 |
 |
Debbie, I am presuming that your mother does have dystonic symptoms. The fact that the muscles are tight and can be loosened up with massage is similar to what I have. Regarding my theory about Requip causing or contributing to the dystonia, I really don't know. I think there is a "therapeutic window" which I may have now fallen through the bottom of. I slowly decreased my requip dose from about 32 mg to 16 mg/day. My sinemet started at about 7 tabs per day and is now at about 10. But there was a time in there when I was at about 18-20 mg of requip and 6 tabs of sinemet. Also my dystonia has been getting worse at night especially. If symptoms stay bad I will probably increase the Requip slightly. The dystonia is the most debilitating symptom I have had of all my 10 years PD. As Bob Fink said in his reply there are Botox injections that are used to relieve symptoms of the illness Dystonia and I presume they can be used for dystonia caused by PD. But that is something a movement disorder specialist would need to answer. I am counting on my STN DBS surgery for relief in a few weeks. Good luck to your mom. Charlie Debbie White wrote: > What exactly is dystonia? Is it rigidity or does it involve cramping or > twisting? > > Charlies Meyer noted in a posting that reducing his Requip helped with the > dystonia. (Someone I correspond with privately also brings up the > possibility that my mom might be overmedicated.) Now I'm wondering whether > my mother Joyce's severe head slump is a type of dystonia -- her neck is > very rigid, as are her shoulders and she cannot even lift her head with > her hands. (The physical therapist can work through the riigidity, however, > and get her head up for a few hours after therapy.) My mother is on a > fairly high dose of Requip and never reduced her Sinemet (in fact, that was > increased a bit). Any info would be appreciated. Thanks. > > Debbie White > > [log in to unmask] -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************