancy Sparks <[log in to unmask]>
Subject: <no subject>
Mime-version: 1.0
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Greetings,
I believe our local newspaper , the Daily Mining Gazette, received the news
of the World Parkinson Day but it wasn't published. However your effort
reached out to many people in the far northern Upper Peninsula of Michigan.
I shared the information about Bishop TuTu and read his beautiful prayer in
both of the churches I serve. One of the services was broadcast on the
radio. So the message was shared in my little corner of the world!
Ivan - I think you are a "real neat guy" --- truly a blessing!
Nancy Sparks
=========================================================================
Date: Wed, 14 Apr 1999 04:53:36 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Are the MEDIA covering YOU?Follow-up obstacles
Comments: cc: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Thank you Barb, for your positive energies and ideas!
-I will do my best to follow youur excellent suggestions. Unfortunately,
for the moment,I am dealing again with caregiver coverage gaps due to
underpayment by State authorities. My live-in caregiver is leaving for a
job with better base-pay, and fringe benefits. I found this out 12 hours
ago.
-Also, the City of Portland has sent me a notice of sewer user lien that
is impending, directly the reverse of their suppposed 100% sewer
assessment relief in the settlement prposal. I am chasing a lwayer who
has not responded for three weeks. I am suddenly in danger of
foreclosure!!!!!!!
Unfortunately, life is getting too crushing to do the needed telephone
follow-up that under better circumstances, I would be doing with gusto!!
If there is someone who can call me to advise-my tel is listed with the
Directory Operators.
Sorry,
Ivan
On Mon, 12 Apr 1999 17:00:14 -0400 Barbara Patterson
<[log in to unmask]> writes:
>The local newspaper, The Hamilton Spectator, sent a reporter to
>interview
>me about the Archbishop's involvement and about the list. The
>article
>appeared in the Thursday, April 8 edition...almost a full column.
>The
>focus of the column had changed, though. There was only one
>sentence
>about the Archbishop. The rest was about me, the list, & Parkinson's
>(not necessarily in that order).
>
>I think I will try to re-contact the churches & media I had emailed
>prior
>to, and with, the Archbishop's prayer and ask if they received it; if
>they have any interest in it; and if there is something I need to do
>before they use the prayer or the fact that the prayer was issued.
>
>It's still Parkinson's Awareness Month! Don't give up yet! Persist!
>Ask questions! Involve your family members & friends! Ask that
>publicity be a project for your support group and any other group
>with
>which you are involved! Talk about Parkinson's. Talk about the
>Archbishop. Print the prayer and circulate it. Handing it to your
>minister/priest/rabbi/etc. is much more effective because it indicates
>to
>him/her how important this is to you. Let's do our utmost to get &
>keep
>pd in the news.
>
>Barb
>
>========================================================================
====
>Barbara Patterson
>[log in to unmask]
>HSC 2J22 905-525-9140, ext.
>22403
> School of Nursing
>========================================================================
====
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
=========================================================================
Date: Wed, 14 Apr 1999 05:16:30 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: Permax Withdrawl / titration trauma
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
At 03:59 1999/04/14 EDT, helen wrote:
>Does anybody on the list have experience with stopping use of Permax?
>My husband has been taking Permax for 4 years at a dosage of 1.5mg per
>day. Everytime he stops taking Permax, he cannot sleep for days. We are
>interested to know how long the sleep disorder lasts given his chronic
>use of the drug.
as i understand it
it can take one week for a healthy human's brain/body to fully adjust
to a one hour time zone change
no drugs involved
just our own bio-chemistry
we are a miracle of micro bio electro chemical inter-actions
after whew 15 years of playing this game
i am convinced more and more as time goes on
that tweaking and fine-tuning our brain chemisty
needs to be done with a feather's touch and at a snail's pace
'low and slow' is what i was told at the starting gate
in order to avoid 'titration trauma'
i have noted that to be considered as a guinea pig for any pd med trial
we need to be 'drug-free' of whatever the study specifies
for
count'em
three
that's three
months
yep
i said
months
as a gut reaction?
if i can 'feel' the difference a med change makes to my body/brain
i figure the change has been too much and too fast
it seems to me
that heavy handed med titration whether up or down
is the equivalent of smacking the side of a sluggish television set
but the results can be far more devastating
than missing an episode of "ER"
janet
janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
Scan some of My Past Posts at:
http://www.newcountry.nu/pd/members/janet/index.htm
Mine the PD List Archives at:
http://james.parkinsons.org.uk/
Cull Nine Million Pub-Med Medical Studies at:
http://www.ncbi.nlm.nih.gov/PubMed/
Comb the 'People With Parkinson's' Web-Ring at:
http://www.webring.org/cgi-bin/webring?ring=parkie;list
=========================================================================
Date: Wed, 14 Apr 1999 05:27:45 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: FAST WAY TO SPREAD PARKINSONS STORY! / prescription monitors
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
At 01:01 1999/04/14 EDT, ken wrote, in part:
>This MAY seem like I am just wasting time, but it could work! It
>seems to me that over the internet, urban legends spread like
>wildfire....
>7. Using computer monitors 15 or less inches can cause Parkinson's
>but changing to a 17 to 21 inch monitor can reverse the disease...
ken! what do you mean by urban legend?
isn't number 7 tried and true?
i used to have a 17 inch gateway monitor
but it blew up
and then its replacement blew up
and then i got stuck with a measley 14 incher
and then my symptoms got much worse...
hmmm
i wonder if my neurologist would prescribe a new monitor?
i wonder if it would be covered by my medical plan?
hmmm
janet
janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
Scan some of My Past Posts at:
http://www.newcountry.nu/pd/members/janet/index.htm
Mine the PD List Archives at:
http://james.parkinsons.org.uk/
Cull Nine Million Pub-Med Medical Studies at:
http://www.ncbi.nlm.nih.gov/PubMed/
Comb the 'People With Parkinson's' Web-Ring at:
http://www.webring.org/cgi-bin/webring?ring=parkie;list
=========================================================================
Date: Wed, 14 Apr 1999 07:06:49 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: john bjork <[log in to unmask]>
Subject: Re: Spreading the Worn in Michigan's Upper Peninsula
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi Nancy: it's good to see you on again; you were one of the first respondents
to the Parkinsaw stories, way back there in February.
I was very interested in your success with 'Spreading the Word' at the
personal level in your Church services. I had sent the package to every
newspaper, radio and TV station in the U.P. and only got two responses: A
radio station at the Soo, and WLUCTV. WLUC informed me yesterday that based
on the bulletin/Prayer package received, they were planning a special on
Parkinson's in about 2 weeks. They promised to let me know when, and I'll
email you when I learn the time/date. Maybe you'll see something in the Gazette
yet; I followed-up over the past two days with all U.P. organizations I
initially contacted, so you never know. Interestingly, I never heard a word
from my hometown area paper, The Escanaba Daily Press.
Well, back to the grind. I was good to see a fellow Yooper on the List again.
Regards,
John Bjork
A View from the Lighter Side
Nancy Sparks wrote:
> Greetings,
>
> I believe our local newspaper , the Daily Mining Gazette, received the news
> of the World Parkinson Day but it wasn't published. However your effort
> reached out to many people in the far northern Upper Peninsula of Michigan.
> I shared the information about Bishop TuTu and read his beautiful prayer in
> both of the churches I serve. One of the services was broadcast on the
> radio. So the message was shared in my little corner of the world!
>
> Ivan - I think you are a "real neat guy" --- truly a blessing!
>
> Nancy Sparks
=========================================================================
Date: Wed, 14 Apr 1999 13:24:34 +0200
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: John I Quist <[log in to unmask]>
Subject: Mattress for parkies?
MIME-Version: 1.0
Content-Type: TEXT/PLAIN; charset=US-ASCII
Margaret Mates <[log in to unmask]> wrote:
>
> Do any of my fellow PWPs out there have any experience
> sleeping on a "Tempur-Pedic" mattress? This is advertised
> as a "pressure relieving Swedish mattress and pillow...with
> viscoelastic memory cells that conform to every curve and
> angle of your body. Ventilating channels dissipate heat to
> provide perspiration-free comfort."
>
> Any PWP with experience sleeping on this mattress:::does it
> make it any easier to turn over????
Hello Margaret!
I have a *pillow* from that company, and it is very soft and shapes itself
after the neck. In the beginning, I found it difficult to sleep on when I
was on my stomach, since the face sank into the pillow! - I solved it by
putting my head on the edge, so the nose sticks out on the side... (It's
big and beautiful, that helps.... ;) )
It IS great for the neck though, it is very rare for me to have neck
pains when I wake up nowadays. I think the mattress might be hard to turn
on since it's so soft, and your body lies in a "cradle" / indentation
exactly shaped after your body, but I haven't tried.
/John. (30 now/ 28 dx/ 18 onset)
=========================================================================
Date: Wed, 14 Apr 1999 07:13:09 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: double a enterprises <[log in to unmask]>
Subject: Re: News-Public ignorance about Parkinson's attacked
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Another comment; after working here for the pubic for nearly 10 years, I was
informed yesterday by lady that because my face is "frozen" and I am
slurring and shaking at times, I don't need to be working around youth (her
child is 16) because I " look bad". I thought that was just single
opinion, but found out later lots of people evidently feel the same. I
can't fight this type of ignorance, and don't want to anymore. Thanks for
all the help, and if has any ideas on filing for disability, please forward
them. I can't keep working in this stress, I loved my job, but it isn't
worth this. Thanks for listening
bob
=========================================================================
Date: Wed, 14 Apr 1999 07:23:05 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Billie Cook <[log in to unmask]>
Subject: Re: FAST WAY TO SPREAD PARKINSONS STORY!
Comments: To: [log in to unmask]
In-Reply-To: KEn Becker <[log in to unmask]>'s message of Wed, 14 Apr 1999
01:01:13 EDT
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
GREAT IDEA! It just might work, anyway it's worth a try...my favorites
are 10 and 16. BFN
Billie in TX
=========================================================================
Date: Wed, 14 Apr 1999 07:41:56 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Kunz <[log in to unmask]>
Subject: Re: News: Public Ignorance about PD
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Bob--
You love your work; don't let a few stupid people run you off! If, as you
say, the stress is truly unbearable, that's different; you have to protect
yourself, but have you asked the kids what they think? They may be a darn
sight more intelligent than their parents. I can't get over the gall of
some people--bless you for your forbearance; I think I would have busted
her in the chops. Hang in there a bit and see if that's the whole story.
Our thoughts and prayers are with you.
Kathy Kunz, 63/5/7
=========================================================================
Date: Wed, 14 Apr 1999 09:23:05 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Kathy Greene <[log in to unmask]>
Subject: Re: News-Public ignorance about Parkinson's attacked
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
WOW! I have worked for 26 years with people of varying disabilities, both
physical and mental, and had hoped things were better. Obviously not better
yet. Of all people the youth should be the most likely to be accepting as
they are a generation raised in public schools attended by people with all
types of disabilities. Too bad the adults get in the way. Working with and
around a person with any type of 'difference' is one of the best life and
learning experiences you can give a youth.
I recently helped a High school student with MS get a Canine Assistance dog
only to have the poor kid have to jump hoops with an idiot school principal
who wanted her to 'prove the dog can do something for her that another
student can't do' before he was allowed in the school. Happily one
reference to the ADA prompted him to call the school lawyer and the next
thing you know we had an assembly introducing the dog to the student body.
All came out well but Liz certainly should not have had to put up with any
of it! (Just to let you know things are still a little crazy all over!)
I don't blame you for being tired of fighting there systems. I hope you are
able to get disability without 'jumping through the hoops', then let your
old boss know you appreciate his supporting you through his taxes and how
much easier your life is! You will probably do much better without the
stress of that job. Just being a PWP and keeping up with your own needs
sounds like a full plate to me. good luck
Kathy
[log in to unmask]
=========================================================================
Date: Wed, 14 Apr 1999 09:03:03 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Nita Andres <[log in to unmask]>
Subject: job
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Kids have more sense than adults, they accept you as you are. If you
have any control over this situation, I would not leave. Nita
=========================================================================
Date: Wed, 14 Apr 1999 10:27:12 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: judith richards <[log in to unmask]>
Organization: @Home Network
Subject: News-Red tape hobbles Parkinson's drugs
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Wednesday, April 14, 1999
Red tape hobbles Parkinson's drugs
Pramipexole, Ropinirole not covered by drug plan
By MARY-JANE EGAN, Free Press Health Reporter
Parkinson's patients are being neglected in Ontario because two
promising drugs aren't covered under the
province's drug plan, says a frustrated London doctor.
Dr. Mandar Jog, director of London Health Sciences Centre's movement
disorder centre, said patients who could
benefit from the drugs Pramipexole and Ropinirole may go without because
they can't afford the annual $1,200 to
$2,000 cost.
Jog said patients who lack private drug insurance coverage must either
pay for the drugs or go through the
"bureaucratic maze" of a Section 8 application under the provincial drug
plan -- a step that leads to mountains of
paperwork and headaches for the doctor.
Costs of the drugs vary, depending on the dose required for particular
Parkinson's patients.
Health Ministry spokesperson Barry Wilson said the two drugs in question
were not recommended for coverage
by the ministry's drug quality and therapeutics committee -- an arm's
length expert panel that reviews drug
manufacturers' submissions for listing on the Ontario drug formulary.
Jog said the refusal by Ontario to cover the drugs raises troubling
questions about "equality of care." He asks:
"Why is Ontario one of the few provinces that doesn't cover these drugs,
which are proven to be effective for
certain Parkinson's patients?"
Wilson noted the province did cover 1,000 claims for the drugs in
question last year through the Section 8 process
in which doctors justify why coverage should be granted in a particular
case.
"It is a very tedious process," Jog said yesterday. "First, we have to
have tried approved drugs and prove that
they've failed and then the government will approve coverage for a brief
period -- and then you reapply. When you
have 150 patients, all with different drug renewal dates, you can
imagine the paperwork. All we want is what's best
for our patients -- and for patients where these drugs work, they should
be covered."
Wilson said since 1995, 11 new drugs for Parkinson's disease were added
to the formulary, bringing the total
number of covered Parkinson's drugs to 19.
Jog was adding his voice to that of the Parkinson Foundation of Canada,
which held a news conference yesterday
arguing the drugs should be covered by Ontario's drug plan.
Allan Ward, 68, of Ingersoll, has been taking Ropinirole since December
after getting approval through the Section
8 process. He said the drug helps control all his Parkinson's symptoms
and he is puzzled why it hasn't been
approved as part of the drug plan.
"Why Ontario is dragging its feet on this is beyond me," Ward said,
agreeing a Section 8 application causes
unnecessary work for the doctor.
Parkinson's is a chronic, debilitating neuromuscular disease affecting
more than 100,000 Canadians.
The disease makes it difficult for sufferers to control their movements,
often resulting in tremors, slow movement
and sudden, uncontrolled motions.
The disease gained widespread attention last year when Canadian actor
Michael J. Fox divulged he suffers from
the condition.
Jog said many patients respond favourably to Pramipexole and Ropinirole.
"But until the provincial government
makes them available, many Ontarians are going without.
"We don't have any hidden agenda here," Jog added. "We just want what's
best for patients."
--
Judith Richards, London, Ontario, Canada
<[log in to unmask]>
=========================================================================
Date: Wed, 14 Apr 1999 10:36:23 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: janet paterson <[log in to unmask]>
Subject: Re: News-Red tape hobbles Parkinson's drugs
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
hi all
At 10:27 1999/04/14 -0400, judith wrote, in part:
>Wednesday, April 14, 1999
>
>Red tape hobbles Parkinson's drugs
>
>Pramipexole, Ropinirole not covered by drug plan
> By MARY-JANE EGAN, Free Press Health Reporter
the above may seem to be bad news
but it isn't
it is the first step toward exposing a problem
so that it can be resolved
it's great news
thank you, judith
janet
janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
Scan some of My Past Posts at:
http://www.newcountry.nu/pd/members/janet/index.htm
Mine the PD List Archives at:
http://james.parkinsons.org.uk/
Cull Nine Million Pub-Med Medical Studies at:
http://www.ncbi.nlm.nih.gov/PubMed/
Comb the 'People With Parkinson's' Web-Ring at:
http://www.webring.org/cgi-bin/webring?ring=parkie;list
=========================================================================
Date: Wed, 14 Apr 1999 11:13:31 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "LIST Helen K. Mason" <[log in to unmask]>
Subject: for Beth Leslie
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Content-Transfer-Encoding: 7bit
Hi Beth Leslie,
I have a friend in Palo Alto California would like to get in touch with you
regarding your trading houses as stated in your message two weeks ago.
Please contact me.
Helen Mason [log in to unmask]
=========================================================================
Date: Wed, 14 Apr 1999 11:51:08 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Lanier Maddux <[log in to unmask]>
Subject: Re: Are the MEDIA covering YOU?
In-Reply-To: Jane Koenig <[log in to unmask]>'s message of Mon, 12 Apr
1999 11:40:07 -0400
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Attn Jane Koenig, and others commenting on this post,
The following is a letter that I sent to the local TV news departments:
Dear Mr. ..............
I would like to share with you the TOP TEN reasons I watch your local
news broadast:
10. I like to see people being led into and out of court in handcuffs.
9. I like to see buildings which have been ransacked and had their doors
or windows smashed by burglars.
8. I like to see trucks or railroad cars upside down and dumping
hazardous substances into a creek.
7. I like to see video of a wooded area where a nude and dismembered
body or a newborn baby in a plastic bag was abandoned.
6. I like to see homes that have been burned to the ground and a TV
reporter is there asking the homeoners "How do you feel?"
5. I like to see injured people with bloddy bandages being carred on a
strecher with a TV camerman running alongside taking pictures.
4. I like to see cars that have been in headon collisions, with close up
color pictures of bloodstained upholestry.
3. I like to hear about children that have been secually abused
=========================================================================
Date: Wed, 14 Apr 1999 11:58:14 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Lanier Maddux <[log in to unmask]>
Subject: Re: Are the MEDIA covering YOU?
In-Reply-To: Jane Koenig <[log in to unmask]>'s message of Mon, 12 Apr
1999 11:40:07 -0400
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Attn Jane Koenig, and others commenting on this post,
The following is a letter that I sent to the local TV news departments:
Dear Mr. ..............
I would like to share with you the TOP TEN reasons I watch your local
news broadast:
10. I like to see people being led into and out of court in handcuffs.
9. I like to see buildings which have been ransacked and had their doors
or windows smashed by burglars.
8. I like to see trucks or railroad cars upside down and dumping
hazardous substances into a creek.
7. I like to see video of a wooded area where a nude and dismembered
body or a newborn baby in a plastic bag was abandoned.
6. I like to see homes that have been burned to the ground and a TV
reporter is there asking the homeoners "How do you feel?"
5. I like to see injured people with bloddy bandages being carred on a
strecher with a TV camerman running alongside taking pictures.
4. I like to see cars that have been in headon collisions, with close up
color pictures of bloodstained upholestry.
3. I like to hear about children that have been secually abused
2. I like to see nice full-color closeups of people that have been
tortured or beaten
1. And the NUMBER ONE thing I like to see on local news, is body bags
(with bodies in them) being caarred up from the banks of a river or from
burned down homes! .
Sorry I sent the prev mail before I finished it.
Lanier Maddux Chattanooga Tn
=========================================================================
Date: Wed, 14 Apr 1999 09:50:05 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Janice Morgan <[log in to unmask]>
Subject: Re: News-Red tape hobbles Parkinson's drugs
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi all,
The drug Ropinirole, is also known as Requip. It is a great drug, I am
on it have been able to go off the Sinemet drug.
Janice 51/50/46
----- Original Message -----
From: judith richards <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, April 14, 1999 7:27 AM
Subject: News-Red tape hobbles Parkinson's drugs
> Wednesday, April 14, 1999
>
> Red tape hobbles Parkinson's drugs
>
> Pramipexole, Ropinirole not covered by drug plan
> By MARY-JANE EGAN, Free Press Health Reporter
>
> Parkinson's patients are being neglected in Ontario because two
> promising drugs aren't covered under the
> province's drug plan, says a frustrated London doctor.
>
> Dr. Mandar Jog, director of London Health Sciences Centre's movement
> disorder centre, said patients who could
> benefit from the drugs Pramipexole and Ropinirole may go without because
> they can't afford the annual $1,200 to
> $2,000 cost.
>
> Jog said patients who lack private drug insurance coverage must either
> pay for the drugs or go through the
> "bureaucratic maze" of a Section 8 application under the provincial drug
> plan -- a step that leads to mountains of
> paperwork and headaches for the doctor.
>
> Costs of the drugs vary, depending on the dose required for particular
> Parkinson's patients.
>
> Health Ministry spokesperson Barry Wilson said the two drugs in question
> were not recommended for coverage
> by the ministry's drug quality and therapeutics committee -- an arm's
> length expert panel that reviews drug
> manufacturers' submissions for listing on the Ontario drug formulary.
>
> Jog said the refusal by Ontario to cover the drugs raises troubling
> questions about "equality of care." He asks:
> "Why is Ontario one of the few provinces that doesn't cover these drugs,
> which are proven to be effective for
> certain Parkinson's patients?"
>
> Wilson noted the province did cover 1,000 claims for the drugs in
> question last year through the Section 8 process
> in which doctors justify why coverage should be granted in a particular
> case.
>
> "It is a very tedious process," Jog said yesterday. "First, we have to
> have tried approved drugs and prove that
> they've failed and then the government will approve coverage for a brief
> period -- and then you reapply. When you
> have 150 patients, all with different drug renewal dates, you can
> imagine the paperwork. All we want is what's best
> for our patients -- and for patients where these drugs work, they should
> be covered."
>
> Wilson said since 1995, 11 new drugs for Parkinson's disease were added
> to the formulary, bringing the total
> number of covered Parkinson's drugs to 19.
>
> Jog was adding his voice to that of the Parkinson Foundation of Canada,
> which held a news conference yesterday
> arguing the drugs should be covered by Ontario's drug plan.
>
> Allan Ward, 68, of Ingersoll, has been taking Ropinirole since December
> after getting approval through the Section
> 8 process. He said the drug helps control all his Parkinson's symptoms
> and he is puzzled why it hasn't been
> approved as part of the drug plan.
>
> "Why Ontario is dragging its feet on this is beyond me," Ward said,
> agreeing a Section 8 application causes
> unnecessary work for the doctor.
>
> Parkinson's is a chronic, debilitating neuromuscular disease affecting
> more than 100,000 Canadians.
>
> The disease makes it difficult for sufferers to control their movements,
> often resulting in tremors, slow movement
> and sudden, uncontrolled motions.
>
> The disease gained widespread attention last year when Canadian actor
> Michael J. Fox divulged he suffers from
> the condition.
>
> Jog said many patients respond favourably to Pramipexole and Ropinirole.
> "But until the provincial government
> makes them available, many Ontarians are going without.
>
> "We don't have any hidden agenda here," Jog added. "We just want what's
> best for patients."
> --
> Judith Richards, London, Ontario, Canada
> <[log in to unmask]>
>
=========================================================================
Date: Wed, 14 Apr 1999 13:11:56 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Lanier Maddux <[log in to unmask]>
Subject: PD publicity-good news
In-Reply-To: janet paterson <[log in to unmask]>'s message of Sun, 11 Apr
1999 23:23:51 -0400
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
I doubt that anybody missed me, but after about 6 weeks, I am back on
list. While I was gone my sister on a visit to Knoxville saw a
newspaper article that she brought to me, about DBS. It is full page
article about a Knoxville man with severe tremor not helped by
medication.
The paitent was the first to receive the surgery at Fort Sanders
Regional Medical Center. It was also the first done by the Doctor. Wow,
I guess somebody has to be the first one. According to the news article
the paitent is doing extremely well.
So I think it is good news that DBS is being done at more locations,
hopelfully that will make it possible for PWP's to get the surgery if
they are in need of it.
As I said, it was a full page article and an example of some good news
coverage, unlike the usual news that I talked about in my TOP TEN list
of why I like to watch the evening local TV news. If you did not see
that post, look it up, and see if you agree.
Lanier Maddux 63/2 Chattanooga Tn.
a.k.a. N4AG
=========================================================================
Date: Wed, 14 Apr 1999 10:36:19 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "J. R. Bruman" <[log in to unmask]>
Subject: Stroke Rehab
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
I have an aged friend who is in a nursing facility following a severe
stroke. If anyone on the list has some experience of this, I'd like to
ask some questions (off-list). Cheers,
Joe
--
J. R. Bruman (818) 789-3694
3527 Cody Road
Sherman Oaks, CA 91403-5013
=========================================================================
Date: Wed, 14 Apr 1999 14:42:23 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Jane Koenig <[log in to unmask]>
Subject: Re: Are the MEDIA covering YOU?
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Lanier,
I sure hope the GOT it!
Jane Koenig (still cynical)
At 11:58 AM 4/14/99 -0400, you wrote:
>Attn Jane Koenig, and others commenting on this post,
>The following is a letter that I sent to the local TV news departments:
>Dear Mr. ..............
>I would like to share with you the TOP TEN reasons I watch your local
>news broadast:
>
=========================================================================
Date: Wed, 14 Apr 1999 14:46:38 -0600
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Kathrynne Holden, MS,RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: News-Public ignorance about Parkinson's attacked
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Dear Bob,
That must be so discouraging! What ignorance and insensitivity on the
part of that woman! I wonder, though, just how many others really feel
that way. Sometimes one person will bring something up, and then make it
sound like everyone else agrees, when they don't.
Would it be possible to contact a lawyer familiar with the American
Disabilities Act? Sometimes just hinting at legal action will be enough
to cause people to re-think their position.
The real problem, though, is ignorance. It's so important to increase
understanding and awareness of the nature of PD. It's frustrating;
however, I do think that inroads are appearing,if slowly.
Please hang in there and don't do anything rash -- at least not till you
get better counseling!
Best regards,
Kathrynne
double a enterprises wrote:
>
> Another comment; after working here for the pubic for nearly 10 years, I was
> informed yesterday by lady that because my face is "frozen" and I am
> slurring and shaking at times, I don't need to be working around youth (her
> child is 16) because I " look bad". I thought that was just single
> opinion, but found out later lots of people evidently feel the same. I
> can't fight this type of ignorance, and don't want to anymore. Thanks for
> all the help, and if has any ideas on filing for disability, please forward
> them. I can't keep working in this stress, I loved my job, but it isn't
> worth this. Thanks for listening
> bob
--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
"We are living in a world today where
lemonade is made from artificial flavors and
furniture polish is made from real lemons." --Alfred E. Newman
=========================================================================
Date: Wed, 14 Apr 1999 17:39:41 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: double a enterprises <[log in to unmask]>
Subject: Re: News-Public ignorance
Comments: To: Linda Gassiott <[log in to unmask]>, Leo Fuhr <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
As usual, when asking for help from this list, I get wonderful adv ice. As
you could probably tell from the first message, I was a more than a little
upset when I wrote it. However, I have been fighting just to keep my job
for over a year. I usually work 60 hours per week, and sometimes quite a
bit more. While my job is interesting, and useful, it also entails working
with parents/children/money which is always a volatile mix. I also assist
ranchers, homeowners and others with any type of outdoor questions or
assistance. After a 14 hour day Sunday, including a 400 mi drive, my body
was probably already close to maxing out on a stress test. When combined
with a group of adults, arguing like 6 yr olds, and cursing like sailors,
the comments made and heard regarding me appearing like drunk, disgusting,
clumsy, dummy etc, I did reach the end of my tolerance. This job is always
stressful, but the effects it is having on my pd symptoms have made it more
than I can handle, I did contact our human resources dept, and they are
assisting me in applying the paperwork to receive disability insurance. I
also notified my superior (who wanted me to take that way out a year ago),
and my neuro.. I will be seeing him in the morning to try to adjust meds,
and to discuss pal. surg. He wants me to have it, I'm going to ask him to
wait as long as possible. I did enjoy my job, but the pressure to perform
at pre pd levels is taking too large a toll on me and my family . I really
don't know if this is going to work out, and am currently scared to death,
but I know I have to stop what is happening to be due to the stress.
Again, I thank each of you for your advice, care and concern
and I'm sure I will be asking again soon. Until then, thank each of you
again
Robert D. Armentrout County Extension Agent - Agriculture, TX Agri Ext
Service 1983-1999
? ? ? ? ? ? ? ? ? ? ? ? ? ? ? ?
? ? ? ? ? ? ? ? ? ? ? 1999-
=========================================================================
Date: Wed, 14 Apr 1999 19:12:21 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Camilla Flintermann <[log in to unmask]>
Subject: Test
MIME-version: 1.0
Content-type: text/plain; charset="us-ascii"
I'm testing to see if I can SEND to the list while I have set "nomail".
Camilla Flintermann, CG for Peter 80/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
=========================================================================
Date: Wed, 14 Apr 1999 20:05:36 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Clare Wilson <[log in to unmask]>
Subject: Re: Test
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apparently so.
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Date: Wed, 14 Apr 1999 17:44:11 -0700
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Janice Morgan <[log in to unmask]>
Subject: Re: Test
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Hi Camilla,
I got your test. Janice
----- Original Message -----
From: Camilla Flintermann <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, April 14, 1999 5:12 PM
Subject: Test
> I'm testing to see if I can SEND to the list while I have set "nomail".
>
> Camilla Flintermann, CG for Peter 80/70/55
> Oxford, Ohio
> http://www.newcountry.nu/pd/members/camilla/one.htm
> <[log in to unmask]>
>
> "Ask me about the CARE list for
> Caregivers of Parkinsonians ! "
>
=========================================================================
Date: Wed, 14 Apr 1999 17:43:12 -0700
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: Test
Comments: cc: [log in to unmask]
In-Reply-To: <v0310280cb33a98de60fa@[134.53.28.82]>
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On 14 Apr 99 at 19:12, Camilla Flintermann wrote:
> I'm testing to see if I can SEND to the list while I have set "nomail".
>
Camilla, it certainly looks like you can...........
>
> Camilla Flintermann, CG for Peter 80/70/55
> Oxford, Ohio
> http://www.newcountry.nu/pd/members/camilla/one.htm
> <[log in to unmask]>
>
> "Ask me about the CARE list for
> Caregivers of Parkinsonians ! "
>
>
[log in to unmask]
=========================================================================
Date: Wed, 14 Apr 1999 21:12:41 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: KEn Becker <[log in to unmask]>
Subject: Re: Test
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Hi Camilla, I got it! Hope all is well with you and Peter.
Ken B
=========================================================================
Date: Mon, 14 Jun 1999 21:47:25 -0400
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: Fw: Cute Joke
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We're all getting to this!!!!!!!!!!!!!!!
>> --
>> > Cute joke:
>> > A young fellow at McDonald's notices
>> > this nice elderly couple buy just one
>> > hamburger and just one drink. When
>> > they sit down the husband carefully
>> > cuts the hamburger exactly in half and
>> > then pours half of the drink into a cup
>> > he has brought with them. The wife
>> > sits quietly with her hands folded while the husband begins to eat. The
>> > young
>> > man feel compassion for them and goes
>> > over and offers to buy them a second
>> > hamburger and another drink so that
>> > they might have the opportunity to eat
>> > together.
>> > The husband and wife smile at him. The
>> > husband tells the young man that they have been married for over 50
>> > years and
>> > that everything in life they have shared 50/50. The whole time the wife
>> > just
>> > sits quietly. Then the husband tells the young man, "...besides, it
>> > wouldn't really help. Right now it is my turn to use the teeth."
>> >
>>
>>
=========================================================================
Date: Wed, 14 Apr 1999 22:19:07 EDT
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Bonnie Rowley <[log in to unmask]>
Subject: (fwd) Fw: Check your birthday It's a special day.
Comments: To: [log in to unmask], [log in to unmask], [log in to unmask],
[log in to unmask]
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> >
> >> WHEN IS YOUR BIRTHDAY AND WHAT IS IT FOR?
> >> *
> >> * January 1 is. . . . . .First Foot Day and Z Day
> >> * January 2 is . . . . .Run Up the Flagpole and See if Anybody Salutes
It Day
> >> * January 3 is . . . . .Festival of Sleep Day
> >> * January 4 is . . . . .Trivia Day and Humiliation Day
> >> * January 5 is . . . . .Bird Day
> >> * January 6 is . . . . .Bean Day
> >> * January 7 is . . . . .Old Rock Day
> >> * January 8 is . . . . . National Joy Germ Day and Man Watcher's Day
> >> * January 9 is . . . . . Play God Day
> >> * January 10 is . . . . Peculiar People Day
> >> * January 11 is . . . . National Step in a Puddle and Splash Your
Friend Day
> >> * January 12 is . . . . Feast of Fabulous Wild Men Day
> >> * January 13 is . . . . Make Your Dream Come True Day and Blame Someone
Else Day
> >> * January 14 is . . . . National Dress Up Your Pet Day
> >> * January 15 is . . . . Hat Day
> >> * January 16 is . . . . Hot and Spicy Food International Day an
National Nothing Day
> >> * January 17 is . . . . Blessing of the Animals at the Cathedral Day
> >> * January 18 is . . . . Winnie the Pooh Day
> >> * January 19 is . . . . National Popcorn Day
> >> * January 20 is . . . . National Buttercrunch Day
> >> * January 21 is . . . . National Hugging Day
> >> * January 22 is . . . . National Answer Your Cat's Question Day,
National Blonde Brownie Day
> >> * January 23 is . . . . National Handwriting Day, National Pie Day,
Measure Your Feet Day
> >> * January 24 is . . . . Eskimo Pie Patent Day
> >> * January 25 is . . . . Opposite Day
> >> * January 26 is . . . . Australia Day
> >> * January 27 is . . . . Punch the Clock Day and Thomas Crapper Day
> >> * January 28 is . . . . National Kazoo Day, Clash Day, Rattle Snake
Roundup Day
> >> * January 29 is . . . . National Cornchip Day
> >> * January 30 is . . . . Escape Day
> >> * January 31 is . . . . National Popcorn Day and Child Labor Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * February 1 is . . . . . Serpent Day
> >> * February 2 is . . . . . Purification Day
> >> * February 3 is . . . . . Cordova Ice Worm Day
> >> * February 4 is . . . . . Create A Vacuum Day
> >> * February 5 is . . . . . Disaster Day
> >> * February 6 is . . . . . Lame Duck Day
> >> * February 7 is . . . . . Charles Dickens Day
> >> * February 8 is . . . . . Kite Flying Day
> >> * February 9 is . . . . . Toothache Day
> >> * February 10 is . . . . Umbrella Day
> >> * February 11 is . . . . White Tee-shirt Day and Don't Cry Over Spilled
Milk Day
> >> * February 12 is . . . . National Plum Pudding Day
> >> * February 13 is . . . . Get A Different Name Day and Dream Your Sweet
Day
> >> * February 14 is . . . . Ferris Wheel Day and National Heart to Heart
Day
> >> * February 15 is . . . . National Gum Drop Day
> >> * February 16 is . . . . Do A Grouch A Favor Day
> >> * February 17 is . . . . Champion Crab Races Day
> >> * February 18 is . . . . National Battery Day
> >> * February 19 is . . . . National Chocolate Mint Day
> >> * February 20 is . . . . Hoodie Hoo Day
> >> * February 21 is . . . . Card Reading Day
> >> * February 22 is . . . . Be Humble Day
> >> * February 23 is . . . . International Dog Biscuit Appreciation Day
> >> * February 24 is . . . . National Tortilla Chip Day
> >> * February 25 is . . . . Pistol Patent Day (Samuel Colt)
> >> * February 26 is . . . . National Pistachio Day
> >> * February 27 is . . . . International Polar Bear Day
> >> * February 28 is . . . . Public Sleeping Day
> >> * February 29 is . . . . National Surf and Turf Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * March 1 is . . . . . National Pig Day and Peanut Butter Lover's Day
> >> * March 2 is . . . . . Old Stuff Day
> >> * March 3 is . . . . . I Want You To Be Happy Day, Peach Blossom Day,
National Anthem Day
> >> * March 4 is . . . . . Holy Experiment Day
> >> * March 5 is . . . . . Personality Day
> >> * March 6 is . . . . . National Frozen Food Day
> >> * March 7 is . . . . . National Crown Roast Of Pork Day
> >> * March 8 is . . . . . Be Nasty Day
> >> * March 9 is . . . . . Panic Day
> >> * March 10 is . . . . Festival Of Life In The Cracks Day
> >> * March 11 is . . . . Johnny Appleseed Day and Worship of Tools Day
> >> * March 12 is . . . . Alfred Hitchcock Day
> >> * March 13 is . . . . Jewel Day
> >> * March 14 is . . . . National Potato Chip Day
> >> * March 15 is . . . . Buzzard's Day and Everything You Think Is Wrong
Day
> >> * March 16 is . . . . Everything You Do Is Right Day
> >> * March 17 is . . . . Submarine Day
> >> * March 18 is . . . . Supreme Sacrifice Day
> >> * March 19 is . . . . Poultry Day
> >> * March 20 is . . . . Proposal Day and Festival Of Extraterrestrial
Abductions Day
> >> * March 21 is . . . . Fragrance Day
> >> * March 22 is . . . . National Goof-off Day
> >> * March 23 is . . ....National Organize Your Home Office Day and
National Chip and Dip Day
> >> * March 24 is . . . . National Chocolate Covered Raisins Day
> >> * March 25 is . . . . Pecan Day and Waffle Day
> >> * March 26 is . . . . Make Up Your Own Holiday Day and Spinach Festival
Day
> >> * March 27 is . . . . National "Joe" Day More Info on National "Joe" Day
> >> * March 28 is . . . . Something On A Stick Day
> >> * March 29 is . . . . Festival Of Smoke and Mirrors Day
> >> * March 30 is . . . . I Am In Control Day
> >> * March 31 is . . . . Bunsen Burner Day and National Clams On The Half
Shell Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * April 1 is . . . . . One Cent Day
> >> * April 2 is . . . . . National Peanut Butter and Jelly Day
> >> * April 3 is . . . . . Tweed Day and Don't Go To Work Unless It's Fun
Day
> >> * April 4 is . . . . . Tell-A-Lie Day
> >> * April 5 is . . . . . Go For Broke Day
> >> * April 6 is . . . . . Sorry Charlie Day More Info on Sorry Charlie Day
> >> * April 7 is . . . . . No Housework Day
> >> * April 8 is . . . . . All Is Ours Day
> >> * April 9 is . . . . . Winston Churchill Day and Name Yourself Day
> >> * April 10 is . . . . Golfers Day
> >> * April 11 is . . . . Eight-Track Tape Day
> >> * April 12 is . . . . Look Up At The Sky Day
> >> * April 13 is . . . . Blame Somebody Else Day
> >> * April 14 is . . . . National Pecan Day
> >> * April 15 is . . . . Rubber Eraser Day
> >> * April 16 is . . . . National Stress Awareness Day and National Eggs
Benedict Day
> >> * April 17 is . . . . National Cheeseball Day
> >> * April 18 is . . . . International Jugglers Day
> >> * April 19 is . . . . National Garlic Day
> >> * April 20 is . . . . Look Alike Day
> >> * April 21 is . . . . Kindergarten Day
> >> * April 22 is . . . . National Jelly Bean Day
> >> * April 23 is . . . . Read Me Day and World Laboratory Animal Day
> >> * April 24 is . . . . National Pigs In A Blanket Day
> >> * April 25 is . . . . National Zucchini Bread Day
> >> * April 26 is . . . . Richter Scale Day and National Pretzel Day
> >> * April 27 is . . . . Tell A Story Day
> >> * April 28 is . . . . Great Poetry Reading Day and Kiss-Your-Mate Day
> >> * April 29 is . . . . National Shrimp Scampi Day
> >> * April 30 is . . . . National Honesty Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * May 1 is . . . . . Mother Goose Day and Save The Rhino Day
> >> * May 2 is . . . . . Fire Day
> >> * May 3 is . . . . . Lumpy Rug Day
> >> * May 4 is . . . . . National Candied Orange Peel Day
> >> * May 5 is . . . . . National Hoagie Day
> >> * May 6 is . . . . . Beverage Day
> >> * May 7 is . . . . . International Tuba Day, Paste Up Day, National
Roast Leg of Lamb Day
> >> * May 8 is . . . . . No Socks Day and Have A Coke Day
> >> * May 9 is . . . . . Lost Sock Memorial Day
> >> * May 10 is . . . . Clean Up Your Room Day
> >> * May 11 is . . . . Eat What You Want Day and Twilight Zone Day
> >> * May 12 is . . . . Limerick Day
> >> * May 13 is . . . . Leprechaun Day
> >> * May 14 is . . . . National Dance Like A Chicken Day
> >> * May 15 is . . . . National Chocolate Chip Day
> >> * May 16 is . . . . Wear Purple For Peace Day
> >> * May 17 is . . . . Pack Rat Day
> >> * May 18 is . . . . International Museum Day and Visit Your Relatives
Day
> >> * May 19 is . . . . Frog Jumping Jubilee Day
> >> * May 20 is . . . . Eliza Doolittle Day
> >> * May 21 is . . . . National Memo Day and National Waitresses/Waiters
Day
> >> * May 22 is . . . . Buy-A-Musical-Instrument Day
> >> * May 23 is . . . . Penny Day
> >> * May 24 is . . . . National Escargot Day
> >> * May 25 is . . . . National Tap Dance Day
> >> * May 26 is . . . . Grey Day
> >> * May 27 is . . . . Body Painting Arts Festival
> >> * May 28 is . . . . National Hamburger Day
> >> * May 29 is . . . . End Of The Middle Ages Day
> >> * May 30 is . . . . My Bucket's Got A Hole In It Day
> >> * May 31 is . . . . National Macaroon Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * June 1 is . . . . . Dare Day
> >> * June 2 is . . . . . National Rocky Road Day
> >> * June 3 is . . . . . Repeat Day
> >> * June 4 is . . . . . Old Maid's Day
> >> * June 5 is . . . . . Festival Of Popular Delusions Day
> >> * June 6 is . . . . . Teacher's Day and National Applesauce Cake Day
> >> * June 7 is . . . . . National Chocolate Ice Cream Day
> >> * June 8 is . . . . . Name Your Poison Day
> >> * June 9 is . . . . . Donald Duck Day
> >> * June 10 is . . . . National Yo-yo Day
> >> * June 11 is . . . . National Hug Holiday and King Kamehameha Day
> >> * June 12 is . . . . Machine Day
> >> * June 13 is . . . . National Juggling Day and Kitchen Klutzes Of
America Day
> >> * June 14 is . . . . Pop Goes The Weasel Day
> >> * June 15 is . . . . Smile Power Day
> >> * June 16 is . . . . National Hollerin' Contest Day
> >> * June 17 is . . . . Watergate Day and Eat Your Vegetables Day
> >> * June 18 is . . . . International Panic Day
> >> * June 19 is . . . . World Sauntering Day
> >> * June 20 is . . . . Ice Cream Soda Day
> >> * June 21 is . . . .Cuckoo Warning Day More Info on Cuckoo Warning Day
> >> * June 22 is . . . . National Chocolate Eclair Day
> >> * June 23 is . . . . National Pink Day
> >> * June 24 is . . . . Museum Comes To Life Day
> >> * June 25 is . . . . Log Cabin Day
> >> * June 26 is . . . . National Chocolate Pudding Day
> >> * June 27 is . . . . National Columnists Day
> >> * June 28 is . . . . Paul Bunyan Day
> >> * June 29 is . . . . Camera Day
> >> * June 30 is . . . . Meteor Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * July 1 is . . . . . Creative Ice Cream Flavor Day and Build A
Scarecrow Day
> >> * July 2 is . . . . . Visitation Of The Virgin Mary Day
> >> * July 3 is . . . . . Stay Out Of The Sun Day and Compliment Your
Mirror Day
> >> * July 4 is . . . . . National Country Music Day and Tom Sawyer
Fence-Painting Day
> >> * July 5 is . . . . . Workaholics Day
> >> * July 6 is . . . . . National Fried Chicken Day
> >> * July 7 is . . . . . National Strawberry Sundae Day
> >> * July 8 is . . . . . Video Games Day
> >> * July 9 is . . . . . National Sugar Cookie Day
> >> * July 10 is . . . . Clerihew Day
> >> * July 11 is . . . . National Cheer Up The Lonely Day
> >> * July 12 is . . . . National Pecan Pie Day
> >> * July 13 is . . . . Fool's Paradise Day
> >> * July 14 is . . . . National Nude Day
> >> * July 15 is . . . . National Tapioca Pudding Day and Respect Canada Day
> >> * July 16 is . . . . International Juggling Day
> >> * July 17 is . . . . National Peach Ice Cream Day
> >> * July 18 is . . . . National Ice Cream Day and National Caviar Day
> >> * July 19 is . . . . Flitch Day
> >> * July 20 is . . . . Ugly Truck Contest Day
> >> * July 21 is . . . . National Tug-Of-War Tournament Day
> >> * July 22 is . . . . Ratcatcher's Day
> >> * July 23 is . . . . National Vanilla Ice Cream Day
> >> * July 24 is . . . . Amelia Earhart Day
> >> * July 25 is . . . . Threading The Needle Day
> >> * July 26 is . . . . All Or Nothing Day
> >> * July 27 is . . . . Take Your Pants For A Walk Day
> >> * July 28 is . . . . National Milk Chocolate Day
> >> * July 29 is . . . . Cheese Sacrifice Purchase Day
> >> * July 30 is . . . . National Cheesecake Day
> >> * July 31 is . . . . Parent's Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * August 1 is . . . . . Friendship Day and National Raspberry Cream Pie
Day
> >> * August 2 is . . . . . National Ice Cream Sandwich Day
> >> * August 3 is . . . . . National Watermelon Day
> >> * August 4 is . . . . . Twins Day Festival
> >> * August 5 is . . . . . National Mustard Day
> >> * August 6 is . . . . . Wiggle Your Toes Day
> >> * August 7 is . . . . . Sea Serpent Day
> >> * August 8 is . . . . . National Sneak Some Zucchini Onto Your
Neighbor's Porch Night
> >> * August 9 is . . . . . National Polka Festival
> >> * August 10 is . . . . Lazy Day
> >> * August 11 is . . . . Presidential Joke Day
> >> * August 12 is . . . . Middle Child's Day
> >> * August 13 is . . . . Blame Someone Else Day
> >> * August 14 is . . . . National Creamsicle Day
> >> * August 15 is . . . . National Relaxation Day and National Failures Day
> >> * August 16 is . . . . Bratwurst Festival
> >> * August 17 is . . . . National Thriftshop Day
> >> * August 18 is . . . . Bad Poetry Day
> >> * August 19 is . . . . Potato Day
> >> * August 20 is . . . . National Radio Day
> >> * August 21 is . . . . National Spumoni Day
> >> * August 22 is . . . . Be An Angel Day
> >> * August 23 is . . . . National Spongecake Day
> >> * August 24 is . . . . Knife Day
> >> * August 25 is . . . . Kiss-And-Make-Up Day
> >> * August 26 is . . . . National Cherry Popsicle Day
> >> * August 27 is . . . . Petroleum Day
> >> * August 28 is . . . . World Sauntering Day
> >> * August 29 is . . . . More Herbs, Less Salt Day
> >> * August 30 is . . . . National Toasted Marshmallow Day
> >> * August 31 is . . . . National Trail Mix Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * September 1 is . . . . . Emma M. Nutt Day
> >> * September 2 is . . . . . National Beheading Day
> >> * September 3 is . . . . . Skyscraper Day
> >> * September 4 is . . . . . Newspaper Carrier Day
> >> * September 5 is . . . . . Be Late For Something Day
> >> * September 6 is . . . . . Fight Procrastination Day
> >> * September 7 is . . . . . Neither Rain Nor Snow Day
> >> * September 8 is . . . . . National Date Nut Bread Day and Pardon Day
> >> * September 9 is . . . . . Teddy Bear Day
> >> * September 10 is . . . . Swap Ideas Day
> >> * September 11 is . . . . No News Is Good News Day
> >> * September 12 is . . . . National Pet Memorial Day and National
Chocolate Milkshake Day
> >> * September 13 is . . . . Defy Superstition Day
> >> * September 14 is . . . . National Cream-filled Donut Day
> >> * September 15 is . . . . Felt Hat Day
> >> * September 16 is . . . . Stay Away From Seattle Day and Collect Rocks
Day
> >> * September 17 is . . . . National Apple Dumpling Day
> >> * September 18 is . . . . National Play-doh Day
> >> * September 19 is . . . . National Butterscotch Pudding Day
> >> * September 20 is . . . . National Punch Day
> >> * September 21 is . . . . World Gratitude Day and International Banana
Festival
> >> * September 22 is . . . . Hobbit Day and Dear Diary Day
> >> * September 23 is . . . . Checkers Day and Dogs In Politics Day
> >> * September 24 is . . . . Festival Of Latest Novelties
> >> * September 25 is . . . . National Comic Book Day
> >> * September 26 is . . . . National Good Neighbor Day and National
Pancake Day
> >> * September 27 is . . . . Crush A Can Day
> >> * September 28 is . . . . Ask A Stupid Question Day More Info on Stupid
Questions
> >> * September 29 is . . . . Poisoned Blackberries Day
> >> * September 30 is . . . . National Mud Pack Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * October 1 is . . . . . World Vegetarian Day and Magic Circles Day
> >> * October 2 is . . . . . Name Your Car Day
> >> * October 3 is . . . . . Virus Appreciation Day
> >> * October 4 is . . . . . National Golf Day
> >> * October 5 is . . . . . National Storytelling Festival
> >> * October 6 is . . . . . German-American Day and Come and Take It Day
> >> * October 7 is . . . . . National Frappe Day
> >> * October 8 is . . . . . American Tag Day
> >> * October 9 is . . . . . Moldy Cheese Day
> >> * October 10 is . . . . National Angel Food Cake Day
> >> * October 11 is . . . . It's My Party Day
> >> * October 12 is . . . . International Moment Of Frustration Scream Day
> >> * October 13 is . . . . National Peanut Festival
> >> * October 14 is . . . . Be Bald and Free Day and National Dessert Day
> >> * October 15 is . . . . White Cane Safety Day
> >> * October 16 is . . . . Dictionary Day
> >> * October 17 is . . . . Gaudy Day
> >> * October 18 is . . . . No Beard Day
> >> * October 19 is . . . . Evaluate Your Life Day
> >> * October 20 is . . . . National Brandied Fruit Day
> >> * October 21 is . . . . Babbling Day
> >> * October 22 is . . . . National Nut Day
> >> * October 23 is . . . . National Mole Day
> >> * October 24 is . . . . National Bologna Day
> >> * October 25 is . . . . Punk For A Day Day
> >> * October 26 is . . . . Mule Day
> >> * October 27 is . . . . Sylvia Plath Day
> >> * October 28 is . . . . Plush Animal Lover's Day and National Chocolate
Day
> >> * October 29 is . . . . Hermit Day
> >> * October 30 is . . . . National Candy Corn Day
> >> * October 31 is . . . . National Magic Day and Increase Your Psychic
Powers Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * November 1 is . . . . . Plan Your Epitaph Day
> >> * November 2 is . . . . . National Deviled Egg Day
> >> * November 3 is . . . . . Sandwich Day and Housewife's Day
> >> * November 4 is . . . . . Waiting For The Barbarians Day
> >> * November 5 is . . . . . Gunpowder Day
> >> * November 6 is . . . . . Saxophone Day and Marooned Without A Compass
Day
> >> * November 7 is . . . . . National Bittersweet Chocolate With Almonds
Day
> >> * November 8 is . . . . . Dunce Day
> >> * November 9 is . . . . . Chaos Never Dies Day
> >> * November 10 is . . . . Forget-Me-Not Day
> >> * November 11 is . . . . Air Day
> >> * November 12 is . . . . National Pizza With The Works Except Anchovies
Day
> >> * November 13 is . . . . National Indian Pudding Day
> >> * November 14 is . . . . Operation Room Nurse Day
> >> * November 15 is . . . . National Clean Out Your Refrigerator Day
> >> * November 16 is . . . . Button Day
> >> * November 17 is . . . . Take A Hike Day
> >> * November 18 is . . . . Occult Day
> >> * November 19 is . . . . Have A Bad Day Day
> >> * November 20 is . . . . Absurdity Day
> >> * November 21 is . . . . World Hello Day and False Confessions Day
> >> * November 22 is . . . . Start Your Own Country Day
> >> * November 23 is . . . . National Cashew Day
> >> * November 24 is . . . . Use Even If Seal Is Broken Day
> >> * November 25 is . . . . National Parfait Day
> >> * November 26 is . . . . Shopping Reminder Day
> >> * November 27 is . . . . Pins And Needles Day
> >> * November 28 is . . . . Make Your Own Head Day
> >> * November 29 is . . . . Square Dance Day
> >> * November 30 is . . . . Stay At Home Because You're Well Day
> >> * ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >> * December 1 is . . . . . National Pie Day and Eat A Red Apple Day
> >> * December 2 is . . . . . National Fritters Day
> >> * December 3 is . . . . . National Roof-Over-Your-Head Day
> >> * December 4 is . . . . . Wear Brown Shoes Day
> >> * December 5 is . . . . . National Sacher Torte Day
> >> * December 6 is . . . . . National Gazpacho Day and Mitten Tree Day
> >> * December 7 is . . . . . National Cotton Candy Day
> >> * December 8 is . . . . . Take It In The Ear Day
> >> * December 9 is . . . . . National Pastry Day
> >> * December 10 is . . . . Festival For The Souls Of Dead Whales
> >> * December 11 is . . . . National Noodle Ring Day
> >> * December 12 is . . . . National Ding-A-Ling Day
> >> * December 13 is . . . . Ice Cream and Violins Day
> >> * December 14 is . . . . National Bouillabaisse Day
> >> * December 15 is . . . . National Lemon Cupcake Day
> >> * December 16 is . . . . National Chocolate Covered Anything Day
> >> * December 17 is . . . . Underdog Day and National Maple Syrup Day
> >> * December 18 is . . . . National Roast Suckling Pig Day
> >> * December 19 is . . . . Oatmeal Muffin Day
> >> * December 20 is . . . . Games Day
> >> * December 21 is . . . . Look At The Bright Side Day, National
Flashlight Day, National French Fried Shrimp Day, and Hamburger Day
> >> * December 22 is . . . . National Date-Nut Bread Day
> >> * December 23 is . . . . Roots Day
> >> * December 24 is . . . . National Eggnog Day
> >> * December 25 is . . . . National Pumpkin Pie Day
> >> * December 26 is . . . . National Whiners Day
> >> * December 27 is . . . . National Fruitcake Day
> >> * December 28 is . . . . Card Playing Day and National Chocolate Day
> >> * December 29 is . . . . Pepper Pot Day
> >> * December 30 is . . . . Festival Of Enormous Changes At The Last
Minute and National Bicarbonate Of Soda Day
> >> * December 31 is . . . . Unlucky Day
> >> >> >
> >
>
> --------- End forwarded message ----------
>
=========================================================================
Date: Wed, 14 Apr 1999 18:33:25 -0700
Reply-To: Constance Tate <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Constance Tate <[log in to unmask]>
Subject: aluminum
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dear all
i am a new member and find alot of info about PD.my husband of 50 years
ts the one who has PD for about 3 years.after learning what some of you
have gone through he is in great shape-some times he gets confused and it
upsets him but all told he is okay, i had tried to reseach on my own and
among things that i have heard that PD shouldn't take anti acid that
contains aluminum or to drink soft drinks from aluminum cans. i don't know
find any reference to this in your info.after learning how many young people
have PD iam wondering if there could be a connection as teens seem to
consume alot of soft drinks.so far it seems to me it is the more affluent
countries that are showing young PD s. what about the poorer countries who
don't have access to soft drinks?
i have always tried to ask questions if ican't find out on my own and at
73 i hope i am not being presumptious in posing this question to you.
connie tate
=========================================================================
Date: Wed, 14 Apr 1999 23:00:33 -0500
Reply-To: Parkinson's Information Exchange <[log in to unmask]>
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: Phil Tompkins <[log in to unmask]>
Subject: Presenters on PD in world oxygen conference
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Researchers in neurology, biology, biochemistry and related fields
met at a 4 day international conference hosted by Dr. Lester Packer
of UC Berkeley and held in Santa Barbara, California on March 3-6,
1999 to discuss oxidation and antioxident neuroprotection as related
to aging and disease. Titles and presenters of papers devoted
specifically to Parkinson's disease, plus my "abstracts of the
abstracts", were:
"The iron-binding protein ferritin protects vulnerable dopaminergic
neurons against neurodegeneration associated with a toxic model of
Parkinson's disease". Julie Andersen, Jun Qin Mo, and Ferda Yanter,
Andrus Gerontology, University of Southern California, Los Angeles.
Transgenic mice with increased ferritin levels and correspondingly
greater resistance to the Parkinsonian-inducing neurotoxin MPTP,
were developed and studied as an approach to investigating possible
genetic differences in human ability to handle free iron in the
substantia nigra and how this may relate to susceptibilty to
and protection against PD.
"Absorption and effects on mitochondrial activity of oral ubiquinone
[Coenzyme Q10] in Parkinsonian patients". M. Flint Beal, Department
of Neurology and Neuroscience, Weill Medical College of Cornell
University and New York Presbyterian Hospital, New York. Beal
presented evidence from mice studies indicating that CoQ10 "may have
potential protective effects in Parkinsonian patients."
"Effects of Selegiline in patients with Parkinson's disease". C.
Warren Olanow, Department of Neurology, Mount Sinai School of
Medicine, New York. Whereas selegiline has been used to inhibit the
oxidation of dopamine, "...recent studies indicate that selegiline
benefits are due to its desmethyl metabolite and that its protective
actions are independent of MAO-B inhibition. It now appears that
selegiline has an anti-apoptotic effect, which may relate to
upregulation of Bcl-2. Further clinical trials to delineate a
potential neuroprotective effect of selegiline in Parkinson's
disease, and more specifically of desmethyl selegiline and other
drugs of this type, are wanted."
Abstracts of all papers presented are available on-line at
http://radicals.berkeley.edu. Information on Dr. Packer's studies of
free radical biology is at http://packer.berkeley.edu.
Phil Tompkins
Hoboken NJ
age 61/dx 1990
=========================================================================
Date: Wed, 14 Apr 1999 22:40:34 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange <[log in to unmask]>
From: "Will A. Kuipers" <[log in to unmask]>
Subject: Reaction to Med's
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From: Will Kuipers
Re: Reaction to Med's
The following is intended to reflect on William Heitman's essay on Sinemet
and
also on Janet Paterson's emphasizing changing med's VERY gradually.
I was diagnosed 8 years ago and from the beginning put on Sinemet CR 50/200
2/day and Eldepryl 5mg, 2/day.
Progression of the disease as shown by symptoms has been almost negligible,
except for an increase of right-hand tremor.
Sometimes I wake up with no tremor and a half hour after taking my morning
dose of Sinemet the tremor is very strong! The opposite of what you would
expect.
During the day there can be periods where there is no tremor at all and that
has no relation to whether I took any med's or not.
The Eldepryl was dropped as a preliminary towards trying one of the drugs
intended to reduce the dependence on Sinemet, an agonist. Also because the
Eldepryl did not seem to do any good at all.
Titration was started on Permax. When the stage was reached where I took 2
0.25mg tabs 3/day and no noticeable change was found, the Permax was rather
suddenly discontinued and titration was started on Requip. The sudden
changeover had no bad effects.
The build-up of Requip is still going on, but I must say that I am not
impressed by the effect.
Neither positive nor negative effects are noticeable. I might as well
eat candy!
Why am I apparently so insensitive to these drugs that can produce such
strong effects in others? I am not complaining, but I would like to know.
I read in the List about dire and sudden reactions, but to this date it
makes very little or no difference what I take.
So far I have never experienced clearcut "off's" and "on's". If there is any
reaction of a need for keeping up the level of dopamine, it comes after a
half a day or so and I never find a marked improvement at the time it should
be "kicking in".
Sometimes I get the feeling that I am a pseudo Parkie.
I get more benefit from physical exercise and walking than I get from
medicines.
I walk straight up and catch myself shuffling only occasionally.
I would like to know if there are others who have these doubts about their
diagnosis, or have the same insensitivity to the medicines.
Will A. Kuipers Dallas, TX 78 / 71
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