Do any other Parkinsons people suffer from almost continuous jaw pain,
which seem to increase in severity when medication wears off? When at
its worst it also includes right up the head "as if it is going to
burst", and sometimes the neck also.
This seemed to get much worse after stopping Tasmar (Tolcapone) and
replacing it with 5 x 200mg Entacapone, but Tasmar is no longer
available in the UK.
Other medication is 10 x 62.5 Madopar in 5 doses, and
4 1/2 x 1000mg Pergolide.
No medication is taken at night, and slow-release Madopar and Sinemet
have both been tried but make it unbearable.
Sleep is disturbed nightly after about 4 hours with this pain, also
often cramps in the arms. The jaw is sensitive to the touch of
bedclothes, and spicy foods or wine seem to make it worse too.
Nothing seems to work on this pain so any ideas would be a help.
Recent weight loss is also of concern as this has been fairly rapid.
Can anyone help as Jack is just about desperate now?
He is 63, diagnosed 9 years, previously only tremor in hands, but in
last year has started tremor in the jaw although the pain has been there
some years off and on - now on, on, on.
Ed, wife and carer for
Jack
