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At 04:22 PM 4/18/99 -0700, you wrote: >Bob.... > >Your intake of levadopa seems VERY high to me, however as we all >know what works for one Parkie may not work for another. > >Sooooo... if'n whatcha are taking hasn't killed ya (just kidding, >and heaven forbid!), and ya are feeling pretty decent on that >dose, then who who are WE to tell ya to take less? > >Barb Mallut >[log in to unmask] >-----Original Message----- >From: Bob Bowling <[log in to unmask]> >To: [log in to unmask] <[log in to unmask]> >Date: Sunday, April 18, 1999 7:50 AM >Subject: Re: Sorting out the Agonists > > >>Brian. >> >>After perusing some 40-odd responses to the subject survey I >note my daily >>Levodopa intake is roughly twice that of the next highest >respondent. >>Accordingly, I am submitting my responses directly to the List >(cc to you) >>in hopes of eliciting responses from other members with high >Levodopa >>dosages. I see a competent Movement Disorder Specialist, self >medicate with >>his approval and maintain a fairly normal lifestyle. I can >generally avoid >>other than mild Dyskinesia by reducing a dose by 1/2 tablet of >25/100 >>Sinemet. >> >>1. Which agonist? Mirapex >> >>2. When did you begin taking it? August, 1997 >> >>3. When was PD diagnosed? 1989 >> >>4. Age when diagnosed? 43 >> >>5. When first symptoms noted? 1986 >> >>6. Present daily intake of Levodopa? Approx. 2,000 mg. >> (2 X 25/100 q 2 hours plus 50 mg. kickers as needed--I >average 1 >>kicker per day.) The formula calculates to >2400 mg. >>before kickers but I usually miss two late night doses due to >sleep. >> >>7. Present agonist intake? 3 X 1.5 mg.=4.5 mg daily >> >>8. Has neuro advised of max safe dose? Yes, plus it's >available on >>any package insert. >> >> >>Bob Bowling >>Overland Park, KS >>[log in to unmask] >> >Just adding another prescribed dosage FYI, Bob. My husband, 3 years after diagnosis, takes Sinemet CR, 150/600 per day. Permax is his agonist, 0.45 per day. In addition, 20mg Prozac per day, in the am, 1 1/2 (2mg tab) Akineton, and 1 5mg tablet of Altace per day. He has always been a sedentary person, and anything but demonstrative, so family members barely notice that he moves less and with greater effort. Does a more physically active person have need for a much larger dose, more often? MR >