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Patient perspective and self-help.

Effective adaptation to PD demands that patients and their caregivers
elaborate coping strategies that empower them and promote a more salutary
orientation to formidable psychosocial difficulties and thus, perhaps,
blunt or prevent depressive responses.

Patients and their loved ones should be encouraged to seize the initiative
in terms of promoting an acceptable life-style: in short, "breaking
through" rather than "breaking down."

The notion of a "healthy" PD patient is not necessarily a contradiction in
terms if the patient and family can be encouraged to view organic disease
as a learning opportunity, continuing to find meaning in life despite the
inevitable threats to identity posed by PD (e.g., loss of work).

PD patients and their families may benefit by grieving (over a finite
interval) or observing other rituals associated with universal life changes.

These adaptive processes should be promoted in the context of a trusting
physician-patient alliance that addresses both the biochemical foundations
and adverse psychosocial consequences of PD; the latter problems require
that the clinician or nurse furnish both education and emotional support.

Three well-established phenomena from the depression literature must be
combatted:

1. a normal depression reaction associated with the failure to attain
closely held life goals;

2. outer locus of control, in which PD patients may perceive that the
disease is dictating their existences; and

3. learned helplessness, which may result when coping behaviors are not
positively reinforced.

Neurology 1999;52(7 Suppl 3):S26-8
Andersen S
Danish Young-Onset Parkinson Group, Silkeborg.
PMID: 10227608, UI: 99242147
http://www.ncbi.nlm.nih.gov/

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janet paterson   52 now 41 dx 37 onset  [log in to unmask]
613-256-8340   PO Box 171  Almonte  Ontario  K0A 1A0  Canada
a  new  voice  <http://www.geocities.com/SoHo/Village/6263/>
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