hi all
At 10:22 1999/04/29 -0400, barb patterson, list-mom, wrote, in part:
>I am forwarding the message below as requested and because it
>sounds like a great idea to me. Barb...
>
>Would a letter like this written by one of the National PD
>Organization Chairman bring about the first step toward one
>united PD organization? The suggested letter follows. Please
>assume that it is written by the Chairman of one of the
>national groups...
>purpose... is to pursue efforts to open up communications...
>the community we serve speaking out for unity...
>"talking points" that I would like to see presented to our boards...
>to generate as much cooperation as possible between our groups...
this is a great idea
and maybe the only way realistically
to address dealing with the existing pd org 'bureaucracies'
but 'bureaucracy' is coming through pretty clearly
and grates on me
the phrase 'the community we serve' ['us' and 'them'?]
grates on me too
back to the knitting...
why is each org in existence?
what is their mission statement?
to whom do are they responsible in ensuring
that they are successful in carrying out their mission statement?
from whom do they obtain permission for soliciting funds from the public?
what kind of reporting responsibility does that permission entail?
what is the makeup of their board of directors?
how many people with parkinson's are included?
just the humble concerns of
JAnet of PIEnet
another person with Parkinson's disease
janet paterson - 52 now /41 dx /37 onset - [log in to unmask]
613/256/8340 - po box 171/almonte/ontario/k0a 1a0/canada
Scan some of My Past Posts at:
http://www.newcountry.nu/pd/members/janet/index.htm
Mine the PD List Archives at:
http://james.parkinsons.org.uk/
Cull Nine Million Pub-Med Medical Studies at:
http://www.ncbi.nlm.nih.gov/PubMed/
Comb the 'People With Parkinson's' Web-Ring at:
http://www.webring.org/cgi-bin/webring?ring=parkie;list
