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It's been awhile since I posted anything to the list. Lots of changes causing lots of stress. Many of us are being diagnoses in our late 30s to early 50s, at a time when a lot of our marriages are going into some new phases as well. I found an excellent resource book, "Surviving Your Spouse's Chronic Illness" by Chris McGonicle. It is well written, in simple terms, by caregivers who have been there. It covers the good, the bad and the ugly, and does it in a non-judgmental way. If you are a caregiver who doesn't have a support group, this book might help. If you are the spouse with the chronic illness, this book might help you understand some of what is going on, at least it did with me. It also makes you aware of some of the decisions you might need to think about in the future. I cant say I enjoyed reading this book, it made me cry, laugh, nod and agree, and want to say "no, that isn't right" etc. Its hard for me to read a book these days, the pages shake too bad. I read this one cover to cover without stopping. I hope this helps someone else bob