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Lets not fight

A recent article suggested we reopen the issue of one organization
representing all the people with PD. References were made suggesting one
Board Director write a letter to the others suggesting  formation of one
united organization. As a member of the PD Community in an active attempt to
orchestrate harmony for the last three years that suggestion just will not
ever be entertained or implemented by any of the significant Board Chairman.

It is unrealistic to think that any organization  will dissolve itself in
the current climate.

All efforts in the past to weld together the various elements met with
disaster. In fact there was more disharmony on this list and in the community
when the organizations  were being pushed to merge.

Now no one is really challenging the Nationals and there are all working
productively in their area of expertise. Why rock the boat at this time.

Since the first of the year the Nationals have sponsored 46 new researchers
investigating PD subjects. The NPF calls these seed grants  the PDF and APDA
call them something else but all are making the  grants to get new
researchers with fresh ideas working on a cure for PD.  All the Nationals are
basically working to accomplish this goal in the manner they perceive to be
the most effective use of there skills and talents.

My observation has been that there are not enough researchers in PD subjects
to utilize the full assets available to our community if the Udall Bill is
funded in full. I further believe that the NIH will approve any good quality
grants presented to them. As an example the NPF was presented with requests
for 126 grants for research. Only 16 were meritorious enough to  pass the
Peer review committee and generally the 16 were felt to less than the very
highest quality. It will take someone researching the issue to stumble onto
the cure. WE need to give as many researchers as possible the opportunity to
do this for us.

The latest area of exploration appears to be in the stem cell area. We in the
Parkinson Alliance with our Pennies for Parkinson Campaign would like to
raise  funds to support four research projects in this new area. Join in our
campaign to raise funds for this new and promising research  and lets not
waste time on opening old wounds.

Thanks for reading these musings from one who waded through the battle fields
the last three years for PD projects.

Dale Severance 59/13