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Hi Janet,
    You are so right. I just got myself a cane for the days that I am off.
It breaks the ice,and makes it easy to talk about. Then I don't feel bad and
think that people are looking at me funny and wondering if I am drunk. I met
a real nice lady this way and had a great talk. She was happy to have some
one to talk to that also had a cane. She had arthritis. Janice 51/50/46

----- Original Message -----
From: janet paterson <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, April 18, 1999 9:58 AM
Subject: Re: Sorting out the Agonists- 2 / pd power


> hi all
>
> At 11:23 1999/04/18 EDT, marie wrote, in part:
> >Hi All! I've been watching the replies to  the agonist survey
> >and the only real problems I see - endured by all PWP's - is
> >the variable WAYS the DR. are approaching the situation  of
> >prescribing for the symptoms.  True, each individual is a
> >variable themselves, but the medical community should be a main
> >source for tabulating the variables and finding some common
> >answers - but they haven't...
>
> they 'should' but they haven't
>
> part of that may be due to us folks with pd [present and past]
> wanting to hide the symptoms away in shame and anger
> [which i hope is a downward trend]
>
> not to say we've caused the ignorance which is pretty widespread out there
> but it surely hasn't helped to dispel any either
>
> i have pd
> i tell everyone i meet for longer than half an hour that i have it
> which usually results in a conversation that feels good on both sides
>
> we have to be our own best advocates
>
> pd visibility = pd awareness = pd knowledge = pd power
>
>
> janet
>
> janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
> 613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
>
> Scan some of My Past Posts at:
>      http://www.newcountry.nu/pd/members/janet/index.htm
> Mine the PD List Archives at:
>      http://james.parkinsons.org.uk/
> Cull Nine Million Pub-Med Medical Studies at:
>      http://www.ncbi.nlm.nih.gov/PubMed/
> Comb the 'People With Parkinson's' Web-Ring at:
>      http://www.webring.org/cgi-bin/webring?ring=parkie;list
>