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Hi! My name is Karen, 43 yrs old, dx. last december at Mayo Clinic in Scottsdale. After 5-6 yrs. of obvious PD symptoms my husband and I diagnosed ourselves, ( and 6 doctors, including 3 neurologists who told me everything from "your depressed " to "IF YOUR HERE LOOKING FOR DISABILITY WE DON'T DO THAT HERE!!!!), The doctors at Mayo clinic knew within the first 5 minutes it was PD. Of course they ran every tests imaginable to rule out PD look-a-likes, but we all knew it was PD. If you would like to ask me any questions or correspond with me I would love to help in any way possible. Your Friend, Karen Ivan M Suzman wrote: > Dear friends, > > I am interested in compiling a list of Young Onset PWP's(defined only > for the purposes of this project as having visible PD symptoms before > age 40) who have been enduring visible symptoms for 8 years or more, and > who would like to form a vocal and visible "Parkinson's Liberation" > group. The primary focus would be MAJOR MEDIA COVERAGE. > > I hope this group does not exclude anyone unfairly. I am simply of the > opinion that younger people have many years of tragedy to endure, greater > energies, and that 8 or more years of enduring PD-related hardships at > an early age gives us very special clout. > > I do not mean to include or exclude any particular PWP's,. and hope > noone is upset by this somewhat arbitrarily-limited group. I am hoping > to be present at the Massachusetts area YOPD meeting this Saturday, at > Newton-Wellesley Hospital at 1 PM, and would be glad to talk to anyone > during or after the coffee hour, after Sonia Neilsen's program has > concluded. > > Thank you for your understanding, > > Ivan Suzman (49/39/36)