>Dear All,
>
>I am Vinay Bansal, and have joined the PARKINSN mailing list today.
>
>My mom has recently been diagnosed with Parkinson's Disease and that is why
>my interest in PD. I had until now heard of PD in media only and had no
>knowledge of the disease. I am now trying to dig out all possible
>information and determine if a cure exists.
>
>My mom is leading a normal life except for the fact that her left hand (only
>the palm) trembles slightly. She has also started having some memory loss,
>though it is very occasional and limited to trivial matters. The doctors
>have at this stage suggested an exercise regimen (yoga exercises) and a
>medicine (I can supply the name for those who would like to know). I would
>be grateful if you could share your experiences with me and any possible
>suggestions that you may have.
>
>Bye
>Vinay
Hi Vinay-- you'll find lots of info and personal stories oin the PD
webring. Also, you can call the various PD organizations for a lot of free
and excellent literature. Where does your mother live? Tell us more about
her situation, meds, symptoms, etc. and folks can be more helpful.
Search the parkinsn archive online at:
http://james.parkinsons.org.uk
################
Here is a partial list of useful addresses,including some internet sites,
culled from various sources:
*National Family Caregivers Association: (301)942 6430
1 800 896 3650
* The easy way to find a movement disorder specialist is to dial
1-888-400-2732. This toll free number will ring in the American Parkinson
Disease Association Information & Referral Center.
* Addresses for national PD organizations:
American Parkinson Disease Assn.(APDA)
60 Bay St.,Staten Island, NY 10301
(800) 223-2732
http://www.apdaparkinson.com/ (includes directory of support groups)
Parkinson's Disease Fndtn ( now merged with United
Parkinson Fndtn.)
710 West 168th Street 3rd floor Chicago office: 360 W.
Superior St.
New York,NY 10032 - 9982 Chicago,IL 60610
212 - 923 - 4700or 312-664-2344
800 - 457 - 6676
National Parkinson Fndtn.,Inc.
1501 Ninth Ave. NW, Bob Hope Road, Miami,FL 33136
(800) 327-4545
http://wwwparkinson.org
Parkinson Action Network (PAN)
822 College Ave.,Ste.C
Santa Rosa,CA 95404
(800) 850-4726
http://www.pdaction.org/ (political action/advocacy for PD
research funding)
* Parkinson Disease Archives
http://www.impulse.net/~gjohnson (medical journal abstracts,
maintained by APDA)
* Parkinson Disease Home Page
http://www.santel.lu/SANTEL/diseases/parkins.html (lists links to
websites)
* Parkinson's Web
http://www.pdweb.mgh.harvard.edu (medical aspects,from Harvard
Med .School
and Massachusetts General Hospital)
* National Institute of Health Research News Parkinson's Disease
http://www.nhgri.nih.gov/DIR/LGDR/PARK2/
* Awakenings
http://www.parkinsonsdisease.com/ (open forum--latest news on
treatments)
* Neuroscience Journals Online
http://www.xmission.com/~gastown/dorrell/neurojnl.htmP
* --products and services for incontinence-see the "Resource Guide"
published by the National Assn. for Incontinence, PO Box 8310,
Spartanburg,SC 29305-8310
1-800-252-BLADDER, OR see their website at Http://www.nafc.org
Camilla Flintermann, CG for Peter 80/9+
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
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