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-----Oorspronkelijk bericht----- Van: Hans van der Genugten <[log in to unmask]> Aan: Parkinson's Information Exchange <[log in to unmask]> Datum: zaterdag 29 mei 1999 2:29 Onderwerp: L-DOPA SLOWS THE PROGRESSION OF PARKINSON'S DISEASE Hi all, I just posted the press release by the Lancet about this article. In the press release they talk about "PD". In the original article they talk about "familiar parkinsonism responding to L-dopa". I get very angry when professional researchers publish such an article PRETENDING it is applicable to ALL users of L-dopa. This is also very confusing for the not so knowledgable amongst PWP. Why is it IMO not applicable in general: 1) it is P'ism, not PD. 2) P'ism doesn't respond as well to L-dopa as PD. So this family is an exception. 3) they talk about the experiences with only ONE family. Exception again. 4) in this family P'ism has affected them for a long time, therefor they could compare those affected before L-dopa was available and those that were treated after l-dopa was available. Such a long history of P'ism and in so many family members in more then one generation is also very rare, rare and rare. The study perhaps is of some value as a very exceptional case history. The rest is all air. Hans.