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On 13 Jun 99 at 18:20, Norma Myhre wrote: > My name is Norma Myhre and new to the PARKINSN list. I started having > tremors 3 1/2 - 4 years ago and was diagnosed with PD this past March. I am > a participant in a 2 year study and I am taking either Sinemet or > Ropinirole. The tremors seem to be mostly under control but am having > trouble with cramping in my arms, hands and slightly in the legs, sleepless > nights and achiness. Thank you all for sharing information on these > problems and others. > > I have an odd problem in that I have experienced a persistent abnormal smell > for the last 2 1/2 years. No one in the family, friends, and especially > those who claim to have a very keen sense of smell can detect the odor. > After CAT scans, x-rays and other tests of the sinuses and nostrils, I was > told it was something I probably will have to live with. I even went to a > hypnotist without any help. Very frustrating! In reading the "The PDF > NEWS" Fall/Winter 1998-1999 issue under "Mary's Mailbag" on page 14 there is > an article "What's That Smell?". It says "We've heard from some PWPs > who've lost their sense of smell, from others who complain of persistent > abnormal smells, .........". Last Monday I sent an e-mail to the PDF > Organization asking for help but have not heard from them. I have also > asked for help from the neurologist but to no avail. > Norma, this is an interesting post.... I seem to have lost my sense of smell most of the time, but at other times I'm convinced I can smell something "abnormal" but no one else seems to know what I am talking about.... I worry that perhaps my body releases chemicals and I smell bad due to my daily intake of drugs but I have been reassured that it is not the case. Any ideas anyone?? > > Any information or referrals you might have will be greatly appreciated. > > Thank you. > > Norma > all the best Norma and welcome to the "PIEnet"... Murray [log in to unmask]