 |
 |
Dear Karen, What desert are you in? Just curious cause I lived in Palm Desert for some time. I am 41 and was diagnosed this Jan. I live in a rural area in NC now and have had many of the same resposnses. Not a support group t o be found here. Just got a number you might call however. Young Onset foundation or something like that in Illinois. Lady who answers the phne is Susan Reese. You can ask questions and find out info about other YOP 800-223-7776. I plan to call today myself. I am more than willing to chat with you and I think you will find many others on this list as well. Hang in there. Jennifer Mark Bastian wrote: > My name is Karen, 43 yr. old, dx. last December 98. Ive known I had PD > for 4-5 yrs. > Doctors in my tiny town in the desert ignored my symtoms,neurologists > did not take me seriously either. My only support group here is made up > of much older PD patients, who also do not take me seriously. Some have > even questioned if I really do have PD because I am so young compared > to them. I think the youngest in the support group is in his > mid-sixties. I can understand their doubt, but I am still a curious > sight to them. I've had full blown obvious symptoms for over a year, > however as I have said, my symptoms started 4-5 yrs. ago. > I would really appeciate ANYONE who is willing to chat with me who is > YOP. I have no one here to support me with this much misunderstood thing > called YOP... > Sincerely and Thank You All. > KAREN