Ti all of you who have made this new resource possible, I thank ou y ou for
far more than you can ever know.
As you know, I have been involved in a months' long battle to regain custody
of my daughters. When i was asked what support I would be able to give them in
the event they did come home, I mentioned the establishment of this list.
This was greeted with much acclaim by the welfare workers involved, as
something that would surely aid my daughters' adjustment to living with a
Parkinsonian mother. THank you for your timely appearance.
Hilary Blue.
PS Jessi is coming home in June, and Jane Amy in August
*******************************
YoungPD I&R wrote:
>
> Subj: Introducing PDKIDS
>
> Hi Everyone,
>
> A while ago there was quite a bit of dicussion of this List about the need
> for an Internet List for kids that would allow them to share the same type of
> information & support we give each other on this List. So I thought the
> following announcement would be of interest to everyone.
>
> If you know of kids who live with a family member who has PD, enourage them
> to send an email to subscribe to PDKIDS. This is a list for all PDKIDS
> through teenage years.
>
> A special thank you to our friend Simon Coles and the Adreinne Coles Memorial
> Trust for partnering with us on this project.
>
> The American Parkinson Disease Association Young PD Information and Referral
> Center was created to help the entire family of the person with young-onset
> PD. We think this is a much needed addition to our information & support
> services.
>
> Susan Reese, RN, LCSW
> National Coordinator
> American Parkinson Disease Association
> Young PD I&R Center
> 1/800-223-9776
> ___________________________
> INTRODUCING PDKIDS
>
> The American Parkinson Disease Association Young Parkinson's Information &
> Referral Center (http://members.aol.com/apdaypd) in partnership with the
> Adrienne Coles Memorial Trust (http://www.coles.org.uk/) is sponsoring
> PDKIDS, an email discussion list for kids who are living in a family with
> Parkinson's Disease.
>
> PDKIDS was established as a forum for children (through teenage years)
> affected by PD to have a place to share with each other. Kids may discuss in
> confidence (to the extent that an Internet list will allow) anything they
> wish about living with a parent or grandparent who has PD.
>
> A word about privacy: Subscriber names and personal email addresses will be
> automatically deleted from email headers posted to the list to ensure
> confidentiality. Using the "reply" button to respond to a member's posted
> email will go directly to the PDKIDS list, not to an individual member.
> There will be a "light adult presence" on the list, serving to provide
> technical guidance and to ensure that the conversation remains constructive.
> This "presence" will be provided by the APDA Young Parkinson's Information &
> Referral Center and by Simon Coles, the administrator of the Adrienne Coles
> Memorial Trust and himself an adult PD kid. The list archive is private to
> list members.
>
> To join PDKIDS, send an email to
> [log in to unmask]
>
> To discuss Parkinson's Disease in general, please join one of the
> lists at http://www.coles.org.uk/community.htm
>
> To reach the list owners, send an email to
> [log in to unmask]
