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Thanks Susan for a great project that means a lot.. And thanks to SImon and the Coles. Ivan On Thu, 27 May 1999 18:12:18 EDT YoungPD I&R <[log in to unmask]> writes: >Subj: Introducing PDKIDS > >Hi Everyone, > >A while ago there was quite a bit of dicussion of this List about the >need >for an Internet List for kids that would allow them to share the same >type of >information & support we give each other on this List. So I thought >the >following announcement would be of interest to everyone. > >If you know of kids who live with a family member who has PD, enourage >them >to send an email to subscribe to PDKIDS. This is a list for all >PDKIDS >through teenage years. > >A special thank you to our friend Simon Coles and the Adreinne Coles >Memorial >Trust for partnering with us on this project. > >The American Parkinson Disease Association Young PD Information and >Referral >Center was created to help the entire family of the person with >young-onset >PD. We think this is a much needed addition to our information & >support >services. > >Susan Reese, RN, LCSW >National Coordinator >American Parkinson Disease Association >Young PD I&R Center >1/800-223-9776 >___________________________ >INTRODUCING PDKIDS > >The American Parkinson Disease Association Young Parkinson's >Information & >Referral Center (http://members.aol.com/apdaypd) in partnership with >the >Adrienne Coles Memorial Trust (http://www.coles.org.uk/) is >sponsoring >PDKIDS, an email discussion list for kids who are living in a family >with >Parkinson's Disease. > >PDKIDS was established as a forum for children (through teenage >years) >affected by PD to have a place to share with each other. Kids may >discuss in >confidence (to the extent that an Internet list will allow) anything >they >wish about living with a parent or grandparent who has PD. > >A word about privacy: Subscriber names and personal email addresses >will be >automatically deleted from email headers posted to the list to ensure >confidentiality. Using the "reply" button to respond to a member's >posted >email will go directly to the PDKIDS list, not to an individual >member. >There will be a "light adult presence" on the list, serving to >provide >technical guidance and to ensure that the conversation remains >constructive. >This "presence" will be provided by the APDA Young Parkinson's >Information & >Referral Center and by Simon Coles, the administrator of the Adrienne >Coles >Memorial Trust and himself an adult PD kid. The list archive is >private to >list members. > > > To join PDKIDS, send an email to > [log in to unmask] > > To discuss Parkinson's Disease in general, please join one of the > lists at http://www.coles.org.uk/community.htm > > To reach the list owners, send an email to > [log in to unmask] ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************