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Marling, welcome back -- I'm so glad to hear you have home help, and
that you're out walking more. I really appreciate your letting us know
how you're doing.
My very best regards,
Kathrynne

Marling McReynolds wrote:
>
> Well,
> I've been off for nearly a month.  That is to say, I've been off line
> and pd-off for nearly a month.  Between life's wonderful (sometimes not)
> experiences and this stupid unrelenting disorder/disease, I have not
> been doing much of anything except suffering (and not silently I might
> add -- I hate pain).
>
> Now for the good news.  Yes, there is Good news.  I have have a
> half-time care giver.  That is IHSS (in home support services) is now
> paying a young woman 20 hours per week to help care for me.  She cooks,
> cleans house, does laundry, and does me (that is massage, exercise and
> skin rubs as needed).  I feel as if I am now living in the lap of
> luxury. She is also living with me.  She lives in my attic rooms and
> works an additional 10 hours a week to pay for her rent.  So, I now have
> at least 30 hours per week of help as well as having my son here.   WOW
>
> On the sad (but not necessarily bad) side is the shower chair I am using
> regularly and the walker which I only need occassionaly but have here
> for emergency times.  What a month.  However, I feel that I am getting
> along better than before.  Karri also gets me out walking more than
> before as well.
>
> I just thought I would let you all know that I am still around.
> Marling McReynolds
> 50yr, diag 4yr, symp nearly 10yr, such fun

--
Kathrynne Holden, MS, RD
Medical nutrition therapy
http://www.nutritionucanlivewith.com/
    "We are living in a world today where
      lemonade is made from artificial flavors and
      furniture polish is made from real lemons."   --Alfred E. Newman