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Hi Brian, I wholly agree wth Jim Cordy. A Tasmar survey, not an agonist, would be of benefit to many. Ivan :-) On Fri, 16 Apr 1999 05:50:39 -0400 Jim Cordy <[log in to unmask]> writes: >Brian, > >I've often thought of doing what you propose. You are to be applauded >for >your past efforts and certainly what promises to be monumental task >that you >now propose. I pledge to help you in anyway possible. The problem >of >course is too many variables. Besides the variation inherent in >individuals, there is age, progression of disease, and other >medications. >But, what the hell, nothing ventured, nothing gained. > >Other suggestions: >1)you might want to make some changes to the form such as other >Parkinson's >medication >2)many list members are in a support group and could distribute the >form to >group > >> -----Original Message----- >> From: Parkinson's Information Exchange >> [mailto:[log in to unmask]]On Behalf Of Brian Collins >> Sent: Thursday, April 15, 1999 6:43 PM >> To: [log in to unmask] >> Subject: Sorting out the Agonists >> >> >> I think it's about time that we got a clear picture of the >> various dopamine >> agonists, since they feature in most people's drug diet these days. >For >> instance; I take Permax (Pergolide) in addition to levadopa. Over >the last >> 6 years I have worked myself up from zero to 5 mg of Permax in order >to >> combat the steady deterioration which is the hallmark of PD. Now >> this simple >> fact is of very little use if I want to see into the future, unless >I can >> relate my current intake of Permax to some absolute standard. Not >only >> that, how do I relate my situation to that of someone taking say >> Ropinirole >> (Requip)? With your help, I think we can answer these questions. >> >> What we need is for as many members of this list as possible to >> complete the >> response form at the end of this e-mail. I have not seen this >attempted >> before (maybe it can't be done) but let's make the attempt. >> >> Problem areas: A key question is 'What is the maximum safe dosage >of >> whatever drug you are using?' This is bound to be a moving feast in >> practice: for instance; when I was taking 2 mg of Permax, my >neurologist >> told me that about 4 mg would be the maximum safe level. When I >reached >> 4mg , he told me that people were taking up to 12 mg. I am very >grateful >> to these pioneers for effectively opening-up my future by several >years. >> >> If we get enough of a response to make a useful analysis I will >attempt >> to do so, and will make the data available to anyone who asks for >it. Of >> course any results will be published in the list. >> >> Questions: >> >> 1/ Which Dopamine Agonist are you taking? >> >> 2/ When did you start taking it? >> >> 3/ When were you diagnosed as having PD? >> >> 4/ What was your age when diagnosed? >> >> 5/ When do you believe (with hindsight) that you experienced >> first symptoms? >> >> 6/ What is your present daily intake of levodopa? (Sinemet, >Madopar) >> >> 7/ What is your present daily intake of Dopamine Agonist? >> >> 8/ Has your neurologist advised you of the max. safe dose for >> your agonist? >> >> >> -- >> Brian Collins <[log in to unmask]> >> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************