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You may be surprised that your sad face prodded a little boy to be curious
and, therefore, caused his granny to reflect on your words.  Maybe the
granny has come across others who are, also, suffering from PD or other
illness and this was the "straw" that moved her into educating herself about
PD.

Teresa, Daughter of Mama (57/43/38)

-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of Elizabeth Leslie
Sent: Saturday, June 12, 1999 1:11 AM
To: [log in to unmask]
Subject: ... ANOTHER DAY IN THE LIFE ... of a VERY sad face.


While I think I'm slowly - a la bradykinetic mode <g> - coming to terms
with the strange face that often confronts me in the mirror, I was totally
unprepared for this exquisitely poignant experience recently that left me
feeling unspeakably down for days.

I was in a crowded department store restroom in the city, standing drying
my hands, when I heard a little voice say " ... a VERY sad face."  I looked
down and there was a little boy of about 5 (under 6-yr old boys aare
permitted in women's restrooms here) looking up at me.  He looked
frightened, but nodded 'yes' when I asked him if it was my face he was
talking about.  So I told him gently that I have a disease that sometimes
makes it hard for me to smile, and said something pretty hollow about being
'happy on the inside' - obviously a lie because close to end-of-dose and
tired, as well as being acutely 'touched' by the child's need to 'speak
what he saw' I was struggling against tears.  His granny was very
apologetic, saying "there's nothing quite like the brutal honesty of a
child".  She thanked me for not taking offence, and I asked her if she'd
use the incident to teach her grandchildren about PD ... I hope she did,
but she probably knows very little anyway.

I cried on/off for about 2 days aafter this incident, but the strange thing
is that looking back on it I realise I'd found myself - not for the first
time - in the ironic position of comforting and reassuring others over what
was clearly an 'injury' to me ... like immediately post-dx when, to my huge
surprise, I spent a lot of time comforting distressed family and friends.
On reflection, this reaction is healthy because it forces me to step out of
my own immediaate anguish, but it puzzles me too.  Is it just a female
response? do we revert to some innate nurturing role in situations like
this?  Do blokes feel/do it too?

I wanted to post about this earlier, but to be truthful it just hurt too
much. So thanks Sandy and Barb for opening a space I feel OK enough in to
air it - Sandy for what you say about eyes ... reminding me that my friends
often remark on the light and life in my eyes ... and Barb for reminding me
of something I know but don't always remember - that facial expression can
be as much a matter of habit as of mood/affliction.  It's funny that in our
far distant 'corners' of the globe we're playing the same games ... for
some time I've been confronting people's gazes/stares with bold eye contact
followed by whatever semblance of a 'dazzler' I can muster at the time, and
it never fails to throw 'em ... but it's probably a fine line we stumble
between being perceived as pleasant <:-)-ing> personages or as labile
<g-ing> ... ? loons.

:)s and <g>s to you all

Beth Leslie 55/52/?40
Fremantle
Western Australia