 |
 |
Barb, Well, I suppose i might...BRING ON THE ICE CREAM! On Mon, 19 Apr 1999 17:54:08 -0700 Barb_MSN <[log in to unmask]> writes: >Sooooo, Ivan, does this mean ya LIKE the idea? <grin> (Just a wild >guess on my part... ) > >Barb Mallut >[log in to unmask] > >-----Original Message----- >From: Ivan M Suzman <[log in to unmask]> >To: [log in to unmask] <[log in to unmask]> >Date: Monday, April 19, 1999 4:23 PM >Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent? > > >>Lemme see.......my favorite flavor is COCONUT. >>Darn, I'll ask BEN or JERRY to fly me to the Islands, >>so that Lisa Crumrine and I can PIG out together >>on ice cream--and it will be too WARM for me to >>be FROZEN UP. >> >>Then again, if I eat too much ice cream, I >>might get an attack of hyper-glaceeamia. >> >>Or is it hypo-glaceemia-that sugar craving- >>satisfied only by un coup de glace on the >>occipital bone. >> >>Is it COOL to wear gloves while eating >>COCONUT ice cream, to protect me from >>hypoglaceeamia in ze tropics? >> >>Which color, excuse me, couleur of >>bathing suit do I wear? Pink with white >>edges-a la James Parkinson tulip? >> >>Can we have HOURGLASS competition >>to see who can stuff the most ice cream >>in? Or would a flamer like me need a >>flaming torch? >> >>Flambeau anybody? Hey WAIT A MINIM. >>how about BAKED Alaska-eating orgies? >> >>The flames might get rid of my hypothermia! >>But I am still perplexed--will Cher Bono be >>thre. or do I get to make the fashion statement?? >> >>Ivan gone stark raving drooling mad at the >>thought of an ICE-CREAM MARATHON >>for MAJOR MEDIA ACTION. I.M.M.M.A. for short. >> >>Buttons with slogans that say Eat Ice >>Cream and Cure PD; banners in parades; >> >>SUGAR cones with every 6 refills of >>Sinemet Ice Cream PIES made of lemon >>sherbet - or sorbait - for Sinemet; Coconut >>Ice for Eldepryl; and the SLOGAN of a >>lifetime-- >> >>"LET's LICK THIS DAMN DISEASE! >> >>Ivan the mad Maniac >> >>wear? >> >>On Mon, 19 Apr 1999 10:57:30 -0700 Barb_MSN ><[log in to unmask]> >>writes: >>>Dear Hilary 'n Ivan.... >>> >>>I've got THEE perfect world-wide-attention-grabber >>>that'll make all of us sweet-treat and ice-cream guzzling >>>Parkies make it to the front page of all the major >>>newspapers and also will tickle the fancy of all the >>>big-name TV anchors. Parkinson's will become a >>>household word if we do THIS!! Ready? Here's >>>what we gotta do: >>> >>>To make Parkinson's and those of us who live >>>with this %#@^& disease VISIBLE and FAMOUS >>>(which theoretically would also bring in the much >>>needed research bucks so a cure and/or treatment >>>may be found) , errrrrr.... I digress... is to hold a >>> world-wide ICE CREAM EAT-A-THON! >>> >>>I can see the headlines now: "Millions of Parkinson's >>>sufferers and their families and friends vow to >>>non-stop eat ice cream till a CURE to the disease >>>is found." (Choice of flavors left up to the eater) <smile> >>> >>>Heck.... we can get Ben and Jerry to be our spokespersons! >>> >>>Barb Mallut (who absolutely LOVES ice cream!) >>>[log in to unmask] >>> >>>-----Original Message----- >>>From: Hilary Blue <[log in to unmask]> >>>To: [log in to unmask] ><[log in to unmask]> >>>Date: Monday, April 19, 1999 1:07 AM >>>Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent? >>> >>> >>>>I recently met somebody who works for one of the advocacy >groups >>>in Washington >>>>DC, where her job is (believe it or not_) to keep things OUT OF >>>the news >>>>media. Well, as publicity is her field, I asked her what we >were >>>doing wrong. >>>>First of all, she confessed she had never heard of Archbishop >>>Tutu and had no >>>>idea of who he was or what he was famous for - which may be >>>indicative of why >>>>we elicited no response (!) but more importantly, she said we >>>were not doing >>>>anything wrong , we were on the right track, we just HADNT DONE >>>ENOUGH! That >>>>we should have frequent press releases., for every little event >>>and occurrence >>>>relating to PD, so that it is constantly in the eye of the news >>>media, And >>>>that we should get some celebrity - she mentioned Michael J >Fox >>>( him she had >>>>heard of) to speak out on our behalf. And she assumed we had a >>>full time press >>>>officer - does any of the PD organisations have a press officer >>>on its exec? >>>>Hilary Blue >>>> >>>>*************************************************************** >** >>>***** >>>> >>>>Ivan M Suzman wrote: >>>>> >>>>> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) >>>>> Ivan Suzman 49/39/36 [log in to unmask] :-) >>>>> Portland, Maine land of lighthouses 39 deg. F >>>:-) >>>>> >>>**************************************************************** >** >>>** >>>>> I am DISGUSTED that the Tutu-PD story has been ignored >>>>> by the major media! But I am NOT surprised. >>>>> >>>>> As an anthropologist, I wish to record the observation here >>>>> that, as far as I am aware, we listmembers contacted more >than >>>1000 >>>>> media worldwide. Killings in Yugoslavia get banner >headlines, >>>>> but as far as I am aware, NO phone calls, ZERO, have come to >>>>> either Archbishop Tutu's offices, or to my house, to cover >>>>> the story of his powerful and wonderful response to our >>>>> pleas for his support. I believe Barb Patterson had the >>>>> only radio interview, but it brushed aside the Tutu story. >>>>> >>>>> We simply are NOT on the agenda of the media, >>>>> unless we are convenient "filler" material. I wonder >>>>> if we could change that with a press conference, >>>>> BLASTING the major media. Or we send a delegation >>>>> in wheelchairs to block the doors of the NIH Director. >>>>> >>>>> It was actions like this that made AIDS an "agenda >>>>> item." Is PROTEST, rather than persuasiveness, the >>>>> only way to get the attention we deserve? >>>>> >>>>> I personally believe that we can, and we >>>>> should, add the element of a protest, an outcry, >>>>> at this time. >>>>> >>>>> Locally, in Maine, a tiny black-owned and edited >>>>> bimonthly, The Bridge, right here in Portland, IS about >>>>> to print the Tutu-PD story. But ALL of the TV and >>>>> radio and newspapers have ignored it. >>>>> >>>>> The African-American editor of the Bridge hopes to >>>publish >>>>> by the end of this month. We served as two of Portland's >>>>> three co-chairpersons on the Martin Luther King >>>>> Holiday Committee in 1986. >>>>> >>>>> There are so many obstacles for PWP's to gain >>>>> access to the media. I would have thought a Nobel >>>>> Laureate and WORLD figure like Archbishop Tutu >>>>> would be interviewed, even if little Ivan doesn't seem >>>>> to matter to them. >>>>> >>>>> And where have Mr. Fox and his publicity gotten >>>>> us? When Robin Elliot relays that NOBODY from >>>>> our community is on the NIH council, what IS the >>>>> message we should derive? >>>>> >>>>> For me, now starting to deteriorate, in my 14th >>>>> year of Young Onset PD, or YOPD + something >>>>> unknown, I can only say that it is my near collapse >>>>> last Friday and my continuing vulnerability that push >>>>> me to say that, >>>>> >>>>> although we have come a long, long, way, >>>>> there are still HUGE obstacles in our paths, and >>>>> only the brave and spiritually strong will >>>>> help us along to reach our "mountaintop," >>>>> that is, the CURE for this wretched disease! >>>>> >>>>> Ivan Suzman >>>>> Portland, Maine >>>> >> >>^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) >> Ivan Suzman 49/39/36 [log in to unmask] :-) >> Portland, Maine land of lighthouses deg. F :-) >>***************************************************************** >*** >> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************