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Bob....

Your intake of levadopa seems VERY high to me, however as we all
know what works for one Parkie may not work for another.

Sooooo... if'n whatcha are taking hasn't killed ya (just kidding,
and heaven forbid!), and ya are feeling pretty decent on that
dose, then who who are WE to tell ya to take less?

Barb Mallut
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-----Original Message-----
From: Bob Bowling <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, April 18, 1999 7:50 AM
Subject: Re: Sorting out the Agonists


>Brian.
>
>After perusing some 40-odd responses to the subject survey  I
note my daily
>Levodopa intake is roughly twice that of the next highest
respondent.
>Accordingly,  I am submitting my responses directly to the List
(cc to you)
>in hopes of eliciting responses from other members with high
Levodopa
>dosages.  I see a competent Movement Disorder Specialist, self
medicate with
>his approval and maintain a fairly normal lifestyle.  I can
generally avoid
>other than mild Dyskinesia by reducing a dose by 1/2 tablet of
25/100
>Sinemet.
>
>1.    Which agonist?  Mirapex
>
>2.   When did you begin taking it?  August, 1997
>
>3.    When was PD diagnosed?   1989
>
>4.     Age when diagnosed?    43
>
>5.     When first symptoms noted?    1986
>
>6.     Present daily intake of Levodopa?  Approx. 2,000 mg.
>        (2 X 25/100 q 2 hours plus  50 mg. kickers  as needed--I
average 1
>kicker per day.)  The formula                     calculates to
2400 mg.
>before kickers but I usually miss two late night doses due to
sleep.
>
>7.    Present agonist intake?  3 X 1.5 mg.=4.5 mg daily
>
>8.     Has neuro advised of max safe dose?    Yes, plus it's
available on
>any package insert.
>
>
>Bob Bowling
>Overland Park, KS
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>