 |
 |
Sooooo, Ivan, does this mean ya LIKE the idea? <grin> (Just a wild guess on my part... ) Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Monday, April 19, 1999 4:23 PM Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent? >Lemme see.......my favorite flavor is COCONUT. >Darn, I'll ask BEN or JERRY to fly me to the Islands, >so that Lisa Crumrine and I can PIG out together >on ice cream--and it will be too WARM for me to >be FROZEN UP. > >Then again, if I eat too much ice cream, I >might get an attack of hyper-glaceeamia. > >Or is it hypo-glaceemia-that sugar craving- >satisfied only by un coup de glace on the >occipital bone. > >Is it COOL to wear gloves while eating >COCONUT ice cream, to protect me from >hypoglaceeamia in ze tropics? > >Which color, excuse me, couleur of >bathing suit do I wear? Pink with white >edges-a la James Parkinson tulip? > >Can we have HOURGLASS competition >to see who can stuff the most ice cream >in? Or would a flamer like me need a >flaming torch? > >Flambeau anybody? Hey WAIT A MINIM. >how about BAKED Alaska-eating orgies? > >The flames might get rid of my hypothermia! >But I am still perplexed--will Cher Bono be >thre. or do I get to make the fashion statement?? > >Ivan gone stark raving drooling mad at the >thought of an ICE-CREAM MARATHON >for MAJOR MEDIA ACTION. I.M.M.M.A. for short. > >Buttons with slogans that say Eat Ice >Cream and Cure PD; banners in parades; > >SUGAR cones with every 6 refills of >Sinemet Ice Cream PIES made of lemon >sherbet - or sorbait - for Sinemet; Coconut >Ice for Eldepryl; and the SLOGAN of a >lifetime-- > >"LET's LICK THIS DAMN DISEASE! > >Ivan the mad Maniac > >wear? > >On Mon, 19 Apr 1999 10:57:30 -0700 Barb_MSN <[log in to unmask]> >writes: >>Dear Hilary 'n Ivan.... >> >>I've got THEE perfect world-wide-attention-grabber >>that'll make all of us sweet-treat and ice-cream guzzling >>Parkies make it to the front page of all the major >>newspapers and also will tickle the fancy of all the >>big-name TV anchors. Parkinson's will become a >>household word if we do THIS!! Ready? Here's >>what we gotta do: >> >>To make Parkinson's and those of us who live >>with this %#@^& disease VISIBLE and FAMOUS >>(which theoretically would also bring in the much >>needed research bucks so a cure and/or treatment >>may be found) , errrrrr.... I digress... is to hold a >> world-wide ICE CREAM EAT-A-THON! >> >>I can see the headlines now: "Millions of Parkinson's >>sufferers and their families and friends vow to >>non-stop eat ice cream till a CURE to the disease >>is found." (Choice of flavors left up to the eater) <smile> >> >>Heck.... we can get Ben and Jerry to be our spokespersons! >> >>Barb Mallut (who absolutely LOVES ice cream!) >>[log in to unmask] >> >>-----Original Message----- >>From: Hilary Blue <[log in to unmask]> >>To: [log in to unmask] <[log in to unmask]> >>Date: Monday, April 19, 1999 1:07 AM >>Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent? >> >> >>>I recently met somebody who works for one of the advocacy groups >>in Washington >>>DC, where her job is (believe it or not_) to keep things OUT OF >>the news >>>media. Well, as publicity is her field, I asked her what we were >>doing wrong. >>>First of all, she confessed she had never heard of Archbishop >>Tutu and had no >>>idea of who he was or what he was famous for - which may be >>indicative of why >>>we elicited no response (!) but more importantly, she said we >>were not doing >>>anything wrong , we were on the right track, we just HADNT DONE >>ENOUGH! That >>>we should have frequent press releases., for every little event >>and occurrence >>>relating to PD, so that it is constantly in the eye of the news >>media, And >>>that we should get some celebrity - she mentioned Michael J Fox >>( him she had >>>heard of) to speak out on our behalf. And she assumed we had a >>full time press >>>officer - does any of the PD organisations have a press officer >>on its exec? >>>Hilary Blue >>> >>>*************************************************************** ** >>***** >>> >>>Ivan M Suzman wrote: >>>> >>>> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) >>>> Ivan Suzman 49/39/36 [log in to unmask] :-) >>>> Portland, Maine land of lighthouses 39 deg. F >>:-) >>>> >>**************************************************************** ** >>** >>>> I am DISGUSTED that the Tutu-PD story has been ignored >>>> by the major media! But I am NOT surprised. >>>> >>>> As an anthropologist, I wish to record the observation here >>>> that, as far as I am aware, we listmembers contacted more than >>1000 >>>> media worldwide. Killings in Yugoslavia get banner headlines, >>>> but as far as I am aware, NO phone calls, ZERO, have come to >>>> either Archbishop Tutu's offices, or to my house, to cover >>>> the story of his powerful and wonderful response to our >>>> pleas for his support. I believe Barb Patterson had the >>>> only radio interview, but it brushed aside the Tutu story. >>>> >>>> We simply are NOT on the agenda of the media, >>>> unless we are convenient "filler" material. I wonder >>>> if we could change that with a press conference, >>>> BLASTING the major media. Or we send a delegation >>>> in wheelchairs to block the doors of the NIH Director. >>>> >>>> It was actions like this that made AIDS an "agenda >>>> item." Is PROTEST, rather than persuasiveness, the >>>> only way to get the attention we deserve? >>>> >>>> I personally believe that we can, and we >>>> should, add the element of a protest, an outcry, >>>> at this time. >>>> >>>> Locally, in Maine, a tiny black-owned and edited >>>> bimonthly, The Bridge, right here in Portland, IS about >>>> to print the Tutu-PD story. But ALL of the TV and >>>> radio and newspapers have ignored it. >>>> >>>> The African-American editor of the Bridge hopes to >>publish >>>> by the end of this month. We served as two of Portland's >>>> three co-chairpersons on the Martin Luther King >>>> Holiday Committee in 1986. >>>> >>>> There are so many obstacles for PWP's to gain >>>> access to the media. I would have thought a Nobel >>>> Laureate and WORLD figure like Archbishop Tutu >>>> would be interviewed, even if little Ivan doesn't seem >>>> to matter to them. >>>> >>>> And where have Mr. Fox and his publicity gotten >>>> us? When Robin Elliot relays that NOBODY from >>>> our community is on the NIH council, what IS the >>>> message we should derive? >>>> >>>> For me, now starting to deteriorate, in my 14th >>>> year of Young Onset PD, or YOPD + something >>>> unknown, I can only say that it is my near collapse >>>> last Friday and my continuing vulnerability that push >>>> me to say that, >>>> >>>> although we have come a long, long, way, >>>> there are still HUGE obstacles in our paths, and >>>> only the brave and spiritually strong will >>>> help us along to reach our "mountaintop," >>>> that is, the CURE for this wretched disease! >>>> >>>> Ivan Suzman >>>> Portland, Maine >>> > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses deg. F :-) >***************************************************************** *** >