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Jennifer: Glad you're back safe and sound, and all went well. It must be a great feeling to sense you're getting the neuro best suited for you, I'm happy for you. John Jennifer Smith wrote: > Dear List friends, > got back from Jacksonville about midnght last night. Have been busy all > day with frequent stops on the internet to wade through the many > messages. Got through them all with many to answer. I will, I promise > but most will have to wait till after the weekend. At this point I just > wanted to say hi to all and let you know that I feel I have struck > gold! I saw Dr. Jill Marjama at the University of Florida. A lovely > young doctor who has a very special way of making one feel at ease and > comfortable. For the first time in my search for a movement disorder > specialist, I have found one who really understands the disease, > especially in my case as a young onset (41). she is a good listener as > well as a good explainer (if that is a word) Her recommendations made > good sense, her explanations were concise, to the point, and not given > at a kindergarden level. she gave me a slight alteration in > medication with plenty of room for my own adjustments as I see fit. She > also encourages complete communication by telephone with problems, > questions, comments, whatever. Mostly, in the case of phone calls I > will deal with an equally wonderful person, Bonnie Mylar who is the > nurse coordinator. Any questions she is unable to answer will be > answered by the doctor but I have found Bonnie to be extremely > knowledgeable and totally amiable as well. I just wanted to share with > all of you that I am truly elated about my visit and will be returning > in August for a followup when our season has wound down. > I also enjoyed many of the ongoing conversations while I was gone and > wish I could have been jumping in there just for fun. Welcome to all > the newcomers. And thanks to all the continuing responses to my > previous posts. I will be responding to many of you as soon as > possible. > Jennifer Smith > > -- > Ars Longa - Vita Brevis > Art is Long - Life is short > :(:) )