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Brian- This is an interesting survey and I am looking forward to seeing the data you compile. I would be especially be interested in hearing about dystonia and agonists. Charlie Brian Collins wrote: > I think we can answer these questions. > > What we need is for as many members of this list as possible to complete the > response form at the end of this e-mail. I have not seen this attempted > before (maybe it can't be done) but let's make the attempt. > > Problem areas: A key question is 'What is the maximum safe dosage of > whatever drug you are using?' This is bound to be a moving feast in > practice: for instance; when I was taking 2 mg of Permax, my neurologist > told me that about 4 mg would be the maximum safe level. When I reached > 4mg , he told me that people were taking up to 12 mg. I am very grateful > to these pioneers for effectively opening-up my future by several years. > > If we get enough of a response to make a useful analysis I will attempt > to do so, and will make the data available to anyone who asks for it. Of > course any results will be published in the list. > > Questions: > > 1/ Which Dopamine Agonist are you taking? Now Requip 16 mg/day (and > decreasing) Took Mirapex x 6 months at 4.5 mg/day. Prior to that Parlodel 30 > mg /day. > > 2/ When did you start taking it? (Requip- approx 1 year) > > 3/ When were you diagnosed as having PD? 1989 > > 4/ What was your age when diagnos? 44 > > 5/ When do you believe (with hindsight) that you experienced first symptoms? > 1984 > > 6/ What is your present daily intake of levodopa? (Sinemet, Madopar) 7-800 mg > > 7/ What is your present daily intake of Dopamine Agonist? 16 mg > > 8/ Has your neurologist advised you of the max. safe dose for your agonist? We > have experimented above the PDR suggested maximum with worsening dystonia. > Reached as high as 33 mg/day. > > -- > Brian Collins <[log in to unmask]> -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************