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-----Oorspronkelijk bericht----- Van: Charles T. Meyer, M.D. <[log in to unmask]> Aan: [log in to unmask] <[log in to unmask]> Datum: zaterdag 12 juni 1999 16:13 Onderwerp: Re: Dyskinesia and STN Charlie, >> report from "Brain". << IMO the article says that a "wrong" combination of voltage and pulse can cause dyskinetic-like movements. >> The experience of the surgeons with STN is not great and it is quite possible that they have set the stimulator too high too fast. << If I were your doctor that has little experience, I would have chosen a slower approach. >> Hans do you have STN yourself << NO, but I know a few PWP with DBS and one with a bi-lateral DBS of the STN. He could -within a certain range set by the doctor- adjust his settings. Is that possible for you? >> no more than about 1.6 (from memory) and the frequency much higher per Dr. Pollak. << I think that is individually different, so doesn't have to be right applicable for you. If you want to establish the cause of the dyskinesias: [ IF you are going to do this, I STRONGLY advise you to consult your neuros FIRST] Day one: Left stimulator OUT, riight one ON, take meds and see where dyskinesias appear. Day two: Right one OUT, left one ON, take meds and see again what happens. Day three: Both OUT (as long as you can sustain that) , take meds and see. Day four: Both ON, NO meds and see. DAy five: Left ON, rIGht OUT, NO meds. DAy six: Right ON, Left OUT, NO meds. Through combining the results, you can see what (combination) is the cause of the dyskinesias. Perhaps this is easier: you insist with your neuros: 1 ) they ask for advise from THEIR teachers-neuros. 2) adjust your settings sooner as planned , or at least let them explain how this is caused. NB: last friday there was a meeting of doctors from france, holland and belgium about DBS of the STN etc. I was invited but could not attend because of another appointment. I shall ask if there are any transcripts available. Hans.