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BRAVO Ivan!! If we PWP's are finally gonna be SEEN by the world , we might as well give that world an accurate idea of our numbers! I'd be willing to bet the count of persons with Parkinson's and related diseases and disorders (Shy Drager, etc.) is actually up there in the MULTI-millions! Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, June 04, 1999 10:18 PM Subject: P.A.N. Petition UNDERCOUNTS PWPs? >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 70 deg. F :-) >^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ^^^^^ >This is a controversial message- but it is necessary for me to >get this off my chest. > >I take issue with the PAN Petition's accuracy. > >Numbers are VERY important. > >Why is the PWP number only 1,000,000 in the Petition? > >I think that the NPF and the APDA both conservatively estimate 1.5 >million >American PWP's. Please help if I am incorrect. > >Even 1.5 could be a substantial undercount. Many, many sub-populations >of unknown and UNDIAGNOSED PWP's, such as the instituionalized, the >high-rise elderly, the poor, the rural, the ghettos and barrios of people >of color, and those who hide in shame of their symptoms are well-known to >exist. > >There are also the unknown numbers of pre-symptomatic PWP's who exist, >in the absence of a standard dopamine deficiency test before VISIBLE >symptoms appear. > > > The P.A.N. petition says there are 60,000 new cases per year in the USA. > That means that every 16 and two-thirds years, the entire current crew >of PWP's would all have to have died off.(60,000 x 16.67= 1,000,000) > > Can P.A.N. 's petition numbers be changed before copies are submitted? >They are almost certainly doing us a DISSERVICE. > >Ivan :-( >