Marling, welcome back -- I'm so glad to hear you have home help, and that you're out walking more. I really appreciate your letting us know how you're doing. My very best regards, Kathrynne Marling McReynolds wrote: > > Well, > I've been off for nearly a month. That is to say, I've been off line > and pd-off for nearly a month. Between life's wonderful (sometimes not) > experiences and this stupid unrelenting disorder/disease, I have not > been doing much of anything except suffering (and not silently I might > add -- I hate pain). > > Now for the good news. Yes, there is Good news. I have have a > half-time care giver. That is IHSS (in home support services) is now > paying a young woman 20 hours per week to help care for me. She cooks, > cleans house, does laundry, and does me (that is massage, exercise and > skin rubs as needed). I feel as if I am now living in the lap of > luxury. She is also living with me. She lives in my attic rooms and > works an additional 10 hours a week to pay for her rent. So, I now have > at least 30 hours per week of help as well as having my son here. WOW > > On the sad (but not necessarily bad) side is the shower chair I am using > regularly and the walker which I only need occassionaly but have here > for emergency times. What a month. However, I feel that I am getting > along better than before. Karri also gets me out walking more than > before as well. > > I just thought I would let you all know that I am still around. > Marling McReynolds > 50yr, diag 4yr, symp nearly 10yr, such fun -- Kathrynne Holden, MS, RD Medical nutrition therapy http://www.nutritionucanlivewith.com/ "We are living in a world today where lemonade is made from artificial flavors and furniture polish is made from real lemons." --Alfred E. Newman