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Dear Colleagues,
   Don't write much for the list these days.Busy with my PD newsletter, the GOOD TIMES NEWSLETTER. It's fun and the most fun is giving a voice to someone who has never been published but is an obvious talent.Such is the story with Pat Willard. Pat is a secretary at the Concord(MASS) Council on Aging. One day she told me about some friends; the husband had PD and the wife was his caregiver  until one day the wife had a heart attack and suddenly the patient became the caregiver. Pat's question to me had to do with how could this obviously ill man take care of his obviously ill wife

   I explained to Pat my theory about how some, may be many PWP, when challenged are able rise to the occassion. To feel out of their isolation, to feel needed,to feel the mist clearing away from their rusted brains and when the family joins in the fight then the PD may well retreat.Who Knows?

 Please feel to send any thoughts you may have about Pat's writing or the story to pat at  [log in to unmask] or/and me at [log in to unmask],com

THE STORY>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

FRIENDS OF OURS
RISING TO THE OCCASION
BY PAT. WILLARD
Special to the Good Times Newsletter
Friends of ours have recently been making some life-style changes
partly because they are now approaching their mid seventies and the
husband has Parkinson's.  He has had a very positive approach to his
treatment and has worked well with his physicians in determining the
methods and doses of medications.  He also has been very good about the information with friends and family and encouraging conversation
about his issues.  However, time marches on and there was an obvious
advancing of his disease.  His eyesight and ability to drive have
been greatly hampered.  Needless to say, we all worry about his progress,
especially his wife.  They were living in a remote area of New England
for six months or more of the year. Prior to leaving for Florida in
the fall for their second home, they, with great reluctance,  sold
the New England home and arranged for a new house to be built close
to family to be ready for their return in the spring.  This new home
was built with the ideas available for seniors and the distinct possibility of disability ahead.
  Early December their lives took a turn when the wife had a heart attack. She was able to be in a local hospital which was fortunate for the
husband.  By January there were other issues in her health that weren't
being diagnosed easily.  By this time she was being treated regularly
in this hospital and in  the facility in a nearby town.  The husband
was becoming very exhausted but still able to manage the house and
her transport with some help from a nearby family member.  By the
end of February this had taken a toll on everyone.  It was at this
point that the problems were diagnosed.  It was discovered that she
had an aneurysm and a rare infection that had attacked her spine.
 The outlook was very grim.  She was moved to a large facility
60+ miles away, the very large family gathered around the father,
all staying at a hotel facility connected to the hospital. Fortunately,
the prayers were answered and she is on the long road to recovery.
 After a month in the hospital, she was moved to a local rehab which
is easier on him.  That was a month that he lived in  a hotel, eating
fast food, Chinese, etc.  However, now that she is close to home,
he has moved back into his own home and their adult children are taking
turns flying down and staying with him and driving him there each
day. to see him and driving him to visit her each day.   She will not be
released until she can be mobile and he can put her "turtle shell"
on and off each day plus see to her general care.  A big order for
him!!
  Now, on to the point of the story.  All during this my thoughts were
how could he sustain his strength and ability to cope through this?
When we were able to visit with her in the hospital and spend time
with him, we were amazed.  He was looking very well and could recite
in detail every procedure that his wife had been through, medications,
etc.  My first question to him.  "How are you? really?  His response
was that aside from being very tired (as everyone involved was) he
felt well and that he seemed to be better than he had been for a long
time.  He didn't know how this could be considering all he had been
through and all there was yet ahead of them, but he felt up to the
challenge.  The role of caretaker and been reversed and out of necessity
he would have to do this.  The other factor was that the children
had rallied around and he was feeling the positive reinforcement from
this.
  We felt uplifted to see this couple with 50+ years of marriage behind
them facing this battle and meeting the challenges head on.  They
are looking forward to being in their new home in New England some
time this summer.  How fortunate that they made the decisions last
summer that will enable them to do this.  (God doing a little prep
work ahead of time?)  We hope and pray for her ongoing recovery and
for his continued strength and good health.