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Art... BOING G G! YOU just hit the proverbial nail on the head, m'friend. This wonderful asset that is the Parkinson's Information Exchange isn't being used to it's maximum advantage. It seems our collective and respective intentions are good, however, it appears many of us kinda run out of steam within a short while and either go off on another PD-tangent, or run around in virtual circles, or just plain poop-out altogether. I'm not pointing a finger at anybody - it just seems many of us find it difficult to maintain our initial momentum, and eventually inertia takes over (Hey - lately I'm BIG on inertia) <blush> (GROAN) Then we don't necessarily get INFORMATION being exchanged here on the List, we get folks voicing OPINIONS and sharing feelings along with some snippets of real-time meetings and/or symposiums information. Perhaps we're thinking of the List as kinda like a neighborhood PD support group rather than the multinational Parkinson's Information Exchange that it aspsires to be? Barb Mallut [log in to unmask] -----Original Message----- From: Arthur Hirsch <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Wednesday, April 28, 1999 8:30 PM Subject: Interesting conference >I just read about a conference, described as follows: > >An annual conference designed for people with Parkinson > Disease, their caregivers, family and anyone interested in learning > more about the new medications and current treatment strategies > for Parkinson Disease. Program highlights include how to better > identify the symptoms of Parkinson Disease and side effects of > treatment and how to use this information when communicating > with your doctor. You will learn how to better rely on your > spirituality as a source of strength and ways to improve your > coping skills to maintain control of your life. You will also hear > how laughter can be as important as medication for living a high > quality life. > >Sound interesting? I think so. This WAS the 1999 Kenton Kilmer >Parkinson Disease Symposium, which was held last Wednesday, >21 April, in Milwaukee, Wisconsin. I found it at > >http://www.parkinson.org/990421wi.htm > >Somebody had made the effort to put the web site together. > >You know what's more interesting? It wasn't mentioned here in the >Parkinson's Information Exchange. More correctly I searched through >the archives for 1999 and found no references to "Kenton" or Kilmer" >and no references to this meeting when I found "Milwaukee." > >Nobody took the smaller effort to tell this list. > >We say that we are becoming visible to the world. How can that be >when we remain invisible to one another? If there was ever an easy >way to make ourselves visible to the Parkinson's community, if there >ever was an inexpensive way - - this list is it! > >This conference, as it was described, was put on primarily for the benefit >of the patients, their families and caregivers. You're missing a good bunch >of them by not announcing the conference here. And you might well >wonder how much more we are missing. I certainly do. > >Art >