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HI Ann,

My situation is complicated in that I am a participant in a double blind fetal implant study but
when nothing else was helpful my Dr. and I (partly at my suggestion) decided to try higher than
usual doses.  My dystonia which was already bad got significantly worse even though it was our
operating assumption that the dystonia was occurring because of lack of dopamine rather than
excess (either is possible).  I am making an attempt to decrease my requip and l-dopa as much as
possible.  While I have had some bad days with the decrease I also have had some very good
ones.  I suspect it is related to a graft which sometimes works ok.

Therefore my case is likely not typical.  In the meantime I am scheduled for STN DBS on May 18.

Charlie


serenityplus wrote:

> Hi,
> May I ask why you are especially interested in dystonia and agonists.
> Have they been prevalent in causing or worsening dystonia?
>
> Ann
>
> Charles T. Meyer, M.D. wrote:
> >
> > Brian-  This is an interesting survey and I am looking forward to seeing the
> > data you compile. I would be especially be interested in hearing about dystonia
> > and agonists.
> > --
> > ******************************************************************************************
> >
> > Charles T. Meyer,  M.D.
> > Middleton (Madison), Wisconsin
> > [log in to unmask]
> > ******************************************************************************************

--
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Charles T. Meyer,  M.D.
Middleton (Madison), Wisconsin
[log in to unmask]
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