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Dear Stephanie, I just had one suggestion for you. At the end of your message you mentioned that you sometimes forget to take your meds. I got a watch at Walmart (about $22.00) that has an alarm on it and I carry a pill box in my pocket. Now I don't forget. Hope that helps you. The only bummer was figuring out how to make the thing work but once I did that it has really helped. Jennifer stephanie m dorsch wrote: > I have been diagnosed with parkinsons for 12 years . the problem then was " > I was too young" .to have it at 48. I know it gradually crept upon me for > atleast 5 years earlier.. Because I have begun to fall so much ".My > parkinsons is on the left side.", I have begun magnetic therapy. I > I have broken my left arm twice in october 98 , my 4-5 or 5-6 ribs a few > months later and falling flat on my back, without warning. This progressed > to my falling so much on my knees that i could not kneel nor turn around in > bed easily. I had to change my way of sleeping too. > My husband retired now does everything. I know I am a great weight on him. > I am on unchartered waters with the magnetic therapy. > I was originally slated to 150 hours on the bed. After 80+ hours, it was > decided after evaluation that I should reduce my meds and take a 6 week rest > from the therapy. > I wear knee pads that I baught at the sports store. Picture an almost 60 > year old woman with black sweat suit white sneakers and white knee pads > shopping. the nice thing about aging is you can get away with being ecentric > . > I wear the knee pads all day to insure if i fall it will lessen the trama to > my knees and it has. Now I have got to come up with padding around my > hips........." Now isn't that interesting"....we exercise to keep from > having big hips now I am wanting padded hips. > I go to a therapist once a week , he is stimied because of my strength in > muscle tone. Why am I falling? > What is happening with me since my last treatment on thursday. Nothing , > except i am tired. i was so tired, yesterday , I just wanted to sleep or lay > on my bed. I have a regualr cane that i use to help support myself. i have > the 4 prong one as well, and don't use because of the way I walk I entangel > myself in the feet. > Using the walker, I promply fell back and I think you can picture my delima. > The walker is on top of me.Finally, the therapist doesnot want me to go into > a wheel chair and to be truthful i do not want to either. > At this time my caretakers suggest my slowing down, because the majority of > the falls occurr when I forget and am resuming my busy way of doing things. > "I think it is funny that after 12 years of taking pills. that when i am > feeling good! I still forget to take then on time. > Ivan, I will take part in what you are planning to do, just tell me. > L&K S > > -----Original Message----- > From: Ivan M Suzman <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Thursday, April 15, 1999 2:17 AM > Subject: visible symptoms of Young Onset for 8 years or more > > >Dear friends, > > > > I am interested in compiling a list of Young Onset PWP's(defined only > >for the purposes of this project as having visible PD symptoms before > >age 40) who have been enduring visible symptoms for 8 years or more, and > >who would like to form a vocal and visible "Parkinson's Liberation" > >group. The primary focus would be MAJOR MEDIA COVERAGE. > > > > I hope this group does not exclude anyone unfairly. I am simply of the > >opinion that younger people have many years of tragedy to endure, greater > >energies, and that 8 or more years of enduring PD-related hardships at > >an early age gives us very special clout. > > > > I do not mean to include or exclude any particular PWP's,. and hope > >noone is upset by this somewhat arbitrarily-limited group. I am hoping > >to be present at the Massachusetts area YOPD meeting this Saturday, at > >Newton-Wellesley Hospital at 1 PM, and would be glad to talk to anyone > >during or after the coffee hour, after Sonia Neilsen's program has > >concluded. > > > >Thank you for your understanding, > > > >Ivan Suzman (49/39/36) > >