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Hi, Ivan I am a young onset too. I am 45. The first simptoms were noticed 8 years ago, slight rigidity in right arm, difficulties in handwriting, speech, slowness. I was diagnosed at age 41 with PD, but I am seeking a movement disorder specialist in Europe, for second opinion, for sure diagnosis. If my participation in this group can help, please let me know Thank you Sandor ----Eredeti üzenet---- Feladó: Ivan M Suzman <[log in to unmask]> Címzett: [log in to unmask] <[log in to unmask]> Dátum: 1999. április 15. 8:13 Tárgy: visible symptoms of Young Onset for 8 years or more >Dear friends, > > I am interested in compiling a list of Young Onset PWP's(defined only >for the purposes of this project as having visible PD symptoms before >age 40) who have been enduring visible symptoms for 8 years or more, and >who would like to form a vocal and visible "Parkinson's Liberation" >group. The primary focus would be MAJOR MEDIA COVERAGE. > > I hope this group does not exclude anyone unfairly. I am simply of the >opinion that younger people have many years of tragedy to endure, greater >energies, and that 8 or more years of enduring PD-related hardships at >an early age gives us very special clout. > > I do not mean to include or exclude any particular PWP's,. and hope >noone is upset by this somewhat arbitrarily-limited group. I am hoping >to be present at the Massachusetts area YOPD meeting this Saturday, at >Newton-Wellesley Hospital at 1 PM, and would be glad to talk to anyone >during or after the coffee hour, after Sonia Neilsen's program has >concluded. > >Thank you for your understanding, > >Ivan Suzman (49/39/36)