dear Barb, I am not a big ice cream eater, but I do like fat boys they are about a two inch thick ice cream sandwich. Janice ----- Original Message ----- From: Barb_MSN <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, April 19, 1999 5:54 PM Subject: Ice Cream Eat-A-Thon for PD > Sooooo, Ivan, does this mean ya LIKE the idea? <grin> (Just a wild > guess on my part... ) > > Barb Mallut > [log in to unmask] > > -----Original Message----- > From: Ivan M Suzman <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Monday, April 19, 1999 4:23 PM > Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent? > > > >Lemme see.......my favorite flavor is COCONUT. > >Darn, I'll ask BEN or JERRY to fly me to the Islands, > >so that Lisa Crumrine and I can PIG out together > >on ice cream--and it will be too WARM for me to > >be FROZEN UP. > > > >Then again, if I eat too much ice cream, I > >might get an attack of hyper-glaceeamia. > > > >Or is it hypo-glaceemia-that sugar craving- > >satisfied only by un coup de glace on the > >occipital bone. > > > >Is it COOL to wear gloves while eating > >COCONUT ice cream, to protect me from > >hypoglaceeamia in ze tropics? > > > >Which color, excuse me, couleur of > >bathing suit do I wear? Pink with white > >edges-a la James Parkinson tulip? > > > >Can we have HOURGLASS competition > >to see who can stuff the most ice cream > >in? Or would a flamer like me need a > >flaming torch? > > > >Flambeau anybody? Hey WAIT A MINIM. > >how about BAKED Alaska-eating orgies? > > > >The flames might get rid of my hypothermia! > >But I am still perplexed--will Cher Bono be > >thre. or do I get to make the fashion statement?? > > > >Ivan gone stark raving drooling mad at the > >thought of an ICE-CREAM MARATHON > >for MAJOR MEDIA ACTION. I.M.M.M.A. for short. > > > >Buttons with slogans that say Eat Ice > >Cream and Cure PD; banners in parades; > > > >SUGAR cones with every 6 refills of > >Sinemet Ice Cream PIES made of lemon > >sherbet - or sorbait - for Sinemet; Coconut > >Ice for Eldepryl; and the SLOGAN of a > >lifetime-- > > > >"LET's LICK THIS DAMN DISEASE! > > > >Ivan the mad Maniac > > > >wear? > > > >On Mon, 19 Apr 1999 10:57:30 -0700 Barb_MSN > <[log in to unmask]> > >writes: > >>Dear Hilary 'n Ivan.... > >> > >>I've got THEE perfect world-wide-attention-grabber > >>that'll make all of us sweet-treat and ice-cream guzzling > >>Parkies make it to the front page of all the major > >>newspapers and also will tickle the fancy of all the > >>big-name TV anchors. Parkinson's will become a > >>household word if we do THIS!! Ready? Here's > >>what we gotta do: > >> > >>To make Parkinson's and those of us who live > >>with this %#@^& disease VISIBLE and FAMOUS > >>(which theoretically would also bring in the much > >>needed research bucks so a cure and/or treatment > >>may be found) , errrrrr.... I digress... is to hold a > >> world-wide ICE CREAM EAT-A-THON! > >> > >>I can see the headlines now: "Millions of Parkinson's > >>sufferers and their families and friends vow to > >>non-stop eat ice cream till a CURE to the disease > >>is found." (Choice of flavors left up to the eater) <smile> > >> > >>Heck.... we can get Ben and Jerry to be our spokespersons! > >> > >>Barb Mallut (who absolutely LOVES ice cream!) > >>[log in to unmask] > >> > >>-----Original Message----- > >>From: Hilary Blue <[log in to unmask]> > >>To: [log in to unmask] > <[log in to unmask]> > >>Date: Monday, April 19, 1999 1:07 AM > >>Subject: Re: The Tutu-PD story: Are the MAJOR MEDIA indifferent? > >> > >> > >>>I recently met somebody who works for one of the advocacy > groups > >>in Washington > >>>DC, where her job is (believe it or not_) to keep things OUT OF > >>the news > >>>media. Well, as publicity is her field, I asked her what we > were > >>doing wrong. > >>>First of all, she confessed she had never heard of Archbishop > >>Tutu and had no > >>>idea of who he was or what he was famous for - which may be > >>indicative of why > >>>we elicited no response (!) but more importantly, she said we > >>were not doing > >>>anything wrong , we were on the right track, we just HADNT DONE > >>ENOUGH! That > >>>we should have frequent press releases., for every little event > >>and occurrence > >>>relating to PD, so that it is constantly in the eye of the news > >>media, And > >>>that we should get some celebrity - she mentioned Michael J > Fox > >>( him she had > >>>heard of) to speak out on our behalf. And she assumed we had a > >>full time press > >>>officer - does any of the PD organisations have a press officer > >>on its exec? > >>>Hilary Blue > >>> > >>>*************************************************************** > ** > >>***** > >>> > >>>Ivan M Suzman wrote: > >>>> > >>>> ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > >>>> Ivan Suzman 49/39/36 [log in to unmask] :-) > >>>> Portland, Maine land of lighthouses 39 deg. F > >>:-) > >>>> > >>**************************************************************** > ** > >>** > >>>> I am DISGUSTED that the Tutu-PD story has been ignored > >>>> by the major media! But I am NOT surprised. > >>>> > >>>> As an anthropologist, I wish to record the observation here > >>>> that, as far as I am aware, we listmembers contacted more > than > >>1000 > >>>> media worldwide. Killings in Yugoslavia get banner > headlines, > >>>> but as far as I am aware, NO phone calls, ZERO, have come to > >>>> either Archbishop Tutu's offices, or to my house, to cover > >>>> the story of his powerful and wonderful response to our > >>>> pleas for his support. I believe Barb Patterson had the > >>>> only radio interview, but it brushed aside the Tutu story. > >>>> > >>>> We simply are NOT on the agenda of the media, > >>>> unless we are convenient "filler" material. I wonder > >>>> if we could change that with a press conference, > >>>> BLASTING the major media. Or we send a delegation > >>>> in wheelchairs to block the doors of the NIH Director. > >>>> > >>>> It was actions like this that made AIDS an "agenda > >>>> item." Is PROTEST, rather than persuasiveness, the > >>>> only way to get the attention we deserve? > >>>> > >>>> I personally believe that we can, and we > >>>> should, add the element of a protest, an outcry, > >>>> at this time. > >>>> > >>>> Locally, in Maine, a tiny black-owned and edited > >>>> bimonthly, The Bridge, right here in Portland, IS about > >>>> to print the Tutu-PD story. But ALL of the TV and > >>>> radio and newspapers have ignored it. > >>>> > >>>> The African-American editor of the Bridge hopes to > >>publish > >>>> by the end of this month. We served as two of Portland's > >>>> three co-chairpersons on the Martin Luther King > >>>> Holiday Committee in 1986. > >>>> > >>>> There are so many obstacles for PWP's to gain > >>>> access to the media. I would have thought a Nobel > >>>> Laureate and WORLD figure like Archbishop Tutu > >>>> would be interviewed, even if little Ivan doesn't seem > >>>> to matter to them. > >>>> > >>>> And where have Mr. Fox and his publicity gotten > >>>> us? When Robin Elliot relays that NOBODY from > >>>> our community is on the NIH council, what IS the > >>>> message we should derive? > >>>> > >>>> For me, now starting to deteriorate, in my 14th > >>>> year of Young Onset PD, or YOPD + something > >>>> unknown, I can only say that it is my near collapse > >>>> last Friday and my continuing vulnerability that push > >>>> me to say that, > >>>> > >>>> although we have come a long, long, way, > >>>> there are still HUGE obstacles in our paths, and > >>>> only the brave and spiritually strong will > >>>> help us along to reach our "mountaintop," > >>>> that is, the CURE for this wretched disease! > >>>> > >>>> Ivan Suzman > >>>> Portland, Maine > >>> > > > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > > Ivan Suzman 49/39/36 [log in to unmask] :-) > > Portland, Maine land of lighthouses deg. F :-) > >***************************************************************** > *** > > >