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Jane... You MUST continue to submit a request for SSDI/Medicare to the Social Security Department, no matter how many times they turn you down! "MUST," because it will be presumed by them that since you stopped petitioning them for SSDI, that you are no longer suffering from the cause of your disability - in other words, SSDI will declare you to be CURED of Parkinson's! (incredulous look on gorgeous face) From my own nightmare experiences with SSDI which caused me emotional grief such as I've never ever experienced before in my entire life, I was none the less able to be awarded my SSDI benefits not only once, but TWICE over a period of several years with each attempt. DON'T GIVE UP, m'dear! Barb Mallut [log in to unmask] -----Original Message----- From: JaneRoss <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Saturday, May 29, 1999 1:33 PM Subject: Re: All dreams must end. >Ivan, >You are precious, and I appreciate your concern, but who would I petition? >The hospital that let this happen or Medtronic, or the insurance company. >Once I can focus on who is at fault it will be much easier. > >I follow your plights on the List and think there must not be an end to the >persecution for the infirmed. > >>Maybe you could benefit from a PETITION, Jane. I am still struggling to >>achieve a >>agreement with the City of Portland, and now, the petiiton from the List >>that I have >>printed out will put pressure on it. >> >>Ivan >>:-) >> >>On Fri, 28 May 1999 21:14:32 -0700 JaneRoss <[log in to unmask]> writes: >>>The discussion seems to include me let me say I would never try to >>>discourage anyone the feeling of freedom that I had these past three >>>years. >>> >>>It was like a dream. As most of you know I had experimental DBS >>>surgery >>>three years ago that my insurance company refused to pay for. My >>>insurance >>>company was the ONLY insurance company to deny payment. I believe >>>the >>>other patients were covered by medicare. >>> >>>Several years ago a social security judge declared that I wasn't fully >>>disabled >>>when I quit working and I was denied my Social Security rights so I >>>don't >>>have medicare. >>> >>>Now I have a dead battery on my right side. They want to take my >>>left >>>battery and place it on the other side so I would get possibly get a >>>couple >>>of more years out of it and would disable my left side which since >>>the >>>surgery has almost stabilized even when turned off. >>> >>>I have put off calling them to see where I stand with my insurance >>>company >>>but Monday I must face reality. I will call. >>> >>>This has turned into a nightmare for me, It is like giving a child an >>>ice >>>cream cone then just when they find out how good it is, take it away. >>>I >>>want my stimulator back! >>> >>>jjjane >>>http://www.geocities.com/soho/village/6263/pienet/people/hithro ss.html >> >>^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) >> Ivan Suzman 49/39/36 [log in to unmask] :-) >> Portland, Maine land of lighthouses deg. F :-) >>**************************************************************** **** > > >jjjane >http://www.geocities.com/soho/village/6263/pienet/people/hithross .html >