 |
 |
Don't take the time to read this unless you've not much else to do.. just a long rambling summary of my history of visual concerns and an emotional plea to continue the fight.. I'm having a heck of a time typing, but I'm in an ON window of opportunity and for some strange reason feel it's important to share this rather than spend this prescious little ON time to answer friends and other promises I've made (thanks for your tolerance). I feel compelled to share although and I don't think this will "help" anyone other than as a comparison for their experiences - but I hope it might be useful - I wish I knew a neuro opthamologist who might take interest and use our "visual experiences" to help them study the effects of PD drugs. A thought for "newbies": I've learned that not every negative symptom we experience stays with us. - some symptoms come and go away. others may not. I was seeing neuro-opthamologist for a few years due to vision concerns - finally quit seeing him because he couldn't help, but he did explain that dskenisia of the eyes causes the bluring For what it's worth - here's my little history f vision concerns: Double vision started the first 6 mos of using Sinamet, at first only slight (I had a sensitivity to the changing scenes of high action TV shows - as though my eyes couldn't keep up with the changing scenes) then soon, about 3 mos after that, slight double vision started - television showed larger figures overlapping on the TV, but not on anything else I looked at. That progressed however as the two images of one object became more separate and transferred to otther larger objects away from the TV (people, chairs, etc). These visual concerns were not 24 hours a day - but they occurred usually earrly evenings from a few minutes to a few hoiurs daily - clearing up before bedtime. Then I picked up an odd thing (ok, another odd thing) -- I know this is crazy, but I started seeing what I call silver circles at the far right corner of the right eye ( kinda like a concentrated spots of light in a night time photo). They cause discomfort, they just started to appear - no explanation. My neuro (world recognized PD specialist) said he thought it was the drugs - they affect people differantly and I seem to be oversensitive to drugs and drug changes -- couldn't explain why or how). At the time I was on what now seems an overload of eldepryl - highest dose per pill, 4 x's daily + sinamet CR 50/200 3 x's daily that was over 5 years ago or so. The double vision lasted about a year or a little less, and the blurriness has become much more pronounced but much more predictable - it's one of my first warnings that I'm going into a "crash" OFF (my worst kind of OFF). The silver circles happen now when I've been deprived of Sinamet (last dose over 4-5 hours). Otherwise my eyesight is fine. Eyeglasses don't help the blurriness - they just magnify it. I just ask people around to read things to me if I need something read, but ussually I try not to bug others and I I try to wait it out 'til a better time. It cuts back on my enjoyment of the PARKINSN LIST I'm sorry to say (I miss alot of messages). I offer all this little history summarywishing trhat somewhere out there an opthamologist or neuro opthamologist might someday come across this and use it to study the effects of PD drugs on vision -- ha! What a dreamer! smile It's our life, and PD has no right of ownership Our life's worth it - for us and our loved ones Don't stop, you may not be able to move again if you do We must continue the fight aganst PD, even if we feel we can't anymore It won't go away 'til we give it the kick-in-the-butt it deserves for daring to put us through this Hell PD forces us to watch ourselves being slowly and hideously murdered.. Don't let PD get away with our murder maryhelen age 46/ dx at 36